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Reasons Why Your ASD Child Gets So Stressed-Out at School

Kids with and Asperger’s (AS) and High-Functioning Autism (HFA) commonly experience anxiety. Estimates report that as many as 80% of kids on the spectrum have anxiety disorders such as specific phobias, social anxiety disorder, panic disorder, or generalized anxiety disorder. Physical complaints with no apparent medical basis is often an indicator of anxiety (e.g., stress in a social situation, a demanding school setting, sensory sensitivities, etc.).

Factors that can make existing anxiety even worse can include an introverted temperament, having highly anxious parents, high levels of family stress or conflict, and a family history of anxiety.

Signs of school anxiety in AS and HFA children include the following:

Behavioral Signs—
  • Abnormal failure or delay to complete everyday responsibilities
  • Change in eating habits
  • Change in sleeping habits
  • Frequent lying
  • Nail biting
  • Pacing
  • Significant change in school or work performance
  • Trouble getting along with classmates and/or teachers

Cognitive Signs—
  • Anxious thoughts or feelings
  • Chronic worrying
  • Impaired concentration
  • Impaired speech (e.g., mumbling or stuttering)
  • Reduced or impaired judgment
  • Repetitive or unwanted thoughts
  • Trouble with remembering things (e.g., homework assignments or deadlines)
  • Unusual desire for social isolation

Emotional Signs—
  • Feelings of being overwhelmed
  • Feelings of sadness and/or depression
  • Irritability
  • Less than normal patience
  • More frequent or extreme pessimistic attitude
  • Reduced or eliminated desire for activities once enjoyed or regularly done
  • Restlessness
  • Sense of isolation
  • Trouble coping with life’s issues

Physical Signs—
  • Chest pain with or without tachycardia
  • Clenched teeth 
  • Fatigue 
  • Flushed skin 
  • Getting sick more often than normal 
  • Headaches 
  • Heartburn or indigestion 
  • Involuntary twitching or shaking 
  • Irregular bowel movements 
  • Muscle aches 
  • Nausea 
  • Trouble sleeping 
  • Unusual changes in weight

Other signs include:
  • Shutdowns
  • Shadowing parents around the house
  • Severe tantrums when forced to go to school
  • Regressive behavior
  • Refusing to go to school
  • Nightmares
  • Meltdowns
  • Feeling unsafe staying in a room by themselves
  • Fear of being alone in the dark
  • Excessive worry about harm to themselves
  • Excessive shyness
  • Exaggerated, unrealistic fears of animals, monster, burglars
  • Clinging behavior



Let’s take a deeper look at all the things that can contribute to your AS or HFA child’s anxiety level:

1. There's a lot of pressure for students to learn more and more – and at younger ages than in past generations. For example, while a few decades ago, kindergarten was a time for learning letters, numbers, and basics, most kindergarteners today are expected to read. With test scores being heavily weighted and publicly known, schools are under great pressure to produce high test scores. That pressure gets passed on to the students, and no one feels that pressure more than a child on the autism spectrum.
 
==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

2. Just as it can be stressful to handle a heavy and challenging workload, some students experience stress from work that isn't difficult enough. Many children with AS and HFA have average to above-average IQs (sometimes into the “gifted” range), and can become easily bored and disengaged if the subject matter is not challenging enough. They may respond by acting-out or tuning-out in class, which leads to poor performance, masks the root of the problem, and perpetuates the difficulties.

3. Many of us have experienced test anxiety, regardless of whether or not we're prepared for exams. Unfortunately, greater levels of test anxiety hinder performance on exams. Due to the fact that the AS or HFA child already has an element of anxiety to contend with throughout the day, the added pressure of an exam may prove to be too much anxiety-overload, resulting in either a meltdown or shutdown.

4. With the overabundance of convenience food available these days - and the time constraints we all experience - the average youngster's diet has more sugar and less nutritious content than is recommended. This can lead to mood swings, lack of energy, and other negative effects that exacerbate the stress levels of “already-anxious” kids on the spectrum.

5. While most “typical” kids would say that their peers are one of their favorite aspects of school, peers can be a source of stress for students on the spectrum (e.g., due to being rejected, teased, and bullied). Concerns about not having any friends, not being in the same class with someone who actually is a friend, not being able to keep up with peers in one particular area or another (e.g., gym class), interpersonal conflicts, and peer pressure are a few of the very common ways kids with AS and HFA can be stressed by their social lives at school.

6. In an effort to give their “special needs” child an edge, or to provide the best possible developmental experiences, some parents enroll their child in too many extra-curricular activities. As the child becomes a teenager, school extracurricular activities become much more demanding. College admissions standards are also becoming increasingly competitive, making it difficult for a college-bound high school student to avoid over-scheduling himself. All of this adds up to stress-overload.

7. Many parents of children on the autism spectrum report that their child is not getting enough sleep to function well each day. As schedules get busier, even younger kids are finding themselves habitually sleep-deprived. This can affect health and cognitive functioning, both of which increase anxiety levels and impact school performance.

8. Noise pollution from school hallways, strange smells coming from the cafeteria, the buzz of florescent lighting, and other environmental stimuli have been shown to cause stress that impacts the AS or HFA child’s performance in school.

9. As you know, there are different styles of learning. Some students learn better by listening, others retain information more efficiently if they see the information written out, and still others prefer learning by doing. Students on the spectrum usually learn best through visual forms of instruction. If there's a mismatch in the child’s learning style and the teacher’s teaching style, this often leads to a stressful academic experience.

10. Due in part to the hectic schedules of parents, the sit-down family dinner has become the exception rather than the rule in many households. While there are other ways to connect as a family, many families find that they’re too busy to spend time together and have both the important discussions and the casual day recaps that can be so helpful for “special needs” kids in dealing with the stressful issues they face. Due to a lack of available family time, many parents are not as connected to their children - or knowledgeable about the issues they face - as they would like.
 
==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder

11. A good experience with a caring teacher can cause a lasting impression on an AS or HFA youngster's life – BUT so can a bad experience. While most teachers do their best to provide “special needs” students with a positive educational experience, some students are better suited for certain teaching styles and classroom types than others. If there is a mismatch between student and teacher, the student can form lasting negative feelings about school or his own abilities.

12. Many schools now have anti-bullying policies. Though bullying does still happen at many schools, help is generally more accessible than it was years ago. The bad news is that bullying has gone high-tech. Many kids use the Internet, cell phones and other media devices to bully HFA and AS kids, and this type of bullying often gets very aggressive. One reason is that bullies can be anonymous and enlist other bullies to make their target miserable. Another reason is that they don't have to face their targets, so it's easier to shed any empathy that they may otherwise feel.

