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Aspergers Children & Picky Eating


Because of their sensitivity to smell, temperature, taste and texture, kids with Aspergers are often "picky" eaters. Some develop fetishes such as only eating beige-colored foods or foods with creamy textures. They often like very sour or very spicy tastes. Some develop chewing fetishes and as a result, they constantly suck on pens, pencils or times of clothing.

These kids also sometimes have issues with developing gastric problems such as acid reflux, hiccups, diarrhea, vomiting, or constipation. They are susceptible to celiac disease, which is caused by poor absorption of certain nutrients. The danger is that celiac disease damages the digestive system. Aspergers kids frequently suffer from Dermatitis herpetiformis, which causes skin rashes and tissue damage in the intestine. It has also been shown that gluten can aggravate behavioral symptoms in those with Aspergers that are sensitive to these foods.

It becomes a challenge for moms & dads to make sure their Aspergers kid gets proper nutrition. One trick that works for many moms & dads is to change the texture of a despised food. If your youngster will not eat peas, try serving pea soup. If she refuses orange juice, try orange slices. Most clinicians believe that the less you indulge food fetishes, the less entrenched they become. If an Aspergers kid creates a rule that "no foods can touch on my plate," it can easily become a lifelong rule if moms & dads do not intervene.

One promising food therapy is the "Gluten-Free Casein-Free Diet" or GFCF diet. The theory behind it is that a youngster with Aspergers cannot digest casein (found in dairy) or gluten (found in grains). It is true that undigested molecules of these substances frequently show up in their urine samples. These amino acid chains (called peptides) affect neurological function and can worsen a youngster's symptoms. Peptides may have an opiate effect on some kids.

Moms & dads begin the diet by first eliminating either the casein or the gluten food group. No gluten means no bread, barley, rye, oats, pasta, all kinds of flour, food starch, biscuits, cereals, cakes, donuts, pie, pretzels, pizza, croutons, and even crumbs stuck in the toaster. You can substitute gluten-free products. Next, you eliminate all dairy products including milk, cheese, goat's milk and cheese, ice cream, yogurt, most margarines, puddings, and so forth. If you eliminate the dairy group, you may have to give your youngster calcium supplements. You also need to cut out "trigger foods" including chocolate, food colorings, caffeine, and peanut butter. The GFCF Diet website offers all kinds of resources for moms & dads such as cookbooks, food products, and DVDs.

Many moms & dads believe that the GFCF diet really helps their kids. In an unscientific survey of over 2000 moms & dads who tried it, most saw significant improvement and five reported "miracles."

Research into diet and vitamin therapy for kids with Aspergers is very sketchy at this point. Nevertheless, many moms & dads try them. One scientific study of alternative therapies found that over half of all moms & dads of kids with autism spectrum disorders have tried diets, herbs or vitamin therapy and 72% felt they were worthwhile. Many moms & dads swear by the GFCF diet, others prefer the Feingold diet or megavitamin therapy. You can buy supplements of herbs and vitamins specifically made for kids with Aspergers. Such supplements often include calcium, fish oil, omega -3 -6 or -9, vitamin B-6, HNI enzymes and DMG or dimethylglycine. If you use these diets and therapies, the best thing to do is to keep written records of how often your youngster tantrums or exhibits other behaviors. This way you can tell if the therapy is working.

There have been a few scientific studies of the GFCF diet. In one three-month study of fifteen kids ages two to 15 years old, there was no difference between the kids who followed the diet and those who did not. However, researchers at the Loma Linda Medical Institute in California concluded that the diet was mostly helpful and improved nonverbal cognition, but that more double blind studies are needed.

Many moms & dads have tried the GFCF or Feingold diets and found that they were not worth the effort. These diets make it extremely hard to buy regular grocery foods or to eat in restaurants. If there are other kids, you end up cooking different meals for them. Trying to keep to the diets causes parental burnout and that may not be worth their benefits.

Can a Gluten-Free Diet Really Help?

A gluten-free, casein free diet is recommended for Aspergers kids and adults.

Often moms & dads feel rather overwhelmed with such a restrictive diet, and only opt to embrace it as a last resort. The results produced by the diet varies markedly - but the keyword here is RESULT. You can expect some result.

Kids with autistic spectrum disorders usually have gastrointestinal problems as well, such as reflux, constipation, diarrhea, vomiting and hiccups. It is know that the proteins found in wheat, rye, oats, barley and dairy products (gluten and casein) aren't completely broken down in kids with Autistic Spectrum Disorders. These undigested proteins can leak into the bloodstream, potentially interfering with neurological processes by having an opiate-like effect upon their systems.

It's suggested that these undigested proteins (peptides) can reach toxic levels, with the Asperger youngster seeming to "crave" milk and wheat products. Symptoms of gluten/casein intolerance include red cheeks and ears, dry skin, runny nose, headaches, hyperactivity, tantrums and malformed bowel movements. Does this sound familiar?

