HELP FOR PARENTS WITH CHILDREN WHO HAVE ASPERGERS/HIGH-FUNCTIONING AUTISM

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Is there help for a child with Aspergers and Oppositional Defiant Disorder?

Question:

We have finally had a diagnosis for aspergers and OPPOSITIONAL DEFIANT DISORDER after 6 and a half years of hell… my son is now 14 and apparently there is no help available!! He has a diagnosis and his statement will be drawn up for educational purposes, but where does that leave us as a family...he is so difficult to take anywhere… our house has been slowly getting destroyed by temper tantrums… so far every door needs replacing and the walls are covered in holes. I have a 9 yr old daughter with epilepsy who is really beginning to dislike being at home… it seems every day our house is filled with arguments over petty things which often lead to violent outbursts… there is no medication for him apparently, but I as a mother cannot cope much longer… this is changing me as a person, I'm finding I'm snappy and irritable and finding it hard to just get on with everyday …things that seemed so easy before... any suggestions on where what or who to go to for help???

Answer:

For many moms & dads of kids with Aspergers, coping with violent and aggressive behavior can be a very difficult challenge indeed.

Aggressive behavior in the youngster with Aspergers occurs for a reason, just as it would with any other youngster. No youngster ever really just "acts out" for no apparent reason whatsoever. The key is in the words "apparent reason" - there is ALWAYS a reason but the major challenge for the mom or dad is often working out what that reason is.

Inappropriate behavior, whether mild or severe, generally occurs in order to:

• Avoid something - for example a youngster may become aggressive and shout before getting the school bus; as they want to avoid going to school.

• Because of pain - for example a youngster may show a range of challenging behaviors to their moms & dads because they feel in physical pain, such as having earache.

• Fulfill a sensory need - for example a youngster may lash out or shout in the classroom if it is too noisy, too busy, too bright, too hot, or strong in a particular smell.

• Get something - for example a youngster may lash out at another youngster because they want to get the toy that the other youngster is playing with.

So the first step in reducing or eliminating this behavior is to determine the need that it fulfills by looking at the four categories above.

The second step is to teach them a replacement behavior, which they can use to communicate what they want or don't want. It may even involve using some of their obsessive or self-stimulating behaviors (like hand-flapping, rocking, pacing) as a replacement behavior.

This is because it would be far less intrusive to others than aggressive behaviors, but still serve the same purpose. It could also be about encouraging the youngster to express their feelings or negotiate verbally. For other kids they may communicate through another method like emotion cards, drawing, using symbols or "talking" through a puppet. You know your youngster best so you need to determine this.

This process takes time and initially, depending on the behavior, you may not have time. If the behavior is severe, then you need to remove the youngster from whatever situation they are in at the time immediately. Simply insisting that they stop the behavior and participate in whatever is occurring will not benefit the youngster or you; unless you remove them from the situation first.

Maintaining your youngster's routine will go a long way towards reducing the need for inappropriate or aggressive behavior in the first place. Routine is a great source of stability and comfort for them.

So just to recap the 2 critical factors for coping with your youngster's aggressive and violent behaviors are:

• Identify the real cause of the behavior from the 4 main categories above.
• Teach the youngster to communicate the real cause of the behavior to you in a less harmful manner.

My Aspergers Child

6 comments:

maria said...

Im going through the same things!!! My family cant even stand to be around him, they want me to give him to the state!! his special EI based school doesnt want him either, they often threaten to have him taken away by the police...lots of notes sent home..every day, he cant handle school, he cant handle a daycare..where does he go??? How do I get back to work..im on a family leave, i have 2more wks left....michigan has very little resources....anyone?? any suggestions Im so running out of time....
maria

Cocoa Bean Photo said...

My heart goes out to these moms. Our family is in the same boat. We have a 15 yr old son. Very aggressive and easily angered. I love a lot of the information here and give kudos to your site but I thought this reply was a little lacking in actual help. Identification and replacing the behavior is a little simplistic for the situations. At 14 yrs of age these teens are not necessarily youngsters who can be easily removed from the situation or able to easily apply a change to the way they respond. Although the article did identify that it would take time there is a huge gap in how to do that. It just seems to lead to more frustration and the Mom's left feeling more alone and defeated. I was hoping to find a second page with the deeper answer. It reminds me of sitting in an IEP meeting during his 6th grade and the solution they wrote down for my son was "He will work on doing better to get into less fights with his classmates and he will work on finishing his homework." That was it... just a feeling of "do better" with no achievable action plan.
Monica

Anonymous said...

Victoria Conroy Jones These two go hand in hand every time.
22 minutes ago · Like
Randi Ryan My son has same diagnosis.
15 minutes ago · Like
Karen Romero Bair Oppositional Defiant Disorder is very hard to deal with. At home, there are some days when everything seems to be a fight. At school, notes come home that my son is refusing to do work, not following directions, and sometimes yelling at and threatening adults. Sometimes it just makes me want to cry.
11 minutes ago · Like
Karen Romero Bair My son has also been diagnosed with ADHD, which makes it even more difficult.
8 minutes ago · Like
Kristie Carr Nelson
There is help, you just have to find the right professionals willing to help and not give up with "sorry, there's just nothing we can do to help." Our 11 year old was diagnosed with ODD 3 years ago on top of the AS diagnosis he had received at 4 years. It's taken a lot of time and work, and some medication, to get to where we are, but he is doing very well. Tantrums are less frequent and severe (less, not gone!), he has friends, he's more manageable... ABA has been huge!!! And smaller school environment has also helped. In just a paragraph, I may have made it sound easy or simplistic. Believe me, it hasn't been, but there is definate progress and lots of hope.
3 minutes ago · Like
Hayley Warner my son has adhd odd ocd tics and sensory issues very difficult .
2 minutes ago · Like

Debbie Lyn Hill said...

