HELP FOR PARENTS OF CHILDREN WITH ASPERGER'S & HIGH-FUNCTIONING AUTISM

Education and Counseling for Individuals Affected by Autism Spectrum Disorders

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Social Skills Education for Aspergers Children: Tips for Parents and Teachers

The process of teaching social skills to children with Aspergers and High-Functioning Autism involves a six-step plan:
  1. assessment of existing skills
  2. defining what skills will be taught (i.e., setting goals and objectives)
  3. planning how the skills will be taught (i.e., teaching strategies)
  4. implementing the teaching plan
  5. assessing child progress
  6. adapting the teaching strategy so that the child acquires the target skill

Most social skills programs for kids with Aspergers fall into one of two theoretical frameworks: (1) behavioral and (2) developmental.

1. In a behavioral approach, the youngster’s behavior is evaluated according to (a) the presence of dysfunctional behavior (e.g., presence of abnormal behaviors, abnormal frequency of certain behaviors) and (b) behavioral deficits (e.g., absence or low frequency of typical skills). Behavioral teaching strategies are then designed to increase the youngster’s performance of deficit skills and decrease dysfunctional behavior. These strategies involve:
  • identifying the target of teaching
  • determining the appropriate antecedent and consequence for the target behavior
  • using systematic instruction and assessment to teach the target behavior
  • assess child progress

CLICK HERE  for an example of a Behavioral Intervention Plan.

2. The developmental approach involves assessing each developmental area (e.g., motor, cognition, communication, social development, etc.) and using the youngster’s successes, emerging skills, and failures to determine his or her area of development. This area indicates the set of skills that the youngster appears to be ready to learn next, based on his or her assessed performance. Those skills are then targeted for teaching.

Goals for specific social skills identified in interactions with adults may focus on early prelinguistic behaviors (e.g., joint attention, turn taking, imitation, responding by gaze to adult initiations, initiating social interactions with adults, etc.). These interactions occur within a play context, so establishing and supporting “toy play” with an grown-up may be a goal for Aspergers kids.

As these young people grow older, interactions with adults may more often occur in classroom contexts. Although such classroom-based interactions may also occur in a play context, the nature of adult-child interactions will extend to behaviors necessary for functioning independently in the classroom. Social skills (e.g., responding to teacher directions, independently participating in the routines of the classroom, expressing needs to teachers, requesting assistance of the teacher, etc.) all become important functional skills necessary for Aspergers kids to be successful in classroom settings.

Since communication is the process by which individuals carry out social relationships, the Aspergers child’s communication skills are a big part of social development. Developing social goals and objectives needs to be conducted alongside developing communication goals and objectives. Therefore, assessing communication skills and needs, and making sure that teaching strategies for communication are integrated with social teaching strategies, are critical for developing skills that are functional for the youngster.

Play, like communication, is an important social activity in childhood. Play skills, like communication, must be assessed and considered within the social context. Development of more mature play skills in both independent play and social play is important for the social development and peer-interaction of kids with Aspergers, since play is the glue that holds together peer-interactions in childhood.

Assessing an Aspergers youngster’s actual behaviors toward other kids (e.g., initiations, responses, interest in others, level of social play, etc.) provides an important baseline against which to measure the degree to which interventions are having valid effects. This assessment, when paired with information about priorities, parents’ concerns, skills needed to be successful in the current educational settings, and skills needed to be successful in the next educational setting, can serve as a basis for selecting functional social outcomes that parents and teachers can select for young people with Aspergers.

Teaching Social Skills and Emotion Management

COMMENTS: 

Mark, This is another of your excellent works!  HAPPY NEW YEAR TO YOU AND YOURS. Keep up the good work... there's nothing out there like yours!

Hi Mark, I bought your ebook on aspies and relationships. It is good. I have only read some of it, but of all the asperger relationship books I've read, yours is definitely the best. 

Teaching Students with High-Functioning Autism & Asperger's

Presented by parents, teachers, and professionals in the field of Autism Spectrum Disorders, this video explains underlying differences in students on the spectrum and suggests strategies for increasing their success in school: 



Teaching Students with Aspergers and HFA: Course for Educators

The 3 Types of Aspergers Children

“Are most children with Asperger’s basically the same with respect to symptoms and level of functioning, or are there significant differences from one child to the next?”

Active  -  Aloof  -  Passive
Kids with Aspergers (AS) and High-Functioning Autism (HFA) demonstrate widely differing levels of skills and severity of symptoms. These children demonstrate impairments in relationships to peers, the use of nonverbal communicative behaviors within their social exchanges, the use of imitation, and symbolic or dramatic play. Social interactions are characterized by low rates of both initiation and response. This is most marked in interactions for the purpose of sharing experiences and establishing interpersonal connection.

The use of nonverbal communication (e.g., gestures, emotional expressions) is affected in AS/HFA kids, both expressively and receptively. These children use fewer nonverbal gestures and a more limited range of facial expressions in their communications than neurotypical (non-Aspergers) kids. Kids with AS/HFA appear to pay less attention to other’s emotional displays, and they tend to demonstrate fewer acts of empathy or shared emotion. Kids with AS/HFA also demonstrate less imitation of other’s actions, movements, and vocalizations.

There are wide-ranging differences in the levels of play skills seen in kids with AS/HFA. However, functional play and other “object play” are not impaired relative to neurotypical children. Only the production of “symbolic play acts” is markedly deficient. Sensorimotor play also appears to be affected, with more repetitive and immature play seen in kids with AS/HFA. Given the importance of symbolic play for normal development, this is an important target of early intervention for AS/HFA kids.

There are wide-ranging differences within the group of kids with AS/HFA in their social interests and behaviors. In terms of general sociability, there are 3 sub-groupings of these kids based on social interests:
  1. Active but odd: This group makes initiations and responds to others. They are interested in interactions and seek them out, but their ways of carrying out the interactions are unusual in their odd language, obsessive topics, and lack of understanding of others.
  2. Aloof: This group is indifferent in all situations, particularly marked with peers, though approaching to get needs met and often enjoying physical interactions.
  3. Passive: This group involves kids who initiate few social interactions, but respond positively to the approaches from others.

The descriptions of these groups imply developmental differences, IQ scores, language levels, and patterns of brain function. The descriptions also imply differences in context (e.g., a youngster may be detached from friends, but passively responsive to grown-ups) as well as differences in temperament and amount of negative behavior displayed in social interactions. Characterizing the patterns in this way is useful to parents, teachers and therapists, because it helps to focus interventions and set priorities. 

The Aspergers Comprehensive Handbook 

 
 COMMENTS:

•    Anonymous said... My boy is closest to 3. This is very interesting
•    Anonymous said... My aspergers son is closest to 1, craves company and social situations. He becomes obsessed with games and collecting the latest craze to ensure he can not be left out conversations. Being left out of something is taken as a huge personal insult. If a group of friends go somewhere together without him even something as simple as the park or swimming pool, it can trigger a full on melt down. Yet he can really struggle to grasp the social interactions. If he is with us and close friends he can show his stress but if with less well known people he will hold it in and explode at home for hours, recalling it for days, weeks and sometimes even years. It's very hard because people do not see that he's holding it in, they just see an 'ordinary' child who can speak a little 'old fashioned' at times or get a little pushy and shouty. They don't seem to notice the twitching, worry or anger in his voice when he's stressed. Wouldn't change him for all the world though.

Post your comment below…

Explaining The Connecticut Shooting To Your Aspergers Child

The recent school shooting may have raised many questions for your Aspergers youngster. There are no easy answers about this kind of tragedy, but it is important for moms and dads to try to explain what has happened in order to help ease their youngster’s fears and anxieties about his personal safety.

If your child will be around other kids or has access to media of any type, it’s important to discuss the shooting. It will be less frightening if she hears about it from you instead of from a classmate or reading about it on the Internet. 

To guide you through difficult discussions about school violence, here are a few suggestions:

1. Be patient. Tragic news takes time for children to process. They may express their confusion and fear in unexpected ways. Be there with lots of extra, love, support and reassurance.

2. Create a safety plan with your Aspergers youngster. Help identify which grown-ups (e.g., teacher, school counselor, coach, etc.) your youngster can talk to if he feels threatened at school. Also, tell him who will pick him up during an emergency if you are unavailable.

