Question
My son was diagnosed with "Mild" Asperger's in May of this year …he turned 5 years old in June. I don't think I even want to know what "Severe" Asperger's looks like. I am not particularly impressed with the psychologist that diagnosed J___. His "Compliance Procedure" calls for physical restraint i.e. the basket hold procedure when there is not an absolute necessity for this procedure. (My personal opinion is there is never an absolute necessity), but the psychologist procedure says to use the basket hold to force compliance for a time out or whatever, if the child doesn't just follow those directions. To me this physical contact with a child that has sensory integration problems and Asperger's seems to only fuel the fire and cause the meltdowns to be prolonged. My observation is that allowing him to melt down on his own and try to protect him and the house while this is happening, we can generally get through an issue in 10 - 15 minutes and he is wanting a hug and telling me he is sorry.
I did in a counseling session with the psychologist finally agree after about an very tense hour that the basket hold may be appropriate if there was an immediate danger to person or property. Which the Dr also compromised his position for my son back to this limitation as well. My follow up to that is that it is still never necessary. I think I can keep a 40 - 50 pound 5 year old from doing too much damage to himself or others without escalating a problem. I am 6'4" and weigh nearly 300 pounds - at this point I can take whatever he's got.
What are your thoughts on the necessity of physical restraint in Asperger kids?
I have much enjoyed your weekly e-mails and online post video's etc. I am going to join Online Parent Support. I so much appreciate what you are doing.
Thanks,
R.
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Answer
Restraining a child in the middle of a meltdown is a lot like hugging someone while they are having an epileptic seizure – it serves no real purpose. If the Aspergers youngster or others are in danger, then restraint is warranted; otherwise, it is nothing more than an odd parenting strategy with no real benefit (it’s a lot like “spanking” …it doesn’t really do any harm, but it doesn’t do much good either). When dealing with meltdowns, think in terms of PREvention. INTERventions are rather useless, because if the meltdown has already started – it’s too late!
While the meltdown is happening, remain calm. Anger and yelling only make a meltdown worse. Make everyone ignore what is happening and move away from the youngster. The Aspergers child does NOT like having these meltdowns anymore than an epileptic enjoys a seizure. Having others witness a meltdown embarrasses and humiliates the youngster.
The child in a meltdown is like a skittish horse, thus trust needs to be achieved. You are the person that your youngster trusts. After everyone else has moved away, have the person that the Aspergers child trusts get down on the floor at the same level as the youngster (a couple of feet away). Then speak to the child in a soft, somewhat slow, monotone voice. Ask him what's wrong, or what happened that made him upset. A normal voice may be too loud, and normal speech patterns may be too quick. Ask in as many ways as you can think of. He will eventually understand what you are asking and answer you. Be sure to leave plenty of time between questions so he doesn’t become even more overwhelmed.
The youngster will eventually move to a sitting position …you also need to move into a sitting position. Gradually move closer to the child and speak to him in your soft, slow, monotone voice. Try to attain eye contact, and once you have it, it's up to you to maintain it. Remember the eye contact is for your benefit, not the youngster’s – he doesn’t need it to communicate with you.
Once the child has started communicating with you, ask him if he would like to move to a safer and more comfortable place. He will usually want to be left alone once he has calmed down. Give him a safe spot in the house - and at school - where he can go to calm down. Make sure it's somewhere that someone can keep an eye on him, but gives him a sense of privacy at the same time. Give the youngster time to calm down. Every once in a while, gently ask the child if he wants to come out of his spot and join you, or rejoin his class.
Once he has come out of his spot, ask him if he would like to talk about what happened so you can fix the problem. If you're able to fix the problem, fix it – but don't make any false promises to fix something you can't. Be honest with your Aspergers child. A broken toy can be fixed, but a broken heart is much harder to heal.
Once he has decided to rejoin others, totally ignore the event; act as if nothing has occurred. If the youngster is at school, the teacher should inform the parent that a meltdown has occurred. Sometimes the effects of a meltdown can last all day, with the child being grumpy or unresponsive. He is usually trying to come up with a solution to the problem himself, and if there were witnesses (especially from his own peer group), he will be embarrassed, humiliated, and ashamed.