What can be done to reduce school anxiety in AS and HFA children? Here are a few suggestions:

1. You may have tried to “reassure” your anxious child. But oftentimes, these reassurances sound “empty.” Saying something such as “It's going to be fine” is not likely to help a nervous AS or HFA youngster. When he begins to worry, you can use it as an opportunity to have more dialogue and find out what is making him so anxious. The more information you have, the better job you can do to help him feel more comfortable in the school environment. Thus, do a bit of an investigation to get to the root of the problem. For example, your child may become extremely anxious getting on the bus in the morning, during transitions, in the lunch room, during gym class, while taking a quiz or test …just to name a few. On a scale of 1 to 10 (with 10 being the highest level of anxiety), your child is not at a level 10 all day. Most likely, there are only one or two situations that launch him to that level. Address those situations first.

2. Try to find out if your child is refusing to go to school due to real anxiety issues, or some other reason. Answers to the following questions may help to determine the motivation behind school-refusal:
  • What specific tangible rewards does your child pursue outside of school that cause her to miss school?
  • What specific social situations at school are avoided?
  • What specific school-related stimuli are provoking her concern about going to school?
  • What specific problematic behaviors are present in the morning before school?
  • What is her degree of anxiety or misbehavior upon entering school?
  • What is her academic and social status? (This would include a review of academic records, formal evaluation reports, attendance records, and IEP or 504 plans.)
  • What family disruption or conflict has occurred as a result of her school-refusal?
  • What comorbid conditions (e.g., anxiety, depression, sensory sensitivities, etc.) occur with her school-refusal?
  • What are her specific forms of absenteeism, and how do these forms change daily?
  • Is her school-refusal relatively acute or chronic in nature? 
  • Is her refusal to attend school legitimate or understandable in some way (e.g., due to a school-based threat, bullying, inadequate school environment, etc.)?
  • Is she willing to attend school if you accompany her?
  • Is she willing to attend school if incentives are provided for attendance?
  • How did her school-refusal develop over time?
  • Have recent or traumatic home or school events influenced her school-refusal?
  • Are there any non-school situations where anxiety or attention-seeking behavior occurs?
  • Are symptoms of school-refusal evident on weekends and holidays?

3. Put a picture of you, the parent, in your youngster's notebook, or place a special note in his lunch box (e.g., “Mommy loves you”). These “little things” aren’t so little, and will help your child feel more comfortable at school (especially if he is coping with separation anxiety).
 
==> Launching Adult Children with Autism Spectrum Disorder: Guide for Parents Who Want to Promote Self-Reliance

4. Discuss the daily plans with your child so that everyone is informed and knows what to expect. Make sure your youngster is aware of everything, including who will be at the bus stop or who will be picking her up at school (this is especially important if you carpool).

5. Emphasize the positives of school. Frequently discuss how much fun school can be and all the new friends your child can meet. If your AS or HFA youngster has an older sibling in school, have that sister or brother talk to your “special needs” child about recess and all the fun that is had during the school day.

6. Meet with the school guidance counselor. This visit will make you and your child more relaxed about school. If you keep your youngster’s anxiety in the open with the counselor, he or she will likely check in on your child more often.

7. Lastly, if your youngster’s anxiety continues to grow, or you feel you can’t help her resolve her fears about school, it is time to see the doctor. Your doctor can consult with you and the entire family in order to decide if a therapist is needed.

Resources for parents of children and teens on the autism spectrum:
 
 
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COMMENTS:

•    Anonymous said… Even with the IEP it's still about conforming.
•    Anonymous said… Great article. My daughter has always shown signs of anxiety, but it ballooned once she started high school and resulted in severe depression, cognitive decline, and school refusal. It was not until age 16 that she was diagnosed with Asperger's. Her diagnosis came as both a surprise and a relief to us. She flew under the radar for so long, developing her own coping strategies along the way... but it finally became too much for her to handle. It has helped her and us to have a better understanding of her behaviour and sensory triggers. She is now back in school but on a reduced schedule of 2 in-school classes and 1 online class this semester. Our school has been very helpful and accommodating. She knows it will take her longer to complete high school with this schedule and she's fine with that. We still have our daily challenges but, with the right medication and removing the pressure to attend a full day of school, we've seen a positive change.
•    Anonymous said… I am done with school systems. After my son being bullied and called a loser by the school psychologist, that was the last straw. My ASD Spectrum son is 16. I dropped him out and homeschooling him. He'll take the Hi-Set (new GED) and go at his own pace until he's ready to take the Hi-Set.
•    Anonymous said… I am raising a child who is struggling in school.She doesn't have servers but has learning disabilities. You are right, it might look good on paper but the schools don't understand anxiety or learning pace.
•    Anonymous said… I am so sorry your son was bullied. No one deserves that.
•    Anonymous said… I can only speak from my own experience. The schools in our area really have nothing for Aspergers kids. My son is expected to be neurotypical and this has caused so much heartache for us. Inclusion without real support is rough. My hope is that there are schools out there who have more than what we've been given.
•    Anonymous said… Inclusion without support is not inclusion...it has been my experience that schools think they're being inclusive when really they are working towards integration...trying to make a neurodiverse student indistinguishable from their peers...the pressure to conform causes significant anxiety... this was one reason we recently moved schools...there are good schools out there striving for a truly inclusive culture... we are feeling positive about our new school....it's small and has a great part time program
•    Anonymous said… It is a real shame that schools don't work with kids with aspergers the way they should. Oh they go through the motions but they don't seem to do all that they can! It is very difficult for kids to sit in a classroom for a whole period and concentrate on the lesson....is that so hard to understand!
•    Anonymous said… my son gets stressed out at school feeling hes being bullied because other kids are trying to tell him what hes supose to do, then they ignor his requests knowing he will loose it and will get into trouble when they tell the teacher, all innocent, that he was yelling at them.
•    Anonymous said… my son is in first grade and I'm exhausted. We changed schools to give him something better. Looking ahead is hard. The thought of middle school worries me as well.
•    Anonymous said… We are in elementary school have problems with it too. I am very worried about middle school.
•    Anonymous said… You can ask for a IEP Which gives aspergers children a easier time. my son also has aspergers and makes his school day rough but he has learned to cope thank goodness also do you have any charter schools in your area they are also more prepared and willing to work with aspergers children.

Post your comment below…

How to Intervene When Your Child is Being Bullied at School

"My son (age 9) with high functioning autism tells me that he has been bullied by one of his classmates since the start of the school year. My son said he didn't mentioned it earlier because he didn't realize until recently that this other student was actually doing something "wrong" (go figure). How do you address bullying when the school seems to be indifferent about it – and has even blamed my son for initiating some of the conflict? If they don’t actually see the bullying taking place, they seem to assume that it’s not going on and that my son is simply exaggerating the problem."

According to research, 94% of kids with High-Functioning Autism (HFA) and Asperger’s (AS) are bullied. Bullying usually begins when the HFA or AS student is harassed by another student (or a group of students), but is unable to resist and lacks the support of others. It usually continues if the student doing the bullying has little or no sympathy for the peer they are hurting – and especially if the bully is getting some pleasure out of what he is doing.



