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29.11.10

What do we do or say to those that think Aspergers is something to fear?

Question

My 5 1/2 year old son was diagnosed with aspergers by a neurologist over this summer. My in-laws were so upset that we had him tested. They insist that we "labeled" him and have now made his life hard. We feel that now he is getting the help that he needs and the label is not a "bad" thing. What do we do or say to those that think aspergers is something to fear?

Answer

The importance of getting a diagnosis for a child who truly has Aspergers cannot be emphasized enough. If the issues that cause a child to behave strangely are unknown, parents can never get the child the help he needs and is entitled to. And someone with Aspergers does need help!

Aspergers children and adults see the world from a different point of view. They think “normal” people speak in riddles. Their thoughts go something like this:

• “How come they are not interested in details like me?”
• “Why are relationships so complicated?”
• “Why don’t people say what they mean?”
• “Why use non-verbal signs like body language instead of just telling something like it is!”

Aspergers children and adults think their world is more logical then ours. However, the majority of people do not have Aspergers – so, how the majority “thinks” is considered normal. An Aspergers child has to adjust to our “strange” way of relating to each other and our ways of communication. It’s very hard for an “Aspie” to adjust to something so far off from logic.

Parents and teachers need to understand and relate to the Aspie's different way of thinking. In order to be able to do that, a diagnosis has to be made. If you don’t know what is wrong, how can you help or reach out?

The Aspergers Comprehensive Handbook

2 comments:

Gavin Bollard said...

Giving someone a label doesn't change them but it can help others to more quickly and easily see things from their point of view and understand their issues.

That can't be a bad thing.

Anonymous said...

Thank you, I have recently been searching for information about this topic for ages and yours is the best I have discovered so far.

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Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But...

Don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

If your child suffers from Asperger’s Syndrome, expect him to experience both minor and major meltdowns over incidents that are part of daily life. He may have a major meltdown over a very small incident, or may experience a minor meltdown over something that is major. There is no way of telling how he is going to react about certain situations. However, there are many ways to help your child learn to control his emotions.

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Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

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Parents need to come up with a consistent disciplinary plan ahead of time, and then present a united front and continually review their strategies for potential changes and improvements as the Aspergers teen develops and matures.

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