“Should you discipline a child with Aspergers (high functioning) in the same way you would a child without the disorder? If not, what would you do differently?”
In many instances, a disciplinary technique would be the same for both the Aspergers/HFA and neurotypical child. But in a significant number of select areas, you will need to take a different approach due to the "special needs" child’s ASD-related symptoms (e.g., sensory sensitivities, mind-blindness, obsessions, etc.).
Here are most of the main points to consider when disciplining a child with Aspergers or High-Functioning Autism:
1. Attend local parent support group meetings, and join online support groups.
2. Avoid being over-protective. While your youngster does need you, he also needs his own sense of self and to be able to experience life as much as he can on his own.
3. Be patient and consistent. Due to developmental delays, kids on the autism spectrum may require more exposure to discipline before they begin to understand expectations. You must follow through and apply discipline each time there is an incident in order to effectively send your message.
4. Choose a method of discipline appropriate to the level of the outburst and to the youngster in question. Planned ignoring, giving a time-out, and removing privileges or activities important to the youngster are all potential options. Aspergers and HFA kids may require a shorter time-out period and consequences given in smaller doses, especially where their attention spans are affected by their disorder.
5. Communicate your expectations. Before you enter a store, transition from one activity to another, or approach a situation where behavior may deteriorate, discuss with the youngster what will happen, review your family rules, and remind the youngster of the consequences of misbehavior. For Aspergers and HFA kids, this information may need to be broken down into a few very simple instructions and repeated often.
6. Create an environment that encourages your youngster to make the right choices, whether it be by providing a picture schedule, using verbal reminders, or retelling the stories about appropriate behaviors.
7. Decide on one or two motivators, or positive rewards, and one or two consequences, or negative actions. Motivators might include earning story time, candy, dessert or a new toy. Consequences might include a stern warning, timeout, removal of toys, or an extra chore. Your goal is to encourage your youngster to follow the rules, but at the same time, prepare yourself to provide discipline if she does not.
8. Develop a list of positive behaviors you want to encourage and negative behaviors you want to discourage. Your list should reflect your youngster's abilities and limitations, rather than focusing on age-appropriate activities. Consider self-care tasks, manners and chores. For some kids, the behaviors might be simple and include things like eye contact when spoken to, pointing instead of yelling and not throwing things. For other kids, the list might include several daily chores, a respectful tone of voice, and following a bedtime routine.
9. Develop a plan of action before a behavioral incident occurs. Consider possible settings where you may face an outburst, your reaction, the youngster's needs and response, and the consequences you may use to stop or alter the behavior. Kids on the spectrum may have unusual behavioral triggers, so it is important to know the youngster in question when developing your plan and to be flexible in your approach.
10. Difficult behavior usually serves a purpose for your youngster. Once you identify the desire, you may learn how to prevent the behavior and replace it with something more appropriate. For example, the desire may be to gain attention or obtain something, or avoid or escape from an unpleasant situation. Traditional forms of discipline are not effective with an Aspergers or HFA youngster who is displaying difficult behavior. The youngster may not simply seek approval or understand anger from another person, so your reaction to the behavior may have little impact. It is always important to look at what motivates and interests each youngster and to assist the youngster to communicate her needs, anxieties and frustration in acceptable ways. Assistance through behavioral services, role play and modeling may be necessary.
11. Don’t be afraid to discipline while out in the community.
12. Don’t feel guilty if you are not 100% consistent.
13. Educate yourself about all the aspects of Aspergers and High-Functioning Autism.
14. Establish a safety net of support around yourself.
15. Explain the disorder to siblings and encourage them to ask you questions about the disorder.
16. For kids on the spectrum, it is important that the consequence or reward immediately follow the behavior to have the greatest effect and opportunity to teach.
17. Give equal attention to positive behaviors as you give to negative behaviors. This will help the youngster recognize what to do – as well as what not to do.
18. Give your youngster choices appropriate to her age and development. Having the opportunity to make choices will help her feel important while learning to feel responsible for areas in her life.
19. Have a set community outing each week that occurs just for “teaching” and practicing good behavior.
21. If the day’s routine is not typical, plan to surround the youngster with as many familiar items (e.g., favorite songs, books, toys, etc.) to help him feel as comfortable as possible in unusual circumstances.
22. Implement negative consequences for poor choices and noncompliance with a calm, yet assertive voice. Do not feel anxious or guilty about implementing a consequence. You are helping to teach your youngster how to function successfully within society. To deny kids with an autism spectrum disorder these consequences would deny their development into responsible grown-ups.