3. Discuss the safety procedures that are in place at your youngster’s school. Explain why visitors sign-in at the principal’s office, or why certain doors remain locked during the school day. Help your youngster understand that such precautions are in place to ensure her safety. Also, stress the importance of adhering to school rules and policies.

4. Don’t overwhelm your child with too much information. He might want to talk intermittently or might need concrete information to be repeated.

5. Empower your Aspergers child to take action regarding school safety. Encourage her to report specific incidents (e.g., bullying, threats or talk of suicide) and to develop problem solving and conflict resolution skills. Encourage her to actively participate in student-run “anti-violence” programs.

6. Encourage your child to talk about his concerns and to express his feelings. Some kids may be hesitant to initiate such conversation, so you may want to prompt your child by asking if he feels safe at school. When talking to your child, remember to talk on his level (e.g., he may not understand the term “violence” but can talk to you about being afraid or about a classmate who is mean to him). Encourage your child to talk, but respect his wishes when he may not want to.

7. Ensure that your child is not exposed to media reports about the event that are repetitive, confusing, or frightening.

8. Ensure that your youngster knows how to reach you (or another family member or friend) in case of crisis during the school day. Remind her that she can talk to you anytime she feels threatened.

9. Keep the dialogue going and make school safety a common topic in family discussions, rather than just a response to an immediate crisis. Open dialogue will encourage kids to share their concerns. When speaking with your Aspergers child, it is best to use communication that is factual, simple, clear and sensitively worded.

10. Recognize behavior that may indicate your youngster is concerned about returning to school. Some kids may react to school violence by not wanting to attend school or participate in school-based activities. They may minimize their concerns outwardly, but may become argumentative, withdrawn, or allow their school performance to decline.

11. Stay calm. Your youngster will pick up on your emotions. If you’re an emotional disaster, he is going to feel it and panic too. It’s okay to let your child see you are upset, but wait until you can discuss it without falling apart.

12. Talk honestly about your own feelings regarding school violence. It is important for kids to recognize they are not dealing with their fears alone.

13. Validate the youngster’s feelings. Do not minimize her concerns. Let her know that serious school violence is not common, which is why these incidents attract so much media attention. Stress that schools are safe places. In fact, recent studies have shown that schools are more secure now than ever before.

14. Seek help when necessary. If you are worried about your youngster’s reaction, or have ongoing concerns about his behavior or emotions, contact a mental health professional at school or at your community mental health center.

15. Watch for signs of prolonged or excessive anxiety. Symptoms include:
  • Behavior problems (e.g., misbehaving in school or at home in ways that are not typical)
  • Clinging behavior (e.g., shadowing parents around the house)
  • Decreased activity
  • Irritability
  • Jumpiness
  • Loss of concentration
  • Persistent fears related to the shooting (e.g., fears about being killed)
  • Physical complaints (e.g., stomachaches, headaches, dizziness) for which a physical cause can’t be found
  • Preoccupation with the school shootings
  • Refusal to return to school
  • Sadness
  • Sleep disturbances (e.g., nightmares, screaming during sleep, bedwetting, etc.) 
  • Withdrawal from family and friends

As a side note, it is a sad fact that many people (including the media) who lack accurate information about Aspergers and High-Functioning Autism are going to make rather large “leaps of logic” regarding the recent school shooting. For example, “the shooting occurred because the shooter had Aspergers” …or... “all children with Aspergers are prone to violence.”

Of course, we know this isn’t true. But as a parent of a child on the spectrum, you may find yourself on the receiving end of undue prejudice in the months ahead. Thus, below are some tips to help you face those who may be judgmental, excessively concerned, or just plain ignorant about your child’s disorder.

Tips for dealing with judgmental people:

1. Develop a sense of humor. Other people's judgments can be comical when they're completely irrelevant to what you believe or experience.

2. Don’t take it personally. Most of the times, others’ criticisms reflect more about themselves than about you. They react in this manner because of certain beliefs and frameworks they have about life. You may think the critical person is all out to get you, but it’s more likely he/she reacts in this same manner toward everyone else too.

3. Just as the judgmental comments of others reflect something about their inner frameworks, our discomfort with their comments reflects something about our inner frameworks too, especially if we are bothered by it. If you ever feel uncomfortable about others’ comments, look within to understand why you’re feeling that way. Why are you unhappy about what he/she just said? Why are you feeling uncomfortable with his/her comment? What is it about it that is bothering you? The discomfort is not because of the other person; rather, it’s really because of something in you. Honest answers to these questions should help you gain closure on your discomfort and help you to directly act on the situation by your own actions, without expecting anyone else to change.

4. Nurture yourself so you don't buy into the hurtful opinions of judgmental people out of stress or insecurity. Daily meditation is a great way to let go of negativity.

5. Recognize that others' irrational concerns are their problem. Their judgments reflect their own lack of accurate information, security and/or self-esteem. Distance yourself from their behavior by realizing you haven't done anything wrong as a parent of an Aspergers child.

6. Some people may voluntarily offer criticisms, even when you’re not asking for them. These criticisms may well be out of line and done in poor taste. One way you can respond is to retaliate in anger. However, since the person must have a lot of angst to be voluntarily dispensing criticisms in the first place, your retaliation will only invite more criticism. If you can’t stop them from voicing their opinions, then you have an option of ignoring them. Give a simple 1-2 liner response, one that acknowledges receipt of the comment – but doesn’t engage further in the discussion.

7.  If the judgmental person in your life is a family member, the emotional connection may make negative judgments more toxic. It will not be easy to avoid this person, but that does not mean you have to allow any judgmental statements to demoralize you. Turn the tables by telling your family member that you are concerned about his/her negative outlook, and then begin educating him/her about the Aspergers condition.

8. Take others’ criticisms as a source of honest feedback, rather than seeing them as uninvited criticisms. At least with them, you know “what you see is what you get.” I would much rather deal with a directly blunt person than with someone who is seemingly nice – but is fake! Some people pretend to be nice and supportive in front of you, when in actuality, they are not in agreement and they are just concealing their misgivings.

9. Judgmental people may simply be insecure and covering up by insisting they know better than everyone else. A judgmental person may simply need to feel respected and to believe his/her opinions matter. Engage this person in conversation and try to understand his/her point of view.

10. Work on your self-esteem. This is the key to dealing with judgmental people. Have a firm idea of your abilities, limitations, beliefs and values. This shields you from people who try to make you feel small so they feel superior.

Why Did Adam Lanza Murder Innocent Children?

"Why Did Adam Lanza Murder Innocent Children?"

There are two answers to this question: (1) we will never know what triggered Adam to do such a horrific act (i.e., the straw that broke the camel’s back), and (2) there were multiple factors involved.

Studies on violent crime committed by young people have increased our understanding of factors that make some populations more vulnerable to perpetration. Risk factors increase the likelihood that a young man (or woman) will become violent. However, risk factors are NOT direct causes of violent crime; rather, risk factors contribute to violent crime.

A complex interaction of factors leads to an increased risk of violent behavior in young people.  These factors include:

Community Risk Factors—
  • Socially disorganized neighborhoods
  • Low levels of community participation
  • High level of transiency
  • High level of family disruption
  • High concentrations of poor residents
  • Diminished economic opportunities

Social Risk Factors—
  • Social rejection by peers
  • School failure 
  • Poor academic performance
  • Low commitment to school
  • Lack of involvement in conventional activities
  • Involvement in gangs
  • Association with delinquent peers

Family Risk Factors—
  • Poor monitoring and supervision
  • Poor family functioning
  • Parental substance abuse or criminality
  • Low parental involvement
  • Low parental education and income
  • Low emotional attachment to parents
  • Harsh, lax or inconsistent disciplinary practices
  • Authoritarian child-rearing attitudes

Individual Risk Factors—
  • Antisocial beliefs and attitudes
  • Attention deficits
  • Conflict in the family 
  • Deficits in cognitive abilities
  • Deficits in information-processing abilities
  • Deficits in social abilities
  • Developmental disorders
  • Exposure to violence
  • High emotional distress
  • History of early aggressive behavior
  • History of treatment for emotional problems
  • History of violent victimization
  • Hyperactivity
  • Involvement with drugs, alcohol or tobacco
  • Learning disorders
  • Low IQ
  • Mental health issues
  • Obsession with violent media (e.g., movies, games)
  • Poor behavioral control

Other factors include:
  • Being the victim of physical abuse
  • Being the victim of sexual abuse
  • Brain damage from head injury
  • Exposure to violence in media 
  • Exposure to violence in the home or community
  • Genetic factors
  • Loss of support from extended family
  • Marital breakup
  • Poverty
  • Presence of firearms in home
  • Previous aggressive or violent behavior
  • Severe deprivation
  • Single parenting
  • Unemployment
  • Use of drugs or alcohol

So, as much as we want to get to the bottom of why this “senseless” shooting occurred, we will have to settle for the fact that there is no single answer to explain such a tragedy as the one that occurred on 12/14/12.

