Search This Blog

Showing posts sorted by date for query marriage. Sort by relevance Show all posts
Showing posts sorted by date for query marriage. Sort by relevance Show all posts

How to Get Your Adult-Child with High-Functioning Autism to Live Independently

"How can I motivate my adult son (with high functioning autism) to develop some sense of responsibility and think in terms of becoming a productive member of society?"

If you are in a situation where your adult child with Aspergers or high-functioning autism (HFA) is living with you and it is mutually beneficial (or at least mutually respectful), then this article may not be for you. However, if your young adult is overly-dependent or lives at home in a situation that has become uncomfortable or intolerable, then read on…

Over time, some moms and dads of adult children on the autism spectrum have moved from “caring for” their child to “care-taking” – sometimes well into their adulthood. Many moms and dads are held hostage by emotions (e.g., anger, frustration, disappointment, guilt, fear, etc.) and frequently wonder what will happen if they do throw their adult child out of the nest without a net.

Here are some concrete steps to help that adult child gain the self-reliance needed to move out of your house:

1. If you’re living with a partner who is not on the same page as you, it can make putting these steps into effect extremely difficult. You can only control yourself. If it’s causing serious conflict, you may want to seek marriage counseling regarding how the two of you can come to a mutual agreement.

2. Identify ahead of time what you’re willing to follow through with, what your boundaries are, and which emotional buttons will most likely get you to cave-in. One parent stated, “I’m okay with my adult child (now 20-years-old) not having a cell phone or video games, but I don’t want him to be homeless living on the street.” That parent knew she would allow her son to live in her home without the benefit of unearned privileges, so that is the boundary that was set. It was later revealed that this young adult decided those “extras” were important, so once his parent stopped providing free handouts (i.e., giving him money for this and that), he was inclined to go get a job and start paying his own way – including renting an apartment.



3. Instead of picturing your adult child as a fragile individual who will probably fail on multiple levels when he leaves the nest, think of him as fully capable of functioning on his own in the real world. Our emotions can cause us to be so afraid of what will happen to our "special needs" children that we think of them as kids, rather than grown-ups. In reality, your adult child is a grown-up —equal to you, and equally capable of making it in this life. Thinking of him as incapable is actually a disservice to him and keeps you in parental “care-taking mode.” Your child may be uncomfortable with some of the steps you’re taking that encourage more responsibility – but that’s okay. This is what he needs to experience in order to make changes within himself. Changing your viewpoint will help you strengthen those “guilt” and “fear” emotional buttons.

4. Many grown-up on the autism spectrum are struggling to become independent in today’s generation. True, the economy is bad, and our country is experiencing hard times. But that’s nothing new. We’ve gone through recessions and depressions in the past. The difference with many young Aspergers and HFA adults in today’s generation seems to be the “sense of entitlement” and the “aversion to sacrificing” in order to make it. Today, society is all about technology and instant gratification. But, it’s not too late to teach our adult children the value of delayed gratification and working for things they desire. It’s okay for them to be uncomfortable and realize they have the ability to survive hard times through self-reliance. If your guilt or fear buttons start reacting, remember this: we give our “special needs” children these lessons out of love.

5. Make your boundaries clear. If your adult son lives in a separate residence, but still depends on you as a source of income, set some boundaries. State what you will and will not pay for. If you need to start small and work your way up, that’s okay. If you just can’t stop buying groceries yet, because you know you won’t follow through with allowing your son to eat at soup kitchens, then start with things like cell phones, money for gas, cigarettes, movie money, etc. It is his responsibility to locate resources (e.g., friends, churches, government assistance, etc.). Your adult child can always apply for assistance through government programs (e.g., food stamps, rental assistance, etc.) if he is truly unable to locate work and support himself.

==> Launching Adult Children With Aspergers and HFA: How To Promote Self-Reliance

6. Some moms and dads have adult kids at home who are abusing them verbally or even physically. You have the right to live in your own home, free from abuse, intimidation or disrespect. Anytime someone treats you in this way, they are violating a boundary – and sometimes violating the law. It’s your right to establish personal boundaries that keep you physically and emotionally safe.

7. Another strategy to help your “dependent” child is to make it more uncomfortable to depend on you than to launch. A huge part of making your adult child uncomfortable is to stop paying for all the “extras” (i.e., things he views as necessities that really aren’t). Even in today’s world, he can live without cell phones, internet, haircuts, video games, and any other leisure activity you can name. Some ways to cope with little money include the following:
  • He can eat cheap (e.g., macaroni & cheese, Ramen noodles, etc.).
  • He can take the bus.
  • If he doesn’t have the money for cigarettes or alcohol– he doesn’t get them.
  • He can get clothes from Salvation Army or Goodwill.
  • and so on…

8. If your adult child lives in your home, draw up a contract that specifies the terms of his living there. This is an agreement between two grown-ups. Don’t think of him as your kid. Instead, picture him as a tenant. Then you’ll be less likely to have your emotional buttons triggered. A young adult may decide he doesn’t like the contract and will decide to live elsewhere. More power to him! The important thing to remember is that your child is not “entitled” to live in your home past the age of eighteen. It’s a privilege, and you have every right to set some realistic limits.




9. In some situations, adult on the spectrum have literally worn out their welcome by taking and taking – financially and emotionally – without giving in return. Thus, you don’t have to feel guilty about moving your child into independence so you can have your own life back. You have the right to:
  • enjoy peaceful evenings in your own home
  • have the environment you want in your home
  • spend your money on things for yourself

You’ve raised your son or daughter. He/she is an adult now. You are not expected to provide for him/her any more than your parents are expected to provide for you as a grown-up.

10. Many adult children make a career out of asking their mom or dad to provide things for them that they can’t afford themselves. Most people aren’t going to provide these things for your adult child. There are no free hand-outs in the “real” world. But too many moms and dads provide free hand-outs to their adult children, which leads these children to believe that free hand-outs are everywhere (what a shock when they find out differently!). Your adult child can live without an Internet connection in his apartment (he can get online at the local library); he doesn’t have to text (he can write letters); his hair can get really, really long (he doesn’t “need” a haircut).

11. Remember to strengthen your emotional buttons. If your adult child typically pushes the “guilt” and “sympathy” buttons in order to stay dependent and comfortable, prepare yourself for what’s coming and create a plan on how you’ll handle it (e.g., make some note cards or adopt a slogan to remind yourself that you have the right to have your own home, free from negativity or meeting another adult’s needs).

==> Launching Adult Children With Aspergers and HFA: How To Promote Self-Reliance

12. Contact the local court to get information about the legal avenues you can pursue to help your adult child move out. Many states require you to serve a “Notice to Quit” to any grown-up living in your home. If your child still refuses to leave, you may need to follow up with an Eviction Notice that gives a deadline for him to move out. If your child still refuses to leave, the police can enforce the eviction by notifying him that he will be escorted out of the house in 24 to 48 hours. Eviction steps are definitely a form of tough love, but remember to think of your adult child as a tenant.

13. It’s okay for your adult child to be uncomfortable – we’ve all been uncomfortable and survived. It’s actually a good thing – and necessary for change. “Change” occurs when things feel uncomfortable, out of balance, or unsteady for the adult child. It’s what motivates him to find his equilibrium again, through employment, returning to college, offering his services through odd jobs, or whatever it takes to get the things in life that he wants.

14. Assess where you are right now. Ask yourself these questions:
  • Are you in a place where your boundaries are being crossed and you need to establish some limits?
  • Are you willing to allow your adult child to live in your home, within those limits, as he moves toward being more independent?
  • Do you see your child as wanting to become independent, or as simply being more comfortable allowing you to take care of all the responsibilities?
  • Has the situation become so intolerable – perhaps even explosive – that your main concern is getting your young adult out of your house, as quickly and safely as possible?

15. If you are afraid of violence or other repercussions from your son or daughter because of these steps, it’s helpful to locate your local resources on domestic violence and contact your local court regarding your right to a restraining order. Safety should always comes first.

==> Launching Adult Children With Aspergers and HFA: How To Promote Self-Reliance

Recent Comments & Questions

COMMENTS AND QUESTIONS

Resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book


==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism


~~~~~~~~~~~~~~~~~~~~~

My AS son just turned 26 and is in the undergraduate mechanical engineering program at Portland State University.  He moved back home this January after living five years as a roommate elsewhere while I financially supported him while he went to school. He was sub optimally getting by. His sleeping and eatingwere irregularly. He was smelly and messy. He was staying up all night with his computer games and procrastinating studying.  He has all the usual problems. I brought him back home so I could observe him and begin raising the bar by having expectations. I finally woke up to the fact that my parenting style has been detrimental to his growth. I am committed to change. I saw in a flash that he was manipulating me to shirk responsibility and it was I who taught him this behavior starting when he was young. I realize now I was afraid of his anger.

Do you do consulting? I am looking for help implementing a new structure that addresses his situation. I have started a bit to assert myself and have had several staring down sessions where for the first time I have held my own. And like the parents you describe I have many emotional buttons that get pushed and I can be triggered by my fear.

Let me know if you or who can help me find my parenting path. I am retired (I am 67) and need him to be able to function at a higher level.