The mental torment that HFA and AS victims feel is indisputable. However, since many of us have experienced some kind of schoolyard cruelty and lived to tell the tale, bullying is still written off as a “soft” type of abuse that leaves no apparent injuries. However, the current research into the effects of bullying indicates something more than “hurt feelings.” 
 

Bullying often leaves an indelible imprint on a child’s brain at a time when it's still developing. These neurological scars bear much resemblance to those carried by kids who are physically and sexually mistreated in early childhood. Neuro-scientists now know that the human brain continues to develop and change long after the initial few years of life. Bullying is not simply an unfortunate rite of passage, rather it is a severe form of childhood trauma that triggers psychological damage.

HFA and AS students are easy targets for a variety of reasons:
  • They have difficulty with multi-tasking and interpreting other’s intentions
  • They seem “out of step” with the other kids
  • Due of built-up frustration, they may over-react to most provocations, thus the bully knows he can always push the HFA or AS student’s buttons at will
  • Due to having a low social IQ, they let things build up, and then retaliate without an awareness of what the consequences will be
  • They have difficulty telling the difference between good natured teasing versus someone being mean
  • They may be oblivious to an act of bullying or teasing behavior
  • They have motor difficulties, so participating in athletics is difficult (even games at recess may be a challenge)
  • They process information at a different pace than expected, as a result, they may appear “space-out” or “disconnected” 
  • Their special interests may be boring to others, so it’s hard for them to find other students with similar interests
  • Low-frustration tolerance can lead to a meltdown (and a child who has a meltdown in school is often looked at as a “freak”)
  • They appear different than their peers

Most schools are cracking down on bullying and are treating such behavior as assault and punishable by legal means. As the parent, you have every right to speak with the principal, teacher or counselor in order to ask their help in controlling the problem. Some schools have behavioral support staff whose job is to get to the bottom of behavior issues and crack down on bullies.

Here are some ways that you can intervene - as well as advocate - for your HFA son:

1. Your son may find it difficult to explain what is wrong. Talking it over with his teacher may lead to a better understanding of what is really happening. The more you can do to intervene with the help of school staff, and the more you can teach your son methods for self-preservation that don’t include fighting back, the more likely this unfortunate situation will be put to rest. Your son may be reluctant to have you intervene, because he may fear the social stigma of having his “mommy” fight his battles. However, it is up to you to intervene on his behalf with school administrators to ensure his physical and emotional well-being.

2. Don't talk to the parents of the alleged bully. They may become defensive when their child is accused of bullying, and the conversation may not be a productive one. Let the school administrators manage the communication with the bully’s parents.

3. Explore with your son what leads up to the bullying. It’s possible that, on occasion, he does provoke the bully by annoying or irritating him, in which case, your son can learn not to do so.

4. Find out how bullying is addressed in the school's curriculum and how staff members are obligated to respond to known or suspected bullying. 
 

5. If possible, your son should try to stick with a trusted classmate during the school day. If he walks home from school, maybe he can find someone to walk with him. Sometimes, just having another friend around reduces the incidence of bullying. If your son has problems making friends on his own, try to facilitate a friendship with a mature, understanding child who can both be a friend to your son and can help out if bullies try to tease or hurt him. Facilitating friendships may mean inviting another child over for a meal or for some games or television, or it may mean taking both of them to a movie or on a shopping trip.

6. Remember that it can take time for teachers and administrators to investigate bullying in a fair and factual way. Most schools want to get the problems resolved as quickly as possible. So, patience is key here. Also, write down the details of reported incidence of bullying (e.g., the date, who was involved, what specifically happened, etc.). Record the facts as objectively as possible. Show this data to your son’s teacher(s) to help them make an informed decision regarding how to best address the issue.

7. Maintain open communication with your son. Talk to him every day about details small and large. How did his classes go? What does he have for homework that night? Who did he sit with at lunch? Who did he play with at recess? Listen carefully and be responsive to show interest.

8. Role-playing can help your son identify bullying. If he has a brother or sister, he or she may be able to help shed some light on bullying (kids have a closer connection to today’s playground politics than grown-ups).

9. Scenes from television, movies and video games provide plenty of opportunities to talk about bullying. You and your son can discuss how the bullied character handled the situation, and whether he or she handled it appropriately or not. The two of you can share what you would do in a similar situation.

10. Discuss with your son what places it might be best to avoid, and on occasion, whom to stay close to in threatening situations.

11. Suggest to your son things to do when he is picked on. Sometimes by acting “as if” you are not afraid – or by not over-reacting – the bullying can be stopped. It’s better if your son, with a bit of good advice, can do something to help himself.

12. Take complaints seriously, whether they be stories of physical, verbal or psychological bullying. If your son is just now telling you about problems he has had at school, you can bet that there is plenty that he hasn't told you yet.

13. Teach your son to manage negative emotions by setting an example with your own behavior. Reflect on how you respond to strong feelings of anger, fear or sadness — being careful to identify and accept your emotions, express them without blaming other people, and respond without hostility.

14. Teach your son to walk away from the bully, preferably before the bully gets started. Help your son learn to recognize those situations that may lead to bullying (e.g., after school, on the playground, during lunch, etc.), and teach him to be more vigilant and stay near adults in such circumstances.

15. Teach your son to walk tall, make eye contact, and speak assertively to the bully. Just saying "stop" and walking away from the bully may be enough.

16. Lastly, if all else fails, you may want to consider taking legal action. For more information on this topic, click here ==> Bullying: How Parents Can Take Legal Action To Get It Stopped

Research reveals that kids who have been bullied report more signs of depression, anxiety, and other psychological issues compared to kids who have not. In fact, psychological abuse from same-age peers is as harmful to mental health as psychological abuse from parents. Most HFA and AS children who are bullied (a) have low self-esteem (which may continue for many years), (b) often complain of headaches, concentration difficulties, stomach aches, etc., and (c) are frequently distracted from schoolwork, resulting in poor academic performance.

If the bullying is severe and prolonged, and the targeted child is unable to overcome the problem or get help, he may (a) seek revenge, and in extreme cases, use a weapon to get even, (b) refuse to go to school, (c) become isolated, and (d) distrust others and find it impossible to make friends.

There are a few crucial things that need to happen in order to fully resolve the bullying problem in schools: The HFA or AS youngster needs to learn how to identify bullying or teasing behavior. Schools that have instituted bullying prevention programs that are working should be visited and copied. School officials need to learn more about autism spectrum disorders and how it affects “special needs” students in the classroom. And a network of like-minded professionals and community members to join in a partnership should be developed.

