Isolation and Loneliness in Teens on the Autism Spectrum

"What can we do as parents to get our teenager with high functioning autism to broaden his areas of interest and not hibernate in his room playing video games ALL DAY. He has very little contact with us and has virtually no friends?!"

Having little contact with family and peers is not uncommon among teenagers with Asperger’s (AS) or High Functioning Autism (HFA), but if your adolescent's isolation is becoming an issue and advancing into a troubling stage, you will want to quickly solve the problem in any way you can.

The adolescent years come with a host of issues for teens on the autism spectrum – much more so than for “typical” teens. Moms and dads often feel at a loss for how to help their “special needs” adolescent when he or she seems lonely, anxious, depressed or out of sorts.

Adolescents with AS and HFA may choose to isolate themselves, or it may happen as a result of bullying or exclusion by their peers. Other common reasons for isolation include the following:
  • Isolation can be caused by the way these teens look, dress, act, or a combination thereof.
  • Moodiness and erratic or volatile behavior can drive AS and HFA adolescents away from their peer group.
  • Shyness can be a cause of social isolation.
  • Some AS and HFA adolescents may be ostracized by peers due to their excelling academically or underachieving. “Fitting-in” is important to teens, and those that stand out may be pushed to the fringes of social groups.
  • The AS or HFA adolescent may spend too much time on the internet or playing video games, and as a result, lose touch with their friends. They may replace genuine social interaction with online gaming where they converse with strangers.
  • Depression is another prime cause of isolation for these young people. A depressed AS or HFA adolescent loses interest in everyday activities and drops out of social groups at school.


Of the reasons listed above, I have found that the biggest reason AS and HFA teens isolate is because they have been bullied, teased and rejected by their peers. Due to their “odd” behavior, these young people are misunderstood and not heard by their peers. They are trying hard to be accepted, but they simply don’t know how to do it. When trying to cope with this rejection, their brain actually goes into survival mode, and they will either become hypo-aroused or hyper-aroused, which means that they will either hide (hypo) or act-out (hyper). These behaviors then can scare peers and parents. This is why it is so terribly important to look beneath the behavior and empathize with the adolescent's emotional state – and then listen to what he or she is saying.

Adolescents with AS and HFA may end up in a situation where they struggle to help themselves. If moms and dads see this happening, they should get involved and encourage their youngster to take positive action to overcome their social problems. Luckily, there are a few ways to encourage your adolescent to become a part of things once again.

==>  Discipline for Defiant Aspergers Teens

What moms and dads can do to help their AS and HFA teens to improve self-esteem, be more socially engaged, and experience less loneliness and depression:

1. Assist your adolescent with setting short-term and long-term goals for herself. Short-term goals (e.g., completing homework each day for a week, filling out two job applications per week, etc.) will help keep her focused. Long-term goals (e.g., getting a driver's license, saving up enough money to purchase a car, etc.) will give her something to look forward to. Reaching goals provides a sense of accomplishment and improves self-esteem.

2. Consider the treatment options for your adolescent's depression or anxiety if those have been diagnosed. Getting proper treatment for these conditions will help your adolescent to stop isolating himself so much from family and peers. Possible treatments may include counseling and/or medications.

3. Create opportunities for your adolescent to volunteer and help others. Providing assistance to others helps improve feelings of self-worth. There are many volunteer opportunities available for adolescents (e.g., visiting people in a nursing home, caring for animals at a local shelter, etc.).

4. Discuss your concerns with your child when she seems more relaxed. Be honest, telling her that you have noticed that she is spending more and more time on her own. Ask her if there is something troubling her. Be tactful and patient. Do not pressure her to talk, but encourage her by speaking softly and gently and by showing relaxed body language.

5. Encourage social activity by signing your teenager up for community sports, arts and crafts classes, or any other activities that he may enjoy that will help him to meet new friends and explore hobbies and other special interests.

6. Encourage your teenager to get some kind of exercise at least 3 to 4 times a week. Staying active can help improve mood.

7. Even if it doesn't always seem like it, your “special needs” adolescent craves your attention and approval. Spend time together doing an activity that you both enjoy, or let your adolescent choose how you spend your time together. Whether it's shopping, watching movies, or going for a hike, the most important thing is to be there and to get your adolescent out of her bedroom for a while.

