HELP FOR PARENTS WITH ASPERGERS CHILDREN

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WELCOME! Feel free to post a comment or question in the chat room above. For information regarding psychiatric medication, please address your question to David McLaughlin, MD (Consultant: Psychiatry). For information regarding psychiatric testing, please address your question to Julie Kennedy, Psy.D (Consultant: Clinical Psychology). For all other questions, please address Mark Hutten, M.A. (Counseling Psychology). Someone will respond to your inquiry within 12 to 24 hours.

Aspergers Children & Tantrums/Meltdowns

Click=> How to Stop Meltdowns & Temper Tantrums in Aspergers Children


What are meltdowns? They are overwhelming emotions that are quite common in Asperger’s children.

What causes them? It can be anything from a very minor incident to something more traumatic.

How long do they last? It’s anyone’s guess. They last until the child is either completely exhausted, or he gains control of his emotions -- which is not easy for him to do.


Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted.


But...

Don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next -- the meltdown can return in full force.

If your child suffers from Asperger’s Syndrome, expect him to experience both minor and major meltdowns over incidents that are part of daily life. He may have a major meltdown over a very small incident, or may experience a minor meltdown over something that is major. There is no way of telling how he is going to react about certain situations. However, there are many ways to help your child learn to control his emotions.


Click=> How to Stop Meltdowns and Temper Tantrums in Aspergers Children



10.6.09

Aspergers & Picky Eating

Because of their sensitivity to smell, temperature, taste and texture, kids with Aspergers are often "picky" eaters. Some develop fetishes such as only eating beige-colored foods or foods with creamy textures. They often like very sour or very spicy tastes. Some develop chewing fetishes and as a result, they constantly suck on pens, pencils or times of clothing.

These kids also sometimes have issues with developing gastric problems such as acid reflux, hiccups, diarrhea, vomiting, or constipation. They are susceptible to celiac disease, which is caused by poor absorption of certain nutrients. The danger is that celiac disease damages the digestive system. Aspergers kids frequently suffer from Dermatitis herpetiformis, which causes skin rashes and tissue damage in the intestine. It has also been shown that gluten can aggravate behavioral symptoms in those with Asperger's that are sensitive to these foods.

It becomes a challenge for moms & dads to make sure their Aspergers kid gets proper nutrition. One trick that works for many moms & dads is to change the texture of a despised food. If your youngster will not eat peas, try serving pea soup. If she refuses orange juice, try orange slices. Most clinicians believe that the less you indulge food fetishes, the less entrenched they become. If an Aspergers kid creates a rule that "no foods can touch on my plate," it can easily become a lifelong rule if moms & dads do not intervene.

One promising food therapy is the "Gluten-Free Casein-Free Diet" or GFCF diet. The theory behind it is that a youngster with Aspergers cannot digest casein (found in dairy) or gluten (found in grains). It is true that undigested molecules of these substances frequently show up in their urine samples. These amino acid chains (called peptides) affect neurological function and can worsen a youngster's symptoms. Peptides may have an opiate effect on some kids.

Moms & dads begin the diet by first eliminating either the casein or the gluten food group. No gluten means no bread, barley, rye, oats, pasta, all kinds of flour, food starch, biscuits, cereals, cakes, donuts, pie, pretzels, pizza, croutons, and even crumbs stuck in the toaster. You can substitute gluten-free products. Next, you eliminate all dairy products including milk, cheese, goat's milk and cheese, ice cream, yogurt, most margarines, puddings, and so forth. If you eliminate the dairy group, you may have to give your youngster calcium supplements. You also need to cut out "trigger foods" including chocolate, food colorings, caffeine, and peanut butter. The GFCF Diet website offers all kinds of resources for moms & dads such as cookbooks, food products, and DVDs.

Many moms & dads believe that the GFCF diet really helps their kids. In an unscientific survey of over 2000 moms & dads who tried it, most saw significant improvement and five reported "miracles."

Research into diet and vitamin therapy for kids with Aspergers is very sketchy at this point. Nevertheless, many moms & dads try them. One scientific study of alternative therapies found that over half of all moms & dads of kids with autism spectrum disorders have tried diets, herbs or vitamin therapy and 72% felt they were worthwhile. Many moms & dads swear by the GFCF diet, others prefer the Feingold diet or megavitamin therapy. You can buy supplements of herbs and vitamins specifically made for kids with Aspergers. Such supplements often include calcium, fish oil, omega -3 -6 or -9, vitamin B-6, HNI enzymes and DMG or dimethylglycine. If you use these diets and therapies, the best thing to do is to keep written records of how often your youngster tantrums or exhibits other behaviors. This way you can tell if the therapy is working.

