Is My Autistic Child "High-Functioning"?

Question

We have a 12 yr old son who is not in our primary care, as he lives with his mother and we see him only every other weekend. He was diagnosed with very mild autism, and is very high functioning, i.e. he is not on an EAP getting B's and C's, and although a bit socially challenged does OK with his peers.
Unfortunately he is not being challenged to become more independent, and it would appear as if his mother is trying to hold him back, i.e. he is forced to be in daycare after school with 5 - 10 yr olds, and desperately wants the chance to spread his wings and try an hour after school on his own (with a safety plan, and he has taken and passed the babysitters course). Are there any suggestions on how we go about determining if he can be challenged with more responsibility, i.e. is there a checklist of demonstrated behaviours etc?


Answer

The following lists can help parents, teachers and other caretakers to determine if the child is truly on the high-functioning end of the autism spectrum. Note: It is not expected that any high-functioning child will show all the traits listed in any section.

General intellectual ability—

• asks many questions of a provocative nature
• displays a great curiosity about objects, situations or events
• displays a willingness to accept complexity
• has a high energy level
• has a liking for structure, order and consistency
• has a power of abstraction, conceptualization and synthesis
• has a power of concentration, an intense attention that excludes all else
• has a wide range of interests
• has an interest in cause-effect relations
• has avid interest in science or literature
• has the capacity to look into things and be puzzled
• has the capacity to use knowledge and information other than to memories
• is a good guesser
• is an avid reader
• is an entrepreneur - readily makes money on various projects or activities
• is creative in new ideas, seeing associations, pursuing innovations
• is friendly and outgoing
• is independent
• is involved with many exploratory type activities
• is perceptually open to his or her environment
• is persistent
• is resourceful - solving problems by ingenious methods
• is secure emotionally
• is venturesome, wanting to do new things
• learns rapidly, easily and efficiently
• makes good grades in most subjects
• needs little outside control - applies self discipline
• provides very alert, rapid answers to questions
• retains and uses information which has been heard or read
• reveals originality in oral and written expression
• shows superior judgment in evaluating things
• tends to dominate peers or situations
• uses a large number of words easily and accurately
• uses a lot of commonsense

 
Specific academic aptitude—

• has a long attention span in areas of interest
• is able to extend learning from these key areas to various situations somewhat unrelated in orientation
• is able to judge own and others' relative abilities in key areas of interest
• is able to show broad perspective on one or more subject areas
• learns rapidly, easily and with less repetition in one or a few specific areas (probably not all subject areas)
• likes or loves one or a few areas of knowledge
• likes to study some subjects more than others
• seeks assistance of others beyond his or age peers in extending knowledge in areas of interest
• shows similar characteristics to general intellectual ability but concentrated around one or a few fields
• spends time voluntarily beyond ordinary assignments on projects of interest to him or her

Creative thinking and production—

• acts spontaneously, intuitively
• always trying to adapt or improve things
• asks provocative questions, challenges parents, teachers, written and other authorities
• can show intense concentration on a task
• can show unusual degrees of originality, concentration and persistent hard work on projects that capture their interest and imagination
• displays energy, sometimes disruptively
• doesn't accept authoritarian pronouncements without own judgment
• doesn't mind being different
• has a keen sense of humor, seeing humor in situations others don't
• is bored with memorization and recitation
• is considered, and perhaps resented, by some peers as "crazy"
• is flexible in thinking patterns
• is fluent in producing and elaborating on ideas
• is intellectually playful, interested in fantasy, imagination
• is uninhibited in expression, sometimes radical
• juggles or redefines elements of a problem or task
• makes unusual associations between remote ideas
• produces unexpected, sometimes "silly" responses
• provides multiple solutions or responses to problems
• readily guesses and makes hypotheses
• retains own ideas in a discussion or collaboration
• senses inconsistencies and discontinuities
• senses when problems exist
• tolerates ambiguity and uncertainty

 
Leadership—

• can adopt non-leadership roles within a group
• can articulate ideas clearly
• can coordinate the work of several individuals
• can establish the mood of a group
• can give directions clearly and effectively
• can listen to others empathetically
• can stimulate and arouse others
• exercises authority reliably and responsibly
• interacts with others easily showing social skills
• is looked to by others when something must be decided
• is often asked for ideas and suggestions
• organizes others
• recognizes and can articulate the goals of a group
• recognizes skills and abilities possessed by others
• supports others in a group when appropriate
• understands how people feel and how groups function