23. Increase supervision and structure.
24. Increase your efforts to “catch your child being good.”
25. It’s okay to “bribe.”
26. It’s okay to say, “No.”
27. Moms and dads can help to reduce their kid’s misbehavior by anticipating difficult moments in the day. Transitions are often difficult for kids on the spectrum. The unpredictability of change can make a youngster feel uneasy, even fearful. Knowing what to expect can help eliminate unnecessary stress. All kids crave structure, and knowing what comes next provides comfort. Simply being aware of a daily schedule can help a youngster adjust between two activities.
28. Provide opportunities for your youngster to do things the right way. Clearly explain what you expect. Role-play the correct behaviors or make up a social story about the correct choices you expect your youngster to make.
29. Realize that kids with Aspergers and HFA come with all sorts of personalities, temperaments, abilities, likes, and dislikes. While they come with their own set of challenges, they are also armed with some tremendous qualities.
30. Recruit some help from your other children. Ask the neurotypical siblings for help with their Aspergers sibling. Give them a role (e.g., helping the autistic youngster with homework).
31. Solve any medical or sleep problems.
32. Teach the youngster the importance of responsibility, self-control, and positive behaviors. As a parent of a youngster with Aspergers or HFA, your job is to arm your youngster with these tools so he can live a productive life where he can discipline himself as much as possible.
33. Teach your youngster responsibility by giving certain chores he is responsible for. By doing this, you’ll give him a sense of accomplishment, value, and self-worth.
34. When considering how to discipline kids on the spectrum, it is important to provide structure appropriate to your youngster’s age and developmental stage. This is critically important as you want to discipline your youngster depending on their ability and understanding, and not strictly on their chronological age.
35. When disciplining your youngster, show her value by not focusing on the disorder, but on her “self.”
36. When your youngster is displaying an undesirable behavior, consider the fact that the behavior could indicate a need. Evaluate each behavior to see if there is anything you can do to help the youngster in this area.
37. Work on simple directions and following them every day.
38. Kids with Aspergers and HFA are concrete, literal thinkers and have difficulty communicating both verbally and non-verbally. Being unable to express or receive messages can lead to frustration and anger. Here are some points to consider:
Give and receive messages using a variety of communication methods (e.g., written, verbal, gesture, or visual cues).
Use clear, simple and precise language when giving instructions; start with one word and gradually move on to more complex sentences.
Try to phrase requests in a positive way, stating what you want rather than what you don’t want.
Use activity schedules to assist the youngster in following daily routines.
Provide a structure and routine this assists the youngster in knowing what to expect.
39. Kids with Aspergers and HFA have difficulty understanding social rules and interpreting the feelings and emotions of others. Physical space and/or contact with others may cause anxiety. Here are some points to consider:
Reinforce the use of appropriate verbal or facial expressions of feelings and emotions.
Rehearse social rules in different settings.
Have clear consequences for inappropriate social behavior.
Actively teach social behaviors through role play and presentation.
40. These young people can become very confused when routines change. They may also know what is expected in one situation, but may not be able to transition this knowledge to another, related situation. Here are some points to consider:
Identify danger, being prepared, and transition between activities.
Provide clear signals to specify the start and finish of an activity.
Teach the same skill in different settings.
Use effective communication to warn of unexpected changes to routine.
Using a variety of communication methods, explain rules that apply to each situation encountered.
More resources for parents of children and teens with High-Functioning Autism and Asperger's:
Thank you. I love reading your blog. No 25 its ok to bribe, thank god, my son isn't keen to do things sometimes unless there is something in it for him! Reading this makes me feel so much better. I have never had any help, the only thing that made me feel like I have been dealing with it ll in the right way was my sons doctor, he told me that it sounds like we cope well! Nice to hear but it never feels like that.
Unknown said...
My brother is 24 with this syndrome. I have a 1&2 year old who live in the home with us. He seems to hate them even though I know that in not the case. He doesn't want them to touch him or be around him at times. He destroys their toys and can never really give a clear answer to why he was mad other than he just did not want the object in his room. He does not like being around the kids but I know he wants to spend time with everyone else in the home. Is there a particular reason why he is like this with the toddlers?
"My son with autism (high functioning) often has very little sympathy or compassion for his younger brother, sometimes bordering on emotional abuse. Any tips or tricks that can assist in this situation would be greatly appreciated!"
The lack of demonstrated empathy is possibly the most dysfunctional aspect of Aspergers and High Functioning Autism (HFA). Children, teens, and even adults with this disorder experience difficulties in basic elements of social interaction, which may include:
lack of social or emotional reciprocity (e.g., social "games," give-and-take dynamics)
failure to seek shared enjoyments or achievements with others (e.g., showing others objects of interest)
failure to develop friendships
Empathy is one of the foundational moral emotions. It is linked to moral action. It’s a feeling that compels individuals to act compassionately while reasoning alone might not. Kids who don’t develop empathy can become callous grown-ups, oblivious to the hurt and pain they leave in their wake.
