Aspergers and Medication
"Are there any medications on the market to treat a child Asperger's Syndrome? If so, which ones have had the greatest benefit to those with the disorder?"
Because there is no identifiable biochemical problem in Aspergers Syndrome or High-Functioning Autism, and because many researchers believe the syndrome is a result of fundamental changes in the brain structure, medications will probably never treat or cure it. On the other hand, there are several medications that have been found to control some of the symptoms of Aspergers Syndrome or the comorbidities found with the condition.
A medication called atomoxetine has been found to improve some of the aspects of Aspergers Syndrome that mimic those of attention deficit disorder. Several studies have used the drug to reduce symptoms of irritability, social withdrawal and repetitive speech seen in this disorder.
Medications normally directed toward treating obsessive compulsive disorder have been tried in children with Aspergers Syndrome who have shown obsessive and compulsive tendencies. While the medication doesn’t treat some of the core symptoms of Aspergers Syndrome, it has been shown to improve OCD symptoms.
Antidepressants can be attempted in those Aspergers individuals who suffer from secondary depression. The depression isn’t generally a part of the Aspergers Syndrome itself, but is found as a result of some of the distressing life circumstances often found in Aspergers Syndrome. Many of these children and teens know that they do not fit in with others, and while some prefer social isolation, others lament their lack of ability to get comfortable dealing with others. This and other issues of self-esteem, etc., can lead to depression, which is often manageable with antidepressant medication.
Finally, people with Aspergers Syndrome often suffer from debilitating insomnia. While it’s best to use non-drug ways of controlling the symptoms, some people can make use of sleeping medication that doesn’t have to be addicting. Sometimes a short course of sleeping medication can get the individual back into a regular sleeping pattern.
Medications directed at anxiety may be necessary when the person with Aspergers suffers from nervousness or irritability surrounding their life situations. "Aspies" can become quite distressed by things not being the same or as expected, and anti-anxiety medication can help with this.
In truth, there is no single medication or class of medications that works to treat many of the core symptoms of Aspergers Syndrome. Some of the secondary or related symptoms can be effectively managed, however, with certain psychotropic medications.
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Best comment:
Medication will help in very specific ways. Medication helps in reducing panic attacks, anxiety and aggression and explosive behavior. AS kids have restricted interests by definition of the disorder. They focus in on details on whatever it is they are talking about. Even with medication. But it helps to have the medication reduce some the stress. A good book to refer to for doses for AS kids is "Clinical Treatment of Autism" by Dr. Eric Hollander (From Mt. Sinai Autism Center) For example, AS kids start at low doses of Zoloft (25mg up to 50mg) or Prozac (10mg up to 20mg).
What else is needed is a different approach. Many activities need to be rehearsed in very small steps over years of exposures. And with a positive reinforcement plan. I have found Yale University Parent and Child Conduct Clinic very helpful. I have been trained by them on the phone over the last two years.
Here are some strategies:
1) Avoid stores with him until you can work on a behavior plan with him on this. When you have time, he needs to be taught to shop from a list, stick to a budget, ignore items he sees that are not on the list and that shopping is a reward to be earned by doing both. Tagging along with parents shopping is going to be irritating to him for a long time in the future.
2) Only pair him up with kids that are younger or not challenging personalities. Make the social activity predictable (movie, with defined snacks), or (park and a drink and chips we bring with) or (bowling 2 games and a snack and drink). Rehearse the social activity. And praise all positive behavior. Often as they get older, they will start to be able to be more flexible with peers.
3) Practice talking at meals about pleasant things that others are interested in. Don't allow dinners to be all special interests all the time. Practice at some meals taking an interest in the parent’s interests or other members of the family. This is a skill that takes time to develop. If he was shut out of conversation all day at school, then dinner may be his time to talk about his interests. It may have to wait until a less stressful time of the year to practice this skill.
3) Church is going to be difficult. All those people and the noise from all directions. It is an irritating place for many AS kids. My daughter goes to Sunday school (and I have taught the class for 8 years) not church services (except for Christmas and Easter when there is lots of music and we attend the children's mass).