~~~~~~~~~~~~~~~~~~~~~~~~~~~

Hi, I need help with dealing with my husband and balancing life with my kids.
I almost feel like it is impossible to live with him and that we get along a lot better living apart as friends. Everything a Asperger wife goes through that is me , how w do I fight being emotionally stressed, and create a life of my own. Why do I feel so weighed down and can’t enjoy life when he is around but supper happy when he is not around. I don’t understand because he literally sits on the games and phone, doesn’t bother me, I can do and go where I want. He is a okay dad beside being attracted to his obsessions. He tells me I just can’t be happy. If I leave he try’s to take everything from me and the kids to force me to come back. He is very immature and lies a lot and he s responses always change depending on what mood he is in. I need help processing all this, I have put up a wall and taught myself not to care about (I’m so it won’t hurt me but now I’m stuck because kids want us to be a family and I do not know how. I feel like secretly contactiNg a old friend of mine just to have conversation here and there with opposite sex and be able to laugh sometimes. I do pray a lot as well. Help please.

~~~~~~~~~~~~~~~~~~~


My son had a very difficult traumatic experience in a small private school in kindergarten. We pulled him out in Feb of his Kindergarten year and started homeschooling.

We got several Dx from several doctors stating profoundly gifted/Quirky.....our last Dx was Twice Exceptional. (Profoundly gifted-with learning differences in dyslexia dysgraphia and executive functions...it might of stated processing delay, I can’t fully recall.

Everything that describes HFA he does...to some degree...I really don’t see much difference between 2e and HFA.

He is now 14 and starting to show signs of depression, isolation, lack of motivation.

We have decided to enroll him in public high school for the fall.

He says he is very nervous but also excited at the possibility of making new friends.

I have been his teacher for the past 9 years. He will need some accommodations in the areas of timed testing (causes anxiety and blank mind) He will also need organizational / executive functioning skill help, ideally very little to no homework would  be nice, as the whole high school day might be stimulating enough and honestly candidly we are more concerned with integrating over academics at this point.

Can you please help me plan out what accommodations I ought to ask for to set him up for success in high school?

~~~~~~~~~~~~~~~~~~~~~~~~~~

So here’s my story. My fiancé and I met September 2018. Everything was so great I knew he has aspbergers but that didn’t bother me. He also has 2 children , didn’t bother me. We got engaged in December and I moved in fully in January 2019. Everything from there is when i have been noticing his asperger traits coming out. He puts me down jokingly it doesn’t bother me anymore.. he has outbreaks of anger when he’s overwhelmed (not toward me unless I hound or confront him) and I haven’t been the best I can be for him. I get mad and yell at him when he can’t understand me, I get depressed emotional and I just don’t know how to react I’m still learning. Beginning of March I caught him txting a girl (some random girl he had a thing with nothin serious) I didn’t get to read or explore I just didn’t want to know anything . After he asked me to come back he explained that his sister knows her and the girl has just been talking about him and kept trying to reach out so he did. He said it didn’t feel right and that he would never do it again and that he knows they will never work out. He was just curious as to why she would keep saying things and wanting to talk to him. so I am absolutely terrified. He’s explained to me he wouldn’t ever cheat and it’s not his intention.He always always shows me affection and we have a sex life he isn’t really distant other than not txting me as much during work (as I say he is comfortable enough he doesn’t need to blow me up anymore ) but me being me I keep constantly bringing this girl up because of what happened I never got a full answer and as I know now he can’t really explain or express anything . He doesn’t know why he did it he says. 😞since then he has unblocked her on fb once but (she has him blocked from messaging her) and he knows I always check to see if it’s unblocked and he stated he did it to piss me off because I started screaming at him so I am trying to stop getting mad at him and stop fighting over stupid things ... I really want to believe this isn’t going to happen again. He hasn’t talked to her or unblocked her he did open up and tell me he was just upset and thought I was done.. I know my best friends husband has aspbergers and she keeps telling me I need to lay off just let it go and let it be or I will push him away. He has never once told me to leave him he is always always affectionate there hasn’t been anything weird or distant other than when we have disagreements. She feels I am pushing him away by not letting the little things go 😞and I want to learn to be his PEACE but I also don’t want him to want someone else. He has not ever once said he didn’t want me he never once has not spent a day with me since September we have gotten through so many obstacles AS A COUPLE and he knows it he always says I love you. I just need some advice on what to do. What to say what not to say and to see how to go about going forward.

~~~~~~~~~~~~~~~~~~~

Our 13 year old son has just been diagnosed as an Asperger’s teen after having a psychological exam (WISC-V). His school recommended he get tested after several behavioral issues at school. The examined revealed he is “twice exceptional.” We always knew our son was quite intelligent, but had not noticed anything unusual in his earlier years. It was not until middle-school his behavioral issues surfaced.

I am looking for suggestions on how we tell our son about his condition. The psychologist apparently did not explain anything to him. I asked my son if the psychologist explained or told him anything about Asperger’s, to which he replied “no.”

~~~~~~~~~~~~~~~~~~~~~

Hi Mr. Hutton,

I'm intrigued and interested in your work and ebook, as we have a 19 year old still at home that we've been trying to motivate to move forward in life.

Our challenge might be a little different though, and so I'm checking in to see if your methods are the right fit.

We've been facing some pretty intense challenges around his being targeted by an online cult, and the experts on this tell us that as long as he is still with us and hasn't gone to
be with the cult, we still have a chance to undo the brainwashing they've done to him.

It has been a terrifying two years, and we're treading very carefully.  We've helped him get a car so that he will begin looking for a job, and he has verrrry slowly applied to two at this point.  He has one interview with a crime scene clean up company...which in and of itself is something we cannot imagine him doing, but he's dead set on it.

So, while we want to encourage the life skills and the independence, we don't want to alienate him so that he moves towards this dangerous cult and leaves to be more enmeshed with them.

My question to you is, have you encountered anything like this before, and also, do you think your ebook can still help us without alienating him and potentially risking him getting more deeply enmeshed in this potentially life-threatening group?

~~~~~~~~~~~~~~~~~~~~

My HFA child is seven. For the past few years, we have had fun encouraging his obsessions or special interest due to the positive nature and results it brings. When he wanted to know everything in the world about dinosaurs, it was fun to read tons of books from the library and watch him impress people with his knowledge of different species.
Recently, however, he has started to obsess over violence. He is constantly asking me questions about movies he isn't allowed to watch, like Deadpool, Venom, or Chucky, and drawing pictures of villains. At first, I would answer him by saying things like, "Deadpool curses and we don't want you hearing those words." or "Chucky hurts people and seeing that doesn't make me feel good." But I notice he is asking me how Chucky hurts people or if Deadpool shoots people. He wants specific details. I don't want to lie and I want to help him face these fears, but I am reluctant to answer many of these questions.
I know he has heard of these sorts of characters at school and I suspect he is obsessing because he is anxious about their actions and/or wants to be able to talk to his peers about them when they bring it up as a way of socializing. He has never seen Deadpool or Venom or Chucky, and yet I notice him asking kids he has never met in the grocery store or other social situations if they have seen it. When they answer yes, he starts drilling them to find out all the details of the movie. If they answer no, he immediately tells them that Deadpool kills people or venom eats people. He doesn't see that this scares them or why it's bad to get a scared response.
As I said, in the past, we have dealt with his special interest by finding a way to use it to socialize or make it positive. How can I do that here? How can I relieve his anxiety and answer his questions without making him seem violent to others or encouraging him to focus on violence?
I don't want to give him the gory details of our violent culture but I don't want to leave him in the dark to deal on his own. How do I talk to him about this?
Your website and videos have been so helpful in the past and I have scoured the internet looking for the answers but this time I can't find it. Please help me by answer this for myself and other parents in the same situation.

