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The Gluten-free Casein-free Diet: Does It Really Work?

A gluten-free, casein-free diet is definitely recommended for children with Aspergers and High Functioning Autism. Here’s why:

The molecular structure of partially undigested proteins, called peptides, resembles opiates. These peptides have an effect much like opiates (i.e., morphine, heroin) in the brain and nervous system. Long-term exposure to these opiate peptides can have many damaging effects on the developing brain and also affects behavior, just as any narcotic would. The opioid peptides involved are identified as casomorphines from casein, and gluten exorphines and gliadorphin from gluten.

Children with Aspergers and High Functioning Autism usually have gastrointestinal problems (e.g., reflux, constipation, diarrhea, vomiting, hiccups, etc.). Proteins found in wheat, rye, oats, barley and dairy products (gluten and casein) aren't completely broken down in the Aspergers child’s digestion process. These undigested proteins can leak into the bloodstream, potentially interfering with neurological processes by having an opiate-like effect upon their systems. These undigested proteins (peptides) can reach toxic levels, with the youngster seeming to "crave" milk and wheat products.

The results produced by the diet vary – but you can expect to see some result. Parents report a variety of outcomes such as:
  • improved fine motor skills
  • improved focus and attention span
  • improved intestinal function
  • improved personal hygiene habits
  • improved sleep patterns
  • improved social skills
  • improved speech and communication
  • increase in affection shown
  • reduction of tantrums and irritability

With results like this, why would you NOT want to try it! A gluten-free, casein-free diet is definitely worth considering. You don't have to feel overwhelmed by the restrictive nature of the diet. Simply start slowly and eliminate one group (either gluten or casein) at a time. Once you're comfortable without wheat or dairy products, then you can tackle the next element. If you see a desirable result from eliminating one component, you may decide not to go any further. Simply substituting gluten-free flour in all recipes can be a highly effective action.

Many parents worry about removing wheat and dairy because these foods are the only ones their child will eat, and because prevailing attitudes in Western culture consider them an essential staple. However, Aspergers children who eat mostly wheat and dairy products may show remarkable improvement once a gluten-free, casein-free diet is implemented. Many families have found from experience that their children's menu options actually increase after the effects of eating gluten and casein have subsided.

A gluten-free, casein free diet usually has a detoxifying effect – not only on Aspergers children – but on the entire family. The benefits will be obvious. Some Aspergers children experience immediate improvement (although it may take as long as six months for gluten to clear out of the system - and one month for casein to clear). Advocates of the diet recommend trying it for at least a year, because it can take this long for some children to show improvement. The diet tends to make changes in the body at a cellular level and promote healing of the stomach and intestinal lining, both of which can take time.

The Aspergers Comprehensive Handbook

Aspergers: Different Levels of Severity

Question

As I read articles about Aspergers, I have to question if there are different levels of Aspergers? My son does not have extreme behavior however I also have to ask if some of the behavior training I have drilled into him is showing more now as he ages. Some of the stories that I read seem extreme. I can think of extreme behaviors that he has displayed and lack of reasoning skills that he has shown, social issues, but still I wonder if he was dx incorrectly or am I just grasping at straws?

Answer

Health care providers think of autism as a “spectrum” disorder, a group of disorders with similar features. One person may have mild symptoms, while another may have serious symptoms. But they both have an autism spectrum disorder. Different kids with an autism spectrum disorder can have very different symptoms.

Aspergers (high-functioning autism) can range from mild to severe. A child might have a few traits of Aspergers, or might have a large number of traits, and each of these traits can range from mild to severe. So, some children with Aspergers have only minor difficulties functioning in society while others need someone to help with most aspects of life.

Some children have all of the criteria for Aspergers that are quite severe and very noticeable, and others may not get diagnosed until they are a teenager (or even later) because they were thought of as just being shy or eccentric. Some adults with Aspergers can't get a job, can't live on their own, can't drive, have major marriage problems, and have very few friends. Others are married and have children, hold down employment, can drive, and have plenty of friends (but still have the social problems and obsessive interests/routines that are part of the disorder).