I think parent's need support from a behaviorist. Parents of typical kids and teachers will not understand that these kids need very small steps and exposures to life in general.
Teachers and school staff will push too hard, it is only a certified behaviorist of autistic kids that understand behavior shaping is a slow process of gradual change with positive supports.
A better day for your son would be:
1) Lunch at his favorite place with you only. Agree on your limits ahead of time. The less limits the less irritated he will be. So pick an affordable place with food choices that you approve of.
Practice menu choices. Without a fight. Practice budget. When he can go to the lunch place without a meltdown over menu choices he is ready for your boyfriend to be there and then his son.
The goal of this exercise is to have a positive social experience. Don't expect to go to a busy noisy rushed place at lunch on Saturday with a group of people and expect him to be well behaved. It all has to be rehearsed and practiced.
2) Find him a church setting where there is very small Sunday school groups for kids his age. Let the teacher know he needs support and understanding.
3) Melatonin tablets are very helpful for relaxing AS kids at bedtime. This really works. The Mayo Clinic recommends them an hour before bedtime. I forgot the dose I use for my daughter, look at the Mayo Clinic web site on Asperger kids and medications. It has made a huge difference for my daughter. She use to get very anxious and had a busy mind at bedtime. Now she is asleep within an hour.
4) Follow this plan: One outing a day, one place, and allow 1 hour or more. Don't rush him to leave. Give him a warning. Offer a small reward if he leaves calmly when it is time.
There is so much to share about parenting an AS child. This is a rushed summary, and I am rushing through the details. But it is meant to give you an idea of the strategies that work. You will find a behaviorist very helpful. Yale was affordable for me. $75 for 45 min and I did get some money from insurance back.
More comments:
• Anonymous said... 1. It's not a 'disorder' 2. No there is no suitable medication 3. Start finding ways to ease the anxieties, not turn children into Zombies with drugs. Rant over
• Anonymous said... Allison, My almost 12yr old grandson has been on Risperdol since he was 3. He has had no side effects other than weight gain which is under control with diet. His parents did take him off one summer & everyone, including our Aspie, was miserable due to daily meltdowns. Monitor closely but don't let peers pressure you to DC meds for no good reason.
• Anonymous said... Catapres nightly to assist sleep (age 7)
• Anonymous said... Dietary changes, ABA & OT therapy, and counseling have all been beneficial for our son/family. Our son no longer does OT, counseling is on an as needed basis and he'll most likely be done with ABA therapy too. As for the diet, that is a lifestyle change. We've also found great support through our church family & getting him involved with youth group & more structured type activities that he enjoys.
• Anonymous said... Everyone is entitled to their opinion, so this is mine. Why do people get so tetchy over words? Who cares what it is called as long as no offensive words are used. Why are people so against medication? Surely it is up to the individual parent. I know for sure I would much rather my daughter be stable than having her slit her wrists all the time because her mother didn't think she was worth enough to help her with medication. Many other therapies have been tried but failed because of her lack of communication ability be it verbal or otherwise. I would not deny my daughter calpol if she had a headache and would not wish for her to suffer the pain instead so who am I to deny her a chance of an anxiety free life just because of my belief against medication! Rant over!!
• Anonymous said... Go to the Amen clinic. They are wonderful!
• Anonymous said... I always caution, when considering medication for children, people to make sure they clearly weigh the pros and cons. Some medications for social issues (depression/anxiety) end up seeming to work and then backfire with symptoms that are even more aggravating including suicidal tendencies or violent outbursts. For so many medication works for many things, but since, as the article says, autism has not been found to be any particular imbalance that can be corrected, it may well be the best option is for us to make our environments more aspie/autism friendly than to try to force change at a medicinal level in them.
• Anonymous said... I would suggest starting with therapy, and see what direction that sends you in. There are so many medications you can put them on but lots of them have many cons.