~~~~~~~~~~~~~~~~~~~~

Hello Mark,

Our son graduated high school last spring with an over all GPA of 3.7.  He was MVP of the year in soccer his junior year. From anyone looking in from the outside, no one would ever know he had once been diagnosed with ASD. He was ‘recovered’ with intense biomedical intervention by age 8. But still had problems making friends. He is the youngest of 4 sons.  He got very sick last year and was unable to start college. We got that figured out finally, but as he started getting well, this spring, getting ready to sign up for college, he suddenly became super depressed, stopped taking the supplements that were helping him, etc I think you get the picture. This is not the first time that change caused him to hit a brick wall, but we forced him to do it and he got through it, but it was aweful. His first major brick wall was going to a new school in 9th grade (his brothers were there). Then me forcing him to go to soccer camp for a week the summer before his junior year because I felt he needed that experience away in that type of situation. Our other sons had all done 4 h camps, traveled with other various groups like kids and teenagers do, but Zack had always flat our refused to do anything like that, and I felt that in the end, it would help him. We thought he was over that, but now seeing what we are, I finally have understood that he is sabotaging his ability to get well because his once again, terrified of the change of going to college where he does not know anyone and it is the ‘new’ situation.  He does not live with us, we have a house near campus we bought that our others sons have all lived in. 2 still live there, but one just graduated college and will be out soon. The other son still there will probably be out by the end of summer.  Zack wants to come home, we don’t live that far, 10 miles. But part of what made him sick is a mold problem we have in our home and we don’t want him back in here in the mold and  as of right now, we don’t have the money to remediate, we are hoping to by the fall, have the money that is. But we still don’t want him to live with us, we want him to be in college, getting on with his life.  We need someone to help him find a way to make this transition. I don’t know that it is us that can.

I know you don’t know us, or our son, but we are at a loss and broke.  Our son has an appointment with a counselor tomorrow, but now I am not so sure I have pick the right counselor for him to see. I think the most important part as of this moment is for our son to even admit that it is his fear of the ‘new’ that is the problem, not this new imagined thing he has that has stopped him in his tracks and he has said he can’t go forward in life.

Any advice you can give us at this point is greatly appreciated.

~~~~~~~~~~~~~~~~~~

Mark,

I’ve have learned a lot from the sharing of your insights and clips of seminars. 

My husband, Scott, and I have been married 21 years, and all the pieces came together recently that I believe he is HFA.  He joked about taking a test at the end of last year that scored him on the spectrum.  After a series of signs, I finally began investing if he may be.  When I finally did, I couldn’t believe ther the wife’s experiences I read could have easily been written by me.  Best way to explain it is “grief-relief.”

I shared my belief about him possibly having HFA, and gratefully he was receptive and agreed.  It has been a bittersweet journey and am proud to say we’ve survived prior to putting a name on it. 

We met when we were both around 26 and married around 30.  God blessed us with an amazing daughter...now 14...that reminds me of why we are together and will continue to be. 

What are the next steps to beginning counseling?   You reference $49.00 to be paid at some point.  Is this the fee per 30 minute session?   Just want to know so can budget.

~~~~~~~~~~~~~~~~~~~~~~~~~~

Dear Mark,
I am a psychotherapist and I specialise in NT/Aspergers relationships, breakdowns and high conflict divorce as part of my work.
I have found your work very useful over the years when assisting clients. I would like to professionally chat to you at some point to share experiences of dealing with NT spouses and the fall out after divorce and separation on both parties. Your insight as to the empathy we have to have with aspergers adults and NT adults alike is so true and this compassionate stance is one that I also adopt. It is healing for all.
Apart from the professional growth that we both might benefit from, it would be useful to have a link in America and Australia where clients bight be referred to. Apart from getting help from someone closer to home, the international time barrier is an issue for me as I work in the UK.
I would also like very much to site, in full, a reference to an article that you have written, about the intricacies of parenting with an aspergers adult found on the Neurotypical site.
I look forward to hearing from you.
Kind regards,
Sarah Morris

~~~~~~~~~~~~~~~~~~

Mr. Hutten,
My son is 13 and  he was diagnosed with Asperger at age 6 by specialists.  His school however re-evaluated him and admitted him to to their  special ed as “emotionally disturbed”. For 6 years I believed that he was just that. Last year though, Sam, my son, showed me what he had just researched online, and read aloud all Asperger symptoms to me. Then he said “check” after almost every single one he had read. From then on, it  all started making sense. Now, the school wants him to go to a Neuro-Psychologist for another evaluation, because they can not correct their own diagnosis from  7 years ago. I am really disappointed because, based on what my son tells me, they are just clueless as to how to help him.
They make him feel like he was under an ongoing investigation, keep track of  his meltdowns and “alarming” behaviors. Blow things out of proportion to the point that my son feels like a “suspect” at the  school. They often  call him out of a  class in front of other kids to go to the Counseling.  In counseling he doesn’t feel comfortable because all they do is pick on his wrong doing or disturbing dreams or the violent drawings he makes. He started drawing pictures on his assignments papers that teachers found disturbing. Now they are calling on another PPT meeting. They have those goals and plans and schedules that don’t help. Sam feels isolated  and misunderstood. All he  wants is to avoid the  noise and chaos and be understood.
His father refuses to have him go thru another of those evaluations, he just wants the kid to be left alone, and give him room to just grow and mature. He doesn’t want to believe that his son is autistic. I just want to help my son but don’t know how and where to go for advise. I am surprised that I can’t find anyone who can relate to our situation and help. That’s why when i found your website it was like a god sent. I hope you will get this email and be able to let me know what do you think I should do to help Sam.

~~~~~~~~~~~~~~~

I'm mother of four. The eldest is 21, Asperger's, adhd, dyspraxia and tourettes -some verbal, some motor tics. Jack is "complex" he's come out as bisexual and is now dressing as a male with fake boobs and girlie clothes. Shaving plucking preening is his daily task. Now we are pretty open minded parents bit our Jack is still very vunerable but doesn't seem to understand how as he is very nieve. How much do we allow him to preen and prime himself for his "night out". And at what point do we intervene? It's a confusing time for us. As although Jack is 21, he's much younger when it comes to the real world. Is this something u could help us with??

~~~~~~~~~~~~~~~~

I’ve been in the FB group for women with ASD men for a few months. I feel like I have a very solid understanding of ASD, my husband, and my situation. However, this evening I decided it might be worthwhile to get a “second opinion” (my opinion being the first. There’s a lot that makes sense to include, and a lot that’s relevant, but I don’t want to be up all night, and I assume you want to have a life, so I’ll try to distill it to what’s really key, then we can communicate further as needed.

In a nutshell, the question to consider is whether my husband can be persuaded to re-engage with me (and ideally a therapist) regarding the relationship.

I’ll start with the basic data:

My husband (Pushkar): 43, born and raised in India, moved to Germany, then the US. Recently naturalized. Software engineer turned MBA. Undiagnosed ASD. He’s very good at masking in most situations, to the point where even he isn’t aware that he’s doing it. To me, it’s absolutely undeniable.

Me (Jennifer): 40, born and raised in Dallas, went east for college, west for grad school, then parked it in California for many years working as an environmental geologist. Previously married, but no kids with my first husband. Potentially relevant is that I have a hx of treatment-resistant MDD, and I have chronic migraines. My last bout with MDD occurred in 2017, and was largely triggered by long-term stress of being the sole caretaker of the girls, the older of whom is autistic. Pushkar is largely checked out.

Child 1 (Rita): 7, ASD, VERY VERY ADHD, GAD, starting 2nd grade in a few weeks. Mainstreamed in public school, very bright, but has significant self-care deficits (not toilet trained, can’t eat — tube fed), and almost nil executive function. Restrictive/repetitive behavior and speech is pronounced, particularly perseverative speech. Of course, social skills are lacking. Meds are on board but nowhere near adequate. It’s a work in progress.

Child 2 (Leela): 4.5, NT, significant anxiety but no diagnosis, will be starting preK in a few weeks.

Pushkar and I met in late 2010, started dating 1/1/2011, got married 11/10/11, Rita was born 3/20/12, and Leela was born 10/24/14. You could say the relationship moved very quickly.

There was a time when I told Pushkar I was moving out with the girls. He said the one thing that could change my mind: he wanted to try counseling. He had previously declared he would not go to a therapist under any circumstances. I had asked him to go to therapy only weeks before, and he declined. When he realized he was losing his family, he changed his tune.

Therapy wasn’t that helpful. However, a month or two in, Pushkar finally started to get his head around Rita’s ASD diagnosis (one year later). He asked me how autism is defined, so I showed him the DSM-5 criteria for ASD. He read them, looked up, and said, “this is me.” No kidding. That’s what saved the marriage. From that point onward, we could explicitly address our different neurologies and work on issues in those terms. Since our daughter’s diagnosis, I’ve been doing my best to educate myself on all things autism, relying heavily on perspective taking (ironic, I know). I’ve read quite a few books by people with ASD to help me understand the experience. I also spent time working with and being trained by therapists and reading books about teaching relevant skills. I was able to apply the lessons I learned for Rita to Pushkar.

After making some phone calls, I found that having him formally evaluated wasn’t worthwhile. However, he did start working on social with Michelle Garcia-Winner.

I hit my rough patch. It was a tough time. Couples therapy and social therapy for Pushkar stopped. We moved from California to Dallas, where my family is. We didn’t have a support network in CA. Eventually I got back to a good place mentally, and stayed there.

At one point I asked Pushkar to return to counseling together, and to arrange to continue working with Michelle. I don’t recall what exactly prompted me to make that request.

Well, counseling wasn’t helpful, and after one meeting with Michelle he decided he didn’t see the point in social. He told me that he was not autistic after all. He had been mistaken. There are no problems in the relationship. The only problems exist in my perception. He would do no further work on the relationship, and he would not do anything more with therapists.

To me, that was the end of the relationship. He told me he wouldn’t put any further effort into it. If one person refuses to participate in a relationship, it isn’t a relationship. I realize he doesn’t understand it that way.

As it stands, I’m stuck in a holding pattern. I have a roommate, not a husband. I can’t leave and take care of Rita as she needs. Mostly, it’s tolerable, but it’s just trying to coexist, mostly. He isn’t a bad person, just uninvolved.

I’m quite certain that he meant it when he said no more effort, not autistic, no more therapy. One of my first efforts after that was to try to be clear that autistic means different, but not lesser or flawed. If an autistic person is lesser than a NT person, Rita would be lesser than Leela. That isn’t the case. Both kids are equally wonderful. They’re just each wonderful in her own way. It didn’t help.

I’ve basically given up at this point. At the same time, I still live with him, and it’s the only semblance of a relationship I can have, with our being married. Maybe it would be worth trying if I could convince him to come to the table. I don’t see a way to do that.

Thoughts?

