Aspergers Teens and "Sex Education"

Question

How should I approach the topic of sexuality with my 13-year-old Aspergers son?

Answer

The subjects of puberty, relationships, and sexuality are major sources of anxiety for teens with Aspergers (high functioning autism). Sexuality is often a tough subject for moms and dads to negotiate, as well. They often take a neutral position with these topics, hoping their kids learn about relationships by example and that the heavier, difficult topics are taught in school health class. While this approach does not always end poorly, it is a recipe for disaster when Aspergers is involved.

Teaching your teenager with Aspergers sexuality and puberty information is crucial. This is not information you want him to learn from his classmates, or worse, by doing his own Internet searches. Mother/fathers of kids with Aspergers should start with the very basics of sexuality, and move on to dating and relationships, since the social ability of a person is so intertwined with their sexuality.

Here are several important points to consider when teaching your youngster with Aspergers sexuality, puberty, and relationship information:

1. Adolescents with Aspergers need sexual education. During puberty, adolescents with Aspergers will develop the desire for sexual interactions. It's important to be explicit about the changes in their body and their emerging feelings. Moms and dads may want to help adolescents feel positive about their changing bodies. However, subtle explanations about sexuality will not register or may be misinterpreted. To help the adolescent understand sexual boundaries, moms and dads or caregivers must give detailed instructions as to what's appropriate depending on the adolescent's age and social abilities. Books or videos that are age appropriate may help the person with Aspergers better understand sexual relationships and behavior.

2. Be frank and straightforward. Speak using easy to understand descriptions and correct terminology.

3. Intimacy can be a struggle. People with this disorder struggle with the back-and-forth nature of intimate relationships. Dating and courtship can be confusing, as they rely on so many subtle or hidden rules and meanings. A teen with Aspergers may find empathy a foreign emotion, causing the other partner to feel isolated and alone. With social skills training and behavior therapy, the skills necessary to achieve an intimate relationship are within reach.

4. Make sure the information you are sharing is age-appropriate. For example, you would be less detailed for a 9-year-old than you would for a 16-year-old.

5. Repetition is necessary when teaching kids with Aspergers. Short sessions repeated over time will work best on any subject.

6. Sensory issues may impact sexuality. Hypersensitivity or under responsiveness are common in adolescents with Aspergers. This can impact their sexual behavior, either reducing the desire to be close or causing them to be overly needy of sex. When it comes to sexual behavior, they may not understand boundaries or limits. Moms and dads may want to use appropriate visual aids to explain touching others inappropriately, keeping their bodies appropriately clothed and touching private parts in public.

7. Sexual relationships challenge adolescents with Aspergers. The subtle cues of dating and sexual relationships may be difficult for adolescents with Aspergers to navigate. The syndrome is commonly known by a lack of social awareness or skills, communication difficulties, obsession with a particular topic or subject and poor coordination. Their social skills may impact the type of sexual relationships they develop. There is very little research into sexual behavior and adolescents with Aspergers. However, most adolescents who suffer with the syndrome show interest in sex. Society's norms on sexuality will not be intuitive to the person with Aspergers. The subtle cues of dating and sexual relationships may be difficult to navigate.

8. Use visual aids, like books and videos to engage your teenager in the conversations.

* A word about Aspergers adults:  Adults with Aspergers may present the sexual behavior of adolescents. Since Aspergers is a developmental delay, adults may experience sexual behavior similar to adolescents. They may be delayed in their social skills, which would manifest in their sexual relationships. These adults need to be made aware through observation or research which sexual behavior is age appropriate. Obsessive behavior is a symptom of Aspergers and may carry over to sexual relations. Also, some medications used to treat symptoms of the syndrome may also impact sexual desire.

On the issue of sexuality, there are two extremes, and you often find Aspergers teens clustered at both. On the one hand, there are the shy, prudish teens who consider it a big deal to unbutton the top button on their shirt or to wear shorts. At the other end, there are teens that think nothing of nudity and aren’t concerned who sees them. Surprisingly, there are also a number of confusing teens who flip back and forth between the two extremes.

Both types of Aspergers teens create social issues with the "prudish" type often being subjected to bullying over their appearance. They also often have problems attending gym class. These Aspergers teens often face longer-term life and relationship issues because social rejection in the teen years can often have lasting consequences. All too often, these teens have major issues with dating and with meeting others. In this regard, some of worst problems stem from their conservative dress sense and the fact that they would never set foot in many of the places where social activities are conducted (e.g., dances).