8. Explore all aspects of your teen’s attempts to isolate himself by keeping a journal. A journal will contain valuable information for a therapist if your child receives counseling at some point in the future. The length of time “isolating behavior” has been going on is relevant. Also, look at your child’s personality. He may always have been a loner, or he may have previously been quite outgoing. Also, note any signs of a lowering or flattening in mood.

9. Get your support team together. There are school counselors and peer-support groups. There is also individual and family psychotherapy that is provided through local mental health agencies. You may also want to have your doctor check out the possibility of any medical conditions as a possibility for isolation or depression. If your teen is physically healthy, the next step will be to bring him or her to a mental health professional who specializes in autism spectrum disorders. The therapist will give your adolescent a screening for depression and guide you through treatment options. In addition, you can contact your local clergy for support. But always keep in mind that the most important relationship is the one between you and your teenager. The professionals can assist and guide, but you can influence your son or daughter in a positive way that will have a life-long impact on that parent-child relationship.

==>  Discipline for Defiant Aspergers Teens

10. Help your adolescent to find her talents. Encourage her to join a sport, play a musical instrument, or join a club until she finds something where she excels. Also, teach her that she does not have to be good at everything, but what she settles on should be enjoyable.

11. Help your teenager to stick to his usual sleep schedule and eat regular and healthy meals and snacks.

12. Increase your adolescent's self-esteem. Sadness and isolation can sometimes be linked to low self-esteem. Give your youngster lots of compliments and positive reinforcement for the things she does well, whether that's a good grade on a test, helping out with a younger sibling without being asked, or a beautiful drawing she created. Look for the good things about your adolescent and the positive things she does, and make a big deal about them! An adolescent who feels good about herself is more likely to want to get out of the house and enjoy life.

13. Intervene if you feel your child’s behavior is troubling. He may, for example, be spending increasing periods of time in his room with the door shut and locked. He may even be neglecting his diet, appearance or studies. The best way to intervene may be to sign your child up for a social-skills training group.

14. Model healthy self-esteem. Show your adolescent the importance of self-praise, and avoid becoming self-critical in his or her presence.

15. Open the line of communication. Without being overly pushy, let your teen know you are there if he needs to talk – no matter what the problem is. This may help you to find out if there are any reasons for his isolation (e.g., school-related stress).

16. Praise your adolescent for her efforts – even if she doesn’t reach her goals (e.g., acknowledgment of hard work in her sports attempts or academic efforts). Praise positive behaviors (e.g., making healthy choices, solving tough problems). Also, teach your adolescent how to respond to failure with a healthy attitude.

17. Stay in touch with their child’s teachers and coaches. Being aware of what she is doing and who she is friends with is very important. It also lets her know that she is important to you. Sure, she may complain about you being over-protective, but so what – you are the parent.

18. Suggest that your teenager keep a journal. Writing about her feelings, drawing, and writing poetry are some of the ways she can express herself. Sometimes she may be asked to do this by her therapist as well, and maybe share some of the entries. Often being able to identify and express feelings will improve how your teenager feels.

19. Teach your adolescent to recognize cognitive distortions and replace them with more realistic thoughts. AS and HFA teens with low self-esteem tend to have a distorted view of themselves and the world. Frequently, they expect things to turn out negatively (e.g., "Everyone is going to laugh at me when I give my presentation tomorrow in class”). Other distortions may include self-blame and becoming overly-critical of anything less than perfection.

20. While some moodiness and isolation is normal, it's important to be aware of signs of more serious problems (e.g., depression, suicidal thoughts). Symptoms of depression include frequent sulking, a change in eating or sleeping habits, lack of energy, and talking about death or suicide. If your adolescent shows any of these symptoms, seek help immediately. Call a therapist or your physician right away for instructions on what to do next if you suspect a serious problem.




Isolation increases an AS or HFA teen's risk of developing mental health problems (e.g., depression, chemical dependency). Thus, parents of these teens need to help them improve their self-esteem and social skills by encouraging them to change the way they think – and how they spend their time. This can be accomplished by using the steps listed above.

==>  Discipline for Defiant Aspergers Teens


Comments:

Steve Borgman said... What a great article. I liked the suggestion of getting one's teen in a volunteer activity, particularly in an activity s/he enjoys, such as something related to animals, if s/he loves animals. Also, I appreciate the suggestion of connecting with one's child when s/he is more relaxed.