• Anonymous said... I would suggest therapy also. Our son is not on any meds, but has been seeing a therapist for 2 years, and it has made a world of difference in his behavior. Medication may help some, but for us, we want that to be the very last option we choose.
• Anonymous said... My boy uses meds to help with his focus at school. I have had to educate our school a lot about reinforcing bad behavior. Education is the key. I would probably use meds even if we homeschooled. He tells me it is liked having steering and breaks. He feels more in control.
• Anonymous said... My daughter was on Risperdol and went off the deep end. She hasn't been on any meds (except melatonin) since age 7. Now shes in full blown puberty and NEEDS anti anxiety meds. No amount of therapy has helped, and she could hurt herself or someone else if she can't calm down.
• Anonymous said... My son began taking medication for anxiety when he was a teen. It has helped a ton. He still gets anxious, but it is not completely debilitating anymore. The medication side effects are very minimal as he takes a low dose.
• Anonymous said... My son is an aspie that also has adhd. He's six and takes vyvanse and tenex. I hated putting him on meds but sometimes you just have to.
• Anonymous said... Risperdol has been a life saver for my 14 year old son with Asperger's. His aggression has reached scary proportions and this med has helped with his anger and meltdowns. He also takes Lexapro for his high anxiety. I agree that it's the parent's choice...we all want the best for our children medicine or not. I honestly do not think my son could live with our family if he wasn't on medication.
• Anonymous said... risperdol has been a life saver for us as well, though with my son only being 5 years old I'm not sure how long I'll be willing to keep him on it, at least not for long term, we're thinking to just use it for the months he's in school. He also takes Fluvox for his OCD which has really helped him as well.
• Anonymous said... There is no medication for Asperger's. There are, however, medications for comorbid diagnoses such as OCD or ADHD. For Asperger's in and of itself, there is none.
More comments below...
More comments:
• Anonymous said... 1. It's not a 'disorder' 2. No there is no suitable medication 3. Start finding ways to ease the anxieties, not turn children into Zombies with drugs. Rant over
• Anonymous said... Allison, My almost 12yr old grandson has been on Risperdol since he was 3. He has had no side effects other than weight gain which is under control with diet. His parents did take him off one summer & everyone, including our Aspie, was miserable due to daily meltdowns. Monitor closely but don't let peers pressure you to DC meds for no good reason.
• Anonymous said... Catapres nightly to assist sleep (age 7)
• Anonymous said... Dietary changes, ABA & OT therapy, and counseling have all been beneficial for our son/family. Our son no longer does OT, counseling is on an as needed basis and he'll most likely be done with ABA therapy too. As for the diet, that is a lifestyle change. We've also found great support through our church family & getting him involved with youth group & more structured type activities that he enjoys.
• Anonymous said... Everyone is entitled to their opinion, so this is mine. Why do people get so tetchy over words? Who cares what it is called as long as no offensive words are used. Why are people so against medication? Surely it is up to the individual parent. I know for sure I would much rather my daughter be stable than having her slit her wrists all the time because her mother didn't think she was worth enough to help her with medication. Many other therapies have been tried but failed because of her lack of communication ability be it verbal or otherwise. I would not deny my daughter calpol if she had a headache and would not wish for her to suffer the pain instead so who am I to deny her a chance of an anxiety free life just because of my belief against medication! Rant over!!
• Anonymous said... Go to the Amen clinic. They are wonderful!
• Anonymous said... I always caution, when considering medication for children, people to make sure they clearly weigh the pros and cons. Some medications for social issues (depression/anxiety) end up seeming to work and then backfire with symptoms that are even more aggravating including suicidal tendencies or violent outbursts. For so many medication works for many things, but since, as the article says, autism has not been found to be any particular imbalance that can be corrected, it may well be the best option is for us to make our environments more aspie/autism friendly than to try to force change at a medicinal level in them.
• Anonymous said... I would suggest starting with therapy, and see what direction that sends you in. There are so many medications you can put them on but lots of them have many cons.
• Anonymous said... I would suggest therapy also. Our son is not on any meds, but has been seeing a therapist for 2 years, and it has made a world of difference in his behavior. Medication may help some, but for us, we want that to be the very last option we choose.