Rebuilding Self-Esteem in Discouraged ASD Teens: Tips for Parents

“Dustin, my son with high functioning autism, recently turned 13. He started back to school this week (8th grade) and we are already having some issues. He still has a hard time engaging with other classmates, his personal hygiene is lacking (e.g. hates to shower or comb his hair), and he’s simply not interested in the current fads or topics of conversation among his peer-group. Now he tells us that he’s being teased by a few kids in his class. Last school year, he 'failed' socially and became completely ostracized from his peer-group and felt a sense of general isolation from everybody. It appears that we are going to have a repeat performance of these issues again this time around. He mostly just stays to himself (playing his digital piano and video games in his room). How can I help my son in this situation? Any advice would be greatly appreciated.”

Due to the fact that the adolescent with High-Functioning Autism (HFA) tends to be a loner, develops odd mannerisms, and has poor people skills in general, he can be shunned from the peer-group and be the focus of teasing, thus resulting in low self-esteem – and even depression.



Here are some symptoms to look for in your HFA son’s behavior when he is “failing” socially:
  • Frequent stomach aches, headaches, etc.
  • Appears depressed
  • Preference for isolation at home or school 
  • Poor academic performance
  • Starts refusing to go to school or skips classes
  • Increase in anger and frustration
  • Disengagement from peers
  • Conflicts at school with peers or teachers

Young people on the autism spectrum possess certain traits - and face certain obstacles - that “typical” adolescents don’t. For example, they: 
 
(a) don’t understand the importance of eye contact – and may avoid it altogether; 
 
(b) have trouble understanding jokes or sarcasm; 
 
(c) seem insensitive or look unemotional, but often they just don't know how to express how they're feeling; 
 
(d) don’t understand socially acceptable ways to express frustration and may become aggressive or throw tantrums; 
 
(e) feel "sensory overload" (e.g., have heightened senses that can make noises seem louder and more startling); 
 
(f) are socially awkward since they have difficulty processing social cues (e.g., body language, sarcasm, humor, figurative language, emotional responses, facial expressions); 
 
(g) have trouble coping with change and may not react well to changes in routine; and 
 
(h) prefer to be alone and may not show an interest in making friends.

Your son, Dustin, needs to decide for himself when he will work on his poor people skills. I’m sure it’s tough for you to sit back and watch him struggle in the social arena, but you should try to let things play out on their own time. To charge-in and assert that Dustin “needs to work harder on developing some friendship skills” will only add to his low self-esteem and sense of being an “odd ball.”

==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder 

Possibly, your son is simply not in a head-space where he is ready to make changes (but when he gets older, he may start to feel differently). Some of the reasons why Dustin may not be up for addressing his social skills deficits may include the following:
  • He may be particularly put-off about the idea of accepting help or criticism from you, the parent
  • He may not think there is any hope of improving
  • He may not see himself as awkward, just different
  • He may realize he has some things he needs to work on, but doesn't feel they are a priority at the moment
  • He may recognize he has some social problems, but is ashamed of them
  • He may be perfectly content to stay at home all the time and play video games
  • His lack of social skills may not have cost him enough yet (e.g., the teenager who doesn't need a lot of friends and who is content to spend his free time on the computer is not losing much by being ostracized from the peer-group)

In any event, here are a few ideas that you can use to help your HFA son deal with his social skills deficits:

1. While Dustin may have some real social weaknesses, in other ways, he may be different from the norm in a way that is perfectly valid. Those differences may be tied to social skills deficits, but you need to distinguish between true deficits and normal variations in personality. For instance, there's nothing wrong with being a bit reserved, being uncomfortable in certain social situations, having a unique hobby, having an odd sense of humor, or preferring to spend time alone. Thus, it would be helpful to not come across like you are rejecting Dustin’s core self.

2. Try to avoid feeling disappointed in your son. Maybe you were somewhat popular in school and can't really understand how Dustin seems to be having the opposite experience you did. Maybe you always hoped he would be a great saxophone player or football player, and you can't help but roll your eyes when he spends all Sunday afternoon playing “childish” video games in his bedroom (i.e., games that much younger children might play).

3. Try not to get angry with your son for not realizing he has a problem, or not wanting to do anything about it. True, the problem seems so obvious to you, but Dustin probably doesn’t see things the same way. For instance, he may tell you that it is impossible for him to make friends. His logic and explanations may not make sense to you, but he still seems to believe them.

4. Point your son to some resources (e.g., books, videos, CDs, etc.) that discuss self-help strategies for people looking to develop interpersonal skills.

5. Don’t feel that you have “failed” somehow as a parent because your “special needs” teenager is awkward, or because you didn't step in earlier. You may be prone to feeling guilty or blaming yourself if your son is going through a tough time. The fact is that most HFA adolescents are simply emotionally immature compared to their “typical” peers. After all, they have a “developmental disorder.”

6. Dustin may fare best with one or two close friends with whom he can practice teen social skills and "adult" behaviors. Even one relatively close relationship can make the difference between a depressed, awkward teen -- and one who is beginning to learn valuable social skills with a select few others.

7. It takes time for adolescents on the autism spectrum to improve their social skills. If your son does start working through his issues, don't feel like he is dragging his feet or not working hard enough if he doesn't transform over a period of a few months. In addition, give him space to change at his own pace. Maybe he will be eager about making some changes for a few months, but then get distracted by other things for a while.

8. Don't make your son feel monitored, or that your approval is connected to his rate of progress. For instance, you go to a family cookout and Dustin doesn’t feel like mingling with other family members, but you watch him to see if his ability to socialize has improved. Give Dustin the impression that you accept him for who he is – unconditionally! Of course, you will be delighted for him and share in his success if he makes some positive changes. But if he doesn't, you're O.K. with that too.

==> Parenting System that Reduces Defiant Behavior in Teens with Autism Spectrum Disorder 

9. If you were socially awkward as a teenager, some of your own baggage may come up as you witness your son struggling. You may frantically want to help him avoid some of the social blunders you made. But, he will need to learn from his own mistakes rather than from yours.

10. If you have already tried to help your son with his social awkwardness, but he shot you down, try to avoid feeling slighted or resentful. Don’t take it personally. He will take a hard look at himself and the changes that may need to happen when the timing is right.

11. If there is a relative or family friend your son may be more open to talking to, mention that person’s name. For example, maybe he will be more open to chatting with his uncle who he looks up to.

12. Pick a moment when you have time to talk and your son is in a decent mood. Tactfully mention that you've noticed that he seems to be having some trouble with __________ (fill in the blank with the problem in question), and that if there is anything you can do to help, you are there for him. He may deny that there is a problem or want the conversation to be over. But even if he gives that response, you can still lay out some options for him.

13. Try to engage your son in an activity or program where there are adult mentors to help him increase his self-esteem and build self-confidence. Research reveals that having just one activity in a teen’s life where he feels successful will result in a higher sense of self-esteem and a greater ability to negotiate a variety of social situations.

14. Don’t fall into the trap of feeling sorry for your son. It's only natural that you want to make his pain go away, but that attitude often results in over-protective parenting that tends to make a bad problem worse (e.g., doing too much for your son to the point where he never learns to do things for himself).