D Marcotte said... Nice article. I would like to add a couple of suggestions. 1. If your teen is interacting with others online that should count as social interaction - i.e. chat rooms, websites or whatever. My daughter who is high functioning does very well online and has friends all around the world. 2. Introduce your teen to other teens on the spectrum - we have found this to be very helpful. They seem to really understand each other in a way NT people just don't. Their friendship may not look like what you expect, but that doesn't make it any less real. I would also like to mention a great website for families impacted by autism, www.asd-dr.com is designed to help families find the treatments, therapists and services they need in the local area. It also has a lot of links to online support through links to organizations, forums and other references.

Post your comment below…

Time-Management Problems in Asperger's and HFA Teens

“I have a 17 year old daughter with aspergers. She is a good student (high functioning) now that she is doing her high school online through a public charter school. However, she has no concept of time so she is often cramming at the last minute to finish her assignments. How can I help her manage her time better so that she can do her work without stressing out about it?”

While some teenagers are just natural procrastinators, others, like your daughter, have a genuine problem understanding the concept of time, which is a common trait of Asperger’s (AS) and High-Functioning Autism (HFA).

Online schooling is a great option for AS and HFA adolescents. Removing the classroom distraction will do wonders for your daughter's thought processes. The lessening of sensory over-stimulation, the one-on-one instruction, and no bullies are definite advantages.

However, as a side note, you may want to consider social skills group classes and other social outlets to prevent total isolation. Clubs and community groups that are geared towards her special interests will provide much needed social skills practice in a comfortable environment.



Organization and time-management are weak areas for AS and HFA teens. Since these young people are prone to struggle with depression and anxiety, the addition of poor organizational skills can cause real problems. Organizational skills are crucial for young people. Teachers and college professors expect students to contribute acceptable work in a timely manner. Finding solutions that work now will lead to positive changes and less anxiety in the future.

Here are a few ideas to help your daughter manage her time better:
  • Create a routine. As a teenager on the autism spectrum, your daughter probably craves routine and order. A daily routine will set her on the right path. She may need guidance to develop a routine. Work with her to create a smooth flow to her day.
  • Design an ordered workspace. A designated place for everything, comfortable seating, quiet surroundings, and a calming decor will help reduce distractions. 
  • Use visual schedules. Use lists and reminders to keep your daughter moving along. Encourage her to keep a daily, weekly, and monthly calendar. To do lists, written schedules, and assignment lists will give her the structure she needs to begin organizing her life. 
  • Use visual timers. These timers have a colored line that gets smaller as the time passes, giving your daughter a true visual image of running out of time. Each daily task and/or school subject can be timed with the visual timer.

High school can be very overwhelming for AS and HFA teens. With your guidance and a plan of organization, your daughter is sure to finish high school and move on to college ventures with confidence and control.


More resources for parents of children and teens with Asperger's and High-Functioning Autism:

==> Preventing Meltdowns and Tantrums in Asperger's and HFA Children

==> Discipline for Defiant Asperger's and HFA Teens

==> Teaching Social Skills and Emotion Management

==> Launching Adult Children with Asperger's and HFA: How to Promote Self-Reliance

High-Functioning Autism and Behavior Problems at School

“I have a 6 year old boy who has yet to be diagnosed but, it is looking as if he has high functioning autism. He is having major behavior problems at school including hitting other classmates and staff. Although there are some behavior problems at home as well, the main problem is when he is in a group situation at school. I need assistance to resolve this as quickly as possible or they have threatened to expel my son.”

First of all, you should have your son tested by a Child and Adolescent Psychiatrists (ask for a comprehensive psychiatric evaluation) to determine if he, in fact, has high functioning autism, oppositional defiant disorder, ADHD, some combination thereof – or something else entirely. You're shooting in the dark for a resolution without a confirmed diagnosis.



Since this issue is rather emergent, I strongly suggest requesting a Functional Behavior Assessment (FBA). If the school is sending home complaints about your son's behavior -- and expecting you to do something about it -- put the ball back in their court by requesting an FBA. This will force the school to really think about your son's behavior rather than simply reacting to it. 