People are looking for "the" reason why this happened (e.g., mental illness), which is unfortunate, because then they will also go looking for "the" answer (e.g., gun control). But there is no one reason - or answer. This is a complex, multifaceted problem that calls for comprehensive, intricate problem-solving.

I believe that we, as a society, have now begun the process of doing the tough investigative work that needs to be done in order to save many more lives than we lost at Sandy Hook Elementary School. Most often, it takes the occurrence of a tragic event before we awaken from our slumber and begin the process of change. We may have lost 20 of our children on 12/14/12, but maybe because of them, we will end up saving more precious lives in the future than would be possible had this incident not occurred.

FOOTNOTE:  The authors of the earliest known review of the link between Aspergers and violence concluded that no such connection exists. In a more recent review, the determination was that the link is inconclusive and is supported by only 11 of 147 studies on Aspergers and violence when the strictest inclusion criteria are used. 

Noticing "Troubled" Aspergers Students Before Tragedy Occurs

To all parents of children and teens affected by Aspergers and High Functioning Autism:

There is someone who spends almost as much time with your child as you do. But, this person may not understand your child’s disorder and related symptoms. Also, this person may not pick up on subtle signs and signals that a particular child is becoming “troubled.” This person is your child’s teacher.

Make no mistake: I’m not blaming teachers for what happened on 12/14/12 (i.e., the Adam Lanza tragedy). But I strongly believe that one of the most important resources that we have to see to it that nothing like 12/14 ever happens again is our teachers. Even though there is growing awareness about autism spectrum disorders in the educational system, much misinformation and lack of information still exists. And this is where you, the parent, can help.

Please email your child’s teacher(s) with the link to this post…


Advise the teacher(s) that they can download the following eBook once, and then they have permission to print as many copies as they want: Teaching Students With Aspergers & High-Functioning Autism

It is hoped that they will print dozens of copies and disseminate throughout your entire local school system. If you child's teachers have any questions about this offer, please let them know they can email me personally (Mark Hutten, M.A. ==> mbhutten@gmail.com).

If a student with Aspergers or High Functioning Autism is going to deteriorate, this change for the worse usually begins when he or she enters the public school system. So in many ways, our first line of defense against having a “functional” child turn into a “troubled” child is our teachers. They must learn about this disorder and know how to deal effectively with the affected student in the classroom!

Online Parent Support, LLC


BEST COMMENT:


Thank you. How generous and kind of you. Truly, i appreciate what you are doing and am touched by your action to reach out and help. Like you, i hope i can help to educate others more about aspergers so that life is a little more manageable for them and so they can learn the skills to overcome challenges, be healthy emotionally, and live a happy and fulfilled life. I am a former elementary school principal and, sadly, aware of how poorly equipped many educators are to deal with such a diverse learner. There are great teachers out there who havent been trained enough. Its hard with the large numbers and demands of other responsibilities. I do understand this, but we have an urgent responsibility and duty to NOT let these students fall through the cracks. My daughter, an aspie, frequently goes unnoticed. She is quiet, well behaved, etc, but the inner, hidden frustration is so very great as she struggles with academics, feeling overwhelmed, not understanding so many things that other students learn naturally just by being immersed in the context and by observation alone. No one really sees this on the surface. 

Another thing that saddens me is the lack of emotional support for all students. Counselors are usually only part time and overloaded. The good ones intervene with students alone and in groups but others work traditionally with whole group classroom lessons and nice but unnecessary schoolwide activities. (the "feel-good stuff!) We need to use our resources, especially our wonderful mental health counselors, more wisely and prioritize our needs. We need funding and involvement that crosses the great divide btwn school and the outside community. Our efforts are oftentimes so disjointed. Just think of what we could do if everyone worked together - psychiatrists, schools, churches maybe,    Psychologists, etc.

Again, i thank you. You are helping a lot of people and the knowledge gained from you will just continue to grow exponentially as it is applied to and shared with others. 

As always, your article/link/mission, both timely and helpful.  Sincerest thanks and spreading the good word.  



MORE COMMENTS:

•    Anonymous said... And this is why I homeschool!
•    Anonymous said... Hence why school never worked. So, learning at home and in the community it is. And it is wonderful.
•    Anonymous said... Home school all the way! It's not worth putting my son thru the torment of public school. I'll keep him at home to educate him & know what's going on. There fore he won't be bullied be other students & even some teachers.
•    Anonymous said... Home schooling was the best decision we made. I feel so bad for my son cause of what the school put him thru. Made him feel like something is wrong with him shame on them!!!
•    Anonymous said... I agree with protecting your child - i removed mine from public and placed him into private - he's blossomed there and is SO happy to be with kids like him finally!!! He has never tried to stay home ONCE since being in the new school.. I considered home school but I also had to consider his social skills - and keeping him home/sheltered would have been such a detriment to building important life skills that he can only learn while being in school.... Also it's vitally important to ensure the child is receiving a proper education too.... I hope for the child's sake they are receiving tutors if the parents aren't suitable to teach as a certified teacher would. After reading some posts - here and other sites, some parents can't speak proper English - let alone spell it!! So can you IMAGINE what the child is learning - or isn't I should say.... Love your baby first and foremost - the rest will all work out
•    Anonymous said... just reminds me once again why I made the decision to home education my high functioning teenage daughter - one year in secondary school did enough damage that has taken us 9 months to slowly get her to recover from.
•    Anonymous said... My son has the best & most supportive teacher - i believe its up to you as a parent to inform the school & keep in the loop…
•    Anonymous said... One of the reasons I am homeschooling now is the teachers were not interested in understanding my son
•    Anonymous said... Until schools get rid of tenure and can fire bad teachers, our students will suffer (a former teacher who saw too many bad eggs). Luckily our school staff is wonderful, helps him learn social skills and use resources to stop the bullying. But it is still a game of wills if I want to switch teachers mid-year. Luckily he is on the staff's radar.

Post your comment below…

Learning Your Aspergers Child’s “Triggers”: Help for Destructive Behavior

Destructive behavior (e.g., hitting and kicking, throwing objects, damaging property, screaming, etc.) is common in some kids with Aspergers and High-Functioning Autism. This type of behavior can be disturbing and possibly dangerous, and requires a specific parenting approach as well as additional supervision to ensure the safety of everyone involved. Since children on the spectrum do not respond well to traditional disciplinary strategies, parents must come up with an approach that doesn't accidentally reward unwanted behavior.

While Aspergers is an incurable condition, learning and development is possible with the proper treatment and education. Moms and dads should embrace early intervention opportunities whenever possible, as these can help kids develop strategies for dealing with some of the more challenging behaviors associated with Aspergers. In addition to developing coping mechanisms for destructive behavior, early intervention can help provide a greater degree of independence as these youngsters get older.

Kids with Aspergers generally have specific “triggers” that signal danger or disruption to their feelings of comfort and security. These young people tend to develop their own “cues” in response to these trigger events (i.e., warning signals that parents can “read” to understand that the youngster is having difficulty).  These cues may include any of the following:
  • becoming quiet or withdrawn
  • changes in speech patterns
  • complaining
  • exhibiting a fear or avoidance response
  • facial expressions
  • feeling ill
  • getting irritable
  • nervous tics
  • sweating

When parents anticipate these triggers or observe these cues, they should provide assurance, support and attention as quickly as possible. If parents miss these cues, Aspergers kids may escalate their behavior to a point where they completely lose control. 