Punishment is not an option. If the Aspergers youngster could control these meltdowns, then they would never occur. I liken meltdowns to seizures and treat them accordingly. Punishing the child for a seizure/meltdown will only cause resentment and self-hatred. Remember: As the youngster ages, the meltdowns will occur with less frequency and with less severity.
Your biggest plus is a great deal of patience – use it. If you feel stressed out, you're perfectly normal in that regard!
My Aspergers Child: Preventing Meltdowns in Aspergers Children
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How to Prevent Meltdowns in Aspergers Children
Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But...
Don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.
If your child suffers from Asperger’s Syndrome, expect him to experience both minor and major meltdowns over incidents that are part of daily life. He may have a major meltdown over a very small incident, or may experience a minor meltdown over something that is major. There is no way of telling how he is going to react about certain situations. However, there are many ways to help your child learn to control his emotions.
Click here for the full article...
Don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.
If your child suffers from Asperger’s Syndrome, expect him to experience both minor and major meltdowns over incidents that are part of daily life. He may have a major meltdown over a very small incident, or may experience a minor meltdown over something that is major. There is no way of telling how he is going to react about certain situations. However, there are many ways to help your child learn to control his emotions.
Click here for the full article...
Parenting Defiant Aspergers Teens
Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.
The standard disciplinary techniques that are recommended for “typical” teenagers do not take into account the many issues facing a child with a neurological disorder. Violent rages, self-injury, isolation-seeking tendencies and communication problems that arise due to auditory and sensory issues are just some of the behaviors that parents of teens with Aspergers will have to learn to control.
Parents need to come up with a consistent disciplinary plan ahead of time, and then present a united front and continually review their strategies for potential changes and improvements as the Aspergers teen develops and matures.
Click here to read the full article…
The standard disciplinary techniques that are recommended for “typical” teenagers do not take into account the many issues facing a child with a neurological disorder. Violent rages, self-injury, isolation-seeking tendencies and communication problems that arise due to auditory and sensory issues are just some of the behaviors that parents of teens with Aspergers will have to learn to control.
Parents need to come up with a consistent disciplinary plan ahead of time, and then present a united front and continually review their strategies for potential changes and improvements as the Aspergers teen develops and matures.
Click here to read the full article…
Aspergers Children “Block-Out” Their Emotions
Parenting children with Aspergers can be a daunting task. In layman’s terms, Aspergers is a developmental disability that affects the way children develop and understand the world around them, and is directly linked to their senses and sensory processing. This means they often use certain behaviors to block out their emotions or response to pain.
Although they may vary slightly from person to person, children with Aspergers tend to have similar symptoms, the main ones being:
=> A need to know when everything is happening in order not to feel completely overwhelmed
=> A rigid insistence on routine (where any change can cause an emotional and physiological meltdown)
=> Difficulties with social functioning, particularly in the rough and tumble of a school environment
=> Obsessive interests, with a focus on one subject to the exclusion of all others
=> Sensory issues, where they are oversensitive to bright light, loud sounds and unpleasant smells
=> Social isolation and struggles to make friends due to a lack of empathy, and an inability to pick up on or understand social graces and cues (such as stopping talking and allowing others to speak)
Click here to read the full article…
Although they may vary slightly from person to person, children with Aspergers tend to have similar symptoms, the main ones being:
=> A need to know when everything is happening in order not to feel completely overwhelmed
=> A rigid insistence on routine (where any change can cause an emotional and physiological meltdown)
=> Difficulties with social functioning, particularly in the rough and tumble of a school environment
=> Obsessive interests, with a focus on one subject to the exclusion of all others
=> Sensory issues, where they are oversensitive to bright light, loud sounds and unpleasant smells
=> Social isolation and struggles to make friends due to a lack of empathy, and an inability to pick up on or understand social graces and cues (such as stopping talking and allowing others to speak)
Click here to read the full article…
Living with an Aspergers Spouse/Partner
Research reveals that the divorce rate for people with Aspergers is around 80%. Why so high!? The answer may be found in how the symptoms of Aspergers affect intimate relationships.
People with Aspergers often find it difficult to understand others and express themselves. They may seem to lose interest in people over time, appear aloof, and are often mistaken as self-centered, vain individuals.