An FBA examines what comes before problematic behavior, what the consequences are for it, what possible function the behavior could serve, and what sorts of things could be setting your son off. If a “special needs” boy or girl finds classwork too hard or a classroom too oppressive, for example, getting sent to the hallway or the principal or home could become a reward, not an effect discipline.

Conducting an FBA – and writing a behavior plan based on it – is probably the best way to head off discipline problems, and it can be a precursor to establishing an IEP. If teachers and other staff refuse to go along with it, you may need to do a little behavior analysis on them.




More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book


==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

Recently Diagnosed Children with High Functioning Autism: Parents’ Step-by-Step Intervention Plan

Your child has recently been diagnosed with high functioning autism (also called Asperger’s). You are relieved to know that there is a name for the odd twists and turns your child’s life has taken, yet you are also very concerned about how he or she is going to cope with this life-long disorder.

Since you are new to this whole thing, you’re not sure where to start or how to best assist you child. That’s why we have created this step-by-step intervention plan below, to give you a concrete place to begin in helping your son or daughter to have the best possible outcome.

Parents’ Step-by-Step Intervention Plan for Recently Diagnosed Children:

1. Take Care of Yourself-- The first step in helping your child has to be about YOU taking care of YOU. Many moms and dads of kids with high functioning autism and Asperger’s feel exhausted, overwhelmed, and sometimes defeated. They talk about difficulties in their marriage and other relationships. While there is no quick fix for resolving negative emotions, you can take measures to care for yourself so your youngster's disorder does not get in the way of your physical or mental health. The following may seem obvious, but is exceedingly critical to your long-term success in helping your child (this is why we put it first, because you will not be able to be the parent you need to be if you are sick - mentally and physically):
  • Eat a balanced diet and stay at a normal weight. Staying fit and healthy is essential to your physical and mental health.
  • Exercise regularly. Keep up with the physical activities you enjoy.
  • Plan time for a break away from your youngster. Find others (e.g., trusted family members and friends) who can help relieve you from these duties as needed. These breaks can help families communicate in a less stressful manner and can allow moms and dads to focus on their relationships with their other kids. 
  • Review your calendar weekly. In the midst of the many appointments your youngster may have with therapists or other health care professionals, write in "appointments" for yourself and your relationships.
  • Schedule regular dates with your spouse, other kids in the family, and close friends.
  • Seek help if you or your spouse are feeling chronically overwhelmed or depressed, or the stress of caring for your youngster is affecting your marriage.
  • Watch for signs of anger, resentment, or opposition from other kids in the family. Your physician can help you find a qualified therapist to help you figure out the best ways to cope as a family.



2. Find a Support Network-- Parenting a youngster on the autism spectrum is taxing – it affects every part of your being. Making sure your youngster gets the help he or she needs can also pose a challenge, depending on whether quality support services are available in your area. Also, you are likely to have ongoing concerns about your youngster's prognosis and long-term well-being. Thus, you need to find strong social support for yourself and your youngster. Gathering your support network involves knowing ahead of time whom you can call for different types of support, even for emergencies, for example:
  • a friend you enjoy being with and who helps you survive disappointments and shares your victories
  • a neighbor or close friend who will help you out in a pinch
  • your youngster's physician, educators, therapists, or other caregivers you can ask for advice on major decisions regarding his or her treatment
  • a close friend or family member who is a confidant and whom you trust with your most personal feelings and concerns

In addition, plan outings with other parents who have kids with high functioning autism and Asperger’s. There are many parents who share your concerns and daily challenges. Talking openly with these parents can give you new insight and better ways of coping. Local and national groups can help connect families and provide much-needed sources of information. Ask your physician for referrals. Also, join online chat groups for moms and dads of kids with high functioning autism. The more you know about this disorder and the stronger your support network, the more empowered you will be to live confidently, knowing that your youngster can get the help he or she really needs.