Because parents and teachers see kids in different situations, it is essential that they work together to share information about triggers and cues. This is best done on a regular basis (e.g., during the IEP meeting or a periodic review meeting) rather than in response to a crisis. However, when a crisis does occur, those who work with the youngster should meet to briefly discuss specific concerns and how to best address his/her needs in the current situation.

Tips for reducing and eliminating destructive behavior in Aspergers children:


1. Aspergers kids have difficulties with social skills and self-management, and will need instruction in anger-control, tolerance of individual differences, and self-monitoring.

2. Children with Aspergers interpret very literally; therefore, moms and dads need to choose their words carefully to insure their youngster will not misinterpret what they are trying to get across.

3. Consider changing your child’s diet. A gluten-free/casein-free diet is a popular diet for aggressive kids on the spectrum. Gluten is a protein found in wheat, rye, barley and some oats, and casein is a protein found in milk.

4. Eliminate sensory issues. If your Aspergers youngster has sensory issues that are overwhelming, he can become aggressive. Loud noises, bright lights, lots of people, and irritating touches often cause problems for some “Aspies.” An occupational therapist can help by doing a Sensory Profile to determine if your youngster has any sensory defensiveness.

5. Food allergies are an often overlooked cause of destructive behavior. Some children may have red ears, red cheeks, or dark circles under their eyes. These are often signs of food allergies. Some of the symptoms associated with food allergies are headaches, tantrums, feelings of nausea, difficulty concentrating, and stomach aches. As a result, the youngster is less tolerant of others and is more likely to act out. Since many of these kids also have poor communication skills, parents may not be aware that their son or daughter is not feeling well. The youngster should be tested if food allergies are suspected. If the child tests positive for certain foods, then these products should be eliminated from the diet.

6. Give your child the opportunity and space to calm down when he’s upset. If he needs to release some physical energy, find some non-destructive activities he can engage in.

7. Let your youngster know he can count in his head until the negative feeling goes away. This will help him realize that eventually the feeling does start to alleviate on its own, even if he doesn’t act on it.

8. Make sure your “Aspie”  understands that, while you understand he gets frustrated sometimes, destroying property is not acceptable – not in your home, or in the rest of the world either. Be clear in your expectations and what the consequences will be if he does destroy property.

9. Many children with Aspergers can be helped to comprehend behavior they observe - but poorly understand - through the use of “social stories.” The parent’s explanation of what is happening can be reduced to a social story. A storybook can then be kept by the youngster to help reinforce the information on a concrete, basic level.

10. Many parents are giving their Aspergers kids safe nutritional supplements, such as Vitamin B6 with magnesium and Di-methyl-glycine (DMG). Nearly half have reported a reduction in behavioral problems as well as improvements in their youngster’s general well-being.

11. Moms and dads often feel furious when their youngster damages or destroys property. This is understandable. Property destruction is a personal violation, and it hurts to have a son or daughter treat something that you’ve worked hard for with such little respect. But, once you make up my mind that you will hold your child accountable for anything he purposely destroys, making sure he pays for things by controlling the money you usually chose to spend on him, you won’t feel as angry. You will be able to respond more calmly, because you know he will be held accountable. And once he learns that he pays for the damages, it may only take a few times for him to choose to handle things differently.

12. Often times, a behavior problem is a reaction to a request or demand made by parents. The child may have learned that he can escape or avoid such situations (e.g., doing chores or homework) by acting out. A functional assessment of the child’s behavior (i.e., antecedents, consequences, context of the behavior) may reveal certain relationships between the behavior and the function the behavior serves. If avoidance is the function the behavior serves, parents should follow through with all requests and demands they make to the child. If the child is able to escape or avoid such situations, even only some of the time, the behavior problem will likely continue.

13. Remember that any change in routine may result in emotional or behavioral upset. If the youngster’s environment must be changed (e.g., the absence of a parent), try to maintain as much of the normal routine as possible (e.g., meals, play, bedtime) in the new environment.  In addition, try to bring concrete elements from the youngster’s more routine environment (e.g., a toy, blanket, game, etc.) into the new environment to maintain some degree of “sameness” or constancy.

14. Some kids break their own things when they’re upset or angry. If your youngster gets angry, throws his iPad and it breaks, the natural consequence is that he no longer has an iPad. Don’t buy him a new one!

15. Talk with your youngster during a calm moment about things he can do instead of breaking things when he gets upset.

16. Teach your youngster to use journaling, music, drawing, clay, or any other non-destructive activity he might be interested in to release feelings.

17. Try behavior intervention. Behavior specialists work with kids who have difficult and aggressive behaviors. They observe them in their environments to determine the underlying cause of the behaviors.

18. Your job as a mother or father is to prepare your youngster for the “real world.” In the real world, if you destroy property, there are consequences (e.g., financial, legal, etc.). You want to respond to your youngster’s destructive behavior in a way that leaves no doubt about what he will experience should he engage in this behavior outside your home.

19. It is important to consider the child’s level of arousal when formulating a strategy to treat behavioral problems:
  • Over-arousal. Sometimes behavioral problems occur when the child is overly-excited. This can occur when the child is anxious and/or when there is too much stimulation in the environment. In these cases, treatment should be aimed at calming the child.
  • Under-arousal. Behavioral problems may be due to a low level of arousal, such as when the child is passive or bored. Behaviors such as aggression and destructiveness may be exciting, and thus appealing to some of these kids. If parents suspect behavior problems are due to under-arousal, the child should be kept busy or active.

20. If all else fails, it may be necessary to try medication to reduce destructive behavior. Discuss medication with your youngster’s doctor, neurologist or behavior specialist. Determine as a team the best approach to treating him with the proper medication. Keep in mind that medication is not necessarily permanent, and if it doesn't work, just stop it.

Preventing Meltdowns and Tantrums in Children with Aspergers and High-Functioning Autism

 
COMMENTS:

•    Anonymous said... After many years and many different approaches, my 16 year old son with aspergers is finally learning to use words instead of fists! It isn't always perfect, but it is so much better.
•    Anonymous said... And DMG if others have had success. Son take 3meds but would like to think there is hope he could ween off prescription meds and with the therapy he is receiving g and maturation.....he could get by with less Rx' s.
•    Anonymous said... Curious...why the B6? Has anyone tried that, with positive results?
•    Anonymous said... Ditto everything Ms Musgrave said. Our 17 yr old was diagnosed at age 13-14, and now seems to be on a better path after yrs of anxiety and stress on both him and I. Would also be curious about the B6 and
•    Anonymous said... I have tried B6 with my son and it gave my son horrible nightmares to the point he would keep himself awake. I researched the vitamin to find out that it is actually a normal reaction. Everyone is different, I know this, but I want to give a heads up to anyone wanting to try it.
•    Anonymous said... It is so true about the disciplinary actions that parents try to enforce. They often work on other siblings, but when it comes to an Asperger child you are pretty much at a loss. Some people often say, well have you done this or try this. I know they think they are trying to help, but unless you have an Asperger child, you have no idea what parents go through every single day. School is a another story...most teachers don't know what to do with an Aspergers child, some have never heard of Aspergers Syndrome. So we battle with the education portion of trying to teach teachers about Aspergers and how Aspergers children respond and act about different things and also dealing with other students that have no idea what's going on. We have three very special boys, one is just extra special. Just a day in the Musgrave life...just keep praying.
•    Anonymous said... So important
•    Anonymous said... Will has ADHD and is doing so much better now. Much more comfortable in himself. That is a big adjustment too.

Post your comment below…

What Your Aspergers Child Is Likely To Face As An Adult

Moms and dads with children on the spectrum understandably want to know how their kids will cope in the future. However, Autism Spectrum Disorders (ASD) occur across a wide range of strengths and weaknesses, so making an accurate prognosis is difficult, particularly at a young age.

Even though the range of outcomes for kids on the spectrum is so broad, the possibility of relatively normal functioning in adolescence and adulthood offers hope to many moms and dads of kids with ASD. The possibility of permanent “recovery” from ASD (in the sense of eventual attainment of social and cognitive skills) has been raised in association with a number of educational and treatment programs.