Not surprisingly though, it's the more "relaxed" types of Aspergers teens who tend to get themselves into the worst trouble. There's no mistaking the problems that girls who are just a little too forthcoming when talking about sexual issues or who flirt inappropriately attract amongst the less controlled members of our society. Male issues tend to be more likely to involve the police, or violence.

Your Aspergers teen’s tendencies will generally start to become obvious from an early age (typically around 5 or 6 years). One parent states, “My children are sent outside fully clothed to play, but frequently when I look out of the window, I see the discarded piles of their clothes on the ground and find them happily jumping around stark-naked on the trampoline where all our neighbors can see them. No amount of correction seems to get the message through. Even worse, they seem to have an unhealthy fascination with their organs and with ‘potty talk’ when their friends have mostly outgrown this.” The big problem with this delay is that it brings the parent uncomfortably close to puberty (a time when such frolicking and talk ceases to be innocent and becomes altogether more dangerous).

Like all teens, Aspergers teens are curious about their bodies and those of others around them. It's fairly normal for some younger kids to show themselves to others ("You show me yours and I'll show you mine"). Unfortunately, this is where the sexual and social delays and fascination with the wrong subjects can cause big problems. It is not uncommon for an Aspergers youngster to remain focused on the "show and tell" stage for much longer than their friends.

The other issue affecting teens with Aspergers is obsession. Aspergers teens are well known for forming fixations on objects, concepts and even people. These obsessions need to be monitored carefully lest they get out of control. It's not at all uncommon for Aspergers teens to develop sex obsessions, even without a partner. Most of these obsessions are perfectly safe behind closed doors, but if they are even discussed openly, there could be social problems (Aspergers teens have a tendency to say just a bit too much).

It's much more critical that “sexuality” gets discussed with Aspergers teens (versus teens that do NOT have Aspergers), because Aspies have more naivety and greater scope for trouble.

What exactly should be discussed?

Here are some ideas to help you, the parent, get started and keep the discussion going:

• Clearly state your feelings about specific issues, such as oral sex and intercourse. Present the risks objectively, including emotional pain, sexually transmitted infections and unplanned pregnancy. Explain that oral sex isn't a risk-free alternative to intercourse.

• If you're uncomfortable, say so — but explain that it's important to keep talking. If you don't know how to answer your adolescent's questions, offer to find the answers or look them up together.

• Don't lecture your Aspergers teenager or rely on scare tactics to discourage sexual activity. Instead, listen carefully. Understand his/her pressures, challenges and concerns.

• Let your Aspergers teenager know that it's OK to talk with you about sex whenever he or she has questions or concerns. Reward questions by saying, "I'm glad you came to me."

• Your Aspergers teenager needs accurate information about sex — but it's just as important to talk about feelings, attitudes and values. Examine questions of ethics and responsibility in the context of your personal or religious beliefs.

• When a TV program or music video raises issues about responsible sexual behavior, use it as a springboard for discussion. Remember that everyday moments — such as riding in the car or putting away groceries — sometimes offer the best opportunities to talk.

Be ready for questions like these:

What if my boyfriend/girlfriend wants to have sex, but I don't? 

Explain that no one should have sex out of a sense of obligation or fear. Any form of forced sex is rape, whether the perpetrator is a stranger or someone your Aspergers teenager has been dating. Impress upon your teenager that “no” always means “no”. Emphasize that alcohol and drugs impair judgment and reduce inhibitions, leading to situations in which date rape is more likely to occur.

What if I think I'm homosexual or bisexual?

Some Aspergers teenagers wonder at some point whether they are gay or bisexual. Help your teenager understand that he or she is just beginning to explore sexual attraction. These feelings may change as time goes on. Above all, however, let your child know that you love him/her unconditionally. Praise your child for sharing his/her feelings.

How will I know I'm ready to have sex?

Various factors — peer pressure, curiosity and loneliness, to name a few — steer some Aspergers teens into early sexual activity. But there's no rush. Remind your child that it's OK to wait. Sex is a “grown-up” behavior. In the meantime, there are many other ways to express affection — intimate talks, long walks, holding hands, listening to music, dancing, kissing, touching and hugging.

If your Aspergers teenager becomes sexually active — whether you think he/she is ready or not — it may be more important than ever to keep the conversation going. State your feelings openly and honestly. Remind your teenager that you expect him/her to take sex and the associated responsibilities seriously.