Psychomotor ability—

• demonstrates endurance, stamina and persistence in physical activities
• demonstrates prowess in physical activities common amongst age peers
• has a suitable body build
• is able to understand the intellectual aspects of psychomotor activities
• is athletic
• is coordinated, balanced and confident in physical activities
• is energetic
• is inventive in constructing or modifying games
• is rhythmic
• likes to play physically

  ==> Parenting Children and Teens with High-Functioning Autism: Parents' Comprehensive Handbook
 
Visual and performing arts—

Music:

• discriminates musical and other sounds well
• enjoys dance and dramatic activities with musical elements
• enjoys musical activities and demonstrates musical feeling
• has good sense of rhythm
• is well-coordinated
• makes up original tunes
• responds readily to rhythm, melody and harmony
• shows tonal memory
• understands musical relationships
• uses music to express feeling or experience

Dramatics:

• brings a dramatic situation to a climax with a well-timed ending when telling a story
• communicates feelings by means of facial expressions, gestures and bodily movements
• demonstrates ability to dramatize feelings and experiences
• demonstrates interest and enjoyment in dramatic activities
• demonstrates understanding of conflict when acting out a dramatic event
• enjoys evoking emotional responses from listeners
• readily shifts into role of another character, animal or object
• uses voice to reflect changes in mood

Art:

• draws a variety of objects
• is interested in other people's art, both appreciating it and criticizing it
• is willing to try out new materials and experiences
• likes to model three dimensionally with clay, soap carving, etc.
• pursues art in spare time
• puts depth into drawing, showing planning and good proportion
• shows originality in modes of undertaking art
• treats art seriously and enjoys it
• uses art to express feelings and experiences

 
Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
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Helping Your Older ASD Teen to Find Work

Question

How can I get my 19-year-old son [with high functioning autism] to stop playing video games long enough to go find a job? I try to tell him that he needs to be working at least part-time at this age – but he’s not interested. (*sigh*)

Answer

Looking for a job is difficult for any teenager new to the job market, especially when high unemployment allows extreme selectivity among job applicants. But with ASD or high-functioning autism, the difficulty level goes up yet another notch. Chances are strong that your child will face this challenge.

How can you make your home a supportive place for job hunting? Here are some ideas:

1. Be a good listener. Let him express his feelings of frustration, anger, and nervousness about seeking employment.

2. Be aware of community resources. Know the applicable civil rights laws. Consider government programs such as vocational rehabilitation and job service. If you know of other parents whose children are job hunting, you may want to form a support group for yourselves and/or your children.

3. Grooming is important. Teens with autism are often unaware of stains on their clothing, sloppy hair, or dirt on their hands. It helps if someone looks them over before an interview.

4. Help him to organize himself. Many – if not most – HFA teens do not know how to look for work. There are many books about job-hunting, each with a slightly different approach. Together, you might decide on a plan of action. Or help might be needed with the fine points of planning and scheduling. You could remind him of necessary follow-up telephone calls or letters. 
 

5. Help with writing if necessary. Teens on the spectrum tend not to have the best hand-writing skills. It might be helpful if the parent types or hand-writes job applications since sloppy handwriting and misspellings tend to disturb employers. If the employer uses online job kiosks (a new barrier for people with reading and writing difficulty), you may have to sit with him and key in the words of the application. Also, help with transportation, if necessary.

6. Insist your child actively look for work. Do not let him spend extensive time playing games, watching TV, reading, etc. If necessary, tell him that looking for work is a full-time job, which he must do in order to earn your financial support. Help him by not overloading him with chores during working hours on the weekdays when employers are in. Help him overcome his failures, but do not accept lack of effort.

7. Use your social network to help your child find work. Talk to your friends, co-workers, and other parents of autistic children. Tell them about your child. Stress your child’s positive qualities and describe him as a capable worker. Don’t spend a lot of time describing his disorder. Ask him to follow up any leads that you discover.

8. Social skills are important to job success. Help your child to understand the point of view of co-workers and to adjust to the many hidden rules of the organization.

9. As he looks for employment, emphasize his actions and behavior, rather than the results. If he is actively seeking work, he deserves your respect and praise, even if he does not succeed in finding work. For example, praise your child if he does a good job of describing his qualifications at an interview, even if he is not selected for the opening.

10. Finding a job is only half the battle. Your child will have to work hard in order to keep that job. Be sure your child gets a complete job description and check for problem areas. If your child might have difficulty with any task because of his disorder, he may want to consider trading that task with a co-worker in return for a task that he can do.

Autistic teens work in every conceivable job – salesperson, optometrist, pilot, doctor, psychologist, computer programmer, janitor, and waiter. Pay attention to your child’s abilities. Teach him to feel pride in his achievements. And support him as he hunts for a job. With your help and your clear belief that your child can succeed, he can “make it.” 