==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

3. Evaluate Your Youngster's Need for Medication-- While there is no medication for high functioning autism, there are drugs for specific symptoms these children may display:
  • Kids with high functioning autism who have anxiety, depression, or OCD behaviors can often be treated with anti-depressants.
  • Medicines may take a youngster with high functioning autism to a functional level at which they can benefit from other treatments. 
  • Short attention spans can sometimes be improved with stimulant drugs that are used to treat autistic children who also have ADD or ADHD.
  • Some drugs may help prevent self-injury and other behaviors that are causing difficulty. 
  • The American Academy of Pediatrics suggests targeting the main problem behaviors when considering medicines. 
  • The FDA approved Risperdal in 2006 for the treatment of irritability in kids and teens with high functioning autism.
  • Some doctors may advise going off a medicine temporarily in order to identify whether it is having a positive or negative effect on your youngster.

4. Learn All You Can About High Functioning Autism-- Try to become an expert on this disorder. Here's how to start:
  • Become familiar with public policies so you can be your youngster's advocate in gaining the best education and care possible.
  • Communicate with other professionals and moms and dads and learn from those who've crossed this bridge before you as they share insights into common concerns.
  • Make sure that plans (e.g., 504 or IEP) are in place for your youngster to receive therapies at school.
  • Read all you can on high functioning autism so you understand the symptoms and behaviors and the differences in medications or alternative therapies.
  • Talk to your physician about the best treatments and goals for educational services so you and your youngster can take advantage of all available resources.




5. Educate Yourself About Treatment Options-- Experts agree that a youngster with high functioning autism should receive treatment as soon after diagnosis as possible. There is no cure for this disorder, but early intervention using skills training and behavior modification strategies can yield awesome results. Skills training and behavior modification helps with impaired social interaction, communication problems, and repetitive behaviors. Also, these methods can boost the youngster's chances of being productive at school and participating in normal activities. The American Academy of Pediatrics (AAP) recommends the following approaches for helping a youngster with high functioning autism improve overall function and reach his or her potential:
  • Behavioral training and management uses positive reinforcement, self-help, and social skills training to improve behavior and communication. Many types of treatments have been developed, including Applied Behavioral Analysis (ABA), Treatment and Education of Autistic and Related Communication Handicapped Kids (TEACCH), and sensory integration.
  • Occupational and physical therapy can help improve any deficiencies in coordination, muscle tone, and motor skills. Occupational therapy may also help a youngster with high functioning autism to learn to process information from the senses (i.e., sight, sound, hearing, touch, and smell) in more manageable ways. It can also help in performing normal activities of daily living.
  • Specialized therapies include speech, occupational, and physical therapy. These therapies are important components of managing high functioning autism and should all be included in various aspects of your youngster's treatment program.
  • Speech therapy can help your youngster improve language and social skills to communicate more effectively.

6. Look Into Necessary Dietary Changes-- Diet changes are based on the idea that food allergies cause symptoms of high functioning autism. Also, an insufficiency of a specific vitamin or mineral may cause some autistic symptoms. If you decide to try a specialized diet for a given period of time, be sure you talk to your doctor. Your youngster's nutritional status must be assessed and carefully measured. 

One diet that some moms and dads have found helpful is a gluten-free, casein-free (GFCF) diet. Gluten is a casein-like substance found in wheat, oats, rye, and barley. Casein is the principal protein in dairy products. The theory of the GFCF diet is that these proteins result in an overproduction of opiates in the brain, contributing to social awkwardness and thwarting brain maturation in kids on the autism spectrum. Since gluten and milk are found in a lot of foods, following a gluten-free, casein-free diet is extremely difficult. Also, one supplement some moms and dads feel is helpful for their youngster with high functioning autism is vitamin B-6, which is taken with a magnesium supplement.

==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

7. Consider Behavioral Training-- Behavioral training teaches children with high functioning autism how to communicate appropriately. This kind of training may reduce behavior problems and improve adaptation skills. Both behavioral training and behavioral management use positive reinforcement to improve behavior. These therapies also use social skills training to improve communication. The specific program should be chosen according to your youngster's needs. Consistent use of these behavioral interventions produces the best results. The youngster's functional abilities, behavior, and daily environment should be thoroughly assessed before behavioral training and management begins. Moms and dads, other family members, and educators should all be trained in these techniques, if possible.

Applied Behavior Analysis (ABA) is uniformly recommended by experts. The goal of behavior therapy programs is to reinforce desirable behaviors and decrease undesirable ones. For example, the youngster is taught to perform tasks in a series of simple steps and is given a predictable schedule. The behavioral therapy is then continued at home. Often times, both behavioral therapy and occupational therapy are given at the same time.

