Aspergers/HFA and ADD

"My 12 year old was recently diagnosed with having asperger's. He doesn't fit the typical mold that I read about, and the neuro-psychologist agreed that he is an unusual case. He is extremely likable, has a good many friends, very polite and well mannered. He does however have the obsessive personality and hyper-focusing that is typical with asperger's as well as fascination with collecting things, bottle caps, shark teeth...which he can look for hours at a time for. He is very smart and has always made great grades and has never had behavior issues at home or at school, which is probably why he flew under the radar until now. Our struggles have to do with his attention...as if he is ADD (tested negative three times). He literally cannot stay on task and is so easily distracted. After a "pep" talk stating that he "owns" his brain and he can control the urges if he puts his mind to it...he can produce. I know its short term but he doesn’t and he feels great when he knocks out something. Remember, we just found out...so we've always treated him as "normal" as the others, why wouldn't we? And again, he's always risen to the challenge of most anything...with a great attitude. I'm desperately looking for ways to help him stay on task with schoolwork and staying on task? Is there anyone there that might know of something, tips, tricks, etc.? Please let me know."

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Aspergers and Sibling Issues

Question

Our youngest son has been diagnosed with Aspergers and demands a lot of our attention. What can I do to reassure his two elder sister's that we're not neglecting them?

Answer

Explaining Aspergers (high functioning autism) isn’t easy no matter who you are talking to. It’s not something that can be described in a single sentence. There are problems, because you cannot tell just by looking at someone whether or not they have Aspergers. Also, because the causes of Aspergers are yet to be clearly identified, it can sometimes be difficult convincing people that the condition actually exists.

You could try explaining to older kids that children with Aspergers basically have problems in three major areas of interest. This is usually part of the criteria for diagnosing Aspergers. These areas are:

1. Imagination—This is the ability to think about things that aren’t real. Kids with Aspergers tend not to be interested in games that involve pretending to be someone else (like cops and robbers). Some kids with Aspergers can be very interested in things that aren’t interesting to other kids or exclude social interaction. They may like collecting items that seem dull or unusual to us.

2. Social Understanding—This means knowing what to do when you are with other people. Children with Aspergers have difficulty understanding social relationships. They do not understand all the rules involved in social relationships. As we grow up, we learn how to behave appropriately in certain situations, for example we learn not to say things to people like “you look fat” (unless we are deliberately trying to be hurtful). A person with Aspergers usually doesn’t mean to be rude, even though it can sometimes appear so. It’s because their understanding of how to behave is confused.

3. Social communication—This means knowing what to say to other people and understanding the meaning of what they are saying to you. Just imagine how many times a day the basics of social communication come into your youngster’s life; at the shops, at home, at school, in the street. Children with Aspergers can have problems when talking to other people as they can take things people say literally. An example would be if you say to someone with Aspergers “I laughed my head off” – they may become alarmed believing that your head really did come off of your body. It can be very hard for children with Aspergers to understand when someone is joking, and that is why they may become angry or upset by something you have said that wasn’t meant to be hurtful.

Aspergers and Anti-Social Behavior

Question

My son is 14 with ADHD and aspergers. My housing association wont recognise this and want an ASBO placed on him, otherwise an Injuction placed on myself to take full responsibility for my sons anti-social behaviour. Surely this cannot be possible and so unfair on my son and myself. What can I do? Any ideas please...

Answer

For many moms and dads of kids with Aspergers (high-functioning autism), coping with violent and aggressive behavior can be a very difficult challenge indeed. Aggressive behavior occurs for a reason, just as it would with any other kid. No child ever really just "acts out" for no apparent reason whatsoever. The key is in the words "apparent reason." There is ALWAYS a reason, but the major challenge for the mother or father is often working out what that reason is.

Inappropriate behavior, whether mild or severe, generally occurs in order to:

1. Avoid something - for example, the youngster may become aggressive and shout before getting on the school bus because he wants to avoid going to school.
2. Get something - for example, she may lash out at another child because she wants to get the toy that the other child is playing with.
3. Because of pain - for example, he may show a range of challenging behaviors to his mom and dad because he is experiencing some physical pain (e.g., headache, earache, etc.).
4. Fulfill a sensory need - for example, the youngster may lash out or shout in the classroom if it is too noisy, busy, bright, hot, or strong in a particular smell.

So, the first step in reducing or eliminating this behavior is to determine the need that it fulfills by looking at the four categories above.

The second step is to teach the Aspergers child a replacement behavior, which he can use to communicate what he wants or doesn't want. It may even involve using some of the child's obsessive or self-stimulating behaviors (e.g., hand-flapping, rocking, pacing, etc.) as a replacement behavior, which would be far less intrusive to others than aggressive behaviors -- but still serve the same purpose. 

A replacement behavior could also be about encouraging the youngster to express her feelings or negotiate verbally. For other kids on the autism spectrum, they may communicate through more creative methods (e.g., emotion cards, drawing, using symbols, "talking" through a puppet, etc.). 

The process of finding effective replacement behaviors takes time. Initially, depending on the behavior, parents (and teachers) may not have time. If the behavior is severe, then parents need to remove the youngster from whatever situation he is in at the time. Simply insisting that the child stop the behavior and participate in whatever is occurring will not benefit him or the parent -- unless he is removed from the situation first.

Maintaining your youngster's routine will also go a long way towards reducing the need for inappropriate or aggressive behavior. Routine is a great source of stability and comfort for kids with Aspergers.

So, just to recap, the two critical factors for coping with your youngster's aggressive and violent behaviors are:

1. Identify the real cause of the behavior from the four main categories mentioned above.
2. Teach the youngster to communicate the real cause of the behavior to you in a less harmful manner.

Preventing Meltdowns and Tantrums in Children with Asperger's and High-Functioning Autism