Empathy is not something that matures on its own—it must be learned. Moms and dads play an important role in helping their special needs kids acquire empathy by guiding them toward it from infancy, by acting as an “emotion coach,” and by setting an example of empathetic behavior.
While some Aspergers and HFA kids seem to develop empathy more naturally than others, all young people with this disorder need help for this skill to grow. Moms and dads should begin teaching them as early as possible. Kids as young as 18 months can be taught empathy. In fact, some experts say that kids display empathetic responses as early as infancy. Although it may take many years for a youngster’s empathy to mature, starting “empathy training” early does two important things: (a) it creates a seamless transition from understanding verbal instructions to later being able to act, and (b) it gets moms and dads into the habit of noticing teaching moments and seizing them.
Parents with children on the spectrum will need to teach them to “put themselves in some else’s shoes” (so to speak), because this is not a skill that comes naturally to them. Below are the methods to employ in order to achieve this task:
1. Children on the autism spectrum are more likely to show empathic concern for others if they have moms and dads who help them cope with negative emotions in an empathetic, problem-solving-oriented way.
2. These young people may benefit from explicit coaching. In one study, three autistic children watched a grown-up describe how he figured out what another character would think and do next (e.g., “These footprints are a clue. He’ll follow these footprints to the treasure chest and open it up”). The strategy helped these children solve similar problems on their own.
3. Be empathetic yourself in your parenting. While having patience with small kids can be difficult, it’s important to stay as calm as you can when they misbehave. If your youngster does something you don’t like, it’s not helpful to yell. That teaches them that yelling is an acceptable way to handle feelings.
4. Create an open atmosphere in your home so that your kids feel welcome to talk about their experiences, both positive and negative. As they talk to you, behave empathetically by working to understand their feelings, expressing that understanding to them, and by giving them nonverbal cues (e.g., leaning in and nodding) that say you are actively listening.
5. Employ role-playing games. In one study, researchers asked young medical students to simulate the difficulties of old age. For example, students wore goggles covered with transparent tape to simulate the effects of cataracts. To experience poor motor control, the students wore heavy rubber gloves. After the experiment, the students showed greater empathy towards the elderly.
6. Encourage older kids to become tutors or mentors. Tutors learn that they can’t help very well unless they first learn about the needs and feelings of those they tutor.
7. Help your son or daughter to learn about emotions in general. Young kids feel all of the emotions that grown-ups feel (e.g., frustration, disappointment, sadness, etc.), but they lack experience identifying, labeling, and managing those feelings. When moms and dads help their special needs kids name what they feel, these kids can more easily make sense of their emotional world.
8. Help children develop a sense of morality that depends on internal self-control, not on rewards or punishments. Aspergers and HFA children are capable of being spontaneously helpful and empathetic. But studies have shown that children become less likely to help others if they are given material rewards for doing so. Other studies have shown that children are more likely to develop an internal sense of right and wrong if they are raised with authoritative discipline (i.e., an approach that emphasizes rational explanations and moral consequences, not arbitrary rules and heavy-handed punishments).
9. Help children explore other roles and perspectives. Empathy involves “perspective-taking” (i.e., what the world is like when experienced from another person’s point of view). Stories from books or television are opportunities for children to practice perspective-taking skills. What do the characters think, believe, want, or feel? And how do we know it? When parent and child discuss these questions, children may learn a lot about the way that other people’s minds work. Studies show a link between such family conversations and kid’s performance on perspective-taking tasks.
10. Helping kids develop empathy through service. Through bringing relief to someone who is suffering, kids can come to understand the depths of that suffering. For example, they can hand out blankets and hot tea to homeless families on a particularly cold winter's day, or they can help a recently widowed neighbor by raking her yard or taking her trashcans out. By performing acts of kindness, whether at school, in the family or in the community, kids can't help but think about the hard luck of those they help. When they do, they're sure to think about how it would feel to be in a similar situation.
11. Moms and dads who are “mind-minded” treat their children as individuals with minds of their own. They also talk to their kids about emotional and mental states, and discuss the ways that our beliefs, desires, and emotions motivate behavior.
12. Point out to your youngster both similarities and differences between him and other kids. Understanding the ways that others are like him can help him behave empathetically. Knowing that others are different helps him perceive that what helps one person feel better might not help another person.