• Anonymous said... My boy uses meds to help with his focus at school. I have had to educate our school a lot about reinforcing bad behavior. Education is the key. I would probably use meds even if we homeschooled. He tells me it is liked having steering and breaks. He feels more in control.
• Anonymous said... My daughter was on Risperdol and went off the deep end. She hasn't been on any meds (except melatonin) since age 7. Now shes in full blown puberty and NEEDS anti anxiety meds. No amount of therapy has helped, and she could hurt herself or someone else if she can't calm down.
• Anonymous said... My son began taking medication for anxiety when he was a teen. It has helped a ton. He still gets anxious, but it is not completely debilitating anymore. The medication side effects are very minimal as he takes a low dose.
• Anonymous said... My son is an aspie that also has adhd. He's six and takes vyvanse and tenex. I hated putting him on meds but sometimes you just have to.
• Anonymous said... Risperdol has been a life saver for my 14 year old son with Asperger's. His aggression has reached scary proportions and this med has helped with his anger and meltdowns. He also takes Lexapro for his high anxiety. I agree that it's the parent's choice...we all want the best for our children medicine or not. I honestly do not think my son could live with our family if he wasn't on medication.
• Anonymous said... risperdol has been a life saver for us as well, though with my son only being 5 years old I'm not sure how long I'll be willing to keep him on it, at least not for long term, we're thinking to just use it for the months he's in school. He also takes Fluvox for his OCD which has really helped him as well.
• Anonymous said... There is no medication for Asperger's. There are, however, medications for comorbid diagnoses such as OCD or ADHD. For Asperger's in and of itself, there is none.
More comments below...
Comments
He is anxious and stressed about the smallest things from going out in the car to having to share a toy or the tv. He constantly worries about stuff when we tell him everything is okay. We are so over it and were wondering what kinds of meds are out there for kids with anxiety that have aspergers?????
He does get social skills classes but this doesn't seem to be helping enough.
The school has been pressuring us for years to get our son medicated, and I have pushed back every step, since medication and it's long-term side-effects terrify me. However, I am starting to worry that the side-effects may be less harmful than if he continues as is. I also worry that he is starting to go through puberty, which makes him even more unpredictable.
He is now in the sixth grade, has been getting in trouble every day and his grades are steadily dropping. I have gotten him with a therapist and she says he is a child with aspergers.
I am trying to get him in with a medical doctor who specializes with aspergers but until then my son has two symptoms that I need to be able to find a way to help him with until he sees the doctor. One symptom is that his hands shake (sometimes you can visually see and sometimes you cannot). This of course causes handwriting problems. The other symptom is stomach issues. He either has stomach pains that are pretty troublesome in that they wake him up or he has to come home from school or he has diarrhea that gets him in trouble for having to go to the bathroom quite frequently.
Is there anything I can do until he gets in with the specialist??? Help!!
She's now on Lamotrigin, an anti-convulsant normally given epileptic people and it workes wonderfully. She even has times when she's easy going! She also takes a small dose of anti depressants. As a scientist myself, I feel I can safely say that medications can help our Aspies, even though they do not work on the syndrome itself.
Does anyone have any information as to wether a 4 year old can be diagnosed with AS this early? Also have any of you heard of an MRI being helpful in seeing how their brain is responding and getting a more clear Dx?
Thanks and God Bless to all you strong families with Special ones!
Anyway...his Psychiatrist asked if we wanted to try meds. At this point we really had no choice as he wasn't functioning at all. Home was awful...don't even talk to me about school. Anyway she put him on Risperdal the M-tabs so his weight gain wouldn't be as bad since that is a side effect.