8. Educate Other Family Members-- Many mothers of children with high functioning autism talk about feeling isolated. Once the youngster is diagnosed, mothers often find that family members stop asking about the youngster, or the youngster is left out of birthday parties or other family gatherings.

Sometimes spouses and siblings admit to feeling stressed, lonely, and even angry because all attention is focused on the youngster with high functioning autism. While these feelings are natural, you can help your family members cope by educating them about high functioning autism and your youngster's specific needs.

Training family members about high functioning autism and how to effectively manage the symptoms has been shown to reduce family stress and improve the functioning of the youngster with high functioning autism. Some families will need more outside assistance than others, depending on their resiliency, established support systems, and financial situation.

In conclusion, be assured that this journey will be both demanding and rewarding. Raising a youngster with high functioning autism is the ultimate parenting challenge. But with the necessary support and ongoing training, you and your family can learn how to cope and work as a team. Parents of a child with high functioning autism talk about having very close relationships with him or her as they organize his or her therapy, hire specialists, purchase supplies, and act as his or her advocate to receive the best treatment. The biggest payoff comes from a unique bond you can have with your youngster and the joy you receive with every developmental accomplishment.




COMMENTS:

•    Anonymous said…  My son (14) was on meds for 5 years and just last year I had him evaluated by an innovative health doctor and had a full blood work up done and he had some major deficiencies and was placed on high potency natural supplements and is completely off meds. I'm not saying it will work for everyone but he's been so much better. I had a therapist say something like this to me and I'll leave you with this... If your daughters kidneys were not working properly would you give her medicine to help their function? If the brain chemistry isn't working properly maybe it needs something to function better. And since I've done both... Maybe it's something we are just lacking that can correct that chemistry. Hope this helps.
•    Anonymous said… A heavy metals detox! Which you can do at home. That's a HUGE one
•    Anonymous said… did you notice an increase in inattention with the Zoloft? I did with my daughter and stopped it
•    Anonymous said… Great idea to take time for yourself, and spend time with spouse and other children but in reality it doesn't happen.
•    Anonymous said… Has anyone had success not putting their aspie with anxiety on meds? My daughter's (13) drs suggest meds for her and I'm not convinced. I'm very reticent on messing with her brain chemistry.
•    Anonymous said… I understand sometimes it is very necessary but how can you be sure the is a chemical issue without tests? I have many friends who work is the child phsycology field who see the negative parts of medicine that out scares me. How long before you can see a difference with just therapy alone? My girl has made an improvment with therapy. She finally tried something new. She had me sign her up for a cheerleadeing class. She doesn't talk or look at them but she makes it in the door. That is a big deal for her
•    Anonymous said… I was bullied into medicating my son from the school... After taking these meds for a period of time , he developed turettes .. I took him off them and eventually it subsided .. Sometimes your better knowing what your dealing with .
•    Anonymous said… I would say no a child phycologist will help them much better.. medication just masks the problem but doesn't really deal with it properly and so many side effects or health problems from them down the line..I would definitely try more natural ways..diet screen time sleep etc it all really helps.
•    Anonymous said… Medical cannabis oil, folks! That paired with therapy is what's life saving. As long as everyone votes the cure into office, its the cure to SOOO MANY things. Very much including autism. And something I learned... Is YOU need to provide all these services, if they aren't available to you for whatever reason. Do your research folks. :) YOU can help your child. YOU can be therapy for your child. The diet has A LOT to do with their behavior and anxiety.  You are able to spend time with your spouse and other children. You just have to be smart with your time. And seriously, diet adjusted, great therapy, and not allowing the autism to be an excuse...you can live a normal life... Well, close to it. But what's really normal?
•    Anonymous said… My son just diagnosed last April - just starting therapy August 30 ~ I have a comment for both comments - first one about asd results- yes they did take Asperger diagnosis away here as well and now grade by numbers 1-3 - 3 being more severe- I came out and ask what he is considered- she said - yes hfa/ Asperger - on one category he was rated at a 1 other category 2- they gave me a copy of Dsm-5 - so maybe that will help- then you can go look up your test results to see how he was scored- a lot of good speakers are out there- I have learned so much but still so much to learn-next question about meds- I wonder same thing- I've fought so hard not to give anything but my sweet boy says things daily against hisself - 😰- there's not one day now especially now that school is back in that he doesn't put hisself down or even threats to hisself-I'm feeling like lately I'm doing more harm than good- the first 2 days of school he just wanted to come home- he was sent to nurse to talk to nurses- pretty much we made the decision to make him stay- not even knowing if that was really what I should do- then finally he's been staying- so I ask him to night - you are happy now right? He says no- im really not happy- I just miss my home- and you and I still just don't want to be with those kids all day- so in his heart he's no better- he's just suppressing- and being forced into that situation- I just don't know what to do anymore- I'm so upset tonight- just feel broke - - maybe I'm hurting him so much more by not getting him on medication to help this anxiety and depression- he's just not being helped right now- 😓
•    Anonymous said… My son takes zoloft and it works great
•    Anonymous said… My son was diagnosed last September and the specialist told me they only diagnose now with ASD. None specific, I was annoyed as o need to know they name to find the right strategies.
•    Anonymous said… My sons school kept throwing it out there that meds would be helpful. (He's 8) I said no. Even his Dr's have said no so far. The school just doesn't want to deal with him. I won't put him on anything until it's absolutely needed.
•    Anonymous said… Struggling to find these services.
•    Anonymous said… That's v frustrating for you. I don't like labels generally but they can be helpful. The blanket term of ASD has been used since DSM 5 (2013). The latest changes to the Diagnostic Statistical Manual was most dramatic with regard to ASD. You might try asking your doctors what the diagnosis used to be called eg "Before DSM 5, would this have been Aspergers" for example. ! Try googling the subject and see what comes up - if you acquaint yourself with some of the terminology and commentary it will help you feel more equipped and better able to undretsand whatthe doctors are saying. Hope this is helpful.All the best.
•    Anonymous said… The diet has nothing to do with a food allergy besides that is poison for the body period! Heavy metals detox followed up with a gluten and casien free diet. High in B vitamins, Vitamin C, and Magnesium. Huge behavioral changes. Huge anxiety relief.