13. Remember that children on the spectrum are more likely to develop a strong sense of empathy when their own emotional needs are being met at home.
14. Search for opportunities to model empathetic feelings for other people. By modeling empathic behavior and pointing out situations that call for empathy, moms and dads can generate empathetic responses in their children (e.g., if you and your youngster see someone being victimized on a television show, talk with your youngster about how that person must feel).
15. Show children how to “make a face” while they try to imagine how someone else feels. Studies show that simply “going through the motions” of making a facial expression can make us experience the associated emotion. We can “boost” our empathic powers by imitating the facial expressions of people we want to empathize with.
16. Teach children to follow the motto, "If it feels wrong inside, it's good for no one." This helps them keep their motives sincere and pure.
17. Teach your kids about people who are models of empathy (e.g., Mother Teresa, Mahatma Gandhi, etc.).
18. Teaching kids empathy by not criticizing the unfortunate. Criticizing people with imperfections sends our kids a message that the shortcomings of others are intentional and exclusive to everyone else but us. They learn to criticize others for not correcting those flaws, even when the flaws can't be changed, and to react negatively to imperfect people rather than respond with empathy and compassion.
19. Use "I messages" to teach empathy. When we use "I messages," we send a loud and clear signal: "Understand how I'm feeling right now, please!" For example, a comment like, "I get frustrated when someone walks on my freshly mopped floor with muddy shoes," may jump-start some internal dialogue that makes our kids consider what we are going through and what they should do to make things better.
20. When Aspergers and HFA children have secure attachment relationships (i.e., they can count on their caregivers for emotional and physical support), they are more likely to show empathy and offer help to other children in distress.
Empathy is one of the greatest lessons we can teach to our autistic kids, because it helps them see the good in those around them. If we work hard to raise empathetic kids, they'll develop a sense of inner strength that will protect them against outside influences that pressure them to make the wrong choices.
More resources for parents of children and teens with High-Functioning Autism and Asperger's:
"We have recently learned that our daughter has (or might have) High-Functioning Autism, and we're wondering about what comes next. We were not prepared to hear that she is anything other than happy and healthy, and this diagnosis is particularly worrisome."
You may be unsure about how to best help your youngster or confused by conflicting treatment advice. Also, you may have been told that High-Functioning Autism (HFA) is an incurable, lifelong condition, leaving you concerned that nothing you do will make a difference.
While it is true that HFA is not something a child simply "grows out of," there are many treatments that can help kids learn new skills and overcome a wide variety of developmental challenges. From free government services to in-home behavioral therapy and school-based programs, assistance is available to meet your youngster's special needs. With the right treatment plan, and a lot of love and support, your youngster can learn, grow, and thrive.
Here is a comprehensive list of things to consider:
1. Accept your youngster, quirks and all. Rather than focusing on how your HFA youngster is different from other kids and what he or she is “missing,” practice acceptance. Enjoy your kid’s special quirks, celebrate small successes, and stop comparing your youngster to others. Feeling unconditionally loved and accepted will help your youngster more than anything else.
2. Be consistent. Kids with High-Functioning Autism have a hard time adapting what they’ve learned in one setting (e.g., a therapist’s office or school) to other settings, including the home. Creating consistency in your youngster’s environment is the best way to reinforce learning. Find out what your youngster’s therapists are doing and continue their techniques at home. Explore the possibility of having therapy take place in more than one place in order to encourage your youngster to transfer what he or she has learned from one environment to another. It’s also important to be consistent in the way you interact with your youngster and deal with challenging behaviors.
3. Become an expert on your youngster. Figure out what triggers your kid’s “bad” or disruptive behaviors and what elicits a positive response. What does your HFA youngster find stressful? Calming? Uncomfortable? Enjoyable? If you understand what affects your youngster, you’ll be better at troubleshooting problems and preventing situations that cause difficulties.
4. Caring for a youngster with High-Functioning Autism can demand a lot of energy and time. There may be days when you feel overwhelmed, stressed, or discouraged. Parenting isn’t ever easy, and raising a youngster with HFA is even more challenging. It’s essential that you take care of yourself in order to be the best mother or father you can be. Don’t try to do everything on your own. You don’t have to! There are many places that families of HFA children can turn to for advice, a helping hand, advocacy, and support.
5. Create a home safety zone. Carve out a private space in your home where your youngster can relax, feel secure, and be safe. This will involve organizing and setting boundaries in ways he can understand. Visual cues can be helpful (e.g., colored tape marking areas that are off limits, labeling items in the house with pictures). You may also need to safety proof the house, particularly if he is prone to tantrums or other self-injurious behaviors.
