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29.7.11

Is Aspergers really a "disorder" -- or just a different cognitive style?

Some researchers have argued that Aspergers can be viewed as a different cognitive style, not a disorder or a disability, and that it should be removed from the standard Diagnostic and Statistical Manual (much as homosexuality was removed).

Why? The debate seems to revolve around the concept of "central coherence."

“Central coherence” (CC) is receiving increased attention across a variety of clinical neuroscience disorders. Essentially, CC describes a style of thinking on a continuum. On one end of the continuum, you have people who tend to think globally or use a gestalt perspective (i.e., the big picture is seen rather than paying attention to details). The other end of continuum includes people who are detail-oriented (i.e., they focus on details). Being on either extreme of the continuum can produce problems. Very high CC can lead to problems with missing important details that need attention or action. Those with very low or weak CC can be detail-bound, losing sight of important global interpretations of the situation or environment.

Aspies appear to have low CC and are overly-focused on details to the expense of a global perspective. This could explain typical Aspergers behaviors (e.g., valuing sameness, attending to parts of objects, persistence in behaviors related to details, etc.). With the concept of central coherence in mind, having a propensity for details suggests a “cognitive style” located on – or near – one end of a continuum, not a “disorder” per say.

Aspies have advocated a shift in perception of Aspergers as a complex syndrome  (i.e., a characteristic combination of opinions, emotions, or behavior) rather than a disease that must be cured. Proponents of this view (a) reject the notion that there is an "ideal" brain configuration and that any deviation from the norm is pathological, and (b) promote tolerance for what they call neuro-diversity. These views are the basis for the autistic rights and autistic pride movements.

The Internet has allowed Aspies to communicate and celebrate diversity with each other in a way that was not previously possible (due to their rarity and geographic dispersal). A subculture of people with Aspergers has indeed formed. For example, Internet sites like www.AspergersTeenChat.com have made it easier for Aspie teens to connect.

There is a contrast between the attitudes of grown-ups with self-identified Aspergers (who typically do not want to be "fixed" and are proud of their identity) and mothers/fathers of Aspergers kids, who typically seek assistance and a "cure" for their youngster.

Baron-Cohen wrote of those with Aspergers, "In the social world there is no great benefit to a precise eye for detail, but in the worlds of math, computing, cataloguing, music, linguistics, engineering, and science, such an eye for detail can lead to success rather than failure." Also, Baron-Cohen cited two reasons why it might still be useful to consider Aspergers a disability: (1) to ensure provision for legally required special support, and (2) to recognize emotional difficulties from reduced empathy.

It has been argued that the genes for Aspergers combination of abilities have operated throughout recent human evolution and have made remarkable contributions to human history. Here are just a few of the “abilities” associated with the Aspergers condition (i.e., a low central coherence cognitive style):
  1. Attention to detail – sometimes with painstaking perfection
  2. Higher IQ – some experts say that those with Aspergers often have a higher than average general IQ
  3. Focus and diligence – the Aspie’s ability to focus on tasks for a long period of time without needing supervision or incentive
  4. Higher fluid intelligence – scientists in Japan discovered that Aspergers kids have a higher “fluid intelligence” (i.e., the ability to (a) find meaning in confusion and solve new problems, and (b) draw inferences and understand the relationships of various concepts, independent of acquired knowledge) than non-autistic kids.
  5. Honesty – the value of being able to say “the emperor isn’t wearing any clothes”
  6. Independent, unique thinking – people with Aspergers tend to spend a lot of time alone and will likely have developed their own unique thoughts as opposed to a ‘herd’ mentality
  7. Internal motivation – as opposed to being motivated by praise, money, bills or acceptance – which ensures a job done with conscience, with personal pride
  8. Logic over emotion – although people with Aspergers are very emotional at times, they spend so much time ‘computing’ in our minds that they get quite good at it –and they can be very logical in their approach to problem-solving
  9. Visual, three-dimensional thinking – some with Aspergers are very visual in their thought processes, which lends itself to countless useful and creative applications

The Aspergers Comprehensive Handbook

6 comments:

Kim Morgan said...

Is this discussion based on a scientific journal entry or new research? This is a fascinating discussion. I shared it on my Facebook wall. Thanks!

Shelley (aka: Her Royal Sassiness) said...

Very interesting. I can see both sides of the "arguement".
I dont want my child to be "fixed/cured"...I just want to learn how to help her succeed in this world that seems so different than she is.

I think most days I would tend to agree with it just being a different cognitive styke rather than a "disorder"...other days, not so much. ;)

Anonymous said...

Janet Fuqua Williams
I've recently asked myself this question. Why can't kids just be allowed to be different rather than be considered to have a disorder. On the other hand, it seems we need this "disorder" label in order to be accepted as different in school, to not have to fit into the perfect mold. Honestly, I don't see my extremely intelligent child as one with a disorder - just someone who needs a different learning environment (which is not available here without homeschooling or paying a fortune). He will be able to do things that others can't because of his different way of thinking and processing. If this label is what it takes to help my child get the best education possible in our school district, then I hope it remains as a disorder or disability, even though I'm not overly thrilled with the negative connotation.
20 hours ago · Like · 4 people
Jennifer Downing Burleigh As many kids need this "label" to recieve therapies that would not otherwise be covered by insurance, I hope it remains classified as a disorder. Some kids on the spectrum do have an advantage over their peers in some ways, but usually have other disadvantages that require help and specific therapies to cope with. Many familes would suffer a great deal if it is removed.
20 hours ago · Like · 4 people
Erica Jean Rutherford
This is how I see it -- I get that it could just be a different cognitive style. I have told my husband that a hundred times when he was first having issues with the possibility of his own diagnosis. BUT -- the labels, in some cases, are helpful. Someone told me once to think about labels like you would on a bunch of canned goods. You wouldn't want a bunch of aluminum cans in your pantry without labels on them... some are good for this, some are good for that, etc, but without the information -- you can't possibly choose the best recipe for the can.