Good luck!


Resources for parents of children and teens on the autism spectrum:
 
More articles for parents of children and teens on the autism spectrum:
 
Social rejection has devastating effects in many areas of functioning. Because the ASD child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually.

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Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's or HFA child is totally out-of-control. When it ends, both you and your child are totally exhausted. But... don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

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Although Aspergers [high-functioning autism] is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager on the spectrum are more difficult than they would be with an average teen. Complicated by defiant behavior, the teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

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Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with ASD face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

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Two traits often found in kids with High-Functioning Autism are “mind-blindness” (i.e., the inability to predict the beliefs and intentions of others) and “alexithymia” (i.e., the inability to identify and interpret emotional signals in others). These two traits reduce the youngster’s ability to empathize with peers. As a result, he or she may be perceived by adults and other children as selfish, insensitive and uncaring.

Click here to read the full article...

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Become an expert in helping your child cope with his or her “out-of-control” emotions, inability to make and keep friends, stress, anger, thinking errors, and resistance to change.

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A child with High-Functioning Autism (HFA) can have difficulty in school because, since he fits in so well, many adults may miss the fact that he has a diagnosis. When these children display symptoms of their disorder, they may be seen as defiant or disruptive.

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Avoiding Negative Reinforcement: Tips for Parents of Kids on the Autism Spectrum

Negative reinforcement requires the youngster to work for the removal of an in-place, unpleasant consequence. The child's goal is to get rid of something that is unpleasant rather than to earn something that is desirable. In a negative reinforcement model, instead of working to earn a positive consequence, the youngster works to distance herself from an aversive consequence. 

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How to Handle Aggressiveness in Kids and Teens on the Autism Spectrum

Question

My son will be 11 in September. There are so many issues, but the biggest concern now is the aggression associated with his meltdowns. The aggression is getting worse, both physical and verbal. He uses foul language, hits, kicks, spits and threatens to kill me. I am desperate for a solution of some kind. I don't know what I should do when these meltdowns occur. They start the minute I pick him up from school. He does not have this problem at school. Since school started back last week he has had a major meltdown every day. I know that school (he's at a new school this year) is a major stressor. He's completely uncooperative with homework and as I said above, the aggression associated w/ these tantrums is escalating. I am desperate for help.

Answer

Many High-Functioning Autistic (HFA) kids do not have the social skills or self-control to manage their behavior. These must be taught. When kids can’t find the words to deal with aggressive feelings or are not encouraged to express themselves, they become frustrated. At other times, kids cannot cope with growing levels of anger in themselves or in others. In both cases, kids need to learn acceptable ways to assert themselves and to learn coping skills.

For these young people to outgrow their aggressive ways, they need positive, consistent, nurturing discipline. They need to learn positive problem-solving techniques. Parents need to place kids in environments that offer a setting and support for learning positive social behavior rather than aggressive, hostile, antisocial acts.
 

Try some of these options:

1. Observe to get the facts. Keep a log to find the theme of what triggers the acts of aggression – then help the youngster steer clear of these activities.

2. Share your notes or journal with the teachers. Compare to see if similar behaviors are triggered at home and at school.

3. Take a look at the environment. Is some activity or room arrangement causing anxiety or frustration? Does the youngster feel crowded, or is he bored for too long? Does the youngster have enough personal space?

4. For school-age kids, write a plan of action for what the youngster will do when the negative behavior occurs.

5. Make a list of activities to do “instead” (play with Play-Doh, run around the house, vacuum, draw, take a bath, etc.). Use a picture graph if the youngster can’t read.

6. Recognize success. “Even though I could tell you were mad, that was a great way you controlled your anger!”

7. Teach the youngster deep breathing and visualization relaxation exercises.

8. During a calm time, talk with the youngster so he understands the consequences of actions. Bedtimes are often quiet times for talking.

9. Accept your youngster and understand his unique temperament. While his behavior will be challenging at times, remain patient and supportive.

10. Tell your youngster how you expect him to behave. You will need to keep telling the youngster. Be specific and positive. Rather than saying, “Don’t hit,” …say, “Hitting hurts. Please use your words.”

11. Be consistent so kids know what to expect.

12. Organize the home environment; set limits on what the youngster may use.

13. Limit access to aggressive toys (e.g., swords, guns).

14. Monitor television for aggressive shows.

15. Watch television with your youngster, and comment on the content.

16. Sing songs and tell stories about feelings and frustrations. Talk about what anger may feel like.

17. Allow some independence by providing a help-yourself shelf with blocks, art supplies, puzzles, or other things. Define where kids may use these materials. Provide enough materials so kids don’t have to wait to use them and become frustrated.

