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Why Females Are Less Likely To Be Diagnosed

The vast majority of referrals for a diagnostic evaluation for Aspergers are boys. The ratio of males to females is around 10:1; however, the epidemiological research for Aspergers suggests that the ratio should be 4:1. Why are girls less likely to be identified as having the characteristics indicative of Aspergers? Below are some possible reasons (yet to be validated by academic research):

1. Each individual with Aspergers develops his own techniques and strategies to learn how to acquire specific skills and develop coping mechanisms. One technique is to have practical guidance and moral support from one’s friends. We know that kids with Aspergers elicit from others, either strong maternal or ‘predatory’ behavior. If the individual’s natural peer group is females, they are more likely to be supported and included by a greater majority of their friends. Thus females with Aspergers are often ‘mothered’ by other females. They may prompt the youngster when they are unsure what to do or say in social situations and comfort them when they are distressed. In contrast, “normal” males are notorious for their intolerance of kids who are different and are more prone to be ‘predatory’. This can have an unfortunate effect on the behavior of a boy with Aspergers and many complain of being teased, ignored and bullied by other males. It is interesting to note that some males with Aspergers actually prefer to play with females who are often kinder and more tolerant than their male friends.

2. Females are more likely to be enrolled in speech and drama lessons, and this provides an ideal and socially acceptable opportunity for coaching in body language. Many individuals with Aspergers have a prodigious memory and this can include reciting the dialogue for all characters in a play and memorizing the dialogue or ‘script’ of real life conversations. Knowing the script also means the youngster does not have to worry about what to say. Acting can subsequently become a successful career option although there can be some confusion when grown-ups with Aspergers act another persona in real life as this can be misconstrued as Multiple Personality Disorder rather than a constructive means of coping with Aspergers.

3. Females are more motivated to learn - and quicker to understand key concepts - in comparison to males with Aspergers of equivalent intellectual ability. Thus, they may have a better long-term prognosis in terms of becoming more fluent in their social skills. This may explain why females with Aspergers are often less conspicuous than males with the disorder and less likely to be referred for a diagnostic assessment. Moms with Aspergers appear to have more ‘maternal’ and empathic abilities with their own kids than dads with Aspergers, who can have great difficulty understanding and relating to their kids.

4. It appears that many females with Aspergers have the same profile of abilities as males but a subtler or less severe expression of the characteristics. Moms and dads may be reluctant to seek a diagnostic assessment if the youngster appears to be coping reasonably well, and therapists may be hesitant to commit themselves to a diagnosis unless the signs are conspicuously different to the normal range of behavior and abilities.

5. One must always consider the personality of the individual with Aspergers and how he copes with the difficulties he experiences in social reasoning, empathy and cognition. Some individuals are overtly active participants in social situations. Their unusual profile of abilities in social situations is quite obvious. However, some are reluctant to socialize with others, and their personality can be described as passive. They can become quite adept at camouflaging their difficulties and clinical experience suggests that the passive personality is more common in females.

6. Some individuals with Aspergers can be quite ingenious in using imitation and modeling to camouflage their difficulties in social situations. One strategy that has been used by many females and some males is to observe individuals who are socially skilled and to copy their mannerisms, voice and persona. This is a form of “social echolalia” or mirroring where the individual acquires a superficial social competence by acting the part of another individual.

7. We have a stereotype of typical female and male behavior. Females are more able to verbalize their emotions and less likely to use physically violent acts in response to negative emotions such as confusion, frustration and anger. We do not know whether this is a cultural or constitutional characteristic but we recognize that kids who are violent are more likely to be referred for a diagnostic assessment to determine whether the behavior is due to a specific developmental disorder and for advice on behavior management. Thus males with Aspergers are more often referred to a psychologists or psychiatrist because their violence has become a concern for their moms and dads or schoolteacher. A consequence of this referral bias is that not only are more males referred, therapists and academics can have a false impression of the incidence of violence in this population.