Stress the importance of safe sex, and make sure your Aspergers teenager understands how to get and use contraception. You might talk about keeping a sexual relationship exclusive, not only as a matter of trust and respect, but also to reduce the risk of sexually transmitted infections. Also, set and enforce reasonable boundaries (e.g., curfews and rules about visits from friends of the opposite sex.

Your child’s doctor can help, too. A routine checkup can give your Aspergers teenager the opportunity to address sexual activity and other behaviors in a supportive, confidential atmosphere — as well as learn about contraception and safe sex. For females, the doc may also stress the importance of routine HPV vaccination to help prevent genital warts and cervical cancer.

With the parent’s support, your Aspergers teenager can emerge into a sexually responsible adult. Be honest and speak from the heart. If your teenager doesn't seem interested in what you have to say about sex, say it anyway. He/she is probably listening – if not to you, to someone else (who may or may not have good advice).

Do not hesitate to enlist professional help for your teenager with Aspergers. Sexuality can be a stressful, anxiety filled topic. Your teen’s doctor and/or psychologist can help you if you have difficulty. With the right resources and professional assistance, if necessary, you can successfully prepare your teenager with Aspergers for adult relationships.


==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

Manipulative Behavior in Children with ASD [level 1]

All folks manipulate others in some way. While this may seem like a character flaw, individuals use manipulation because it works. In fact, moms and dads and educators use manipulation to change behaviors in kids on a daily basis.

Manipulative behaviors can be a positive sign that the youngster is learning how to navigate the social world. At the same time, in some cases, manipulation is misunderstood or confused with frustration. Is a youngster with Aspergers or High-Functioning Autism (HFA) screaming because he is in pain, or because he wants to do something? Misunderstanding manipulation and frustrations is easy to do with this disorder.

Manipulation is sometimes used by the youngster to get what he wants or needs. Every instance of manipulation leads to an underlying legitimate request by the youngster. Yet, it is important to see that manipulation can also lead to behavior that is aggressive or otherwise extreme.

Various forms of manipulation can be seen in Aspergers and HFA kids as follows:

• Confusion Promotion: To manipulate the mother or father, the youngster brings up topics that are related, but not important for the discussion. In this form of manipulation, the goal is to confuse the mother or father to get what they want in a roundabout manner. Moms and dads often learn to ask direct questions to reduce the confusion level and not to give in to frustration over being confused.

• Playing Individuals against Each Other: Aspergers and HFA kids are very smart and this leads to more complex forms of manipulation, such as playing individuals against each other. This situation may result in confusion and frustration. The youngster may end up with what they want simply because of the lack of understanding in the group. This type of situation often happens between siblings or within a group home setting.

• Temper Tantrums: The standard temper tantrum is an example of a type of manipulation found in kids on the autism spectrum. In this situation, the youngster makes a request calmly. It may be unreasonable. When the youngster does not get his way, he may meet this negative response with yelling, destroying things, banging, stomping and even rolling on the floor. Moms and dads who are struggling with kids using temper tantrums learn to ignore them completely, except where the youngster may be injured.

Moms and dads end up frustrated when it comes to being manipulated by their children. You may be unsure of how to stop the poor behavior and get back to having a truthful and open relationship. Solutions often require patience and the ability to see what the underlying, unmet need is.

Here are some suggestions:

• Create an open environment as much as possible. Encourage your youngster to state what they want as directly as possible. Some Aspergers and HFA kids may not be able to communicate effectively.

• Disengage from the behavior occurring, but not the individual. If you feel powerless or unable to manage the situation, direct the individual to someone else.

• In manipulation, moms and dads and teachers may end up feeling powerless. In this situation, overcompensation may occur. A mother or father may become more controlling, for example, which pushes the manipulation farther. When you spot that powerless feeling, stop and assess the underlying circumstances first.

• Remember that the need is not the problem. The problem is the bad behavior and that should be the issue dealt with by the mother or father.

• Simply detach from the power struggle. Stop the process. If it continues, the manipulation will worsen, effectively causing the mother or father to become more controlling. This ends up leading to punishment.

For moms and dads in intense situations where manipulation is occurring readily, it may be helpful to find an support group, either online or locally. Meet with the group and learn strategies for tackling your youngster's particular needs. Some autism experts can also offer information and guidance on handling specific situations.


