HELP FOR PARENTS OF CHILDREN WITH ASPERGER'S & HIGH-FUNCTIONING AUTISM

Education and Counseling for Individuals Affected by Autism Spectrum Disorders

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List of Support Groups for Children with Autism, Aspergers, and PDD


· ABMD (Autism BioMedical Discussion)—High volume group for discussions by parents and professionals of research and biomedical interventions as they apply to the investigation and treatment of autistic spectrum disorders. To Join: Send a blank email to abmd-subscribe@yahoogroups.com or join online.
· ANDI_ADI (Autism Network for Dietary Intervention)—This is an ADVANCED autism-diet discussion group moderated by ANDI, the Autism Network for Dietary Intervention. The purpose of this list is to provide a forum for discussion regarding advanced dietary treatment options such as the Specific Carbohydrate Diet (SCD), the Body Ecology Diet (BED), grain-free, sugar-free, low oxalates, supplementation, and other dietary interventions for children with autism spectrum disorders. To Join: Send a blank email to ANDI-ADI-subscribe@yahoogroups.com or join online.
· Asperger—An excellent listserv for discussions of all aspects of Asperger Syndrome (AS) and other forms of high-functioning autism, including Pervasive Developmental Disorder (PDD). Subscription requires owner approval. This is a well established, high volume autism support list. To Join: Send email with the message, SUBSCRIBE ASPERGER to listserv@listserv.icors.org or join online. Listowners: Head Listowner - Ellen Dietrick; Co-listowners - Karen Reznek, Sandy Sebree, Phil Schwarz , Dave Spicer, Tee Forshaw, Barry Conner
· Aspergers Support—Mailing list for parents of children with Asperger's Syndrome or High Functioning Autism. To Join: Send a blank email to AspergersSupport subscribe@yahoogroups.com or join online.
· Aut-2B-Home (Autism To Be Homeschooled)—Listserv for homeschooling children with autism. To Join: Send email with the message, SUBSCRIBE AUT-2B-HOME to LISTSERV@LISTSERV.ICORS.ORG or join online.
· Autinet—An unmoderated parent support group and news service for Autism and Asperger's Syndrome, running since 1996. To Join: Send the message with "SUBS" in the subject line to autinet@autinet.org. In your message to listowner Peter Wise include a little about yourself, your interest in Autism and Asperger's Syndrome, and your COUNTRY of residence (for statistical reasons).
· Autism ABA— The Autism and ABA list is an open, unmoderated forum for discussing anything related to autism. Much of our discussion centers around Applied Behavior Analysis (ABA), including areas of ABA such as teaching Verbal Behavior (VB) and Natural Environment Training (NET). We're a quiet list, but we have a healthy mix of parents, professionals, and others involved with autism in some way. To Join: Send a blank email to autismaba-subscribe@yahoogroups.com or join online. Listowner: Christina Burk ChristinaBurkABA@aol.com
· Autism Adolescence—Autism Spectrum Disorders and adolescence support for parents who have pre-teen or teenaged children. Please free to share your stories, advice, woes, rants, tears, and especially laughter here with us. THIS IS A HIGH VOLUME LIST.. http://www.geocities.com/alleycatjo/Autism.html
· Autism Aspergers—A high quality, high volume support list where parents share stories, treatments, therapies, ideas, advice and support about their children with moderate to high functioning autism or Aspergers syndrome. To Join: Send a blank email to Autism-Aspergers-subscribe@yahoogroups.com or join online.
· Autism Awareness Action—A moderately high volume group to help parents find autism related resources and support, not state specific but is associated with a Texas autism group. To Join: Send a blank email to autism-awareness-action-subscribe@yahoogroups.com or join online.
· Autism Behavior Problems—Helpful discussion, aid and support in dealing with these behaviors present in the autistic child. Support on topics for all ranges of behaviors...self stimulating, self injurious, aggressive, inappropriate etc and different ways of addressing these problems. To Join: Send a blank email to AutismBehaviorProblems-subscribe@yahoogroups.com or join online.
· Autism in Girls—Restricted membership! This is a high quality list for parents and professionals who wish to exchange information regarding treatment of autism in girls, how autism effect females in the family, and any other issues dealing with autism and females and/or the comparison of males and females with autism. To Join: Send a blank email to Autism_in_Girls-subscribe@yahoogroups.com or join online.
· Autism—The oldest ongoing discussion list for autism, provides general autism support.
To Join: Send email with the message subscribe [password] [digest|nodigest] [your email address] to autism-request@lists.apana.org [Commands in brackets are optional.] or join online. Listowner: Carolyn Baird. Panel Representatives: Ray Kopp, Linda Carlton, Kevin Kramer
· Chelating Kids 2—A restricted discussion list of parents with children who have autism/ mercury poisoning and are using chelation. To Join: Send a blank email to chelatingkids2-subscribe@yahoogroups.com or join online.
· Children with Autism—High volume parent support list for autism. To Join: Send a blank email to children_with_autism-subscribe@yahoogroups.com or subscribe online.
· DTT-NET (Autism: AVB: ABA: Verbal Behavior)—A moderated list for parents and professionals running home (and school) programs to discuss concerns and share their knowledge of Applied Verbal Behavior (AVB), a specialty within the field of Applied Behavior Analysis (ABA). To Join: Send a blank email to DTT-NET-subscribe@yahoogroups.com or join online. Listowners: Jenn Godwin and Steph Hulshof
· Enzymes and Autism—The Enzymes and Autism forum is a high volume list for the discussion of digestive enzymes (and many other types of supplements) and thier effect on the autistic spectrum/PDD, attention deficit, sensory integration, digestion/malabsorption, and food sensitivities/allergies. To Join: Send a blank email to EnzymesandAutism-subscribe@yahoogroups.com or join online.
· Floortimers Floor Timers—A small group, but an important topic. Parents, caregivers, therapists, educators and related professionals who work with children using using a floortime approach share ideas and provide support for one another. To Join: Send a blank email to floortimers-subscribe@yahoogroups.com or join online.
· GF CF Kids (Gluten-Free Casein-Free Kids)—This high volume, unmoderated list provides discussion forum for parents of children on the autism spectrum who are avoiding gluten and casein and other substances in their children's diets. To Join: Send a blank email to GFCFKids-subscribe@yahoogroups.com or join online.
· Gluten-Free Casein-Free Recipes—High volume group to share recipes for cooking a gluten-free, casein-free diet for chidren. To Join: Send a blank email to GFCFrecipes-subscribe@yahoogroups.com or join online.
· HDO Therapy for Autism—Hyperbaric Oxygen Therapy (HBOT), or more accurately, High Dosage Oxygen Therapy (HDOT} is fast becoming one of the more successful therapies for children with Autism. Autism is a neurological injury whether caused by toxicity, birth injury or unknown. Some amazing results are being obtained, especially with young children. To Join: Send a blank email to HDOTherapyforAutism-subscribe@yahoogroups.com or join online.
· Home Schooling Aspies—Support list for Christian moms who homeschool (or are seriously considering homeschooling) their children who have been diagnosed with Asperger's Syndrome (or suspect their child has Asperger's Syndrome). All are welcome to join, but there will be a Christian focus to many of the posts. We are here to encourage, support, and pray for one another as we do our best to teach our Aspies at home. To Join: Send a blank email to homeschoolingaspies-subscribe@yahoogroups.com or join online.
· Parenting Autism—An excellent, high volume parent support group to share the day-to-day experience of being a parent of an autistic child. To Join: Send a blank email to Parenting_autism-subscribe@yahoogroups.com or join online.
· PDD BP KidS (Pervasive Development Disorder Bipolar Kids)—This group is for parents and primary caregivers of children diagnosed with PDD (Pervasive Developmental Disorder), Autistic Spectrum Disorder (Autism, Asperger's Syndrome, PDD-NOS, Rhett's Syndrome, Childhood Disintigrative Disorder), and BP (Bipolar Disorder). To Join: Send a blank email to PDD-BPkids-subscribe@yahoogroups.com or join online.
· Verbal Behavior—A high volume moderated forum for teaching verbal behavior (VB) within a program of applied behavior analysis (ABA). Discussions include difficulties in the development of communication seen in most individuals with autism and other related disabilities, with an emphasis on functional language and motivational variables using ABA techniques. To Join: Send a blank email to VerbalBehavior-subscribe@yahoogroups.com or join online. Listowner: Christina Burk ChristinaBurkABA@aol.com