He was a totally different kid within 2 weeks. We were awe struck and still are. We have 4 kids and he is by far the most polite, sweetest, generous and thoughtful of them all:)
Our 18 year old with very high functioning aspergers is in his senior year at a school for kids with learning differences. He's doing fine academically but continues to struggle with anxiety and depression...it's hard to know which comes first or if they are separate issues. He doesn't cope well with stress/anxiety...I see a pattern of withdrawing from situations that appear to be going very well for him from our persepctive, but which present too much anxiety for HIMSELF. For example, he will just quit an activity that he has loved for a long time and in which he has done very well when it comes time for him to assume or continue in some leadership role. This happened in sports (very gifted baseball player), ROTC type program, and an Explorer type program. Additionally, he is a very rigid thinker and rule follower which I'm sure complicates his anxiety level around some of the structured activities he enjoys when things haven't gone the way they "should" or when other kids aren't following the rules. He can be very stubborn too...after making a decision that he won't do something anymore, it's almost impossible to get him to change his mind through reason. We believe that his anxiety anticipating things is very high...for example, on the day of the test last year he refused to take the ACT. Similarly, he has driven fine for the past 2 years with his permit, but he just will not go and take the test to get a real drivers license when we suggest taking him.
He has also done some cutting, and this has been situational rather than continuous behavior (for example, after a breakup with a girl). As parents, we see anxiety more of the issue than depression since he's upbeat/content during the summer and vacations. He has also successfully held a very part time retail job during Christmas and summer breaks that requires dealing with the public and other employees, but no stressful responsibilities. The feedback we get from his coworkers is incredible. But even in that, we usually have to push him to go back "I won't know the answers to customer questions", he says, because stock changes so much between the times he works.
Except for a brief crisis period when he was 15, he's not been on any meds as we tend to want to go "natural" after seeing some worrisome facial tic development during that brief time (all resolved once off meds). First, I see this as positive in that he is self advocating for himself. His current counselor is a P-LCSW who has had a lot of experience working with kids with aspergers. In private discussion with him, he is in agreement that a med might be helpful. But we want to maximize the chance that the first med he takes is the best choice. Since the issues with our kids on this Board are often very similar, I'm asking any of you that have young adult children for your feedback about meds that have helped in the areas I've described above. (or ones that have serious negative side affects too please). I know nothing about meds. I apologize to whomever this might offend, but I put more trust in the experience of the parents on this board than I do the suggestion of a new psychiatrist who isn't a specialist in aspergers.
Your son is asking for help. Please give it to him. Natural is good in it's place, but this isn't it. Antidepressants can help greatly. So can anti-anxiety meds. Every kid is different so it would be impossible to give you an exact recomendation. If you can choose a child psychiatrist. The cutting really concerns me. He's not just asking for help, he's begging.
Give it to your child EVERY morning( at least M-F). Let him/her drink 1/2 to all of it. You will see some changes every 9 weeks. I call it the:
Saldiver-Keller Aspergers Shake:
3- small spoons lentils cooked**
2- organic eggs (white only)
3-4 - strawberries
few - blueberries
Mix these ingredients in a Magic Bullet or one similar.
Then add:
1- banana
fill- it with crushed ice (or whole)
some -milk for liquid
Mix it again until it is all mixed.
** heat water, then add lentils 1/2 a bag. Simmer for 30 mins. Put it in a tupperware for daily use.
Counseling has helped to a whole lot too. She sees a psychologist once every 1-2 weeks. She goes in alone and spends about an hour in there. I don't hound her about what they talk about. I just ask how it went and did you talk about anything interesting. The answer is always "fine" and "no" but at least she knows I'm interested. If we are having a problem at home, I'll discuss it with the psychologist before she goes in. She doesn't like that but it usually helps. Every once in a while I got into the appt with her if we need to talk about something together.
Strict rules and consequences/rewards have helped us too. We have to be strict with the rules. She does understand "just this once". It is either yes or no, on or off and never in between. Consequences and rewards have to be immediate with her and they can't be long term. One (maybe 2) days of no electronics is the usual consequence. She doesn't comprehend a week long punishment. Same thing with rewards. She can't do the 'if you do this for a month (or even a week), you'll get XYZ'. I usually try to set goals for anywhere from 3-5 days and I reminder her frequently without making it an actual reminder. She recently got to go paint pottery if she did her own self care (bath, brush teeth twice daily) without me reminding her every time. I would say something like 'I can't wait to go to As You Wish with you...I sure hope we get to go!'