6. Don’t give up. It’s impossible to predict the course of High-Functioning Autism. Don’t jump to conclusions about what life is going to be like for your youngster. Like everyone else, people with High-Functioning Autism have an entire lifetime to grow and develop their abilities.
7. Don’t wait for a diagnosis. As the mother or father of a youngster with High-Functioning Autism or Asperger’s Syndrome, the best thing you can do is to start treatment right away. Seek help as soon as you suspect something’s wrong. Don't wait to see if your youngster will catch up later or outgrow the problem. Don't even wait for an official diagnosis. The earlier kids with HFA get help, the greater their chance of treatment success. Early intervention is the most effective way to speed up your youngster's development and reduce the symptoms of HFA.
8. Every mother or father needs a break now and again. And for moms and dads coping with the added stress of High-Functioning Autism, this is especially true. In respite care, another caregiver takes over temporarily, giving you a break for a few hours, days, or even weeks.
9. Figure out the need behind the temper tantrum. It’s only natural to feel upset when you are misunderstood or ignored, and it’s no different for kids with High-Functioning Autism. When kids with High-Functioning Autism act out, it’s often because you’re not picking up on their nonverbal cues. Throwing a tantrum is their way communicating their frustration and getting your attention.
10. If stress, anxiety, or depression is getting to you, you may want to see a therapist of your own. Therapy is a safe place where you can talk honestly about everything you’re feeling—the good, the bad, and the ugly. Marriage or family therapy can also help you work out problems that the challenges of life with an HFA youngster are causing in your spousal relationship or with other family members.
11. HFA infants and toddlers through the age of two can receive assistance through the Early Intervention program. In order to qualify, your youngster must first undergo a free evaluation. If the assessment reveals a developmental problem, you will work with early intervention treatment providers to develop an Individualized Family Service Plan (IFSP). An IFSP describes your youngster’s needs and the specific services he or she will receive. For High-Functioning Autism, an IFSP would include a variety of behavior, physical, speech, and play therapies. It would focus on preparing HFA children for the eventual transition to school. Early intervention services are typically conducted in the home or at a childcare center. To locate local early intervention services for your youngster, ask your doctor for a referral.
12. Joining a support group is a great way to meet other families dealing with the same challenges you are. Moms and dads can share information, get advice, and lean on each other for emotional support. Just being around others in the same boat and sharing their experience can go a long way toward reducing the isolation many moms and dads feel after receiving the youngster’s diagnosis.
13. Keep in mind that no matter what treatment plan is chosen, your involvement is vital to success. You can help your youngster get the most out of treatment by working hand-in-hand with the treatment team and following through with the therapy at home.
14. HFA kids over the age of three may receive assistance through school-based programs. As with early intervention, special education services are tailored to your youngster’s individual needs. Kids with HFA are often placed with other developmentally-delayed children in small groups where they can receive more individual attention and specialized instruction. However, depending on their abilities, they may also spend at least part of the school day in a regular classroom. The goal is to place children in the least restrictive environment possible where they are still able to learn. If you’d like to pursue special education services, your local school system will first need to evaluate your youngster. Based on this assessment, an Individualized Education Plan (IEP) will be created. An IEP outlines the educational goals for your youngster for the school year. Additionally, it describes the special services or aids the school will provide your youngster in order to meet those goals.
15. Learn about High-Functioning Autism. The more you know about HFA, the better equipped you’ll be to make informed decisions for your youngster. Educate yourself about the treatment options, ask questions, and participate in all treatment decisions.
16. Look for nonverbal cues. If you are observant and aware, you can learn to pick up on the nonverbal cues that kids with High-Functioning Autism use to communicate. Pay attention to the kinds of sounds they make, their facial expressions, and the gestures they use when they’re tired, hungry, or want something.
17. Make time for fun. A youngster coping with High-Functioning Autism is still a kid. For kids and their moms and dads, there needs to be more to life than therapy. Schedule playtime when your youngster is most alert and awake. Figure out ways to have fun together by thinking about the things that make her smile, laugh, and come out of her shell. Your youngster is likely to enjoy these activities most if they don’t seem therapeutic or educational. There are tremendous benefits that result from your enjoyment of your youngster’s company and from her enjoyment of spending un-pressured time with you. Play is an essential part of learning and shouldn’t feel like work.
18. Pay attention to your youngster’s sensory sensitivities. Many kids with High-Functioning Autism are hypersensitive to light, sound, touch, taste, and smell. Other kids are “under-sensitive” to sensory stimuli. Figure out what sights, sounds, smells, movements, and tactile sensations trigger your kid’s “bad” or disruptive behaviors and what elicits a positive response. What does your HFA youngster find stressful? Calming? Uncomfortable? Enjoyable? If you understand what affects your youngster, you’ll be better at trouble-shooting problems, preventing situations that cause difficulties, and creating successful experiences.