The Parenting Aspergers Resource Guide: A Complete Resource Guide For Parents Who Have Children Diagnosed With Aspergers Syndrome

1 comment:

Anonymous said...

Hello! Many thanks for your blog! Actually I have never come across anything that great.

My child has been rejected by his peers, ridiculed and bullied !!!

Social rejection has devastating effects in many areas of functioning. Because the Aspergers child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually.

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How to Prevent Meltdowns in Aspergers Children

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But... don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

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Parenting Defiant Aspergers Teens

Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

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Aspergers Children “Block-Out” Their Emotions

Parenting children with Aspergers and HFA can be a daunting task. In layman’s terms, Aspergers is a developmental disability that affects the way children develop and understand the world around them, and is directly linked to their senses and sensory processing. This means they often use certain behaviors to block out their emotions or response to pain.

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Older Teens and Young Adult Children With Aspergers Still Living At Home

Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with Aspergers face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

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Living with an Aspergers Spouse/Partner

Research reveals that the divorce rate for people with Aspergers is around 80%. Why so high!? The answer may be found in how the symptoms of Aspergers affect intimate relationships. People with Aspergers often find it difficult to understand others and express themselves. They may seem to lose interest in people over time, appear aloof, and are often mistaken as self-centered, vain individuals.

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Online Parent Coaching for Parents of Asperger's Children

If you’re the parent of a child with Aspergers or High-Functioning Autism, you know it can be a struggle from time to time. Your child may be experiencing: obsessive routines; problems coping in social situations; intense tantrums and meltdowns; over-sensitivity to sounds, tastes, smells and sights; preoccupation with one subject of interest; and being overwhelmed by even the smallest of changes.

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Unraveling The Mystery Behind Asperger's and High-Functioning Autism

Parents, teachers, and the general public have a lot of misconceptions of Asperger's and High-Functioning Autism. Many myths abound, and the lack of knowledge is both disturbing and harmful to kids and teens who struggle with the disorder.

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Parenting Children and Teens with High-Functioning Autism

Two traits often found in kids with High-Functioning Autism are “mind-blindness” (i.e., the inability to predict the beliefs and intentions of others) and “alexithymia” (i.e., the inability to identify and interpret emotional signals in others). These two traits reduce the youngster’s ability to empathize with peers. As a result, he or she may be perceived by adults and other children as selfish, insensitive and uncaring.

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