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15.5.08

Asperger's Support Groups and Organizations

  • ACTION for ASD - offering advice, information, support, social events and training --- 2001 awarded almost £280,000 by UK funders - Community Fund to develop our services at a professional level across Lancashire UK.
  • Advocates for Individuals with High Functioning Autism, - Asperger's Syndrome and other Pervasive Developmental Disorders, Corp., Long Island, New York
    Parent group whose primary purpose is to support one another as we advocate for the unique needs of children and adults with High Functioning Autism, Asperger's Syndrome and other Pervasive Developmental Disorders.
  • AHA/AS/PDD - The Advocates for Individuals with High Functioning Autism, Asperger's Syndrome and other Pervasive Developmental Disorders, Corp., Long Island, New York
    Parent group whose primary purpose is to support one another as they advocate for the unique needs of children and adults with High Functioning Autism, Asperger's Syndrome and other Pervasive Developmental Disorders.
  • Aromacaring - Health issues including complementary therapies for special needs
  • Asperger Advocates - Asperger Advocates is a support group for families of children with Asperger's Syndrome. This group serves the York County area of Pennsylvania.
  • Asperger Friends - Asperger's Friends in Hunterdon County NJ is the chance to meet with new friends that have Asperger Syndrome.
  • Asperger Help - The mission of Asperger Help is to be a center for people seeking answers, sharing knowledge, understanding the process, and educating others about several disorders on the spectrum such as Autism, Aspergers, ADHD, Tourettes, and more.
  • asperger solution - Adolescence represents the most dangerous time for our children . They are at their most vulnerable and the education system is at its most demanding .The health system is not geared up to deal with the fall-out : The incidence of Depression is high . Prevention is the only show in town .
  • Asperger Syndrome Coalition of the U.S. (ASC-US) - We are a national non-profit organization committed to providing the most up-to-date and comprehensive information on Asperger Syndrome and related conditions, including: Pervasive Developmental Disorder-Not Otherwise Specified (PDD-NOS) High Functioning Autism (HFA) Nonverbal
  • Asperger Syndrome Education Network, Inc. (ASPEN®) - ASPEN ® is a regionally-based non-profit organization headquartered in New Jersey, with 12 local chapters, providing families and those individuals affected with Asperger Syndrome, PDD-NOS, High Functioning Autism, and related disorders.
  • Aspergers Syndrome Support Group, Western Australia - Support group based in Western Australia for the Parents/carers of those with Aspergers Syndrome. Site provides contact details for the group. The group has a resource library with books, CD's, tapes related to Aspergers Syndrome.
  • ASPIE of Texas - Asperger's Syndrome support group for the greater Houston area. Meets the 2nd Thursday of the month at Williams Trace Baptist Church in Sugar Land. Speakers and great information each month.
  • Berkshire Autistic Society - UK
    Berkshire Autistic Society (BAS) is a support and action group for the parents and carers of children and adults with autism, autism related problems, Asperger Syndrome or challenging behaviour.
  • Families for Early Autism Treatment - North Texas - (FEAT-NT) Bedford, Texas
    a non-profit organization of parents and concerned professionals dedicated to providing world-class Education, Advocacy, and Support for children with autism and their families.
  • Geneva Centre for Autism - Toronto, Canada
    Resources, support and training for Autism/PDD. Committed to collaborative partnerships with families and professionals to ensure services meet individual needs, the Centre mission is to empower individuals with autism and other related disorders, and their families, to fully participate in their communities.
  • GRASP Southeast Iowa Network (Iowa City/Coralville) - A support group for adults on the autistic spectrum. We meet monthly to support each other through discussion, information, and advocacy. We are a local network of the Global and Regional Asperger Syndrome Partnership (GRASP).
  • K12academics.com - An Education and Disability Resource Center for Teachers, Schools, Parents & Students throughout the U.S.
  • Kiss My Asperger's - A Yahoo Group dedicating to bringing together adults with Asperger's Syndrome.
  • Richard Howlin, Ph.D. - Chelsea Center for Learning Disorders, Chelsea, Michigan
    Areas of Diagnostic Expertise include Asperger Syndrome, Learning Disabilities and Attention Deficit Disorders
  • The Autism Treatment Center of America - The Son-Rise Program is a highly effective method for helping children with Autism, Autism Spectrum Disorders, and related developmental challenges that has been achieving dramatic results for over 25 years.
  • The Friendship Club - This social group is for teens and young adults 13 year of age and older in Oakland County, Michigan.
  • University Students With Autism And Asperger's Syndrome - Cambridge, UK
    First person accounts, FAQ and Books, The University-Students-With-Autism-And-Asperger's-Syndrome Mailing List, Getting A Diagnosis, Associated Conditions, Study Skills For Students With HFA/AS, Surviving the University Environment, How To Be An Advocate In Your Spare Time
  • Westchester County, NY Asperger E-mail Support - This group is moderated by a Certified School Psychologist who has done an extensive amount of work with children who have been diagnosed with Asperger/Autistic/PDD. There is also a Licenced/Certified Speech Language Pathologist with the group. It is a wonderful place for parents, educators, and anyone who works with children with these Autism Spectrum Disorders or with children who have some symptoms but are not diagnosed.

2 comments:

Anonymous said...

Gratitude is the sign of noble souls.

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Virginia (Jenny) said...

Thank you for sharing this. :)

http://meetchaz.blogspot.com

Parenting Defiant Aspergers Teens

Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

The standard disciplinary techniques that are recommended for “typical” teenagers do not take into account the many issues facing a child with a neurological disorder. Violent rages, self-injury, isolation-seeking tendencies and communication problems that arise due to auditory and sensory issues are just some of the behaviors that parents of teens with Aspergers will have to learn to control.

Parents need to come up with a consistent disciplinary plan ahead of time, and then present a united front and continually review their strategies for potential changes and improvements as the Aspergers teen develops and matures.

Click here to read the full article…

How to Prevent Meltdowns in Aspergers Children

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But...

Don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

If your child suffers from Asperger’s Syndrome, expect him to experience both minor and major meltdowns over incidents that are part of daily life. He may have a major meltdown over a very small incident, or may experience a minor meltdown over something that is major. There is no way of telling how he is going to react about certain situations. However, there are many ways to help your child learn to control his emotions.

Click here for the full article...

Aspergers Children “Block-Out” Their Emotions

Parenting children with Aspergers can be a daunting task. In layman’s terms, Aspergers is a developmental disability that affects the way children develop and understand the world around them, and is directly linked to their senses and sensory processing. This means they often use certain behaviors to block out their emotions or response to pain.

Although they may vary slightly from person to person, children with Aspergers tend to have similar symptoms, the main ones being:

=> A need to know when everything is happening in order not to feel completely overwhelmed
=> A rigid insistence on routine (where any change can cause an emotional and physiological meltdown)
=> Difficulties with social functioning, particularly in the rough and tumble of a school environment
=> Obsessive interests, with a focus on one subject to the exclusion of all others
=> Sensory issues, where they are oversensitive to bright light, loud sounds and unpleasant smells
=> Social isolation and struggles to make friends due to a lack of empathy, and an inability to pick up on or understand social graces and cues (such as stopping talking and allowing others to speak)

Click here to read the full article…

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