More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book



 
COMMENTS:

•    Anonymous said… Everyone is different and has a different set of circumstances. Consider yourself lucky if your kid doesn't rage. I know my daughters rages are not just because of Aspergers, unfortunately the split between me and her dad has affected her negatively. Sometimes I think some of her rages stim from that and lack of control. She is a major control freak......
•    Anonymous said… I have 2 boys with it, 1 with the extreme rage and 1 not. Totally different behaviours and aspects of it. I beleive the younger 1 is because we didn't know what was going on with the older 1 and at the time we were told this is what we were looking at the youngest had started showing the smae traits. So the younger 1 had earlier intervention and help than the older 1.
•    Anonymous said… Many adults have Aspergers and they don't know it. And you would never know it. Its not about being "extreme".
•    Anonymous said… My 13 year old Aspie daughter doesnt get on at school,can hardly get her 2 go.She sits in her room,she used 2 go 2 judo twice a week but now doesnt go.Her anxiety is thru the roof alot of days.Ive tried 2 get her the help but mental health say she has 2 be 14 before certain organisations step in.
•    Anonymous said… My 9 year old aspie does not have any rage - he has infrequent meltdowns or gets overly rigid & emotional - but no rage. Every aspie, autistic, autism spectrum, sensory child - every child is different & unique.
•    Anonymous said… My son has definitely changed in his teens. He used to be crazy and funny (when he wasn't melting down or angry). Now he is super quiet and shuts down a lot. Closed off. He won't leave the house at all except for school. The social anxiety is more extreme.
•    Anonymous said… This article reminds me so much of my thoughts! It gets so tricky-! There are 3 kids one of which is a cousin that my son can make that connection with everyone else is like back ground noise to him- as if there not in his picture - just there- he operates in same room but not connecting- however while one on one play date s he thrives!! Leaving me thinking-- did they get this right! Could it be wrong! But then we go out to the world such as a Drs appt and I see his body language and demeanor- he can't stand to even be in same lobby with others of its close quarters- he will even take his blanket and cocoon hisself with it-- then it's like yep! They got it right! And also going into the classroom to just observe is so telling!! So so telling! He's in his world  🌎-- and will allow the one kid in-- I think tony Atwood's book- Guide to Asperger is best read I have found!! It's like a blue book to my son! I think they should mandatory every therapist, that is going to be giving therapy to these kids to read it 3 x!!! Lol!!! Then let's have a session!! I am so worried about his teen age years-- that will be the crucial part! Keeping him going to school , trying to interact will be so important-! This year it almost got to point of home school- I'm so glad we pushed through because he is so happy there now! He is still who he is but it's as if the others kids have accepted him but not only accepted it they help him! It was Beautiful how I saw them helping him! Wish I had it on video to share !! Kids can be just awesome!  ❤

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Problems with Insurance Reimbursement

Question

My son has Aspergers, and I am having problems getting my insurer to pay for specialty medical treatments that should obviously be covered. Do you have any suggestion?

Answer

Unfortunately, this is not uncommon. I have found that parents with Aspergers (high functioning autistic) children not only have a tough enough time locating a good referral for either diagnosis or treatment of the disorder, but they also have problems with insurance reimbursement.

Sometimes, parents simply need to do some good old fashion “ranting and raving” to get things done – seriously! When parents are in HMO's and they are only offered low level assistance by therapists who don't know about Aspergers – it’s time to get tough.

Find out who in your area is an expert on Aspergers and demand that your insurer pay for that person (even if they are out of network). It’s up to YOU to make sure your insurers will pay! If you are in the U.S., ask your State Insurance Office to help you. Keep notes on all phone contacts with your insurer (always ask the name of the person you are talking to), and if you are getting nowhere, file a complaint with the State Insurance Office.

The Aspergers Comprehensive Handbook

Strategies for Transforming ASD Meltdowns into Moments of Connection

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