My son has AS and intermittent explosive disorder. Tantrums started around 3 and quickly turned into rages. Preschool made him worse. By the time he was diagnosed in Kindergarten we were at our wits end. We had tried parenting like we had with our other children but it wasn't working with him. With the diagnosis came a lot of info. Had to completely change the way we dealt with him. Wasn't popular among some family members, but slowly became better. Spent 3 yrs at spec ed school. Takes Tenex, (blood pressure med) that helps tremendously with rages. We were fortunate to have wonderful teachers and admins that bent over backwards to help him. Now at 11, he isn't perfect, but is actually enjoyable to be around most of the time. There are many situations that he just can't handle right now, and we don't force him. Life isn't perfect, but Hope is alive. Number one suggestion is to learn to remain calm in all situations, and don't react confrontationally. Learn to pick battles, and overlook lesser infractions to concentrate on the most important ones. Don't get into power struggles, you will never win. Small settings with as little stress as possible, makes for a more pleasant Aspie. Good luck and hang in there.

Anonymous said...

At 12, our son was as the 14 y.o. described in the initial question. We sought professional help and ended up hospitalizing him. Meds did help him with the anxiety and depression, and to control his outbursts, but he needed to be in the hospital where they could observe him first hand while determining the effects of the meds. You must take the steps to get control in order to proceed to the part where you teach him the social and other skills he is lacking. And through it all, firmness with empathy and love. When a horse refuses to go into a barn, you don't punish him. You look in the barn to see if there's a snake. These children really do feel distressed; they're usually not being manipulative. There's a balance of how to meet their needs without letting them run the show, and most of us just aren't magically going to get there without help.

Anonymous said...

Brandy Schaefer Same problem with my 10 year old. About to lose my job sigh
21 hours ago · Like
Jan Howarth There is help. My youngest has adhd and odd. Are you in the uk? If you are send me a friend req and ill help you out
21 hours ago · Like · 1 person
Lesley Harrison Roland My son also was diagnosed with ODD along with ADHD, anxiety disorder, AS and more. We put him on risperdal and the ODD practically disappeared-it was quite miraculous!! I think that his anxiety was overwhelming, causing the ODD.
20 hours ago · Like · 2 people
Karoline Goss My son has a diagnosis of Asd, ADHD and possible ODD, he is also being tested now for premature puberty-he's eight. We feel lost, and feel there is no where to turn, we home educate him as he can't cope at school. You are not alone. Xxxxxx
20 hours ago · Like
Robyn Walker I know how you feel, we had a living hell for 13 years with our daughter, with no family to help, no respite and no support, finally someone listened and noticed it was more than naughtiness and now she's diagnosed with aspergers & medicated. She still has her moments, but she's a more like a normal kid now. It's definitely saved our family and given her a chance of a decent life. :)
17 hours ago · Like · 1 person
Keturah Broadwood
I think my stepson has ODD, he hasn't been able to go to school since he was 11 as he is unable to sit still, concentrate, and always gets soooo angry when he is unable to do something or feels intimadated. The sad part is that underneath ...See More
16 hours ago · Like
Rachel Ryan my son has adhd ,ODD and aspergers and we use ritalin,and risperdal the risperdal was my saviour he now sleeps like a baby and i have seen a huge difference in him the school says he chooses his behaviour and its non of the above but now the teach has implemented a eeward system for each 40 min session in the day we seeing huge improvementits taken me 4 yrs to find what works but there is hope
14 hours ago · Like

My child has been rejected by his peers, ridiculed and bullied !!!

Social rejection has devastating effects in many areas of functioning. Because the Aspergers child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually. Thus, the best treatment for Aspergers children and teens is, without a doubt, “social skills training.”

Click here to read the full article…

Parenting Defiant Aspergers Teens

Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

The standard disciplinary techniques that are recommended for “typical” teenagers do not take into account the many issues facing a child with a neurological disorder. Violent rages, self-injury, isolation-seeking tendencies and communication problems that arise due to auditory and sensory issues are just some of the behaviors that parents of teens with Aspergers will have to learn to control.

Parents need to come up with a consistent disciplinary plan ahead of time, and then present a united front and continually review their strategies for potential changes and improvements as the Aspergers teen develops and matures.

Click here to read the full article…

How to Prevent Meltdowns in Aspergers Children

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But...

Don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

If your child suffers from Asperger’s Syndrome, expect him to experience both minor and major meltdowns over incidents that are part of daily life. He may have a major meltdown over a very small incident, or may experience a minor meltdown over something that is major. There is no way of telling how he is going to react about certain situations. However, there are many ways to help your child learn to control his emotions.

Click here for the full article...

Aspergers Children “Block-Out” Their Emotions

Parenting children with Aspergers can be a daunting task. In layman’s terms, Aspergers is a developmental disability that affects the way children develop and understand the world around them, and is directly linked to their senses and sensory processing. This means they often use certain behaviors to block out their emotions or response to pain.

Although they may vary slightly from person to person, children with Aspergers tend to have similar symptoms, the main ones being:

=> A need to know when everything is happening in order not to feel completely overwhelmed
=> A rigid insistence on routine (where any change can cause an emotional and physiological meltdown)
=> Difficulties with social functioning, particularly in the rough and tumble of a school environment
=> Obsessive interests, with a focus on one subject to the exclusion of all others
=> Sensory issues, where they are oversensitive to bright light, loud sounds and unpleasant smells
=> Social isolation and struggles to make friends due to a lack of empathy, and an inability to pick up on or understand social graces and cues (such as stopping talking and allowing others to speak)

Click here to read the full article…

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