So what results can the diet produce? Moms & dads report a variety of outcomes, including - improved sleep patterns, improved speech and communication, improved focus or attention span, improved social skills, improved personal hygiene habits, improved fine motor skills, improved intestinal function, increase in affection shown, reduction of tantrums and irritability.

So a gluten-free, casein-free diet is definitely worth considering for your Asperger youngster. You don't have to feel overwhelmed by the restrictive nature of the diet. I suggest simply starting slowly and eliminating one group (either gluten or casein) at a time. Once you're comfortable without wheat or dairy products, then you can tackle the next element. If you see a desirable result from eliminating one component, you may decide not to go any further.

For our family simply substituting gluten-free flour in all recipes I used was a simple but highly effective action. I'm a home-baker, so in any cakes, biscuits, slices and desserts I just substituted gluten-free flour in my usual recipes. I didn't add any extras like Xantham gum, and didn't have any failures.

Finding an alternative to bread was our biggest obstacle. The gluten-free varieties just weren't the same, so instead we excluded bread altogether. The gluten-free pastas on the market are excellent, but do tend to cook slightly quicker.

I suggest you email all the major distributors of snack foods, such as muesli bars and fruit slices and ask for a list of their gluten-free products. This helps with easy identification at the store.

Eating out is difficult at first, but if you mention you're gluten-free most restaurant or cafe chefs will gladly prepare something gluten-free. (Of course, this rules out the fast food chains who aren't so obliging!)

For our family the diet finally eliminated all our son's known trigger foods such as peanut butter, chocolate and caffeine in sodas. We stayed on the diet strictly for 10 months before gradually reintroducing gluten. We have seen no return of the eliminated characteristics in our son . We have continued to use gluten-free pasta and flour in our cooking.

I believe that the gluten-free diet had a detoxifying effect not only on our Aspergers youngster, but on all of us, and the benefits have been obvious. So be adventurous and try a gluten-free/casein-free diet for your Aspergers youngster....you may be nicely surprised!

The Parenting Aspergers Resource Guide: A Complete Resource Guide For Parents Who Have Children Diagnosed With Aspergers Syndrome.

7 comments:

Anonymous said...

Sandra Hall This is so true, my son is 8 and will only eat with his hands and only processed foods n is a VERY fussy eater, he also still has a dummy, well 3 acually plus he has to have 3 rags which he cuddles constantly at home!
50 minutes ago · Like
Nicole Stader Smith GOOD INFO. BUT I DEFINATELY THINK THE MORE PARENTS ROLL OVER WHEN A KID SAYS THEY DON'T LIKE SOMETHING, IT BECOMES A SLIPPERY SLOPE. AND AN UPHILL BATTLE WHEN YOU COME TO YOUR SENSES AND REALIZE THE KID IS IN CHARGE.
46 minutes ago · Like
Amy Lewis Faircloth My 19 year old eats a specific Subway sandwich five days a week. At least he gets lettuce on it!
39 minutes ago · Like
Karen Gomez Vega my sons were extremely picky before going gluten and dairy free. we did this due to food intolerances but it did work in our case. my boys now eat a better variety of food but still not as much of variety as i would like. we do alot of pureeing fruits and veges here!

Anonymous said...

‎@Nicole--I used to think the same thing, until I realized my daughter might actually starve herself because I was too hard-headed to comply with her simple requests. "Rolling over" isnt the preferred path but it keeps the kiddos content at least for a little bit. Thats what we're in it for anyways, isnt it?

Anonymous said...

Rashea Gilliam my 7 year old son will only eat cereal for breakfast lunch and dinner and its starting to scare me. he will actually starve his self before he will eat anything else. he has always been tiny but his eating habits arnt helping. i have tried everything i can to get him to eat other things nothing works...i buy the gummy bear vitamins and he takes them fine thats all i can do
20 hours ago · Like
Stephanie Moore
My son is still a picky eater, but has come a LONG way. He will eat foods from all food groups. He received ABA therapy and I remember how hard it was to get him to eat one pea (it took almost a week and two trained therapists!) To this day he still hates peas but will eat green beans like crazy! He has become more willing to try new things in the past year and that's a huge accomplishment for him. He announced last summer that he wanted to try grilled corn and brocolli and we were speechless! I hesitate to try the gluten free thing unless it is proven to be medically necessary for his condition, but I'm certainly not putting down anyone who has had success with it.
20 hours ago · Like
Tracy Thomas I put adam on school dinners its helped Adam he still as a thing he has to smell the food first diary products he hates have to get milk down in a milk shake
19 hours ago · Like
Donna N Dean Roach
our 13 yr old aspergers son has just been diagnosed as coeliac(proven with a biopsy). He has always been sensitive to taste and texture of food usually only having one brand of the few foods he does eat. his fav foods are toast, biscuits and nuggets(all contain gluten) Does anyone have any suggestions in how we get him to at least try other foods or gluten free varieties? I know we have to get him off gluten but he has a meltdown over any new food.
7 hours ago · Like

Anonymous said...