19. Reward good behavior. Positive reinforcement can go a long way with kids with High-Functioning Autism, so make an effort to “catch them doing something good.” Praise them when they act appropriately or learn a new skill, being very specific about what behavior they’re being praised for. Also look for other ways to reward them for good behavior (e.g., giving them a sticker, letting them play with a favorite toy, etc.).
20. Stick to a schedule. Kids with High-Functioning Autism tend to do best when they have a highly-structured schedule or routine. This goes back to the consistency they both need and crave. Set up a schedule for your youngster, with regular times for meals, therapy, school, and bedtime. Try to keep disruptions to this routine to a minimum. If there is an unavoidable schedule change, prepare him for it in advance.
21. Under the U.S. federal law known as the Individuals with Disabilities Education Act (IDEA), kids with disabilities—including those with HFA—are eligible for a range of free or low-cost services. Under this provision, kids in need and their families may receive:
assisted technology devices
medical evaluations
parent counseling and training
physical therapy
psychological services
speech therapy
other specialized services
Kids under the age of 10 do not need a diagnosis to receive free services under IDEA. If they are experiencing a developmental delay, including delays in communication or social development, they are automatically eligible for early intervention and special education services.
22. With so many different treatments available, it can be tough to figure out which approach is right for your youngster. Making things even more complicated, you may hear different or even conflicting recommendations from other moms and dads – and even doctors. When putting together a treatment plan for your youngster, keep in mind that there is no single treatment that will work for everyone. Each child with High-Functioning Autism is unique, with different strengths and weaknesses.
23. Your youngster’s treatment should be tailored according to his or her individual needs. You know your youngster best, so it’s up to you to make sure those needs are being met. You can do that by asking yourself the following questions:
How does my youngster learn best (e.g., through seeing, listening, or doing)?
What are my youngster’s strengths?
What are my youngster’s weaknesses?
What behaviors are causing the most problems?
What does my youngster enjoy and how can those activities be used in treatment?
What important skills is my youngster lacking?
24. Know that a good treatment plan will:
Actively engage your youngster's attention in highly structured activities
Build on your youngster's interests
Offer a predictable schedule
Provide regular reinforcement of behavior
Involve the moms and dads
Teach tasks as a series of simple steps
25. Know your youngster’s rights. As the mother or father of an HFA youngster, you have a legal right to:
Seek an outside evaluation for your youngster
Request an IEP meeting at any time if you feel your youngster’s needs are not being met
Invite anyone you want—from a relative to your youngster’s doctor—to be on the IEP team
Free or low-cost legal representation if you can’t come to an agreement with the school
Disagree with the school system’s recommendations
Be involved in developing your youngster’s IEP from start to finish
More resources for parents of children and teens with High-Functioning Autism and Asperger's:
"How can I help my daughter (high functioning autistic) to better understand non-verbal cues such as facial expressions and body language?"
“Flat affect” is a term used to describe a lack of emotional reactivity. It is manifest as a failure to express feelings – either verbally or non-verbally – especially regarding issues that would normally be expected to engage the emotions.
With a flat affect, expressive gestures are rare, and there is little animation in facial expression or vocal inflection. A person with flat affect has no – or nearly no – emotional expression. He or she may not react at all to circumstances that usually evoke strong emotions in others.
Many kids with Aspergers and High-Functioning Autism (HFA) have a flat affect. Their facial expressions are fixed or “artificial” in appearance instead of naturally animated. The youngster may not laugh or smile unless cued to do so in an appropriate situation, or he may appear to have a collection of rehearsed or “canned” reactions to match certain circumstances (which, by the way, is actually a real strength).
The youngster’s way of talking may also seem “flat” and monotone. In other words, his words may sound robotic and carefully measured, or there may be a lilting tone to his voice (described by some as “sing-song”) in which his speech sounds as if it's bouncing up and down when he talks.
Many young people on the autism spectrum have internal feelings that may or may not be reflected on their face. But it's important that they provide natural, spontaneous expressiveness – and recognize facial expressions in others – because facial expressions are a form of non-verbal communication essential to interpersonal relationships.
Reading facial expressions is important for social success. An inability to read facial and social cues makes “connecting” to others very difficult. Learning to translate and digest the meanings of different facial expressions can help determine other people's needs and foster true communication.
Parents can teach their special needs children how to be more expressive, and they can teach the meaning of facial expressions in others.