8. When a youngster would like more friends but clearly has little success in this area, one option is to create imaginary friends. This often occurs with young females who visualize friends in their solitary play or use dolls as a substitute for real individuals. Females with Aspergers can create imaginary friends and elaborate doll play which superficially resembles the play of other females.

We need more epidemiological studies to establish the true incidence of Aspergers in females. In the meantime, females Aspies are likely to continue to be overlooked and not to receive the degree of understanding and resources they need.

The Aspergers Comprehensive Handbook

6 comments:

Anonymous said...

because they don't look for it until it's staring them in the face and they have no other options left. At least, that was my experience. They wanted to label it bad behaviour and bad parenting before they would consider Asperger's. (and it was the third doctor that would finally listen and consider it).

Lisa said...

I've forwarded this article to my daughter's high school counselor... what a difference the last 4 years could have been if they'd really looked at why she seemed unable to ask for help and was disconnected from school instead of labeling her as lazy and unmotivated. Even after finally getting a diagnosis last spring, they essentially blew it off because "she laughed at jokes and participated in the 2 classes they observed"...ceramics (all about effort, not ability), criminal justice (no homework and a teacher who "got her"). She graduates next week and as I've been telling her for years, "the rest of her life begins".

Bulldogma said...

GREAT post! Thank you SO much for broaching this subject. We had to practically pull teeth to get a proper diagnosis for our Aspie.

Nsaneaspiemom said...

Before I even knew what it was I had her diagnosed. her traits were strong! But i did not say a word to the specialist who ran all the tests, but she confirmed it pretty much right away! I noticed things from the time she was only a few months old.

Anonymous said...

I agree Sandra, also girls obsessions tend to be more girl acceptably, for my dd cats, and horses. My dd's dx is NVLD which is very similar to aspergers, but with visual spacial difficulties, and fine and gross motor issues. There is much overlap in the two.

Zoe said...

This is all very interesting I have just started the process to get diagnosed I am 34. My son is an Aspie.
I always found myself with a dominant friend. Someone who could do all the talking for both of us... I could follow..copy or mimic. And definitely stay in the shadows. My main aim at school was not to be noticed...I pretty much succeeded at that.
I also did a lot of dance and drama. Actually trained as a dancer, the only thing I would say is that actually making a career in such a competitive industry was beyond me at the time.
Now I understand - having to talk to prominent people and selling yourself is as important as talent...Something I couldn't do...
I would definitely be interested to be part of any research.. Well done to parents for noticing, I think it is harder to identify girls...

My child has been rejected by his peers, ridiculed and bullied !!!

Social rejection has devastating effects in many areas of functioning. Because the Aspergers child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually. Thus, the best treatment for Aspergers children and teens is, without a doubt, “social skills training.”

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Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But... don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

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Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

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Parenting children with Aspergers and HFA can be a daunting task. In layman’s terms, Aspergers is a developmental disability that affects the way children develop and understand the world around them, and is directly linked to their senses and sensory processing. This means they often use certain behaviors to block out their emotions or response to pain.

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Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with Aspergers face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

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Living with an Aspergers Spouse/Partner

Research reveals that the divorce rate for people with Aspergers is around 80%. Why so high!? The answer may be found in how the symptoms of Aspergers affect intimate relationships. People with Aspergers often find it difficult to understand others and express themselves. They may seem to lose interest in people over time, appear aloof, and are often mistaken as self-centered, vain individuals.

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Online Parent Coaching for Parents of Asperger's Children

If you’re the parent of a child with Aspergers or High-Functioning Autism, you know it can be a struggle from time to time. Your child may be experiencing: obsessive routines; problems coping in social situations; intense tantrums and meltdowns; over-sensitivity to sounds, tastes, smells and sights; preoccupation with one subject of interest; and being overwhelmed by even the smallest of changes. The hardest part is you feel like you’ll never actually get to know your child and how he/she views the world.

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