15. Young people on the autism spectrum need extra time to learn and practice adult life-skills, because their “emotional age” is much younger than their “chronological age.” In other words, your son is 13-years-old chronologically, but emotionally, he is probably more like a 9-year-old. So, the earlier you begin helping out in the area of social skills training – the better!

Children with HFA eventually go through adolescence on their way toward becoming strong, focused adults -- regardless of the misinformation you may have been fed. While adolescence is a difficult time for all teenagers, it can easily be much worse for those dealing with an autism spectrum disorder. However, with the right education and support, most HFA adolescents go on to graduate from high school.



__________

As the years go by, are you seeing your HFA or AS child rapidly becoming reduced to a person who is surviving on: anger, being a mistake, depression, hate, isolation, low self-esteem, resentment, sadness and self-hate. Have you heard your  teenager say things like: I'm a mistake. I'm dumb. I'm useless. I hate myself. I wish I was dead. What is wrong with me? Why was I born? If so, then alarm bells should be going off. You know changes need to happen! Low self-esteem and behavioral problems go hand-in-hand! 

==> CLICK HERE for help on the matter...


COMMENTS:

•    Anonymous said… I have a 12 year son with HF autism , it has been so difficult to have conversation the past year.
•    Anonymous said… I think online school is the best option. Grooming is tough but my son is Ten and we use a reward system that includes play dates with friends. We also have a support group of 5 boys that also have Asperger's. We get together once a month. It's great to have parents to talk to about the issues that come up. My advice look for local support. Ask him what you can do to help him with his hygiene. Look into online school. Lastly find a career option that he is already obsessed with. Start classes in that. My son is obsessed with video games and he spent the summer in coding camps. You can do this dig deep they need our help!
•    Anonymous said… I wish there were more social groups for kids with special needs to get together. The school tries to offer social skills but it really is no contender for real life relations.
•    Anonymous said… My 15 YO son started 10th grade last week. We moved and changed school districts over the summer and he has decided that he wants to "reinvent himself". I am still having to remind him of showers/deodorant/shave/etc, but it is not he fight it has been in the past. He is conscientious of his clothing and has even shown interest in keeping his backpack more organized. I know it has only been 2 days but I consider it a step in the right direction. I think it helps that he is only doing 3 classes at the high school and then has an hour and a half break before going to 2 classes at the tech school for engineering. He says those are "his people". He came home Friday and a girl at the tech school came up and asked to sit w him during lunch. They talked for a long time before they both agreed that they should say their names and introduce themselves. He was so stimmy and excited when he got home. He said they both laughed when they were talking about how awkward they each were. He got invited into a group text about a class project. It all seems so simple but very few understand how big of a deal this is. Last year, he spent a ton of time in his resource classroom. That was his safe space. I think it gave him some confidence to be around other students like him. I also think that he is simply just ready this year. He has aged a bit and is talking about getting a job. It isn't that has happened in the past by trying to force it, so I am just going with it. He is just finally ready and has loads of resources and copying skills to help him along the way. I hope this gives you a bit of hope that it can get better...it may be on his schedule but that is ok.
•    Anonymous said… my son became suicidal because of school so I took him out and quit my job. we are poor, but he is alive. I do not think children with autism should be forced to conform to neurotypical environments. it becomes a form of child abuse. I am also aware that many parents have no choice, but find an alternative to school for the child's sake. think about it this way, how would you feel being forced to spend all day in an environment where everyone speaks a different language than you, but you were told to Buck up and blend in or bullied. you would leave right? learning the new language would help, but that is like asking a blind person to learn to see so that everyone else feels better when they are around.
•    Anonymous said… Same here....doing home school....showering clothing choices ect...starting high school today....in the diningroom
•    Anonymous said… School. Ugh!
•    Anonymous said… So hard. I engage with my son as much as I can, fortunate enough to be self employed and live close to school so pop in at morning tea and lunch times to check in
He's usually by himself but chooses too. We have family friends whose children also attend and they come up to me to say hi and whether they've hung out with him which is amazing and nice. I dont do it every day, maybe once or twice a week . Really helps keep him focused and I can deal/ chat with teachers anytime too. Communication and participation are vital i think
•    Anonymous said… This is what I am totally afraid of this year. It's going to be a tough one.
•    Anonymous said… This might sound INSANE to other people but the best I have done for my son is find a church with a good kids program. Generally the children in church are just taught to accept differences. They work out the differences easily and don't just toss other kids to the side.... hang in there mama you are doing amazing.
•    Anonymous said… Very similar situation, with a daughter (gr 7). I've got no advice, I'm sorry. But am interested in the advice .
*    Rita said... Acknowledge to yourself and your son that he is wired differently from most people. Stop expecting him to behave and react like them. The book "Look Me in the Eye" by John Elder Robison was helpful to my son at age 14. It showed him that Aspies also have some positive differences. Focusing on finding what your son is good at and promoting it will help with the self-esteem. We were fortunate to be able to send ours to computer camp to start learning some marketable skills beyond playing games.

Post your comment below…

Helping Kids on the Autism Spectrum to “Fit-In” with Their Peer Group

"My 10 year old HF Autistic/Aspie doesn't have many friends, and when he's home he doesn't have any at all. He likes to be by himself playing video games with his online friends, which is very few as well. This has been the most difficult part of raising a child with autism. It is not made easier by teachers that damage fragile self-esteem and school boards and clubs that are exclusivist. I've found it to be heartbreaking. I often have to remind my son to talk about what other kids want to talk about and to play games others want to play. He often forgets this give-and-take aspect of friendships. He recently lost his best friend. The friend couldn't take the screaming, crying, yelling, controlling, bossiness and lack of reciprocity. My son takes things very literally and thinks with his heart. It is difficult for him to focus on more than one friend. He simply speaks on and on obsessively about his video games. I don't know what to do."


Young people with High-Functioning Autism (HFA) usually want to fit-in and have relationships with friends and classmates, but they just don’t know how to do so effectively. They lack an understanding of conventional social rules and often “appear” to lack empathy. In order to improve socialization, these “special needs” kids need to learn and focus on socialization from an “intellectual” standpoint. Things that come naturally for children without autism need concentration by those with it.



The ability to navigate everyday social interactions presents significant challenges for kids on the autism spectrum. Social situations that present difficulties can range from the fairly simple (e.g., engaging in a conversation with a peer) to the extremely complex (e.g., determining whether a peer who seems friendly is actually harmful in some way). 
 