~~~~~~~~~~~~~~~~~~~~~~~~

Good Evening Mr.Hutten,
My name is Angela. I saw your website and wanted to contact you.  I am a mom to two boys.  My one son is a 17 year old boy starting college in three weeks.  We have never had difficulty with him.  My younger son, however, has been difficult since he was two years old.  He is 14 years old, and has been very disrespectful to us as well some teachers at school.. He has been seeing a counselor since he was 10.   He is a very social young man with many friends.  We have had an ongoing (2 year) argument over the issue of a curfew.  We have a set curfew for him, during the school year week days he must be home by 9, and 10 on the weekends.  In the summer, we gave him a curfew of 10 on weekdays and 11:30 on weekends.  This however, is not good enough.  He has now begun to sneak out of the house.  He has been caught twice; once he was brought home by the police at 3:30 (he a his friends were riding their bikes on a main road), the other time he was caught coming in at 3.  We have grounded him, taken away his phone and video games.  He was complaint the first time he got caught and we thought this would not be an ongoing issue.  We were, of course, wrong.  I know it sounds like a cliché but we are at our wits end!!  We just don't know what to do.  We have resulted to adding door alarms and motion detectors in our home to keep him home.  Any advice would be much appreciated.

~~~~~~~~~~~~~~~~~~

Dear Mr. Hutten:

I'm a 71 year old man who was diagnosed with Aspergers just 5 years ago.  After 15 years of counseling (with many psychologist/therapists) and many drugs for social anxiety, stress, depression, etc... I finally know why I am the way I am and why the therapies and drugs didn't work.

This condition explains why I've lost multiple jobs and have been rejected by so many people (including "so called" friends)  My wife of 31 years finally gave up on me and divorced me in 2007 after our children grew up and left the house.  My 3 adult children abandoned me as well.

After being able to keep my last job for 11 years I was "retired" last year.  Although I hated the social aspects of the job (I was in marketing!!!), I was able to keep going emotionally by staying busy and having a good income.  Now I can't get a new job and just sit around getting more depressed with each day.  Suicide is looking like more of a solution every day.

My two younger children finally contacted me several months ago and wanted a "positive" re-connection.  I wanted them to know about my diagnosis and how Aspergers made me a lousy husband and father.  I sent many of your (and other therapists you tube videos) to them hoping they would help understand and accept me as I am.  It hasn't worked as I hoped.  I doubt that they even viewed them or don't understand that Aspergers applies to me. They still avoid me.

Right now I'm trying to find a local therapist who understands Aspergers in adults and can help me strongly get a real relationship with my children.  Most of the ones I've contacted only deal with children and very young adults.

~~~~~~~~~~~~~~~~~

My granddaughter "C15" came to live with me when her mother's boyfriend became physically abusive a year ago. CPS opened a case, but determined that the family could handle it. No, we can't. C15 has had counseling and professional help, but this has only made her more like an OCC kid. She seems stuck in her pain.Yesterday violent language became destructive acts, things were broken, she injured her hand striking the door. We called the cops, and I took her to the ER. How do we defuse this? It seems we may need to file something like a PIN, and her mother wants her to be placed in a group home. C15 has expanded her opposition to everyone in our "toxic" family, and became violent when I told her she could not live with her new boyfriend and his roommates. She wants us to just not report her as runaway, because the legalities and parental responsibilities are only a problem for us. She can handle this herself. After all, we don't really want her a t home a nyway.

````````````````````````````````````

My son is 16, a high school junior, super bright, loved by teachers and all adults, and liked by his peers though he stopped really socializing in middle school (except a little through Minecraft and Pokemon Go). Though he is not athletic and is 99% focused on computers (developing games more than playing them), he is a Boy Scout and looks forward to a weeklong summer camp every year. That, and campouts during the year, is really his only outdoor activity, and we are so grateful for it. He had a very difficult time in middle school, driven mostly by his sensitivity to the structure and his own restrictions about how things should be, for example insisting that he had to get 100% on everything or be 2 minutes early for class – anything else was a failure. He developed a lot of OCD traits in an effort to be able to control something. It was one of those situations where he held it all together in class and was highly regarded, but lost it at home. It eventually led to a psychological evaluation and placement in a new alternative high school program that offers high level academics in a less overwhelming setting. He takes medication for anxiety and depression which I would love to get him off of.

He has been diagnosed with Aspergers by some professionals, though he is not a clear case (is anyone?). His main traits are discomfort with his physical self, rigid thinking, and hyperfocus on his interest. He is not especially socially awkward, though he is shy. He is empathetic, understands social cues for the most part, behaves appropriately in social situations, makes eye contact, etc. In our initial psychological evaluation the Dr said he did not have Aspergers but he was on a superior intelligence scale that created some behaviors that mimicked Aspergers.  We haven’t shared this diagnosis with him explicitly because we don’t want him to grab on to a label, and many of the traits do not describe him.

Anyway, the issue is that he is brilliant but has no desire to go to college, work, or plan for an independent future. He is gifted at computer programming and game development, as well as other skills like teaching and analysis, but he does not see any reason he should ever have a job. He believes wholeheartedly that his current “hobby” (my word, not his) developing games for a small online community that shares games made using pieces of other trademarked games (which therefore cannot be sold) is his sole purpose in life.  We have talked ad nauseum about many educational opportunities beyond a 4-year college and have no issues with him pursuing a degree online, commuting to a local private or community college, going to a trade school etc. We also emphasize that opportunities abound for jobs beyond a traditional 9 to 5 desk job. We talk about the benefits of independence and supporting himself, etc. He has no desire to leave our house and has been resistant of any moves towards independence including driving, puberty/relationships, or showing any competence through chores.

I’m sure we have indulged him too much, not requiring much of him beyond going to school, but he’s 16 so it’s hard to push him to work etc . We have seen some changes come over time, very slow maturing, but it does happen. Punishments are difficult – he doesn’t have much he wants/needs and if we cut out electronics, it turns into a pointless war, and frankly, that is where he finds his talents, identity, and some online friends. We just try to provide some alternate experiences but there isn’t much he likes to do. When we talk about supporting himself someday, he goes right to the worst case worried that we will throw him out to a point that the conversation becomes fruitless.  We lean on outside forces for encouragement as much as possible as he is more likely to act on another’s request than ours, but his response to others is starting to dwindle too. 

While a lot sounds like an average spoiled entitled teen, I really don’t believe that is his intent. With his rigid thinking, he just sees something as he sees it and cannot consider an alternative. Our discussions are so frustrating because they don’t move him at all, and even when he is anxious about something and is able to get through a situation without that anxiety coming to fruition, he doesn’t learn from it, just holds the same anxious thoughts. His therapist is having difficulty seeing much significant change as well.

Do you have any thoughts on how to spur some motivation in him, or help him at least envision a future? The worst part is he really doesn’t see much of a purpose in life, not in a depressed way, but just blind to it. Part of me thinks he’s just behind emotionally and will eventually mature into it, but the other part does not want to be a hands-on mom forever. (He has a younger sister that is influenced by this as well).