Studies have revealed that there are some kids who have symptoms of ASD in early preschool years who do not have these symptoms in any obvious form in later years. Whether these improvements reflect (a) developmental pathways of very mildly affected kids, or (b) changes in developmental pathways in response to treatment, is not known.

The “core deficits” in ASD have generally been found to persist in some degree in most people on the spectrum. Although there is evidence that interventions lead to improvements, and that some ASD kids shift specific diagnoses within the spectrum, there is not a direct relationship between any particular intervention and recovery from ASD. Because there is always room for hope, recovery will often be a goal for many young people with ASD, but in terms of planning services and programs, educational objectives must describe specific behaviors to be acquired or changed.

Research on outcomes can be characterized by whether:
  • goals are short term (i.e., to be achieved in a few weeks or months) or long term (i.e., several years)
  • the goal of an intervention is broadly defined (e.g., best outcome) or more narrowly defined (e.g., increasing peer-related social skills)
  • the study design involves reporting results in terms of individual or group changes

A large body of single-subject research has demonstrated that many ASD kids make substantial progress in response to specific intervention techniques in relatively short time periods (e.g., several months). These gains occur in many specific areas (e.g., social skills, nonverbal communication, reductions of challenging behaviors, etc.). Often the most rapid gains involve increasing the frequency of a behavior already in the youngster’s repertoire, but not used as broadly as possible (e.g., making eye contact). In single-subject reports, changes in some form are almost always documented within weeks after the intervention has begun.

Many treatment studies report post-intervention placement as an outcome measure. Successful participation in regular education classrooms is an important goal for many kids with ASD. However, its usefulness as an outcome measure is limited because placement may be related to many variables other than the characteristics of the youngster (e.g., prevailing trends in inclusion, availability of other services, the parent’s preferences, etc.).

The most commonly reported outcome measure in group treatment studies of kids with ASD have been IQ scores. Studies have reported substantial changes in IQ scores in a surprisingly large number of kids in intervention studies and in longitudinal studies in which kids received nonspecific interventions. However, even in the treatment studies that have shown the largest gains, the youngsters’ outcomes have been variable, with some making great progress and others showing small gains. Overall, while much evidence suggests that education and treatment can help ASD kids attain short-term goals in targeted areas, gaps remain in addressing larger questions of the relationship between particular techniques and both general and specific changes.

In recent years, there has been a marked increase in the percentage of ASD kids who can attend school in a typical classroom and go on to live independently in community settings. While it is more likely that a higher-functioning youngster will progress faster and further than a lower-functioning one, every son or daughter with ASD grows and progresses. Many ASD kids far exceed doctors' expectations, and a significant percentage of these children actually lose their official ASD diagnosis. Some improve slowly and to a limited degree, while others improve quickly at first and then seem to hit a plateau, or develop issues (e.g., a mood disorder) which inhibit ongoing improvement. Also, there is no "window of opportunity" for growth and development. Kids with ASD don't suddenly stop progressing at a particular age. In fact, even grown-ups on the spectrum can benefit significantly from behavioral therapy, speech therapy and occupational therapy.

Kids with High-Functioning Autism may see a lessening of symptoms as they mature, and up to 20% may no longer meet the diagnostic criteria as grown-ups (although social and communication difficulties may persist). People with High-Functioning Autism appear to have normal life expectancy, but have an increased prevalence of comorbid conditions (e.g., major depressive disorder, anxiety disorder) that may significantly affect prognosis. Although social impairment is life-long, the outcome is generally more positive than with people on the lower end of the spectrum.

Although most children with High-Functioning Autism have average mathematical ability and test slightly worse in mathematics than in general intelligence, some are gifted in mathematics. Although many attend regular education classes, some may utilize special education services because of their social and behavioral difficulties.

Teens with High-Functioning Autism may exhibit ongoing difficulty with self-care or organization, and disturbances in social and romantic relationships. Despite high cognitive potential, some young people with High-Functioning Autism remain at home, although most do marry and work independently.

The "being different" that these teens experience can be troubling. Anxiety may stem from preoccupation over possible violations of routines and rituals (e.g., being placed in a situation without a clear schedule or expectations, concern with failing in social encounters, etc.), and the resulting stress may manifest as inattention, withdrawal, obsessions, hyperactivity, and aggressive or oppositional behavior. Depression is often the result of chronic frustration from repeated failure to engage others socially. Research suggests the rate of suicide may be higher among those with High-Functioning Autism.

All kids on the spectrum have different strengths and weaknesses compared to “typically developing” kids. For example, even if your son or daughter never learns to write in cursive, he may have impressive technical skills. In any event, age at intervention has a direct impact on outcome. The earlier a youngster is treated, the better the prognosis will be.

So what can parents expect to happen when their child with High-Functioning Autism (Asperger’s Syndrome) becomes an adult?

1. Grown-ups with High-Functioning Autism are a minority among the ASD community, making up just a small percentage of those diagnosed with ASD. Since their numbers are so small in relation to the ASD community as a whole, the resources and information relevant to grown-ups with High-Functioning Autism can be much less prevalent than those geared towards kids, teens and adults with more severe forms of ASD. In addition, some grown-ups with High-Functioning Autism feel their struggles discounted by many in the ASD community as being insignificant compared to the hardships faced by those more profoundly challenged. These factors and others combine to make many with High-Functioning Autism feel isolated from the ASD community, their concerns and struggles marginalized by the majority.

2. ASD awareness has risen dramatically over recent years, resulting in more information and resources available to address the needs of the ASD community. Kids with High-Functioning Autism certainly benefit from these resources, with access to necessary intervention services from infancy and throughout the schooling years. On the other hand, grown-ups with High-Functioning Autism can fall between the cracks of today's safety net of ASD resources and services, their symptoms seen as too mild to qualify them for the support received by more severely affected individuals.

3. Even the most mildly affected among people with ASD face challenges in managing their condition. For example, those with High-Functioning Autism are statistically more prone to depression than the average guy or gal, and low self-esteem and loneliness are common problems. Affordable resources to address these issues can be hard to find, especially in grown-ups for whom these issues have made keeping a job difficult. Added to that is the fact that less severe symptoms can make applications for medical and psychological assistance less likely to be approved.

4. Grown-ups with High-Functioning Autism face the unique challenge of straddling the fence between the ASD community and the community at large, often feeling as if they don't quite fit in with either. The term High-Functioning Autism is used to describe people who meet the criteria for a diagnosis on the spectrum, but show no cognitive delays, and are able to speak, read and write, as well as have IQ scores of average or above. Those with High-Functioning Autism do suffer difficulties in communication, language, and social interaction typical of Autistic Disorder, as well as repetitive behaviors and narrow interests associated with the condition. Abstract language concepts, (e.g., irony and humor) may well be beyond the comprehension of adults with High-Functioning Autism.

5. Many individuals with High-Functioning Autism are able to blend into society as well as anyone, learning to manage their condition to build successful and independent lives. Many find their niche in society quite nicely, with satisfying careers, successful marriages, fulfilling friendships, and active social lives. To the average person, untrained in the subtleties of ASD, these high-functioning individuals may not seem as if they have any autistic traits, sparing them the assumptions and prejudices faced by those with symptoms that are more obvious. Others have more difficulty establishing themselves, finding that their challenges in social awareness and communication create issues that can make independent living difficult. Often, people with High-Functioning Autism are misunderstood by those who lack experience with ASD, and their lack of social awareness and interaction may be construed as rude behavior. Symptoms (e.g., inability to maintain eye contact during conversation) can make job interviews and establishing friendships difficult, as some individuals often misinterpret the behavior as dishonesty or a lack of interest.

6. Many grown-ups with High-Functioning Autism face an uphill battle in establishing lasting personal relationships, facing the same misconceptions in personal friendships as in workplace ones. Actions that result from a lack of understanding of non-verbal cues (e.g., body language, facial expression, etc.) can leave people with the impression that adults with High-Functioning Autism are self-absorbed and selfish.