My son craves carbs (breads, cereals) and sweets. We had to put him in OT when he was three because he wouldn't eat but maybe three things. He would literally gag and throw up at a pizza commercial or if I served certain foods for dinner. It is def a texture thing, but also anything the color of green he won't eat. It's very frustrating to have to make two different meals all the time (one for the family and one just for our son). OT helped with the food issue and he slowly began to increase the different types of food he would eat.

Anonymous said...

We tried the gluten-free route and did not see much of a difference, other than the outrageous cost to make gluten-free food. It was overwhelming to go grocery shopping and all that cooking only for our son to turn his nose up to the food anyway. We just try to make sure he is eating a healthy balance and encourage him to try new foods.

Anonymous said...

Vanessa Willis Really good to hear it from his point of view!
14 hours ago · Like
Holly Hoekstra Great to listen from this perspective!! TY
13 hours ago · Like
Deborah Clark
Yep, this story is all too familiar to me. My son is quite a challenge to feed! And when we visit a friend or relative, I always have to advise: The best bet is to keep it plain and simple. Don't add alot of seasonings, don't smother it with any sort of sauce, don't mix foods together, don't cut such and such this way or that, I know what food battles to fight and which are completely futile. Some say if he gets hungry enough he'll eat it....but my son WILL hold out on you and you can watch him get ill doing so. He has always refused rice and all legumes except for CREAMY peanut butter. He won't eat crunchy nuts or salad or uncooked carrots. Forget pie or any other desert that has a mixture of flavors or textures. Yep, he's a plain vanilla man! I know just how to prepare what fruits, vegetables, and meats he will eat. I make sure he eats a nutritionally balanced diet on a daily basis, so at some special occasion where I'm not in charge of the food I just ease up and let him get whatever (at least there is usually some plain bread he will eat) so everybody can have a nice time. As a parent sometimes you just have to adapt and work with it just a tad. For example, my son is famous for not liking Mexican food. But I have discovered that he will eat plain chicken fajita meat ordered a la carte and some plain flour tortillas. So when we go to a Mexican restaurant that is always what he gets....and everybody is happy. The way I view it is that nobody is standing over me forcing me to eat something I can't stand, so, while I do try to encourage my son to branch out a bit, I know when to give him slack.
13 hours ago · Like · 4 people
Cathryn Perrotti Larkin i don't even like my foods touching :) my son had portion rules- as he grew to 6 ft tall, he wasn't eating more to accommodate his growth spurt. it took many months to help him adjust to the proper caloric intake- he was skin and bones in the meantime.
12 hours ago · Like
Clair Collazo my son has always been like this hes 14 now and getting a little better..but can totally relate
12 hours ago · Like
Rebekah Sundvall
My son will only eat crunchy foods or foods that are pureed. I learned early on how to make smoothies with veggies. :) And yes I know all about him "holding out". He would rather starve and be sick then eat something with a weird texture. Sometimes at restaurants he just doesn't eat. I'm okay with that but some family members would rather give in and buy him a milkshake which is SO irritating. I turn my back for a second and he's holding an ice cream cone. Please, if you are reading this and you are a family member that under minds the mothers' wishes, PLEASE STOP you are not helping....done ranting now. :)
11 hours ago · Like · 1 person
Terrie Johnson Wolf
I love reading or hearing from other more vebal teens. My son has a hard time getting what is in his head out of his mouth - but he loves it when i find these little nuggets of asperger wisdom...It makes sense to me that he can only think of the taste of one food a time. I can't wait to ask him if that is what it is like for him, we are very sucessful at comimg up with plans once we know what his brain is saying and what his desires are saying. I might get a hug for this one! I am so thankful that everyone shares their experiences, so that other families can benefit.
4 hours ago · Like · 1 person

Anonymous said...

Shanna Dawson-Ferguson My son would go rather starve too than eat foods that are mushy.
August 8 at 11:57am · Like
Jessica Swift My daughter is 5 and she would rather starve than eat just about anything. She won't even drink milk-shakes or smothies. Basically she survives on pediasure!

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Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

The standard disciplinary techniques that are recommended for “typical” teenagers do not take into account the many issues facing a child with a neurological disorder. Violent rages, self-injury, isolation-seeking tendencies and communication problems that arise due to auditory and sensory issues are just some of the behaviors that parents of teens with Aspergers will have to learn to control.

Parents need to come up with a consistent disciplinary plan ahead of time, and then present a united front and continually review their strategies for potential changes and improvements as the Aspergers teen develops and matures.

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