•    Anonymous said… Very useful post. We're recently diagnosed too and I have so much to learn, it's overwhelming!
•    Anonymous said… Don't medicate them full stop I know 1st hand what medication does to your mind and body and it's not a good thing giving it to your child is ignorant and lazy.

Post your comment below…

Acts of Violence in Teens with Asperger’s

Reports that some of the recent school shootings may have been committed by young people with Asperger’s have led many to wonder whether the disorder plays a role in such acts of violence (e.g., the Adam Lanza case in which 20 children and six adults lost their lives at a Connecticut elementary school).

While experts strongly believe that Asperger's does not make a young person more likely to commit a violent crime, some believe it may affect the way a crime is carried out. Also, while experts agree that individuals with Asperger’s are not more likely to commit violent crimes than members of the general population, they do say that, in very rare cases, it can happen.



People who commit crimes usually do it for some kind of concrete reward (e.g., money, sex or drugs). That’s not the case in teens on the autism spectrum. In cases involving these teens, the motives are very different. The motive of the violent act is to communicate that the teen himself is very offended. Other people have treated him in a very bad way. He wants revenge, and he wants to communicate that on a very global level to lots of people. But, we need to understand four very important points here:
  1. Violence among individuals with Asperger’s is exceedingly rare.
  2. Studies have revealed that 84% of violent offenders with autism also have co-existing psychiatric disorders at the time they commit acts of violence.
  3. Also, there is no evidence that Asperger’s - alone - contributes to violent behavior. In fact, due to their lack of social skills, general naiveté, and odd behavior that gets them bullied and ostracized from their peer-group, Asperger’s teens usually end up being the victim rather than the perpetrator.
  4. Lastly, in the Sandy Hook tragedy, Adam Lanza’s violent attack was preplanned and deliberate. But there is no evidence or any reliable research that suggests a linkage between autism and “planned” violence. Aggression and violence in people on the autism spectrum is reactive, not preplanned and deliberate. For example, sometimes Asperger’s kids will get violent because they are sick or frustrated and unable to communicate how they feel.

To imply or suggest that some linkage exists between school shootings and Asperger’s is wrong, and it’s harmful to more than 1.5 million law-abiding, nonviolent and people who live with autism each day.

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