~~~~~~~~~~~~~~~~~~~

we are experiencing a family crisis situation with my 15 year old son, Ben, who was asked to leave our home and stay with his grandparents for a few nights after being verbally abusive - but refuses to come back home after 10 days. I'm sorry if you have covered this situation in your materials, but I did a search on your site and was unable to find advice about teens that won't return home. It makes it very difficult to implement your strategies
A little background:
We had just received feedback on a psychological assessment done on Ben, and he had not been diagnosed with ODD, but rather GAD (Generalized Anxiety Disorder) which presents itself with irritability and acting out behaviours at home. But your descriptions seemed to fit Ben perfectly, so I decided to purchase your resource in the hopes it can change our family dynamic.
I am the stricter parent who sets lots of limits (without the poker face), and my husband is more of a conflict avoider - but we try to work together within a family contract  to set guidelines for Ben. Ben resents me and hate restrictions, and has always been more bonded to my husband. To be fair, I probably am too critical.
In the last month, Ben has destroyed some property (a lock box, smashed with hammer) and last week was very verbally abusive to me when I suggested he take a break from his screens (after 5 hours in a row) and come and eat and tidy up his mess. This type of behaviour had been building over time, and I was fed up with his emotional explosions. I asked Ben to leave the house and stay with his grandparents (they live next door and he gets along with them well) for a few nights. Typically in the past, Ben will take a while and then apologize and we can move on. But this is the first time that I have asked him to leave the house, and he initially refused as he didn't want me to 'win'. But now Ben has been staying at his grandparents, mostly just sleeping overnight, for 10 days, and refuses to talk to me or come home to live with us. He will come home and visit with my husband during the day (my husband is a farmer) when I am at work, and has been enjoying a hassle free time at his grandparents, and he also works part time - but he is stubbornly refusing to come home to live. My husband gives him rides to and from work, and he has been eating here during the day and picking up more clothes when I'm gone to work.
Do you have any suggestions on how to handle this situation? I feel awful that my family is fractured, and would really like to try your suggestions, but I'm not sure whether we should be pressuring Ben to come home so we can try to work on our family relationships. 

~~~~~~~~~~~~~~~~~~~~~~~

Hello,
By Grace, I found your video on Youtube.  My name is Naomi and I suspect my partner is on the Autism spectrum, possibly affected mildly by Asperger's.  Since being together there has always been something not quite right, though I cannot put my finger on what exactly the issue is. We have been through many counselors, but not much has changed pertaining to our ongoing issues. He seems to not be able to understand my needs and may be unable to meet them. He is very easily overwhelmed, and he continually tells me “you are stressing me out”.  I cannot talk to him about important or significant things. It seems to rarely be a good time on his part for us to talk, and he seems to bail out of the conservation or become enraged. One previous counselor stated that my partner has a “personality disorder” and recommended Cognitive Behavioral Therapy.  However, my husband does not see an issue with himself and did not follow through with Cognitive Behavioral Therapy, he agreed at first, then declined after we left the counselor’s office.  He tells me “I’m different” , “I’m sensitive” , “ don’t try to change me”.  I have been emotionally scared and emotionally separated from my partner for years. We are now separated, yet we talk to each other mostly every day. If our issues could become better, I would rather stay with him than to start over with someone else.  We have been in each other’s lives for close to 16 years.  Throughout all this time, I have been praying and hoping that we can communicate better and that our relationship would be better. I have been the one to seek help through all the different counselors but now, I am financially and emotionally drained. I am beginning to let go. I don’t really want to let go, but I need to have a safe and emotionally stable relationship - a good environment for myself and  future children. I would have liked to have already started a family instead of holding out waiting for so many years  for things to get better with us.  Now after close to 16 years, I don’t want to wait in vain any longer. I am thinking with my head now instead of my emotions.  I may be running out of time for things to be better between us. However, seeing your video gave me some hope and interest to reach out to you.  Can you please tell me about how your sessions work, cost etc…

~~~~~~~~~~~~~~~~~~~~~~
Hi Mark,
I am an NT wife married to a man who I just realized is on the spectrum...I was about to leave him and move out. I had consulted with an attorney about divorce. Yesterday I  bought your book (which I have not even read yet!) and I listened to your audios..and I feel like my eyes have been opened! I thought my husband was ignoring me on purpose and just being a jerk on purpose...and now I see that he truly is mind blind and is not doing this to hurt me! I had him take a quiz on line (Online Alexithymia test) about mind blindness and was blown away by his answers to the questions and the results.  I told him last night that I am not going to move out after all, and want to stay and work on my resentment and try to be more understanding.

I have a question...your page said that parts 1-3 are excerpts of a 4 hour presentation.  Is the rest of the presentation available also?  I have learned so much from parts 1-3 and want to learn even more.

Thank you so much for what you do!

~~~~~~~~~~~~~~~~~~

I have a question about my 16 hear old son. I'm at the end of the 2nd week of assignments. I know I'm supposed to wait till I've read the whole book but I need to know how to handle a certain situation.
Last night I gave my son a whole list of possible chores and told him to choose 5 for the week. (He doesn't presently do any) He refused and we had a huge fight. I kept very calm and didn't rise to his provocations.
He threatened to move in with one of his married sisters and I said that's fine, but no one's kicking you out. It's your choice.
In the end, he backed off of moving out.
My question is this, he has a couple thousand dollars in cash in my safe. He insisted that I take it out and give it to him, because the consequence of not doing any chores is that he won't get his allowance anymore. So he wants that savings money for his expenses. (I didn't take it out, I said I would do it today)
My husband thinks it's a huge mistake to give it to him. He feels that if my son ever gets mad enough to break something, we'll have his money to cover the cost. In the other hand, WWII is likely to break out if I don't give him his money that he worked for.
What should I do?

~~~~~~~~~~~~~~~~~~



Hi Mark, I am a member of your team, who got waylaid and disconnected from you for a while. I used your "out-of-control-teen" program at the time. My son is now a good and talented young man, who is writing and recording his own music. That said, he is having difficulty "launching". It seems to me he lacks confidence. I do have problems not worrying about his language processing difficulties, and learning disabilities. We are older retired parents, and need some coaching. I also believe my son needs a mentor in his music and career goals. Thanks for all you do.

~~~~~~~~~~~~~~~~~~~~


Hi Mark,

I have recently been told by a PSYD that I am on the autism spectrum.  I am waiting for her report and, of course, doing a deep dive into Aspergers/HFA.  What I have learned so far deeply resonates with my life experience. 

I'm 55 and have been married for almost 32 years.  I have damaged my marraige severely and want to save it.  My wife is willing to do Skype counseling with you and me if possible.  Now that I understand what I have I can deal with it as a whole and also get some understanding from my spouse.

I have a nephew with autism and possibly a second nephew.  My siblings and I suspect my father had Asberger's.  I have similar characteristics to him.  I am even wondering if my mother had it, too.

People have been upset with or vindictive to me in work situations and I don't know why because I purposely try not to offend people.  The latest blow to my being was being laid off a week after my award winning plant-based drinkable yogurts were debutted.  It send me into a deep depression which I am slowly climbing out of.

Please let me know if you can help our marraige.

`````````````````````


Hello Mark,

I am the wife of an undiagnosed HFA husband.
The key is undiagnosed. I don't even know how to bring it up, as the three times I've dared say anything related to Aspergers, it has been a huge fight. He gets very defensive and then starts saying hurtful things to me.

I am at my wits end and our marriage is hanging by a thread. He finally agreed to counseling, which is great. I'm having a very challenging time finding a counselor who is well-versed with ASD/HFA because the other four counselors' (three of which I saw solo) advice has made things worse. I really need someone who can give appropriate advice, as I am trying to save this marriage (just three years). And also someone who can find his motivation for change, as he will agree to things in theory but not apply it (we had counseling prior to getting married and he did go but really didn’t apply anything).

We are not at the same location for the time being. It's not relationship-based; just good timing for me to help out family and such.

````````````````````````

Hi Mark,
My son and I got into it about him needing to wash his dirty dishes before I took him to the mall yesterday. He refused. I stayed calm and poker faced and let him vent, but I stood my ground on the consequence, which was not being able to go shopping.
I went out for a few hours and when I came back I realized he was gone. I called around and found he had taken a taxi to his married sister. He slept there last night and went to school from there. I texted him that I love him and that I'm glad he has a safe place to cool off, but that he nerds to let me know where he's going. No answer.
He went back to her from school tonight. My daughter thinks I should go over and talk to him, but I feel it's just going to give him the impression that he's in control again. I asked her to let him know that, although he's welcome to visit now and again, he really needs to go home and work things out.
What should I do? Was I right or wrong in how I handled it? What's my next step?


~~~~~~~~~~~~~~~~~~~



Dear Mark,

My sister, who is nurse, and passed along a link to your website in hopes that I may be able to read some of your E-books; she feels that my 19-year-old daughter may possibly be in the ASD/HFA spectrum.

Are you still selling the E-Books? Since there aren't dates on your website, I wasn't certain, so I wanted to reach out to make sure before I give out any credit card number to anyone or company.