Understanding Your Aspergers or HFA Child

If your situation is like most parents’ situation, your Aspergers or High-Functioning Autistic (HFA) child’s behavior seems a bit odd at times. Here are a few tips to help you understand what’s going on with him or her:

1. Despite what has been widely written on, kids with Aspergers and HFA do have empathy for others. In fact, more often than not, they are rich with empathy – not devoid of it. More modern literature is starting to reflect this more accurate position. The difference is that the response is different in them.

Kids on the autism spectrum are often very lonely and can become depressed as a result of feeling out of place in the world. Reaching out to a youngster on the spectrum may open more questions for you than provide answers, but a greater effort is likely to yield a greater reward in the long run.

2. If your Aspergers or HFA youngster says ''I need help with ___'', that is what he needs help with, even if it doesn't seem possible. The other side of the coin is if the youngster says ''I am capable of ___'', it is a good idea to trust that.

3. Many kids on the spectrum are very intelligent and may have extraordinary skills that you may or may not understand, but at the same time, your youngster may lack what will seem to you to be common sense.

4. You and your "special needs" youngster do not experience life the same way, so their obstacles, interests, complaints, frustrations are likely to seem illogical to you and to those around you. There are many issues that contribute to the way they view the world around them. There are communication issues, stigma, sensory, 'stereotypical interests', unique responses to social issues, stressors, and additional things than you may be able to imagine.

If you look at it as if they are dodging paint balls all day long every day, paint balls which are invisible to you, it may make a little more sense that they move the way they do, talk the way they do, and make the decisions the way they do.

5. You and your Aspergers or HFA youngster do not think alike. This means that you are likely to misunderstand each other. Knowing this will enable you to do three things:
  • When family members, co-workers, friends seem to be having a ''group opinion'' in the negative, you have the insight to be able to say, ''It may appear to be that way, but I think it's a big misunderstanding''.
  • When he says or does something that seems hurtful, you can trust that it may not have been intended the way you thought, even if it seems very clear to you.
  • When you say or do something that your youngster takes offense to, you can trust that he is misunderstanding you honestly and not trying to be critical.

For moms and dads with children on the autism spectrum, consider this: Maybe it's not only about your youngster's understanding of the world, maybe it's the world's understanding of your youngster.

Aspergers is a neurological disorder, and is one of five diagnoses that comprise what's called “the autism spectrum.” The “autism” label has carried some serious baggage. So much so that in the 1960s there was born a movement of “anti-labelism” where kids were no longer stamped with a diagnosis, and instead their condition was referred to only as “special.”

This trend swung too far in the other direction though. Now it's time to embrace terms like “Aspergers” and “Autism,” so that those with the disorder can begin dealing with exactly what it is that makes them different—both the negatives and the positives.

What can moms and dads with Aspergers and HFA children do to handle stress? Here are some ideas:

1. Joining a support group can be a great way for families to relieve stress. When someone tells you “I understand …I've been there” – nothing feels better at that moment.

2. Make sure you're taken care of. There's a good reason that the airline stewardess instructs passengers to put the oxygen mask on themselves first before assisting their kids. If you can't be there in a healthy, operating way, you're not much good to your youngster.

3. One of the biggest challenges for children with Aspergers and HFA is an ability to shrug off life's failures. But, moms and dads can help their kids to process failure better. Praise, and praise, and praise for trying. Very often moms and dads say, “This is a special youngster, and I want to shield him from failure.” It's a good thought, but it's not the final resting ground. The final resting ground is independence and bravery.

4. Read up on the history of the disorder to find out how the view of it has developed over the years. Depending on the challenges of their particular youngster, moms and dads will feel some sense of pressure to change that youngster—maybe due to an outburst in the supermarket or an awkward conversation with the neighbors. We can all forgive ourselves when want to secede to societal pressure. What's important is this: loving your youngster for who he is.


==> My Aspergers Child: Preventing Meltdowns in Aspergers Children


Anonymous said... Our daughter has been diagnosed for 9 years now and it still helps to read these post! Thanks.Love the support.

Anonymous said... My husband has aspergers and im going through so much stress. I didnt know he had it when we was frist got married. He never knew too. One thing that haed to do everything. It hard when he doesnt understand what he says to me and sometimes he doesnt even remember he even said what he said that hurt me. Im trying to get him into therapy. But he doesnt what to. He need to learn how to communicate with me right and kknow what to do as a husband rule 

Raising Kids with Autism Spectrum Disorder: Parents' Grief and Guilt

Some parents grieve for the loss of the youngster they   imagined  they had. Moms and dads have their own particular way of dealing with the...