7. Steady employment can be a challenge to some high-functioning individuals. While workers with High-Functioning Autism are very often extremely bright, focused, and talented employees, the social aspects of the workplace can be their undoing. Workplace camaraderie can be unfamiliar territory for those with social interaction difficulties, the small talk and humor beyond their grasp. Co-workers who are not aware of the difficulties faced by those with High-Functioning Autism may see them as odd due to behavioral symptoms, or too serious, aloof, or arrogant because of the social awkwardness that accompanies the condition. These misunderstandings can breed resentments among co-workers, causing dismissals by employers in order to keep peace in the workplace.

8. While ASD research and management has improved by leaps and bounds over recent years, many of the difficulties faced every day by people with High-Functioning Autism make it clear that much more work lies ahead. Both in the ASD community and in mainstream society, lack of education and misunderstandings abound, leaving many of those affected by High-Functioning Autism feeling stranded, with one foot planted in each world – but truly at home in none.

Launching Adult Children With Aspergers: How To Promote Self-Reliance

The Extraordinary Demands Placed On Parents Raising Asperger’s Kids

Moms and dads of kids with Asperger’s Syndrome (AS) and High-Functioning Autism (HFA) play multiple roles. Often, they are the first adults to recognize a developmental problem, and they should pursue their concern until they receive a diagnosis and find services for their youngster.

Once they become involved in a treatment program, moms and dads should be active partners in their youngster’s treatment process to ensure that skills learned in therapy transfer to the home-setting, school, and community at large. As members of the individualized education plan (IEP) team, moms and dads should also be active advocates for the youngster, ensuring that the educational process goes forward smoothly.

These many demands on moms and dads occur in the context of family life, including the needs of siblings, parents as individuals and as a couple, and family needs as a whole. In addition, the parents of AS and HFA  kids may experience sadness, anger, disappointment, or other complex emotions that can accompany the initial discovery that their youngster has a developmental problem and the ongoing need to make sacrifices to serve the needs of their youngster. Most families cope effectively with these demands, but some may encounter significant stress as they raise their AS and HFA youngster.

Specific knowledge, skills, and scientifically-based information about Autism Spectrum Disorders and their treatment are needed. The mastery of specific teaching strategies that enable parents to help their youngster acquire new behaviors and an understanding of the nature of AS and HFA and how it influences their youngster’s learning patterns and behavior is paramount. Moms and dads also need to be familiar with special education law and regulations, available services, and how to negotiate on behalf of their youngster. Furthermore, some parents need help coping with the emotional stress that can follow from having a special needs youngster.

The fact that parents serve a key role in effective treatment for their youngster is not without costs, and the implications for family life are considerable. Many moms and dads face multiple, demanding roles. Research suggests that while many families cope well with these demands, the education of a youngster with AS and HFA can be a source of considerable stress for some families. In general, moms report more stress than do dads, often describing issues related to time demands and personal sacrifice. Among specific concerns expressed by moms are:
  • the community’s acceptance of their youngster
  • the youngster’s ability to function independently
  • worry about their youngster’s welfare in the years ahead

Moms of kids on the spectrum also report more stress in their lives than do moms of kids with other disabilities (e.g., ADHD).

Dads of kids on the spectrum report more disruption of planning family events and a greater demand on family finances than do dads whose kids are developing typically. These three groups of males do not differ, however, on measures of perceived competence as a father, marital satisfaction, or social support.

In a study of families who had a boy on the spectrum under the age of 6 referred to the TEACCH (Treatment and Education of Autistic and Related Communication Handicapped Kids) program, studies found that, while dads assumed some role in the youngster’s care, moms carried a much greater burden. This difference was not due solely to employment outside of the home. Moms who worked in jobs outside of the home still had greater childcare burdens than their employed spouses. The study also found that meaningful support from one’s spouse was an important predictor of the quality of parenting in the home.

The time spent working with a youngster with AS and HFA is sometimes stressful and demanding, but it also has the potential to reduce family distress and enhance the quality of life for the entire family – including the youngster on the spectrum. Techniques like individualized problem solving, in-home observations and training, and didactic sessions have been employed with families. Moms who learned skills based on the TEACCH model of education for their youngster showed a decrease in depressive symptoms over time in comparison with a group of moms not given this training.

One study found that teaching moms and dads how to use pivotal response training as part of their applied behavioral analysis instruction resulted in happier parent-child interactions, more interest by the moms and dads in the interaction, less stress, and a more positive communication style. The use of effective teaching methods for a youngster with AS and HFA can have a measurable positive impact on family stress. As the youngster’s behavior improves and his skills become more adaptive, families have a wider range of leisure options and more time for one another. To realize these gains, the mother and father must continue to learn specialized skills enabling them to meet their youngster’s needs.

Many moms and dads can learn to cope with the demands of parenting a youngster with AS and HFA once they learn about the emotions with which they are dealing with – and how to address them. Not all moms and dads experience these feelings. However, it is helpful for them to be aware of the various emotions involved – and to realize that their experiences and feelings are normal.

Sorrow:
  • Hopes and plans for youngster's future
  • Lifestyle prior to youngster's birth or diagnosis
  • Loss of the "perfect youngster" that was anticipated prior to the birth or diagnosis

Resentment:
  • Toward the educational system
  • Medical system
  • Religious belief system
  • Themselves, spouse, youngster
  • Treatment team

Remorse:
  • Youngster's suffering
  • Less attention toward other kids
  • Less focus on self
  • Relationship with spouse
  • Unable to protect youngster

Feelings of Loneliness:
  • No one else understands what they are going through
  • Avoid having to explain youngster's conditions and answer questions
  • Can sense that others are uncomfortable around youngster
  • Depressed
  • Difficulty meeting youngster's needs outside of home
  • Financially unable to do activities
  • Lack of accommodations
  • Not wanting to interact with others
  • Resentment toward others with "typical kids"
  • Unable to leave home

Low Sense of Self-Worth:
  • Right parenting decisions under normal circumstances may not work for youngster due to AS/HFA
  • Interactions with many therapists who assign various labels and diagnoses of youngster

Worries:
  • Youngster's future
  • Educational needs
  • Ability to live independently when older
  • Safety
  • Stable relationship with spouse
  • Own mental health
  • Next crisis

Anxiety:
  • Advocating for accommodations
  • Attempting to meet needs of other family members
  • Balancing career and family
  • Dealing with insurance coverage and financial concerns
  • Dealing with other's reactions and opinions
  • Decrease in support system
  • Lack of accommodations for youngster
  • Lack of exercise
  • Lack of prior medical or advocacy experiences
  • Learning details of youngster's disorder and about related treatment
  • Making choices regarding youngster's treatment
  • Managing appointments for various professionals
  • Managing time
  • Poor eating habits
  • Sleep deprivation
  • Some parents may become forgetful, miss appointments, and experience other symptoms of stress
  • The youngster's Individualized Education Plan (IEP)

Feeling Isolated:
  • Detachment in other areas of life due to focus on youngster's needs
  • Feelings of despair and hopelessness
  • Over-involvement in work or other activities

How can moms and dads care for themselves and move forward?

Find a support system:
  • Locate a counselor to address feelings
  • Locate a support group
  • Meet and interact with other families of kids with AS/HFA
  • Re-establish relationship with spouse
  • Seek discussion boards on the internet
  • Surround self with nurturing individuals that are accepting of youngster and parenting choices
  • Utilize a treatment team that is supportive and empowers moms and dads to make choices that are right for their family

Find Balance:
  • Alone time with spouse
  • Exercise
  • Find enjoyable social activities
  • Fun activities as a family
  • Meditate
  • Use a baby sitter
  • Work outside of home

Read:
  • Enjoyable books/magazines
  • Books by other moms and dads of kids with AS/HFA

Recognize Positive Features of Youngster and Life:
  • Involvement in other kid's lives
  • Realize own wisdom and strength
  • Recognize that the youngster is a fighter
  • See gains the youngster has made

Love the Youngster for the Person He Is:
  • Acknowledge youngster as an individual who may have different life goals
  • Identify what youngster has instead of what she does not have
  • Learn to accept youngster for who she is

Other Ideas:
  • When feelings of crisis have passed, attempt to focus on things that can be controlled instead of those that can't be controlled
  • Use religious/spiritual resources and beliefs
  • Remember that taking care of yourself is important to you and your youngster
  • Remember that it is the journey that counts – not the destination
  • Recognize that different treatment options work for different kids and different families
  • Practice assertiveness skills with treatment team, family, friends, and people in the community
  • Gain understanding that life is about change
  • Attempt to focus on the present instead of the future

The Aspergers Comprehensive Handbook

Assessing Asperger’s and High-Functioning Autism: Tips for Clinicians

Developmentally-based assessments of cognitive, communicative, and other skills provide information important for both diagnosis and program planning for kids with Asperger’s Syndrome (AS) and High-Functioning Autism (HFA). Careful documentation of a youngster’s unique strengths and weaknesses can have a major impact on the design of effective intervention programs and is particularly critical due to the fact that unusual developmental profiles are common.