Would your E-Book, Parenting Children & Teens with HFA help me to identify if my 19 yr old daughter is in the HFA category? Diagnosed with ADHD/Inattentive/ Mild Dyslexia (from comprehension and phonemic perspective),and Anxiety, she's always had difficulties in school since 3rd grade. Reading Comprehension, Remembering and Testing was always very hard for her, as was Social Cues/ Interaction with children her own age. She was bullied a lot (unbeknownst to me for a long time--so much for the kindness in Catholic grade school!) which she confided to me years later and is likely why her self esteem is so low. She tends to withdraw rather than deal with what she may feel is a chance of rejection as she is super sensitive. ( I was told this may be a "Rejection Senstivity Dysphoria" by one psychologist; however, it seems to be a common trait for both ADHD and ASD kids?)

What I didn't realize until perusing your website (a lightbulb went off in my mind) was how her much her sensory functions were affected and how this is also common in those teens with ASD...lights are too bright, sounds are too loud, doesn't like showers they bother her, etc ...I'm wondering if her ADHD really is ADHD, or if perhaps it's Aspergers or a combo of both? Does one need to be tested per say to get this diagnosis? (The Aspie is all new to me but she has several traits that overlap.) 

Along those same lines, she doesn't seem to have many interests and does not connect with the few close friends she has. She doesn't act depressed as her spirits are actually decent (she's on antidepressants as well as Vyvanse for the ADHD), but just doesn't seem to care or is apathetic if she interacts with anyone at all (including my husband and I.) She seems to be using an "avoidance" as a mechanism for everyone and everything as she doesn't want to hear about her issues (we annoy her it seems) and I'm wondering if this too, is common with ASD, and if so, is this discussed in your book? Or in your Teaching Social Skills/Emotional Management Ebook?

What complicates things is that she has dealt with a chronic medical condition (IBS-C & chronic anemia) but was able to function with that and school in the past. She did graduate from high school. But this year, sophomore year at our local community college, she just dropped out because she said she just "can't do school" it anymore, is exhausted/tired all the time (even with the iron meds)and was very very anxious. My husband and I will be bringing her to a few new doctors to see if we can better assess what's really going on with her, from a physical and mental health perspective. However, I can't help but wonder if the college aversion and /or avoidance is common on the ASD spectrum? While her medical condition is a factor, is it possible that this avoidance/aversion to school and people is also due to ASD/HFA? Is this commonplace?

``````````````````````````````

Hello, I am stuck here and am having trouble with process this. My husband has a hard time accepting constructive Critism. He will make excuses and blame anyone and everyone instead of taking responsibility. I could record him or even show photographic proof of a habit he has that is unproductive and hurting his family or something I’d like and have proof he will still find a reason to blame anyone but himself. Is this a aspergers struggle or is he using manipualtion?

``````````````````````````

I found your information regarding Neurodiverse couples online. My husband is 50 years old and Was informally diagnosed with HFA in July of this year.  He readily accepts the diagnosis and was somewhat relieved to know that his behaviors/experiences has a name but we are having issues as a couple and he is t really doing anything to learn more about the problem.  Do you do online counseling or is it more of a coaching strategy? We need practical help as HFA has wreaked havoc on our relationship as well as therapeutic intervention as I believe I am resisting the work it takes to make this relationship succeed (eg I am falling into old communication patterns).
Any direction is appreciated.

``````````````````````
Dear Mr. Hutten, I have bought several of your books and read your articles on the computer. In fact I have been following you for years and appreciate your expertise. My daughter and her husband adopted two babies from Kazhastan who are now 13 and 16. The 16 year old is doing fine and the 13 year old has aspergers. My daughter and her husband are both teachers and keep up the best they can with any new information that would help their 13 year old son who is the love or their life ( along with his brother) and also greatly loved by his grandparents.

I am thinking they may need some help from you in the near future and I wonder if you would mind telling me how much your Skype sessions cost. I'm thinking they would need probably at least 6. I may be able to help with the cost of the sessions if I set money aside and made it available to them.  Thanks for any information you can provide.

`````````````````````````````````

I have been in a relationship with an aspie man for almost three years now. He knows he’s different but not that he has aspergers.

I have read almost 30 books on this and watched/listened to countless videos, podcasts etc and even had a few visits to a specialist autistic psych. This was all in order to learn about the condition and how to better our relationship and communications.

Over time he has made so many conditional rules about our relationship I now wonder if he even loves me or wants to be with me at all.

I am not allowed to see him Monday to Thursday because these are ‘work days’. We used to see each other on weekends but about 18 mths ago he said he needed to get chores done and couldn’t see me on Friday nights or Saturday. Then in feb this year, his 16 year old daughter and her 21 year old boyfriend moved in with him full time and when this happened he said he wanted them to settle in so I couldn’t come to the house.

I have seen him about 6-8 times in 12 mths.  He also doesn’t like talking on the phone and hardly texts me (his preferred method of communicating) compared to what he used to.

I asked him about a month ago what I was to him and he said - well, someone I want to be with for the rest of my life. But, his actions don’t match those words at all. I am a very independent woman and definitely not needy but I do need some connection.

I seem to be someone he contacts when he needs advice or help and that’s about it. His kids ask why I don’t come to the house anymore.

I realise he has a lot of priorities but I never seem to be one of those even for some of the time. I feel like I am on a different planet to him and he is not letting me into his world.

We have never talked about getting married. We don’t live together. We haven’t even spent a weekend away because he always has an excuse.

I love him dearly but I feel like I am just having a relationship with myself and I am completely invisible to him.

Is there anything you could recommend I do to help us communicate and for him to actually realise I am alive and a person who occasionally needs a chat and a hug?

Would appreciate any guideance you may have. I have read your book Living with and aspergers partner and watched your YouTube videos.

When ASD Runs In The Family

Autism spectrum disorder (ASD) is often an invisible disorder. Because it is so subtle, it can go undetected. It is very likely that there many adults on the autism spectrum living and working in your community who are un-diagnosed.

It is hypothesized that certain types of individuals with “ASD-like” traits (e.g., smart, but antisocial) attract one another, leading to such couples having kids with the same traits – but magnified due to an overload of genes. It is estimated that the disorder correlates with a genetic component more apparent than other disorders.

About 33% of fathers of kids with ASD show signs of the disorder themselves – and there appear to be maternal connections as well. This information increases the likelihood that it may be present in your own family. Think about your youngster's lineage. Are there - or were there - brilliant and creative, but blatantly eccentric, family members?

Depending on your personality and the strength of your coping skills, this may be either a relieving or a disturbing revelation to ponder. If the diagnosis is received with a negative outlook, you may slip into a period of guilt or self-condemnation. You may even find yourself unjustly bearing the brunt of blame induced by your partner.

Moms and dads of kids on the autism spectrum do tend to reflect more stress tied to anxiety and depression when compared with moms and dads of neurotypical (i.e., non-autistic) kids. But never forget that the disorder is a naturally occurring phenomenon – and it is no one's fault. So, avoid believing pessimistic, self-defeating “autism stereotypes” in favor of focusing on the positives associated with this challenge.

One father reported that learning of his son’s diagnosis was “liberating,” because it wasn't until then that he realized he, too, had the disorder. He defined the experience as “reaching the end of a race to be normal.” At long last, he came to a point of acceptance, and was now in a position to voice his “quirks” using the framework of ASD. This father’s journey was challenging, but fortunately, his wife was very supportive throughout. However, not all families deal the experience of uncovering the disorder in themselves as well as this.

There are married couples that simply don’t do well under real (or perceived) pressures of raising a youngster with a different way of being. Families of kids on the spectrum are no exception. Educate and inform yourself - and your husband or wife - early on. Connecting with other moms and dads in similar situations can help cast out destructive, stigmatizing myths and stereotypes.

If your child has been diagnosed with ASD, and you suspect that you or your partner also has the disorder, consider the following suggestions:
  1. Arm yourself with knowledge and gather as much information as you can from the Internet or the resources.
  2. Avoid the “blame game” (e.g., “It's your fault our son is this way.”).
  3. Avoid the “guilt game” (e.g., “It must be my fault.”).
  4. Because you are both still assimilating your youngster's experience, allow yourself and your partner time to process this new twist on the situation.
  5. Broach the subject with your partner by asking leading questions that will provide opportunity for reflection (e.g., “Do you think our son gets his love of history from your side of the family or mine?”).
  6. Discuss marriage counseling or other professional supports with your partner.
  7. Offer to research the disorder with your partner or to provide your partner with whatever literature you've already gathered.
  8. The conversations you have about it in the family should build slowly and incrementally.

Understanding ASD as a probability for you and your partner will be a learning experience for the both of you. It can create marital stress and chaos, or it can be an opportunity to strengthen and enhance your relationship. It’s your choice!