There have been a few scientific studies of the GFCF diet. In one three-month study of fifteen kids ages two to 15 years old, there was no difference between the kids who followed the diet and those who did not. However, researchers at the Loma Linda Medical Institute in California concluded that the diet was mostly helpful and improved nonverbal cognition, but that more double blind studies are needed.

Many moms & dads have tried the GFCF or Feingold diets and found that they were not worth the effort. These diets make it extremely hard to buy regular grocery foods or to eat in restaurants. If there are other kids, you end up cooking different meals for them. Trying to keep to the diets causes parental burnout and that may not be worth their benefits.

The Parenting Aspergers Resource Guide: A Complete
Resource Guide For Parents Who Have Children Diagnosed
With Aspergers Syndrome.

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Aspergers Test

Psychologist Simon Baron-Cohen and his colleagues at Cambridge's Autism Research Centre have created the Autism-Spectrum Quotient, or AQ, as a measure of the extent of autistic traits in adults. In the first major trial using the test, the average score in the control group was 16.4. Eighty percent of those diagnosed with autism or a related disorder scored 32 or higher. The test is not a means for making a diagnosis. Many who score above 32 - and who even meet the diagnostic criteria for mild autism or Asperger's - report no difficulty functioning in their everyday lives.



Definitely agree Slightly agree Slightly disagree Definitely disagree
1 I prefer to do things with others rather than on my own.
2 I prefer to do things the same way over and over again.
3 If I try to imagine something, I find it very easy to create a picture in my mind.
4 I frequently get so strongly absorbed in one thing that I lose sight of other things.
5 I often notice small sounds when others do not.
6 I usually notice car number plates or similar strings of information.
7 Other people frequently tell me that what I've said is impolite, even though I think it is polite.
8 When I'm reading a story, I can easily imagine what the characters might look like.
9 I am fascinated by dates.
10 In a social group, I can easily keep track of several different people's conversations.
11 I find social situations easy.
12 I tend to notice details that others do not.
13 I would rather go to a library than to a party.
14 I find making up stories easy.
15 I find myself drawn more strongly to people than to things.
16 I tend to have very strong interests, which I get upset about if I can't pursue.
17 I enjoy social chitchat.
18 When I talk, it isn't always easy for others to get a word in edgewise.
19 I am fascinated by numbers.
20 When I'm reading a story, I find it difficult to work out the characters' intentions.
21 I don't particularly enjoy reading fiction.
22 I find it hard to make new friends.
23 I notice patterns in things all the time.
24 I would rather go to the theater than to a museum.
25 It does not upset me if my daily routine is disturbed.
26 I frequently find that I don't know how to keep a conversation going.
27 I find it easy to 'read between the lines' when someone is talking to me.
28 I usually concentrate more on the whole picture, rather than on the small details.
29 I am not very good at remembering phone numbers.
30 I don't usually notice small changes in a situation or a person's appearance.
31 I know how to tell if someone listening to me is getting bored.
32 I find it easy to do more than one thing at once.
33 When I talk on the phone, I'm not sure when it's my turn to speak.
34 I enjoy doing things spontaneously.
35 I am often the last to understand the point of a joke.
36 I find it easy to work out what someone is thinking or feeling just by looking at their face.
37 If there is an interruption, I can switch back to what I was doing very quickly.
38 I am good at social chitchat.
39 People often tell me that I keep going on and on about the same thing.
40 When I was young, I used to enjoy playing games involving pretending with other children.
41 I like to collect information about categories of things (e.g., types of cars, birds, trains, plants).
42 I find it difficult to imagine what it would be like to be someone else.
43 I like to carefully plan any activities I participate in.
44 I enjoy social occasions.
45 I find it difficult to work out people's intentions.
46 New situations make me anxious.
47 I enjoy meeting new people.
48 I am a good diplomat.
49 I am not very good at remembering people's date of birth.
50 I find it very easy to play games with children that involve pretending.

How to score:

"Definitely agree" or "Slightly agree" responses to questions 2, 4, 5, 6, 7, 9, 12, 13, 16, 18, 19, 20, 21, 22, 23, 26, 33, 35, 39, 41, 42, 43, 45, 46 score 1 point.

"Definitely disagree" or "Slightly disagree" responses to questions 1, 3, 8, 10, 11, 14, 15, 17, 24, 25, 27, 28, 29, 30, 31, 32, 34, 36, 37, 38, 40, 44, 47, 48, 49, 50 score 1 point.
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