Given the multiple areas of difficulty, the efforts of experts from various disciplines are often needed (e.g., audiology, neurology, pediatrics, physical and occupational therapy, psychiatry, psychology, speech and language pathology). The level of expertise required for effective diagnosis and assessment may require the services of professionals other than those usually available in a school setting.

In some cases, psychological and communication assessments can be performed by existing school staff, depending on their training and competence in working with kids with AS and HFA. However, other services (e.g., management of seizures, drug therapy, genetic testing, etc.) are managed in the health care sector. Some kids may fall between systems, and therefore not be served well.

Several principles underlie assessment of a youngster with AS or HFA:

1. A developmental perspective is important. Given the strong association of mental retardation with Autism Spectrum Disorders, it is important to view results within the context of overall developmental level.

2. Behavioral difficulties must be considered, since they affect both the youngster’s daily functioning and considerations for intervention.

3. Functional adjustment should be assessed. Results of specific assessments obtained in more highly structured situations must be viewed in the broader context of a youngster’s daily functioning and response to real-life demands. The youngster’s ability to translate skills into real world settings is particularly critical.

4. Multiple areas of functioning should be assessed, including current intellectual and communicative skills, behavioral presentation, and functional adjustment.

5. Social dysfunction is probably the most defining feature of AS and HFA, so it is important that the effect of a youngster’s social challenges on behavior be considered.

6. Variability of behavior across settings is typical. Behavior of a youngster will vary depending on such aspects of the setting as novelty, degree of structure provided, and complexity of the environment. Thus, observation of facilitating and detrimental environments is useful.

7. Variability of skills is typical, thus it is important to identify a youngster’s specific profile of strengths and weaknesses rather than simply present an overall global score. Similarly, it is important not to generalize from an isolated skill to an overall impression of general level of ability, because such skills may grossly misrepresent the youngster’s typical abilities.

Various diagnostic instruments can be used to help structure and quantify clinical observations. Information can be obtained through observation (e.g., Autism Diagnostic Observation Scale) as well as the use of various diagnostic interviews and checklists (e.g., Autism Diagnostic Interview-Revised; Childhood Autism Rating Scale; Autism Behavior Checklist; Aberrant Behavior Checklist). An adequate assessment will involve both direct observation and interviews of mothers, fathers and educators.

The range of symptoms in AS is quite broad and spans the entire range of IQ. A diagnosis can be made in a low-functioning youngster as well as in a youngster who is intellectually gifted. In addition, children with AS vary along a number of other dimensions (e.g., levels of communicative ability, degree of behavioral difficulties, etc.). As a result, in working with the youngster, considerable expertise is required. Clinicians must consider the quality of the information obtained (both in terms of reliability and validity), the involvement of mothers/fathers and educators, the need for interdisciplinary collaboration, and the implications of results for intervention. Coordination of services and facilitating discussion between members of assessment/treatment teams and mothers/fathers is critical.

A range of components must be part of a comprehensive educational evaluation of kids with AS and HFA. These include:
  • communicative assessment
  • consultation regarding aspects of motor, neuropsychological, or other areas of functioning
  • medical evaluation
  • obtaining a thorough developmental and health history
  • psychological assessment

This information is important both to diagnosis and differential diagnosis and to the development of the IEP.

The psychological assessment should establish the overall level of cognitive functioning as well as delineate a youngster’s profiles of strengths and weaknesses. This profile should include consideration of a youngster’s ability to remember, solve problems, and develop concepts. Other areas of focus in the psychological assessment include:
  • social cognition
  • play
  • motor and visual-motor skills
  • adaptive functioning

Kids with AS and HFA will usually need to be observed on several occasions during more and less structured periods.

The choice of assessment instruments is a complex one and depends on the youngster’s:
  • ability to cope with transitions in test activities
  • ability to respond to complex instructions 
  • ability to respond to social expectations
  • ability to work rapidly
  • level of verbal abilities

Kids with AS and HFA often do best when assessed with tests that require less social engagement and less verbal mediation. In addition to the formal quantitative information provided, a comprehensive psychological assessment will also provide a considerable amount of important qualitative information. It is important that the clinician be aware of the uses and limitations of standardized assessment procedures and the difficulties that these kids often have in complying with verbal instructions and social reinforcement. Operant techniques may be helpful in facilitating assessment.

Difficulties in communication are a central feature of AS and HFA, and they interact in complex ways with social deficits and restricted patterns of behavior and interests in a given child. Accurate assessment and understanding of levels of communicative functioning is important for effective program planning and intervention. Communication skills should be viewed in a broad context of the child’s development. Standardized tests constitute only one part of the assessment of communication abilities in young people with AS and HFA. The selection of appropriate assessment instruments, combined with a general understanding of these disorders, can provide important information for purposes of both diagnostic assessment and intervention.

In addition to assessing expressive language, it is critical to obtain an accurate assessment of language comprehension. The presence of oral-motor speech difficulties should be noted. In kids with AS and HFA, the range of communicative intents may be restricted in multiple respects. Delayed and immediate echolalia are both common and may have important functions. In addition, various studies have documented unusual aspects even of very early communication development in AS and HFA.

In assessing language and communication skills, parent interviews and checklists may be used, and specific assessment instruments for kids with AS and HFA have been developed. For kids under age 3, scores on standardized tests may be particularly affected by difficulties in assessment and by the need to rely on parent reports and checklists. For preverbal kids, the speech-communication assessment should include observation of a youngster’s level of awareness of communication from others, the youngster’s sense of intentionality, the means used for attempting communication, and the quality and function of such means, sociability, and play behaviors. The clinician should be particularly alert to the youngster’s capacity for symbolic behavior since this has important implications for an intervention program.

There are also several standardized instruments that provide useful information on the communication and language development of pre-verbal kids with AS and HFA. These include:
  • Mullen Scales of Early Learning
  • MacArthur Communicative Development Inventor
  • Communication and Symbolic Behavior Scales

For kids with some verbal ability, social and play behaviors are still important in terms of clinical observation but various standardized instruments are available as well, particularly when the youngster exhibits multi-word utterances. Areas to be assessed include:
  • articulation
  • expressive language and comprehension
  • morphology
  • pragmatics
  • prosody
  • receptive and expressive vocabulary
  • semantic relations
  • syntax

The choice of specific instruments for language-communication assessment will depend on the developmental levels and chronological age of the youngster. Additional observations may address aspects of topic management and conversational ability, ability to deal with non-literal language, and language flexibility. The clinician must be flexible and knowledgeable about the particular concerns related to assessment of kids with AS and HFA.

Motor abilities may represent an area of relative strength for a youngster, but as time goes on, the development of motor skills in both the gross and fine motor areas may be compromised, and motor problems are frequently seen in young kids with AS and HFA. Evaluations by occupational and physical therapists are often needed to document areas of need and in the development of an intervention program. Standardized tests of fine and gross motor development and a qualitative assessment of other aspects of sensory and motor development, performed by an expert in motor development, may be helpful in educational planning.

The Mark Hutten Show

If you missed this week's show, you can listen to a recording of it here: All About Autism Spectrum Disorders - Radio Show Archive

How to Have a Meltdown-Free Thanksgiving

"My son with AS does not do well with guests (and rarely seen family members) showing up at our house on Thanksgiving. Any helpful suggestions regarding how to make things run more smoothly this year?"

Many parents of children with Aspergers and High-Functioning Autism experience difficulties, both with handling the sensory overload that comes with Thanksgiving events, and with understanding the deeper meanings of this special day.