18. Allow transition time between activities; give a five-minute warning that the activity will change or it is “time to come in from play.”

19. Be a model for controlled behavior, and avoid angry outbursts and violence.

20. Monitor out-of-home activity. Know where they are and whom they are with.

21. Avoid extreme permissiveness, laxness, and tolerance OR too much structure and too many demands.

22. Figure out what the youngster needs—attention, security, control, or to feel valued. Try to fill the need so he won’t continue to act undesirably.

23. Use closeness for control. When you sense your youngster is about to lose control, quietly and gently move close. Often your calm presence is enough to settle your youngster.

24. Help kids talk to each other to solve problems. Ask open-ended questions to help them think about options to solve their own problems.

25. Give kids choices so they feel empowered. Offer two acceptable choices.

26. Redirect your youngster. If your youngster is pushing, hitting, or grabbing, move him in another direction and into another activity. Stay by his side until he is positively engaged.

27. If your youngster is misusing a toy or destroying it in an aggressive manner, remove it. Get out Play-Doh, arrange an interlude of water play, or direct your youngster to his sandbox. These tactile experiences often magically quiet aggression.

28. Remove your out-of-control youngster from the scene. Hold the youngster, go for a walk, or go to another room. Stay with him until all is calm.

29. Be your youngster’s control. If your youngster is hitting another, your words may not be enough to stop the aggression. You must move in and gently but firmly stop the behavior. You provide the control your youngster lacks. In time, your control transfers to your youngster. Say, “I’ll keep you from hitting your sister.”

30. Note improved behaviors: “I like the way you used words to solve that problem.”

31. Avoid difficult situations. If you know going to the park where there are lots of children sends your youngster into an aggressive tirade, avoid going. Find a less-stimulating setting where your child can achieve more social success.

32. Seek support yourself when you need a break.

33. Banish punching bags. If you have a youngster who is aggressive, realize that the effect of “hit the punching bag, not Jo,” has not proven effective for reducing aggressive attacks.

34. Prepare the youngster. Before your youngster meets new friends, tell him what behavior you expect. With young kids, remind them that people don’t like to be hit or pushed.

35. If all of your strategies have been used to no avail, seek counseling or assistance in developing a youngster/family plan to learn aggression management.

 


COMMENTS:

•    Anonymous said... I am going through the same my son is fourteen. X
•    Anonymous said... I find that all children are different, and with my son, teasing, mimicking or laughing would send him into a downright rage even worse than the initial one! We find that just gently diffusing it and saying "I'm sorry you are feeling that way", or "maybe you could just take a few quiet minutes to yourself to think of some better words to describe how you are feeling" works much better. It helps him boil down what he's thinking and realize that he hasn't affected me, just the results he was hoping for, and that he won't get what he needs/wants with violence and aggression. It doesn't always work the way I want, but it models good problem solving and the behavior that I want to see in him.
•    Anonymous said... I ignore the foul language and tell my 15 yr old daughter I've hard worse and talking like that is not going to get you what you want. Thank goodness she has not used the language outside of our home, that I know of. Same with the physical. I walk away and if need be I lock myself in my bathroom and take a breather myself. Know what you are going through and feel for you.
•    Anonymous said... I know you probably won't feel like it at the time but I've found that diffusing the situation with humour often works best for me. We usually end up laughing. I've also used to mimic his voice or action, not in a patronising way, more in a over acting dramatic way. Worth trying?
•    Anonymous said... I tell my son that I don't deserve to be treated/spoken to like that, or I tell him he's more intelligent than to do/say that, I find logic helps him to handle his anger at the moment, but he's having cbt so I'm sure that's helping him to recognise the triggers for himself x
•    Anonymous said... my son was put on Risperdon and it changed his whole personality. He used to be how you described and now it chills him out and he is such a happy, content and great part of our family. Last year he was nearly suspended from school and he used to throw things at home, kick things, hit his sister etc. He is on a mix of Risperidon, Fluoxitine and Concerta. We also were told to spend time together and rub his head, arms etc while reading stories or watching movies and to play classical music around the house. We have a totally different 10 year old.
•    Anonymous said... We had the same type of experiences, I found my son used words and actions to assert himself, he knew which words would get a reaction. He once told his teacher that he hoped her unborn child would die, he did this at age 13. He was feeling highy frustrated that she thought he was too dumb to learn. Today at age 20 he is a model citizen, holds 2 jobs, goes to a trade school and is a volunteer fireman...who knew? God gave us these children for a reason-because we are the only people who could/can raise them! Hang in there it will get better when he learns coping skills.

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