As one parent stated, "How interesting. My husband and I have agreed that we share a preponderance of traits and that is probably what attracted us to each other. Thankfully, we view our son's difference as a positive. I love that he is only seven and has taught me about the history of World War II. He is definitely a challenge, but we love him for who he is and not is spite of it."  
 
 
 
 

Kids on the Autism Spectrum: Restricted & Repetitive Interests

“We are new to the world of autism spectrum disorders. Is it common for a child with high functioning autism to spend all (or certainly most) of his time doing only one thing? Our 5-year-old son would spend 24-hours-a-day telling you about dinosaurs if he didn’t have to sleep. Should we just go along with the program, or attempt to curb this appetite for dinosaur trivia?”

I would recommend against curbing the appetite – unless it gets in the way of fulfilling his responsibilities (e.g., homework, chores, etc.). Parents and teachers can use a child’s special interest to their advantage in multiple ways.

Kids with High-Functioning Autism (ASD level 1) often display behavior, interests, and activities that are restricted and repetitive and are sometimes abnormally intense or focused. They may stick to inflexible routines, move in stereotyped and repetitive ways, or preoccupy themselves with parts of objects.

Pursuit of specific and narrow areas of interest is one of the most striking features of High-Functioning Autism. These children may collect volumes of detailed information on a relatively narrow topic (e.g., dinosaurs, trains, deep fat fryers etc.) without necessarily having genuine understanding of the broader topic (e.g., the youngster might memorize camera model numbers while caring little about photography). This behavior is usually apparent by grade school, typically age 5 or 6.
 
==> How to Prevent Meltdowns and Tantrums in Children with Autism Spectrum Disorder

Children with High-Functioning Autism latch onto topics and interests that are often considered a hobby by others. However, they develop an intense interest in the subject and may become experts in it. Some obsessions involve physical collections while others are fact-based.

Some of the common interests that characterize children with High-Functioning Autism include:
  • accumulation of objects or facts and information
  • intense attachment to objects in a collection
  • agitation if the collection is disturbed or moved out of order
  • animals and nature (this often starts with a fascination for dinosaurs and may end up with expert knowledge about animal or insect groups like spiders or snakes)
  • books
  • for boys, card collections like baseball or superheroes
  • for girls, Barbie dolls
  • interest in death and freaks
  • obsession that is accompanied by extreme motivation, attention and ability
  • obsession that is concentrated on to the exclusion of other activities
  • obsessions that dominate the child’s conversation
  • obsessions that dominate the child’s free time
  • public transport systems (e.g., the child may know every station in a subway system or travel around to visit old rail collections)
  • science fiction and fantasy
  • technical and scientific interests (e.g., vehicles, trains, aircraft, ships, volcanoes, astronomy, mathematics, numbers, chemistry, the periodic table, the weather)

Obsessions play an important role in the daily life of children with High-Functioning Autism. For example:
  • The interest may give them a sense of identity if they are considered to be an expert in the area.
  • The interest is associated with pleasure (e.g., a family trip on a steam train or a visit to a game park).
  • The interest is a form of relaxation. High-Functioning Autism kids thrive on routine, and familiarity and being able to lose themselves in an interest is a stress reliever.
  • Obsessions help them overcome anxiety when the interest is directed at something they fear. By understanding it, they strip it of its ability to “harm.”
  • High-Functioning Autism kids struggle with the unpredictability of life and social interaction, and feel secure within the confines of their special interest.

While special interests can be beneficial to kids on the spectrum, they can also cause difficulties and become a source of annoyance to those in their social circle. Although these special interests may change from time to time, they typically become more unusual and narrowly focused, and often dominate social interaction so much that the entire family may become immersed.

Stereotyped and repetitive motor behaviors are also a core part of the diagnosis of High-Functioning Autism and other ASDs (e.g., hand movements, flapping, twisting, complex whole-body movements, etc.). These are typically repeated in longer bursts and look more voluntary or ritualistic than tics, which are usually faster, less rhythmical and less often symmetrical.


Resources for parents of children and teens on the autism spectrum:
 

==> Videos for Parents of Children and Teens with ASD
 
----------
 


PARENTS' COMMENTS:

•    Anonymous said...  also sharing his interest will help him 2grow. Social skills r a challenge & u can use his interests 2help him communicate better. Conversations w\other ppl r challenges 4them. Use this & anything u can 2help him.
•    Anonymous said...  Becci Snead Ellison, thank you!!! That is a great idea!! She usually interrupts dinner time conversations and this is a great way to teach her!!! I so appreciate your input!
•    Anonymous said...  enjoy him & love him 4who he is! His own unique lil person! He will amaze u!
•    Anonymous said...  enjoy the interest w\him, build a bond w\him now so u can continue 2know him & learn about him. They will bcome strangers if u dont take time 2know them.
•    Anonymous said...  Eventually you can expand to. Where they lived, what they ate, what period etc. art projects can revolve around making dioramas, making plaster casts of 'footprints'. You can add writing by creating a biography page for each species with all the info. Take dinos and run with it.
•    Anonymous said...  Games. It still gives him a connection to his peers but I miss our trips to museums and zoos where he blew everyone away with his knowledge.
•    Anonymous said...  Give him certain times during the day where he can ONLY talk about dinosaurs (set a timer) When the timer goes off he can only talk about everything else BUT dinosaurs...My youngest was the same way about maps. During his "dino" time help him research, help him read, help him do everything dino related. This way it is limited (to save your sanity) but he still gets the satisfaction of feeding his knowledge
•    Anonymous said...  Go along with it. It interests him, and you should encourage it. I found before I was diagnosed, people discouraged any interests, which made me not want to get into anything. It'll set him back if discouraged
•    Anonymous said...  Hi. This is the first time I've posted, but I've been an avid post reader for some time now, sorry, but I totally understand what your all saying. Most of my friends and family don't see it in them at all, but my husband and 2 sons, aged 14 and 11 have high functioning Autism. They each have an amazing gift or talent in something different, and all 3 have high analytical intelligence but lack in emotional/ communication skills.. As for obsessions, My oldest son started with Thomas the Tank Engine. He could name every single engine, carriage, person etc and would quite arrogantly tell you if you got it wrong. Then it was dinosaurs.... He could tell anyone at all (and he would) the name (some of which I can barely pronounce) of just about any dinosaur, where it originated and what it ate....then it was Brazilian Jujitsu.... Then he moved onto, and is still current, the love for Reptiles, not all.. Primarily snakes and some lizards.... BUT He has recently discovered how good he is at Archery... So as long as he continues to take proper responsibility of the 3 snakes and 2 lizards...we will nurture his archery skill... He has his eye on a $400 bow set at the moment. The thing is, is that he's that self disciplined that he will do chores and save his b'day and Xmas gift money up, so he can get it. If only I had the same self control... Lol. My 11 yr old son is an avid book reader. He can read a whole adult sized novel in about 4 hours, and then tell you about in with the most impeccable memory and description. It's almost like a movie was in his head and he can describe it you. He loves animals, particularly dogs and cats, but has no fear... I just hope that a nasty or troubled animal doesn't hurt that naivety one day, although I've tried to tell him, he has like a cat/dog whisperer thing in him. I'm planning on getting him a vet science book... He'll be a vet by the time he's 17 I reckon.... But he is my fragile one to me. He is very naive...but he's also still very young. My ASD boys are amazing, and perfect role model students at school... And I truly believe that they are the next step in evolution.... As for my husband... That's a whole different story... We've had loads of problems since the realisation of it all only 2 years ago after 14 years marriage, But he still is the only man for me and I love him so much. We' re a 'Work in Progress'.... Xxx
•    Anonymous said...  I've always let my son go with what he feels. Yes, there have been times I had enough and had to say we would have to talk about it later. The interests do change over time and as they age. My son is now 15 and isn't as into 1 thing anymore. They feel very isolated as it is. Having an interest and being excited about it is healthy in my opinion. My son has always been so passionate about certain things throughout the years. It gave him confidence and he was proud of his knowledge.
•    Anonymous said...  I've had to limit my daughter's time with her obsession. She loves Super Mario Bros for the Wii. She'll play it, has stuffed characters, watches the old TV show on Netflix from the 80's and will watch Youtube videos of other people playing and tips. I do make her alternate it with her other interests and she's only allowed to play the game in 30 min intervals and never first thing in the morning or right before bed. If I don't she gets hyper and can't focus. She'll also dream about it. She literally talks about Mario in her sleep.
•    Anonymous said...  Just listen Mom , I promise you some day he'll thank you for it!
•    Anonymous said...  Let him be excited to share. And let him know you are proud of his vast knowledge of dinosaurs. Who knows, he could grow up and be the world's greatest archeologist!!!!!
•    Anonymous said...  Let him do dinosaurs now. He'll be just as obsessed about the next thing when it comes along.
•    Anonymous said...  McKenzie, use her love if those subjects to teach her a social skill! You can practice at dinner by giving her an appropriate amount I time to talk about her subject but then giving brother a chance to talk about his day it subject and have your daughter respond with questions or gestures that would be appropriate in any conversation! This is an exercise we learned from ABA and we have fun with it all the time!
•    Anonymous said...  Mine went from dinosaurs to animals. At school it gave him something to talk about. Most kids love animals. Now at 14 it's video gan
•    Anonymous said...  My 13 yr old talks about bustin bieber n one direction all the time. She use to talk about school o much I told her no talking about school after 5pm. It took awhile but it works . Now it's music.
•    Anonymous said...  My 14 year old's obsession is anything from the 1980's. Honestly, I get so tired of listening to his facts because it is an all day thing. I have to tell him that I've had enough for the day and he needs to draw or play his video games...which are also from the 80's. As he has grown his obsessions have been: dinosaurs, Sesame Street, Flags of the world, Mascots for football, LEGOS, Star Wars and now the 80's:)
•    Anonymous said...  My ltl man moves to a new topic when hes ready. Thomas the tank was approx 4 years!
•    Anonymous said...  Oh absolutely! I know way more about WWII than most because of my son! This is perfectly typical I our a-typical kiddoes! .
•    Anonymous said...  Our daughter is 12 and she will spend all her energy and time researching and discussing the Titanic, Helen Keller and now it's Ann Frank. It can get overwhelming for us and her brother to listen to this all the time. But when we ask her to talk about something else she feels hurt and says we just don't want to listen to her . Just not sure what to do sometimes.
•    Anonymous said...  Perfectly normal. My 12 year old son is still like that. Eventually your son will switch to another subject, and the dinos will disappear in a second flat. Ride the wave. I figure if it makes him happy then I will feed the knowledge to him until he is ready to move on. Because he always does.
•    Anonymous said...  setting limits r good, 10 mins of dinosaurs, then 5 mins on something else...(4example) give & take of relationships r important 2teach him. Limits but not denial or smothering. Teach him thru his interests! U will learn more about him!!
•    Anonymous said...  That is very common! We have a Dino lover expert! Autism Speaks is a wonderful that has helped us. Our son is 6. You will really enjoy all the quirks that they have.
•    Anonymous said...  This is perfectly normal with a child with Asperger's. Be supportive and indulge his curiosity and enthusiasm. Can you use this special interest as a bridge to explore other subjects? Before you know it, his interest in dinosaurs will wane, and he will move on to a new special interest. Also perfectly normal. As for social skills, you may want to coach him that other people may not enjoy talking about dinosaurs as much as he does, but it's OK to like dinosaurs and want to learn all about them. It would be great if he could find a friend who likes dinosaurs as much as he does, so he will feel accepted and have someone who shares his special interest very much.
•    Anonymous said...  We leave our lil un he will change to sumfin else wen hes ready
•    Anonymous said...  We moms of aspies need 2stick 2gether! Even when u hear dinosaurs n ur sleep...remember...this is her world shes sharing w/u! U can teach her more about the world she has 2live n also! hang in there! Its tough but soo worth it! 
*   Anonymous said... Here is an idea that helped us TREMENDOUSLY when our son was severely stuck on topics and could not have a two way conversation.  A STOP WATCH!  Give the child a stop watch and let him push the timer.  He can watch the time tick by or not, but the stop watch does help keep his interest.  He has one minute to tell you whatever he wants to talk about.  At the end of one minute, the stop watch goes to the parent.  The parent then starts the timer and responds back to the child about what he was discussing.  (Child cannot talk during this time.  He has to listen.)  The parent can then change the subject.  At the end of one minute, the child gets the stop watch back. He restarts the timer and he has to comment on what the parent just talked about BEFORE he can talk about what he is stuck on.  If the one with the timer has nothing more to say and the minute isn't up yet, no one can talk until the time is up.  This really helps the child with self-control and stops rattling.  This method saved us after my husband passed and there was no one around to listen except my ears.  My son quickly learned two way conversations.  My family and friends could not get over the fast improvement.  Whenever he wanted to talk about what he was stuck on, or something in his day, he would come to me and say, "I have something really important to tell you," as he handed me the stop watch.  If ti wasn't the best time, I would ask him to wait 15 minutes (or however long it would be before I was available) then he could talk as long as he wanted with the stop watch.  It stopped the all day verbal chattering about nothing.
•    Anonymous said...  Try to help them find lots of mini obsessions It can help breakup the challenge of the same topic all the time. So important to work with the obsessions and not fight them. They can become your communication lifelines in difficult times.
•    Anonymous said... Absolutely. My son is 7, and he goes on and on about his "topic du jour.". This is where speech and language pragmatics therapy comes in. Learning the back and forth of conversations, etc.
•    Anonymous said... and on the bright side......you will learn a lot about dinosaurs.....
•    Anonymous said... Great insight!!! Makes me understand my nephew now even better.
•    Anonymous said... I think it is important to also introduce other things so that they develop in other areas. Some form of physical activity, some other toys, and things that may be related but help introduce something else...for example, fiction books about dinosaurs that lead to fiction books on other topics. Or non-fiction books about reptiles.
•    Anonymous said... If my son could play Roblox 24-7 he would! That's all he wants to do.
•    Anonymous said... My grand daughter has a huge obsession with Match Box Cars. We have three Aspies in our family.
•    Anonymous said... my son is aspie and ADHS so it is hard for him to keep on jus one thing he bounces from one to another but always stays with a focus on cars
•    Anonymous said... My sons is almost 10 and huge into Pokemon. All I hear most days is about Pokemon. I had to set time limits on how often he can play it but he still talks about it all the time. This is his life log obsession because he's been playing it since he was 2.
•    Anonymous said... Rainbow looms have to be just right and makes them all. 😊
•    Anonymous said... sounds like a textook Aspie....
•    Anonymous said... Use his love of dinosaurs to keep him engaged in conversation with you and others. My grandsons will maintain eye contact for longer lengths of time if they are talking about their favorite things.
•    Anonymous said... Very common with aspies. Both of mine have favorite things they would play with or talk about.
•    Anonymous said... Yes . Just remembering Thomas the train makes me smile
•    Anonymous said... yes, that is common. or months or years of one or two preferred activities. Even if he shows massive resistance, its important to make him do other things and set limits on the obsessions.
•    Anonymous said... You can also use his obsessions to teach other skills, adding and subtracting dinosaurs, dinosaurs in a conversation, etc. 
•    Anonymous said... My 16 year old aspie spends hours (not all at once) a day jumping on the trampoline. I think it kinda grounds/comforts him.
•    Anonymous said... My son did the dinosaur thing... totally normal...I believe we should not discourage them however difficult the repetition becomes... its very difficult to steer them to other interests..
•    Anonymous said... My son had a fight today at school telling me his tired of children bulling him. In one way I'm so happy he stood up for. The other hand how can I tolerate violence
•    Anonymous said... My son had a thing for cars when he was younger...don't curb it - it's what they love! it's their focus and it's often what will keep them calm and interactive. Instead, teach through it. We learned colours , maths, imaginative stories ...the list is endless!!
•    Anonymous said... My son has hyper focus on one subject at a time that can lasts for months...then he moves onto something else! This transition has Improved as he's got older, he changes his focus in quicker turn around times, and at times is interested in more then one thing! He is now 12. He can be super happy about his focus when it's going well...for example he is really into yo yo's right now (hand eye co ordination off the charts) and is learning all the tricks he can!! But his string broke on the yo yo and had a total meltdown! Always have spares!!!!
•    Anonymous said... My son is 8 years old. We tend not to curb his appetite for his repetitive play. It is something that keeps him happy. What we have done is try to introduce new games.
•    Anonymous said... No let him go....this is one thing about autistic kids is a specialty. My son is 8 and right now it's minecraft. He is also very interested in dinasours, springboard diving (his sport) space. My biggest piece of advice is don't treat him Any different. We exspect the same behavior from him as our older son (they are 17 mths appart). The only difference is we have more patience and understanding when it comes to our 8 year old. But if he doesn't follow the rules he does get grounded. Usually it's his tablet we take away. We started this when he was young and we are finding it easier now that he is 8. Still have our bad days but they are less. They MUST know where those boundaries are. There is no gray area with my son only black and white, right and wrong.
•    Anonymous said... Oh and he is also a Minecraft fanatic, I know quite a few asperger kids who love Minecraft.
•    Anonymous said... We loved the yo yo phase!
•    Anonymous said... Yes would be the short answer


Post your comment below...

Understanding the Role of Risperidone and Aripiprazole in Treating Symptoms of ASD

Autism Spectrum Disorder (ASD) is a complex neurodevelopmental condition characterized by social communication challenges and restricted, re...