The challenges of kids with Aspergers - and the behaviors that result - can be mysterious for those who have had little experience with them (e.g., other family members). Most of these behaviors arise from differences in the ways that these kids experience, understand and interact with the world.

Most Aspergers children find it hard to understand the social and emotional meanings of language and nonverbal behavior (e.g., words about emotions or facial expressions, tones of voice that convey emotions, etc.). They also have a harder time understanding their own feelings, and those of others.

Many kids with Aspergers are easily overwhelmed by sights, sounds and touch – and even by smells and tastes. As a method of protection, these kids may shut-out sensory information by withdrawing or absorbing themselves in repetitive behaviors or idiosyncratic interests, which can interfere with learning about their surroundings and connecting with the family members who care most about them. It can be painful for parents when their Aspergers child “disconnects,” which motivates many of them to move mountains to help their child learn to engage in relationships with them and others.

Adjusting to changes in routine or to new events and experiences is often a much bigger challenge for kids with Aspergers. Lights and music and special decorations that may be magical for other kids may lead kids with Aspergers to panic, scream and run out of the room, or fall on the floor and thrash about. As with other transitions, limiting changes in routine and new sensations, and introducing them very gradually whenever possible, can help these kids begin to open up to them.

The “Aspie’s” behavior is “predictably unpredictable” during transitions. Over time, moms and dads learn what to expect. They learn how to prevent or shorten the frequency of meltdowns by preparing their youngster in advance, even rehearsing small bits of the new activities. Providing protection against too much stimulation and being sure that their Aspergers son or daughter has access to favored toys and activities can also often help them to relax.

Still, moms and dads are bound to be on guard at times of heightened excitement. They know they may need to drop everything to try to help their youngster pull himself together again. Brothers and sisters of the child are often on guard, too – and may even be frightened. Often, siblings feel responsible and wish that they could make everything all better. Or they may feel guilty about their desire to have a “normal” family.

Moms and dads may feel all alone and without support as they raise a youngster with Aspergers. These feelings are bound to be intensified during Thanksgiving, when the challenges are often even greater and their youngster’s differences seem to stand out more. Having relatives and friends who don’t judge – and who really care and are eager to help – can make a big difference. Yet, it may be hard for those who have not had direct contact with the Aspie to imagine what it’s like for parents and siblings when communication, social interaction and sensory processing are disrupted.

So how can families affected by the Aspergers condition get together for family functions in a way that is pleasing for everyone? Here are some tips:

1. As much as possible, attempt to stick to your Aspergers youngster’s normal home routine on Thanksgiving Day (even though you may be entertaining guests later that day). As you get closer to the hour when guests will be arriving, make sure to prepare your youngster in advance for what is to come.

2. Aspergers kids need structure and routine. When Thanksgiving disrupts the usual schedule, the youngster can become anxious, depressed, and agitated. Minor incidents can turn into violent and explosive displays of anger. Visiting family members can make Thanksgiving easier by understanding the youngster's disorder and by doing whatever is necessary to support the mother and father.

3. Be sure to allow your Aspergers child to have access to his special interests throughout the day (e.g., favorite toy, personal DVD player, iPod, etc.) to make him more comfortable. Also, if he displays “stimming” behaviors (i.e., repetitive behaviors like opening and closing a door, snapping his fingers, rocking back and forth, etc.), explain to your guests why it’s important to allow the youngster to continue the activity. These activities may bring comfort to kids with Aspergers, and help them cope with the changes around them. If others are uncomfortable with your child’s behavior, they can excuse themselves discreetly from the room if necessary, but don’t try to force the child to stop the behavior (unless it is overly-disruptive or rude).

4. Be sure to watch your child’s intake of sweets, sugar and caffeine during Thanksgiving Day, which can trigger anxious feelings and resultant meltdowns.

5. Changes to a daily routine, good or bad, can trigger a meltdown that is way out of proportion to the cause. Even a small and seemingly insignificant incident can result in a meltdown. The youngster may not respond well to decorating the home and having extended family over for Thanksgiving dinner. Thus, moms and dads should consider keeping Thanksgiving celebrations as low-key as possible.

6. Focus on a few things that you know are important to make sure you have prepared around this time. Of course, some things may need modification so that it is possible to enjoy them with your Aspergers youngster (e.g., if there is a danger of him hurting himself on fragile decorations, put them higher up and out of reach; some special foods may not be served; the child may need frequent time-outs from visiting family in order to de-stress).

7. Food can cause upsets and meltdowns from some Aspergers youngsters. If there is nothing served that your Aspie enjoys, it can be upsetting and frustrating. Make sure to consider his diet and appetite during Thanksgiving, and don’t force him to indulge in typical Thanksgiving menus when he may not want to try new foods. This is not the time to force the youngster to eat new foods.

8. If you are stressed, your Aspie will sense it. So stay calm and relax as much as possible so that you can enjoy yourself – and decrease your youngster’s anxiety.

9. In the days leading up to Thanksgiving, use role-play and rehearsal to let your youngster practice and learn how to deal with the upcoming social situations.

10. Lower your expectations of what you can really do. In this way, what you do will be less stressful and make Thanksgiving special.

11. Make the demands on yourself realistic, and don't try to do so much that you feel only frustration. Make realistic lists and work on things one at a time. Looking at Thanksgiving Day is less overwhelming if you take it in small pieces.

12. Many Aspergers kids are sensitive to certain smells. If this is the case with your child, and you are visiting in another family member’s home, let them know ahead of time. Unscented products are usually preferable. Aspergers kids may react negatively to candles and other smells. Be aware of what triggers problems for your Aspie, and try to avoid them rather than handle them after an incident occurs.

13. Noise is a major problem for some Aspergers kids. Minimize noise and allow your child to wear earplugs or use his iPod during large family gatherings if necessary. Keep music low, and avoid over-crowded rooms of people talking. Find a peaceful place for your child to go when the crowd grows and noise is high (e.g., a quiet bedroom, sunroom, dad’s office, etc.). A short rest with a snuggly blanket and quiet time can work wonders.

14. Take pictures of the family gathering and work with your youngster to make a book of pictures that can help him remember the things that you did. This can be used to prepare him for next year’s Thanksgiving celebration.

15. Watch for signs of over-stimulation before they escalate.

Preventing Meltdowns and Tantrums in Children with Aspergers and High-Functioning Autism



Best Comment:
 
Really spot on advice. Holidays, large groups & any new stress is really tough for my son (& then for his sister who gets upset when he has a meltdown). Easy enough for us to understand the suggestions but how do you help extended family to understand that you're only trying to do the best you can for your child & not trying to make dinners & get togethers difficult. I've tried in the past to bring it up but it hasn't gone over well & has caused more of an issue. It can feel so isolating at those times. Lack of understanding makes an already tough time of year for him into a really hard time.

Autism and Asperger's Syndrome Conferences

November 30, 2012 in Salt Lake City, Utah
Autism & Asperger's Syndrome Conference
With Dr. Temple Grandin and Dr. Jed Baker

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Here is a conference sample from Dr. Temple Grandin:

My child has been rejected by his peers, ridiculed and bullied !!!

Social rejection has devastating effects in many areas of functioning. Because the Aspergers child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually.

Click here to read the full article…

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Parenting Defiant Aspergers Teens

Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

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Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with Aspergers face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

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Online Parent Coaching for Parents of Asperger's Children

If you’re the parent of a child with Aspergers or High-Functioning Autism, you know it can be a struggle from time to time. Your child may be experiencing: obsessive routines; problems coping in social situations; intense tantrums and meltdowns; over-sensitivity to sounds, tastes, smells and sights; preoccupation with one subject of interest; and being overwhelmed by even the smallest of changes.

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Parents, teachers, and the general public have a lot of misconceptions of Asperger's and High-Functioning Autism. Many myths abound, and the lack of knowledge is both disturbing and harmful to kids and teens who struggle with the disorder.

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Two traits often found in kids with High-Functioning Autism are “mind-blindness” (i.e., the inability to predict the beliefs and intentions of others) and “alexithymia” (i.e., the inability to identify and interpret emotional signals in others). These two traits reduce the youngster’s ability to empathize with peers. As a result, he or she may be perceived by adults and other children as selfish, insensitive and uncaring.

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My Aspergers Child - Syndicated Content