A person with Aspergers may have trouble understanding the emotions of their partner, and the subtle messages that are sent by facial expression, eye contact and body language are often missed. Because of this, a person with Aspergers might be seen as egotistical, selfish or uncaring.
These are unfair labels, because the affected individuals are neurologically unable to understand other people's emotional states, and they are usually shocked, upset and remorseful when told their actions were hurtful or inappropriate!
Click here to read the full article…
People with Aspergers often find it difficult to understand others and express themselves. They may seem to lose interest in people over time, appear aloof, and are often mistaken as self-centered, vain individuals.
A person with Aspergers may have trouble understanding the emotions of their partner, and the subtle messages that are sent by facial expression, eye contact and body language are often missed. Because of this, a person with Aspergers might be seen as egotistical, selfish or uncaring.
These are unfair labels, because the affected individuals are neurologically unable to understand other people's emotional states, and they are usually shocked, upset and remorseful when told their actions were hurtful or inappropriate!
Click here to read the full article…
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4 comments:
Really excellent advice. My husband and I had to learn those techniques in the trenches, as it were, and I think it is great to put it out there so others can benefit. One of the greatest benefits to the parent, or other supervising adult is that they do not have to engage in any sort of battle. I agree that the holding technique can be useful for a child who is endangering themselves, but otherwise it has never been a help to us.
Excellent article - thank you for posting - agreed on all... son has been in "therapuetic school" that used restraint and it always escalated issues - was horrible and taken years to get past -
Kathy Foster excellent article - thank you for posting - agreed on all... son has been in "therapuetic school" that used restraint and it always escalated issues - was horrible and taken years to get past -
Yesterday at 11:09am · Like
Gina Sanchez
This is THE WORST think to do to an Aspies child!!!!! The same thing happened with my son when he was 5. It made everything worse. We ended up taking him out of that school. He was anxious, depressed. It has taken almost a year to repair the damage done to his psyche. I believe that a meltdown needs to be treated like a seizure: allow it to play itself out, prevent harm and be there for recovery phase. In doing this, along with other treatments, we are doing a million times better!
23 hours ago · Like
Crystal Amstutz
Personally, I think it depends on the child. Some children does need it while other's does not. And it depends on what kind of restraints, some are good and some are bad. I also don't think that educators should make the call on using restraints, but it should be up to the parents because the parents knows if the child would benefit from being restraint or not. For some children, it would cause them to escalate, but for other children, it would help them but only the parents who knows their child best should be the one to decide what helps and what doesn't help.
23 hours ago · Like · 1 person
Sherri Caldwell
It should never get to that point. Physical restraint is not necessary if action is taken before child is at the point of meltdown (for most kids) -- whatever is necessary for that child to recover himself, a walk, a quiet space, an understanding adult, etc. Will they never learn?! We have had incidents and have structured the IEP/warned the school we will take legal action if they put their hands on our child again. Some people seem to get off on winding them up & setting them off -- an asst principal, in our case, someone who should know better.
22 hours ago · Like
Chris Peters My son is restrained, safely and correctly, 2 to 3 times a week. He needs it and i have no issue with it. The basket hold is now considered ineffective. Meds only help a little. I need to learn how to do restraint holds since my son is now bigger than me.
22 hours ago · Like
Chris Peters
I should add, restraint holds are never used for compliance. (that is absurd!). they are used because my son, who is 15 yrs old and 190 lbs, is aggressive and violent. sometimes he can be calmed by talking it out and he is learning to use calming techniques or simply to use words to express his anger. but I don't want to think of all the damage he could have done - to himself or accidently to other students - if he had not been safely restrainted. and my son immediately stops when restrainted, like he needs to 'feel' the limit since he can not control himself. it is a release for him, not a tantrum.
21 hours ago · Like
Carol Morris I agree with Chris. I was taught restraints holds as part of gaining compliance with my very strong-willed (now bipolar) young daughter; it was the idea of training a stallion while he's a colt and you're still bigger than him. I used it rarely, and I cannot imagine it doing one whit of good for my Aspie son. His fight-or-flight would just escalate if that were done. But, if he were violent, I would certainly want to learn some safe restraint techniques to avoid harm to all involved.
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