In teaching the child how to express himself “facially,” parents can model different emotions and the corresponding facial expression (e.g., how being “surprised” may look with raised eyebrows and eyes wide opened). Then, parents can have the child practice such facial expressions while she looks at herself in the mirror.
One method to teach the meaning of facial expressions in others is to use photographs that depict different facial expressions. Here are some other ways to teach your child to “read” facial expressions:
1. Teach your child the different modes of facial expression. Start with the building block basics (e.g., what does anger, disgust or surprise look like?). Realize that one building block of reading facial expressions is to discern that the words being spoken may not necessarily reflect the true inner emotions.
2. Teach your child to listen carefully to whatever words are said, but to examine the overall body and facial language (e.g., clenched teeth, angry piercing eyes, or a set, hard mouth). Some people have subtle tics that worsen under stress.
3. Teach your child to look for overly-intensive stares (e.g., overcompensation, rapid blinking, or small smirks in the face). Kids, especially, can’t help but smile a little when thinking that they are "getting away with it." Liars will either avoid direct eye contact or overcompensate by looking you right in the eyes to assure you of their "sincerity."
4. Reading fear in faces can be discerned, even on a subtle level. Pupils will dilate, the person's breathing will become deeper, the mouth will open wider to take in air, and the eyes will wander around much more than usual.
5. Teach that some people hide many of their true feelings under social discourse, from trying to protect others from negative emotions, to out-and-out deception. Often, the words do not match the emotions being conveyed.
6. Review facial expressions that signify emotions of happiness, including people with a wide open stare, who move in closer, show an unaffected smile, or relax their eyebrows. Playing with hair is a positive sign for women. So is sitting up straight and extending a hand with an honest smile. This shows the person is receptive, not closing themselves away. Eye contact is increased and hands are open.
7. Teach how body language plays into facial expressions. Many body positions tell more than what the speaker is saying (e.g., folding the arms across the chest, even while smiling and saying nice words, is a known "on guard" position). The opposite posture, then, is someone sitting with legs spread out, slouched in a relaxed position.
8. Teach your child to look at people’s eyes. For many people, the eyes reveal the emotions behind the words. Even if a person is angry and hiding it with polite words, a wrinkling at the edges (with the eyes held at half mast) tells a different story. So does the smile on a sad person trying to hide their tears in public, but is looking away. Teach to read these cues.
9. Teach your child to be careful not to stare too intently while seeking to read someone's facial expressions.
10. There are many tests online in which you can teach and practice discernment of facial expressions.
11. To your child to watch for the “con man” who can be far more skilled at hiding true emotions and manipulating facial expressions. Often, this overcompensation translates into lack of affect (emotion).
12. Watch foreign movies with your child to teach “facial reading” skills. Study how the actors respond to different activities and situations. This is a way to "see" each emotion, because unless the movie is subtitled, you'll be concentrating on nonverbal signals instead of dialogue.
Resources for parents of children and teens on the autism spectrum:
“What kind of treatment has had the best outcome for children with autism - high functioning? I’m new to the world of Autism Spectrum Disorders, and I want the best for my child.”
The type of treatment that will have the best outcome varies from child to child depending on his or her symptoms and level of functioning. The most important factor is early intervention. Research shows that early intervention treatment can greatly improve a youngster’s development. Early intervention services help kids from birth to 3-years-old learn important skills. Services include therapy to help the youngster talk, walk, and interact with others. Therefore, it is important for parents to talk to their youngster’s doctor as soon as possible if they think their son or daughter has Aspergers or High-Functioning Autism (HFA).
Even if the youngster has not been diagnosed with the disorder, he or she may be eligible for early intervention treatment services. The Individuals with Disabilities Education Act (IDEA) says that kids under the age of 36 months who are at risk of having developmental delays may be eligible for services. These services are provided through an early intervention system in your state. Through this system, you can ask for an evaluation.
In addition, treatment for particular symptoms (e.g., speech therapy for language delays) often does not need to wait for a formal diagnosis. While early intervention is extremely important, intervention at any age can be helpful.
There are many different types of treatments available:
anti-yeast therapy
auditory training
discrete trial training
facilitated communication
music therapy
occupational therapy
physical therapy
sensory integration therapy
vitamin therapy
The different types of treatments can generally be broken down into the following categories:
According to reports by the American Academy of Pediatrics and the National Research Council, behavior and communication approaches that help kids with ASD are those that provide structure, direction, and organization for the youngster in addition to family participation.
A notable treatment approach for children on the autism spectrum is called applied behavior analysis (ABA). ABA has become widely accepted among doctors and used in many schools and treatment clinics. ABA encourages positive behaviors and discourages negative behaviors in order to improve a variety of skills. The youngster’s progress is tracked and measured.