Having Asperger's as a diagnosable "disorder" or whatnot, gives us the chance to explain to other family members that no, beating my child would not make him behave differently. It gives us the chance to say, "please be careful what you say to him, he takes everything extremely literally." It gives us the chance to work with schools to ensure that his/her "cognitive style" is attended to with coursework and the school environment. It gives us the power to take a deep breath during a 45+ minute meltdown and remind ourselves that we did not raise a brat, that his/her thinking is truly unique.

I don't mind the fact that it will, soon, be clumped in together with autism and pdd-nos, but I sure as heck don't want it taken out of the DSM altogether.

Of course, after the clumping, it won't matter one way or another unless they plan on taking ALL autism spectrum disorders out of the DSM, which I don't see happening.

But even with the lower functioning kids -- they're highly intelligent, they just have a lot of other things going on inside of their minds that they can't quite turn off in order to focus on what neurotypicals see as smart... they can't communicate, so they must be dumb... but in reality, they're just as brilliant as those on the higher-functioning end. The difference is just that there are so many more sensory integration issues with the low-functioning kids that they can't focus on just one aspect of their environment to give themselves the opportunity for speech, among other things.
17 hours ago · Like

Anonymous said...

Parenting Aspergers Children - Support Group Interesting debate! Very reminiscent of the "buzz" around homosexuality several decades ago (e.g., "it's a choice" ..."no, it's biological" ..."it's a sin" ..."no, it's just a different life style" ...and so on. Time will tell.
7 minutes ago · Like
Parenting Aspergers Children - Support Group I'm making the comparison - not because there is any link between Aspergers and homosexuality - but because homosexuality used to be a "disorder" - and now it's not.
4 minutes ago · Like

StrangerInGodzone said...

Interesting - as an adult on the spectrum, i would say mostly, it feels like a different cognitive style, but when it comes to being able to function in the 'NT' world, it becomes a 'disorder', a 'dis-ability', that hampers me in getting along with others, working well with them in a job situation, etc.
It's also a pity that there has to be a choice made, in order for kids to receive funding for help in school, etc. If only, somehow, there could be funding for 'different cognitive styles' (of which of course Aspergers is not the only one)!
And re 'cured', or 'fixed', it has to be asked, is it really a 'cure' people want, or is it 'healing'? There is a difference, i wrote a piece on my blog about it, here - http://strangeringodzone.blogspot.com/2011/07/cure-vs-healing.html

rebecca said...

Thank you very much for your articles. They have helped me a lot! I think Aspergers should be more or equally addressed as Autism. I am still curious to the "cause" to this mysterious wiring to their awesome minds. :) Thank once again :)Rebecca Shepherd

How to Prevent Meltdowns in Aspergers Children

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But...

Don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

If your child suffers from Asperger’s Syndrome, expect him to experience both minor and major meltdowns over incidents that are part of daily life. He may have a major meltdown over a very small incident, or may experience a minor meltdown over something that is major. There is no way of telling how he is going to react about certain situations. However, there are many ways to help your child learn to control his emotions.

Click here for the full article...

Parenting Defiant Aspergers Teens

Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

The standard disciplinary techniques that are recommended for “typical” teenagers do not take into account the many issues facing a child with a neurological disorder. Violent rages, self-injury, isolation-seeking tendencies and communication problems that arise due to auditory and sensory issues are just some of the behaviors that parents of teens with Aspergers will have to learn to control.

Parents need to come up with a consistent disciplinary plan ahead of time, and then present a united front and continually review their strategies for potential changes and improvements as the Aspergers teen develops and matures.

Click here to read the full article…

Aspergers Children “Block-Out” Their Emotions

Parenting children with Aspergers can be a daunting task. In layman’s terms, Aspergers is a developmental disability that affects the way children develop and understand the world around them, and is directly linked to their senses and sensory processing. This means they often use certain behaviors to block out their emotions or response to pain.

Although they may vary slightly from person to person, children with Aspergers tend to have similar symptoms, the main ones being:

=> A need to know when everything is happening in order not to feel completely overwhelmed
=> A rigid insistence on routine (where any change can cause an emotional and physiological meltdown)
=> Difficulties with social functioning, particularly in the rough and tumble of a school environment
=> Obsessive interests, with a focus on one subject to the exclusion of all others
=> Sensory issues, where they are oversensitive to bright light, loud sounds and unpleasant smells
=> Social isolation and struggles to make friends due to a lack of empathy, and an inability to pick up on or understand social graces and cues (such as stopping talking and allowing others to speak)

Click here to read the full article…

Living with an Aspergers Spouse/Partner

Research reveals that the divorce rate for people with Aspergers is around 80%. Why so high!? The answer may be found in how the symptoms of Aspergers affect intimate relationships.

People with Aspergers often find it difficult to understand others and express themselves. They may seem to lose interest in people over time, appear aloof, and are often mistaken as self-centered, vain individuals.

A person with Aspergers may have trouble understanding the emotions of their partner, and the subtle messages that are sent by facial expression, eye contact and body language are often missed. Because of this, a person with Aspergers might be seen as egotistical, selfish or uncaring.

These are unfair labels, because the affected individuals are neurologically unable to understand other people's emotional states, and they are usually shocked, upset and remorseful when told their actions were hurtful or inappropriate!

Click here to read the full article…

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