Examples of important social skills to be taught to HFA children include (but are not limited to):
  • maintaining appropriate eye contact
  • decoding body language and facial expressions
  • demonstrating empathy
  • determining appropriate behavior for different social situations
  • determining appropriate topics for conversation
  • determining whether someone is trustworthy
  • identifying one's feelings
  • interacting with authority figures
  • learning how to begin and end conversations
  • maintaining appropriate personal space
  • making appropriate choices
  • recognizing the feelings of others
  • resolving conflicts
  • self-monitoring skills
  • social-perception skills
  • taking turns
  • understanding gestures
  • understanding community norms

Watch this video on teaching social skills: 


Here are some crucial strategies that parents and teachers can employ that will assist the child on the autism spectrum in finding – and maintaining – successful interpersonal relationships with others:

Tips for Parents:

1. Work with a speech pathologist that will evaluate and offer help with language. Even though your HFA youngster may speak perfectly, learning “social language” is often necessary. Learning eye contact from a speech pathologist, for example, is an important skill.

2. Work with a psychologist or counselor to teach and improve social skills. Therapies often teach children on the spectrum to recognize potential problem situations. In addition, these professionals teach and practice strategies with “special needs” children so they can handle most challenging situations.

3. Utilize role-play at home prior to any type of excursion. Role-play allows the child to image all of the various scenarios that could happen. Then, teach strategies for dealing with situations that are difficult.

==> Teaching Social Skills and Emotion Management

4. Reduce anxiety for your child whenever possible. Keep the rest of his life structured and organized, and ensure that the environment is a positive and rewarding one. This allows him to focus on social interactions without concern about other difficulties.

5. In school and other social situations, HFA children will perform best with a parent's aid. Find a friend for your child at school that he knows and can work with. Your youngster may eventually learn from the friend regarding “how to interact.”

6. Help your child get involved in sports and extracurricular activities. Through practice, kids and teens on the spectrum can learn to be socially positive.

7. Encourage socialization from a young age by bringing other kids into your home. With supervision, allow play dates to be teaching moments. For example, the parent can say something like, "See how Michael has his hand outstretched? That means he wants to say hello with a handshake. Shake his hand."

8. During the teenage years, dating is often difficult. Encourage adolescents to go out with friends and to date. It may take practice, but they will learn social skills with each outing.

9. Communicate with pictures. To teach HFA children to be social, incorporate picture stories into their daily lives. This is important for difficult subjects (e.g., sharing and communicating feelings). The stories should communicate how to handle the situation.

10. Use games or role-play to focus on the viewpoint of another person. This can include simply looking at pictures of children or adults interacting or working together or sharing some activity, and asking what is happening or what a given individual is doing, and what he may be thinking.

11. Use a video of a situation to illustrate behavior that is inappropriate in, for example, causing irritation to other children. Then discuss why. Also, make a video of the child himself and discuss where there are incidents of good social behaviors.

12. Provide direct advice about when and for how long your child may go on about a favorite topic, perhaps with the use of a signal by which to indicate when to stop (or not to start). If obsessive talking appears to mask some anxiety, seek to identify its source or teach general relaxation techniques. Also, provide positive feedback when your child is not talking incessantly about his given topic of interest.

13. Provide direct instruction of social rules or conventions (e.g., how to greet somebody, how to initiate a conversation, taking turns in a conversation, maintaining appropriate eye contact, when someone is joking, how to recognize how someone else is feeling, etc.).

14. Create a series of cartoon faces with clearly drawn expressions indicating anxiety, anger, sadness, surprise, etc. Then have your HFA child identify the various feelings and guess what caused them.

15. Model social skills for your child to observe, or view and discuss a video-tape of two people talking or playing, including reference to any non-verbal messages which can be discerned.


1. The establishment of a "buddy" system or a system where the HFA student is encouraged to observe how other students behave in particular situations is helpful.

2. Provide specific and structured activities for the “special needs” student that are to be shared with one or two selected classmates. These can range from some jobs to be completed in the school during break or lunch time, games involving turn-taking, or tasks or mini-projects to be completed on the computer.

3. Provide direct teaching of what to do (or what not to do) in certain challenging situations (e.g., when the teacher is irritated either with the HFA student – or with the entire group).

4. Provide a visual timetable plus bulletins of any innovations so there is no uncertainty about the day's routine.

5. Make use of the "Circles of Friends" approach designed to identify (social) difficulties, and to set targets and strategies by which other students in the class can be helpful and supportive, with the long term aim of increasing social integration and reducing anxiety.

6. In the classroom setting, instructions should be very precise with no opportunity to misunderstand what is expected. It may be necessary to follow-up group instructions with individual instructions rather than assuming that the HFA student has understood what is needed or can learn "incidentally" from watching what other students do.

7. In a group setting, adopt the “circle-time” strategy of limiting verbal contributions to whoever is in possession of some object (while ensuring that the object circulates fairly among the whole group).

8. Identify particular skills in the HFA student and invite him to offer some help to another student who is less advanced (e.g., with the use of the computer).

9. Help your HFA student to recognize his symptoms of distress with a "script" by which to try relaxation strategies, or have in place a system where it is acceptable for the student briefly to remove himself from the class as necessary.

10. Have the autistic student’s peers model social skills. A “buddy” can also be encouraged to be the partner of the autistic student in games, showing how to play and offering or seeking help if he is teased.

11. Have a regular time slot for support from an adult in terms of feedback concerning (social) behavior, discussing what is going well and less well, and why – and enabling the “special needs” student to express concerns or versions of events.

12. Encourage participation in school clubs or organized/structured activities during the lunchtime.

13. Allow some practice of talking at a reasonable volume and pace with an agreed signal to be given if it is too loud or fast, or tape-record the student’s speech so that he can evaluate the volume and pace himself.

14. Show the HFA or AS student – and his classmates – a hand signal that the classmates can use when they are tired of listening to him talk about his topic of interest. Also, agree to a later time and place for responding to the autistic student’s repeated questioning about a particular topic of interest.

15. A clarity and explicitness of rules in the classroom to minimize uncertainty and to provide the basis for tangible rewards should be implemented.

Having friends provides support and promotes mental health and well-being. Friendships are also very important for social and emotional development. Through friendships, kids learn how to relate to others. They develop social skills as they teach each other how to be good friends. Young people on the autism spectrum who have friends are more likely to be self-confident and perform better academically. When these “special needs” kids have difficulty making friends or keeping them, it often leads to feeling lonely and unhappy with themselves. Feeling rejected by others often leads to significant distress, too.

Parents and teachers have important roles to play in helping their HFA youngster develop friendship skills. They set examples for how the youngster can manage relationships. They can also act as coaches, teaching the child helpful social skills and talking through friendship issues to help with problem solving.