It almost sound like he needs to spend more time with his dad. Does he get to spend time there and is dad making him follow the rules while he is there. Boys at that age really need their dads and if he is not getting the attention that he needs from his dad it will cause behavior problems.
Use the obsession to your advantage and see if you can broaden the obsession. Treat him to a trip to the mustang dealership to see other mustangs. Look up facts about the mustangs, get a model car to put together...
Things are better for us...meds, diet, therapy and age have helped us.
We've done so many meds at this point and none have worked well. Going to try working with a new psychiatrist in a couple weeks. Hopefully this MD will have better ideas as to how to treat.
Good luck to all AS families to get through those daily challenges. Happy Holidays to all.
For everyone out there, it does get better! Each child is different and has different triggers.
I suggest keeping a "journal" and write down what is going on in your childs life when an episode occurs. This way you can try and see what triggers an episode and try to avoid it in the future.
My son has learned to tell when something is upsetting him and will remove himself from a situation until he calms down. At school he has a safe room he can go to and at home, his bedroom is his safe room. Last night during supper, we were having a discussion on something he had done without permission. He knew he was getting upset and stated I'm outta here. He recognized the signs and removed himself from the situation. As he's gotten older he's gotten better and better at this.
There are times he's a joy to be around and other times I want to strangle him. He has a dry sense of humor, sometimes not quite appropriate (we are working on this).
But then I remind myself he is a teenager and how is his behavior that different from any other teenager in society?
I wouldn't change my son for anything. Yes, he's quirky, but has alot of friends who "have his back". They say he's wierd, but he is ok with this. They all know he has Aspergers, he even has a decal on his truck to the fact. But he is OK with this and they are still his friends.
I guess I would say he has accepted himself as he is and is OK with it.
My suggestion, find a good doctor who has experience with Aspergers to take your child to. I understand not wanting to give a child medication, but I know my son was miserable without it. Follow that doctors recommendations and go from there. Good Luck!
After breaking down and finding him a psychiatrist, he first had him on Adderall for his ADD. Despite how intelligent my son is, last year he barely skated by and made it out of middle school with passing grades (by the skin of his teeth as he was failing so many classes). After starting the Adderall, his grades have all gone up to A's and B's. It was nothing short of a miracle. I agonized for years over putting him on medication. I was reading an article on treating AS symptoms with Strattera, and asked his doctor about it, he said that he would rather try Sertraline (Zoloft) first. After only a few days of taking Sertraline, it was like the fog had lifted. He seems much less anxious and has fewer tics (less hand flapping) . Prior to the Sertraline, he would rarely talk to me and used to go straight to his room after school and not come out. All he cared about was his games and watching game related YouTube videos and Anime. He was having a hard time making friends as well. Now he comes home and wants to talk to me for hours. He's been huggy-kissy and tells me that he loves me which is something that I've been missing for quite some time. Also, he's been telling me things he's been holding in for a long time and sharing things that he's interested in, which were top secret prior to the Sertraline. My son has made a couple new friends as well) and finally got together with one to go to an all day event. Before the medication I couldn't get him to leave his room, let alone the house. It's like night and day. My son is also slowly starting to expand his food repertoire, which as most parents of kids with AS know is a feat in itself.
One major symptom that has yet to be adressed is that he is still very very chatty and does not know when or how to stop talking at inappropriate times (i.e. movie theaters & watching TV with the family). This has been going on for years.
A bit of an issue with my son is that he has a hard time swallowing pills/capsules with water and is currently opening his Adderall XR capsule into chocolate pudding and taking it that way. The Sertraline is a liquid that he drops into OJ every night before bed. Does anyone have any suggestions on taking pills with water or anything that helps with the incessant chattiness? I used to feel horrible about medicating my son, but it has truly been a lifesaver for him and the family. I feel more guilt over waiting so long in getting him help.