There are different types of ABA. Following are some examples:
1. Verbal Behavior Intervention (VBI): VBI is a type of ABA that focuses on teaching verbal skills.
2. Pivotal Response Training (PRT): PRT aims to increase a youngster’s motivation to learn, monitor his own behavior, and initiate communication with others. Positive changes in these behaviors should have widespread effects on other behaviors.
3. Early Intensive Behavioral Intervention (EIBI): This is a type of ABA for very young kids with HFA, usually younger than five, and often younger than three.
4. Discrete Trial Training (DTT): DTT is a style of teaching that uses a series of trials to teach each step of a desired behavior or response. Lessons are broken down into their simplest parts and positive reinforcement is used to reward correct answers and behaviors. Incorrect answers are ignored.
Other therapies that can be part of a complete treatment program for a youngster with HFA and Aspergers include:
1. Treatment and Education of Autistic and related Communication-handicapped Kids (TEACCH): TEAACH uses visual cues to teach skills. For example, picture cards can help teach a youngster how to get dressed by breaking information down into small steps.
2. The Picture Exchange Communication System (PECS): PECS uses picture symbols to teach communication skills. The person is taught to use picture symbols to ask and answer questions and have a conversation.
3. Speech Therapy: Speech therapy helps to improve the person’s communication skills. Some children are able to learn verbal communication skills. For others, using gestures or picture boards is more realistic.
4. Sensory Integration Therapy: Sensory integration therapy helps the person deal with sensory information, like sights, sounds, and smells. Sensory integration therapy could help a youngster who is bothered by certain sounds or does not like to be touched.
5. Occupational Therapy: Occupational therapy teaches skills that help the person live as independently as possible. Skills might include dressing, eating, bathing, and relating to children.
6. Developmental, Individual Differences, Relationship-Based Approach (DIR; also called "Floortime"): Floortime focuses on emotional and relational development (feelings, relationships with caregivers). It also focuses on how the youngster deals with sights, sounds, and smells.
Some dietary treatments have been developed by reliable therapists. But many of these treatments do not have the scientific support needed for widespread recommendation. An unproven treatment might help one youngster, but may not help another.
Many biomedical interventions call for changes in diet. Such changes include removing certain types of foods from a youngster’s diet and using vitamin or mineral supplements. Dietary treatments are based on the idea that food allergies or lack of vitamins and minerals cause symptoms of HFA and Aspergers. Some moms and dads feel that dietary changes make a difference in how their youngster acts or feels.
If you are thinking about changing your youngster’s diet, talk to the doctor first. Or talk with a nutritionist to be sure your youngster is getting important vitamins and minerals.
Although there are no medications that can cure Aspergers or High-Functioning Autism - or treat the core symptoms, there are some that can help children with the disorder to function better (e.g., help managing high energy levels, inability to focus, depression, seizures, etc.). Also, the U.S. Food and Drug Administration has approved the use of risperidone and aripiprazole (antipsychotic drugs) to treat kids on the spectrum who experience severe tantrums, aggression, and self-injurious behaviors.
Medications might not affect all kids in the same way. It is important to work with a doctor who has experience in treating kids with HFA and Aspergers. Moms and dads and doctors must closely monitor a youngster's progress and reactions while he or she is taking a medication to be sure that any negative side effects of the treatment do not outweigh the benefits.
It is also important to remember that kids on the spectrum can get sick or injured just like kids without the disorder. Regular medical and dental exams should be part of a youngster’s treatment plan. Often it is hard to tell if a youngster’s behavior is related to the disorder or is caused by a separate health condition. For example, head-banging could be a symptom of the HFA, or it could be a sign that the youngster is having headaches. In those cases, a thorough physical exam is needed. Monitoring healthy development includes paying attention to symptoms related to the disorder as well as the youngster’s physical and mental health.
To relieve the symptoms of HFA and Aspergers, some moms and dads and doctors use treatments that are outside of what is typically recommended by the doctor. These types of treatments are known as complementary and alternative treatments (CAM). They might include special diets, chelation (i.e., a treatment to remove heavy metals like lead from the body), biologicals (e.g., secretin), or body-based systems (e.g., deep pressure). These types of treatments are very controversial. Current research shows that as many as one third of moms and dads with autistic kids may have tried complementary or alternative medicine treatments, and up to 10% may be using a potentially dangerous treatment. Before starting such a treatment, check it out carefully, and talk to your youngster’s doctor.
More resources for parents of children and teens with High-Functioning Autism and Asperger's:
.jpg)