 
Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
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 COMMENTS:

•    Anonymous said… A puppy or kitty it a frog whatever interests him. Don't try to change him.
•    Anonymous said… Are there social skills groups on your area?
•    Anonymous said… As a parent, this is the hardest part for me. It doesn't seem to bother my 15 year old, who perceives himself as having friends. I worry about what's going to happen when he's out of HS and has less social opportunities.
•    Anonymous said… Following...we're going through the same thing
•    Anonymous said… Get in touch with the national autistic society they have all the details of local support groups.
•    Anonymous said… He sounds just like my son.He is obsessed over his video games.
•    Anonymous said… I can so relate!
•    Anonymous said… I know it's hard to deal with my daughter has the same issues and yes the school is making things very hard and I am ready to get a lawyer and say the he'll with it.
•    Anonymous said… I think we all have to face reality that our asd kids reality will not ever be ours and accept that. aspies have organized groups now online etc and that will grow so that will have friendships of like minded people. For lower functioning kods....i just dont know. It will take the parents to develop a group or vision of what is needed and provide it.
•    Anonymous said… I understand ur frustration.
•    Anonymous said… I'm less worried about with my kids as I was the same. If they socialise or even go to clubs, great, but otherwise they need the head space to recover from the very social aspects of school. A few good friends is better than actives of acquaintances anyway.
•    Anonymous said… It is very difficult my 13 year old son says his xbox and online friends are his social life and when he has to go out of the house we are ruining is social life he will say some days he can be compliant some days he can be cross with us but mostly moans about when we going home etc ... the computer games are like thier way of escape and relaxing like us wanting to have that glass of wine or go 4 that walk whatever people do to relax .a balance is not always possible and every autistic person is different in how much they can cope with outside the computer world my son likes educational historical places so days out at places of interest can gage him for a while but the xbox will always be mentioned
•    Anonymous said… Just let him be himself. He's safe playing his games but maybe be his best friend and take him out just you and him for walks in nature. Maybe get him a pet to care for. Pets help the aspire child connect to feelings and it brings out something golden in these kids.
•    Anonymous said… Limiting the screen time, balancing it with a more neutral family occasion, then arranging a play date (at least try) would work a bit.
•    Anonymous said… My 7 year old wants a friend so bad. He has a sister that is 20 months older that really is his only and best friend. He is so social, but typically dominates conversation with what he is interested in.
•    Anonymous said… My boy is the same, I chose home schooling and I've never looked back, he has improved so much in the last two years and is now allowed to be himself.
•    Anonymous said… My son is 19 today. He's had one friend all his life. One. And he didn't even go to the same school. Somehow, when he hit 17, he started making more friends but I never worried about it. One was all he needed!
•    Anonymous said… So for all of those parents worried about their kids obsession it's video games, it is a serious problem for these teens. They get addicted to the virtual worlds they play in. They are much more sensitive and susceptible and we had to take our son completely off of it and it was very hard at first with his behavior getting aggressive but it is worth it.  😉
•    Anonymous said… So hard to let them do the computer and online games...yet you understand it is a part of them.
•    Anonymous said… That's my boy too!
•    Anonymous said… The behavior is so hard to deal with...i need a support group for parents. Can anyone direct me on how to find one?
•    Anonymous said… We have the same problem but the lifeline for us has been at the Comic book store where they run a Pokemon club, they're all the same and he fits right in! Try it  😊
•    Anonymous said… You Re not alone ! All my son wants to do.

Post your comment below…

Cognitive and Behavioral Inflexibility in Kids on the Spectrum

“Why are transitions so difficult for my autistic child (high functioning)? It’s impossible to get him to stop what he’s doing at the time without a huge row. What are some strategies which can help when moving from one thing to the next?”

One frequently observed feature of High-Functioning Autism (HFA) and Asperger’s is inflexibility in thought and behavior. Inflexibility seems to pervade so many areas of the lives of children on the autism spectrum. Novel situations often produce anxiety.

These kids may be uncomfortable with change in general, which can result in behavior that may be viewed as oppositional and can lead to emotional meltdowns. This general inflexibility is what parents and teachers often label as “rebellion.”



There are two types of inflexibility:
  1. Cognitive inflexibility occurs when the child is unable to consider alternatives to the current situation, alternative viewpoints, or innovative solutions to a problem. The child with inflexible thinking tends to view things in “either-or” terms (e.g., things are either right or wrong, good or bad). He or she wants concrete, black and white answers. The “gray areas” of life are very uncomfortable (e.g., the child often has an exact way of doing things with no variations). 
  2. Behavioral inflexibility refers to a child’s difficulty maintaining appropriate behavior in new and unfamiliar situations. Flexibility enables children to shift effortlessly from task to task in the classroom, from topic to topic in conversation, from one role to another in games, etc.

Children with HFA may have many fears in addition to those related to unexpected changes in schedules. Large groups of people and busy/noisy environments (e.g., school hallways, cafeterias, playgrounds, bus stations, etc.) tend to overwhelm children with HFA. They may also be overwhelmed by unexpected academic challenge or by having too many things to remember or too many tasks to perform.

They often have limited frustration-tolerance and may display tantrums when thwarted. Routines and rules are very important to kids with HFA in providing a sense of needed order and structure, and thus, predictability about the world.

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

Another form or inflexibility is moralism, a kind of self-righteous and strict adherence to nonnegotiable moral principles that is often out of context with practical reality. An example may be a youngster who criticizes a parent who has run a yellow traffic light when the parent is on the way to the emergency room for treatment of a severe injury.

Inflexibility is also found in the rigidity over matters that are of little consequence, such as arguing about whether the route to the emergency room was the quickest when it might be the difference between a few hundred yards by choosing to take one turn over another. In the classroom, this may be found when an HFA student fixates on a perception that a teacher has not enforced a rule consistently. Such fixations on moral correctness can escalate and interfere with availability for instruction.

Reasons for Inflexibility—
  1. Transitioning from one activity to another. This is usually a problem because it may mean ending an activity before the HFA child is finished with it.
  2. The need to engage in - or continue - a preferred activity (usually an obsessive action or fantasy). 
  3. The need to control a situation. 
  4. The need to avoid or escape from a non-preferred activity (often something difficult or undesirable). Often, if the child can’t be perfect, she does not want to engage in the activity.
  5. Other internal issues (e.g., sensory, inattention (ADHD), oppositional tendency (ODD), or other psychiatric issues may also be causes of behavior. 
  6. Lack of knowledge about how something is done. By not knowing how the world works with regard to specific situations and events, the child will act inappropriately instead. 
  7. Immediate gratification of a need. 
  8. Anxiety about a current or upcoming event (no matter how trivial it may appear to the parent or teacher). 
  9. A violation of a rule or ritual (i.e., changing something from the way it is “supposed” to be). When someone violates a rule, this may be unacceptable to the HFA youngster. 
  10. A misunderstanding or misinterpretation of another's action.

Inflexibility is often the result of anxiety. The cause of anxiety in the HFA child has a lot to do with the fact that she does not have the ability to understand the world like “typical” kids do.

Because of the neuro-cognitive disorder, the child:
  • will have difficulty understanding rules of society
  • needs explicit instructions
  • does not understand social cues
  • does not understand implied directions
  • does not know how to “read between the lines”
  • does not “take in” what is going on around her

“Facts” are what kids with HFA learn and feel less anxious about. Since these “special needs” kids have a hard time with all the normal rules of society, having “rules” has a calming effect on them. They think, “This is the rule. I can handle it o.k.”

Facts also have to be from someone they think is an “expert” in their eyes. Teachers and doctors may have this leverage with them, but moms and dads are, for the most part, not considered “experts.”

Understanding what causes so much anxiety, tantrums, meltdowns, shutdowns, and out-of-control behavior helps parents to know where their HFA child is coming from, and with that, parents will be able to help their kids less stressed-out.

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

Parenting Strategies—

Here are some strategies for dealing with an inflexible-thinking youngster:

1. While helping your HFA child to deal with change, be prepared to weather the storm. There will be sadness, tears and tantrums – followed by parental guilt. It’s all part of the process. Remain calm, and accept your youngster for who and what she is.

2. Turn the “change” into an adventure. For example, turn “Are you ready to start a new school year” into “Wow, just think. You’ll get to see all your classmates again.” Since any change can seem frightening to children on the spectrum, the language you use can turn the change into a fun adventure. Changing the tone to one of excitement can make a world of difference in your child’s attitude.

3. Read articles and books about the change in question. Almost any change that your child is going through has been written about (e.g., new siblings, moving to a new neighborhood, starting a new school year, etc.). Go to the library and get as many books as you can on the topic and read together. Reading helps open the lines of communication to talk about the difficulties of the change that is coming.

4. Prepare your HFA youngster for what may happen – and be honest. Voice your plans in a reassuring tone. Explain to him in concrete terms where you will be going, or what may happen along the way, so that he is prepared well before and ready for the change. Also, answer your child’s questions, and tell him the truth (i.e., don’t sugar-coat the situation) so that trust develops. Many tantrums and meltdowns can be avoided, because you keep reminding him throughout the day of what’s going to happen. In this way, there are no unwanted surprises.

5. Many kids on the spectrum have difficulty with the concept of time. But, you can provide your child with simple strategies to measure time (e.g., use an alarm clock or kitchen timer for task transitions, clean up times, or evening rituals). Let your child place a calendar centrally, and help her keep track of important dates (e.g., birthdays, holidays, vacations, the first day of school, etc.). Signal your child verbally or set countdowns for when she must leave an activity that she is enjoying (e.g., “I’m going to turn off the computer in 10 minutes because we are getting close to lunch time”).





 ==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

6. Let your HFA youngster know of some changes in life YOU have undergone – and how you managed them. Your examples are a way of helping your child cope with change in the future. Relate to his situation. Tell stories about when you have had to weather the storms of change. Also, you can talk about what you might have done differently – something that could have facilitated a better outcome. Alternatively, you can talk about the changes within the other family members and how they changed with circumstances.

7. Kids on the autism spectrum love to follow a routine. Anything away from that worries them. They feel best when they are able to predict things. They feel safe when they know what is on the agenda for the day or what they have to do next. They want to know how other people are likely to behave or react, and what will happen from day to day. So, if you and your youngster are undergoing a significant period of change, try to keep most of his routine the same.

8. Help create sameness by repeating a similar “comfort phrase” (e.g., “Sometimes we have to change our plans, and we will be O.K. when that happens”). Use this exact phrase (or something similar) every time flexibility is needed. This helps to bring a sense of control and predictability during chaos. Your youngster will remember that you said that the last time a change was needed – and everything eventually turned out just fine.

9. Focus on just a few areas where flexibility is needed most. For example, if your youngster is constantly distressed when you’re out running errands, this is the place to start. If he is upset over having a babysitter, start there. If he won’t leave the grandparents’ house without a tantrum, focus on that issue.

10. Encourage your HFA youngster to explore and engage in new activities and interests. In this way, you help her cope with change that will come later in life. When she goes through various new experiences, it provides a fundamental base that strengthens her emotional muscles. It helps her feel good about herself and develops self-confidence.

11. Don’t unintentionally reward your youngster for acting-out due to an unwanted routine change. Uncontrolled anger warrants a predictable, swift consequence. Losing a particular privilege may be the best consequence for HFA children. Be firm. Don’t underestimate your youngster’s ability to manipulate you. Even severely autistic kids can be master manipulators.

12. Create behavior incentives using something that is the same each time (e.g., tokens, tickets, stickers, etc.). Let the sameness of the identical token be the familiar thing during the unfamiliar situation. You can also use marbles dropped into a jar (the smooth texture and “clicks” when they drop is satisfying to most autistic kids). For example, explain to your youngster, “When we leave the park today, if you don’t cry, you’ll get a marble to put in the jar when we get home.” Let her cash in the marbles for a reward at the end of the day.

13. Change itself can come quickly or slowly, but adjusting to the new state of affairs takes time. Make sure you give your youngster – and yourself – the luxury of having time to adjust. Try not to expect too much too soon. Some changes are easy to adjust to, others aren’t. Some HFA children adapt quickly to change, some don’t. As the parent, simply keep doing what you are doing, and know that most changes eventually leave everyone in better places than where they began.

14. Attempt to see things from your child’s point of view. Ask her how she perceives a particular change. A child who airs her misgivings about unwanted changes is more likely to cope better. Talk about the details of what will happen, where she will be, and what she will have to do. Doing so repeatedly helps your child feel prepared.

15. Lastly, always demonstrate love and appreciation when your child “tries” to accept a new situation with courage – even if he is unsuccessful. In other words, be sure to reward “effort” with acknowledgment and praise, regardless of whether or not the desired outcome occurred.

Treatment—

An effective treatment program for inflexibility and “insistence on sameness” actively engages the HFA youngster’s attention in highly structured activities, builds on his interests, offers a predictable schedule, provides regular reinforcement of behavior, and teaches tasks as a series of simple steps. This type of program generally includes the following:
  • specialized speech/language therapy to help kids who have trouble with the pragmatics of speech (i.e., the give-and-take of normal conversation)
  • social skills training, a form of group therapy that teaches HFA kids the skills they need to interact more successfully with their peers
  • parent-training and support to teach moms and dads behavioral techniques to use at home
  • occupational or physical therapy for kids with sensory integration problems or poor motor coordination
  • medication for co-existing conditions (e.g., depression and anxiety)
  • cognitive behavioral therapy, a type of “talk” therapy that can help the more explosive or anxious kids on the spectrum to manage their emotions better and cut back on obsessive interests and repetitive routines

In summary, due to the fact that change causes anxiety in young people with HFA, they will want to live by inflexible rules that they construct for themselves. One of their main rules goes something like this:  “My routine must NOT be disrupted, and involves X, Y and Z. Each time I can do X, Y and Z – in that order – my life has some predictability. When I don’t have this predictability, I feel anxious, which is a very painful emotion that needs to be avoided at all costs!”


More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book

==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

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