Examples of Schedules for Children on the Autism Spectrum

A daily schedule benefits Aspergers (high functioning autistic) children by providing the structured environment that is critical to their sense of security and mastery. If you spend any time in a kindergarten or elementary school, you will marvel at the teacher's ability to organize the kid's day.

In this post, we will look at the following:
  • Analyzing The Day 
  • Brainstorming What You Want
  • Writing Everything Down 
  • Following the Schedule for a Week 
  • Tweaking the Schedule
  • An in-depth example of a schedule

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Diagnosing "Asperger's Syndrome" in Children

When moms and dads seek help for their youngster, they encounter varied opinions – he'll outgrow it, leave him alone, it's no big deal, he just wants attention, and so on. Many professionals try to work with the Aspergers (high-functioning autistic) youngster as if his disorder is like other developmental disorders, but it is quite different. In most cases, there is a great misunderstanding by many people of the needs of these special individuals.

For the inexperienced, recognizing the six defining characteristics of Aspergers as outlined in the introduction can be difficult, and misdiagnoses are quite common. This is further complicated by the fact that an Aspergers youngster or teen has many of the same characteristics found in other disorders. These various characteristics are often misinterpreted, overlooked, under-emphasized, or over-emphasized. As a result, a youngster may receive many different diagnoses over time or from different professionals.

For example, if a youngster with Aspergers demonstrates a high degree of attention deficit hyperactivity disorder (ADHD) -- that might be the only diagnosis he receives. However, this is a common characteristic of Aspergers kids. The same holds true if obsessive or compulsive behaviors are displayed – the youngster gets labeled with obsessive-compulsive disorder (OCD) instead of Aspergers. The following traits are also commonly seen in those with Aspergers in varying degrees. However, just because these traits are there, it doesn't mean that the youngster should be diagnosed differently; these traits should be noted as significant features of Aspergers:

• Anxiety
• Difficulty with pragmatic language skills
• Hyperlexia (advanced word recognition skills)
• Motor deficits
• Oppositional defiant disorder (ODD)
• Sensory difficulties
• Social skills deficits

As mentioned, professionals who do not have much experience with Aspergers have a hard time identifying the defining characteristics. For example, social skill deficits may be noted by a professional, but then they are often downplayed because the youngster or adolescent appears to be having appropriate conversations with others or seems to be interested in other people. But with an Aspergers youngster, the conversations are not generally reciprocal, so the youngster must be carefully observed to see whether or not there is true back-and-forth interaction.

Also, many Aspergers kids have an interest in others, but you need to clarify if the objects of their interest are age appropriate. Do they interact with peers in an age-appropriate fashion? Can they maintain friendships over a period of time or do they end as the novelty wears off? These are the types of observations and questions that must be asked in order to ensure a proper diagnosis.

Another example of an overlooked area is the narrow routines or rituals that are supposed to be present. This does not always manifest as obsessive-compulsive behavior in the typical sense, such as repeated handwashing or neatness, but rather in the insistence on the need for rules about many issues and situations. These kids may not throw tantrums over their need for rules, but may require them just as much as the person who has a meltdown when a rule is violated. In essence, there is no single profile of the typical Aspergers individual. They are not all the same, as you will see in later chapters.

Because of these subtleties and nuances, the single most important consideration in diagnosis is that the person making the initial diagnosis be familiar with autistic spectrum disorders – in particular, Aspergers. They should have previously diagnosed numerous kids. To make a proper, initial diagnosis requires the following:

1. An evaluation by an occupational therapist familiar with sensory integration difficulties may provide additional and valuable information.

2. It is important to include a speech and language evaluation, as those with Aspergers will display impairments in the pragmatics and semantics of language, despite having adequate receptive and expressive language. This will also serve to make moms and dads aware of any unusual language patterns the youngster displays that will interfere in later social situations. Again, these oddities may not be recognized if the evaluator is not familiar with Aspergers.

3. The youngster should see a neurologist or developmental pediatrician (again, someone familiar with autistic spectrum disorders) for a thorough neurological exam to rule out other medical conditions and to assess the need for medication. The physician may suggest additional medical testing (blood, urine, fragile X, hearing).

4. You and your youngster should have sessions with a psychologist where your youngster is carefully observed to see how he responds in various situations. This is done through play or talk sessions in the psychologist's office and by discussions with both moms and dads. The psychologist may ask you to complete checklists or questionnaires to gain a better understanding of the youngster's behaviors at home and/or school. If the youngster is in school, the psychologist may call the youngster's teacher or ask her to complete additional checklists. The checklists or questionnaires used should be ones that are appropriate for individuals with Aspergers. It is important to determine the IQ level of your youngster as well. An average or above-average IQ is necessary for a diagnosis of Aspergers.


Diagnosis of Autism and Resultant Parental-Grief

Question

I have a son recently diagnosed with ASD [level 1] and am in denial about my family situation, but I want to start to take some control back ...where should I start?

Answer

The feelings you are experiencing are completely normal. A diagnosis of ASD level 1 (high functioning autism) brings with it a mourning process in some cases. Every parent faced with a life-changing situation will need time (some more than others) to sort out the emotions.

Denial is natural. Even if the diagnosis has been a long time coming, you may still feel like someone ripped the rug from beneath your feet. Your first reaction, "not my child," is not just common but expected. Be aware that there are several steps in the mourning process. Anger and depression are other steps of mourning that can come at any time.

The fact that you sense the need to take control shows that you are moving through the process. You are reaching acceptance. Your child needs you and you want to offer him the very best support possible. Here are some ideas you can use to regain control of your home life.

* Finding support is crucial. Autism support groups are a great place to connect with other parents. You do not have to go through this trial alone. Gathering with others living with ASD can give you the strength you need to find acceptance.

* Arm yourself with information on the disorder. Read books, consult specialists, and contact research organizations. Knowledge equals power. When you know what to expect, your situation becomes smaller than you are, allowing you to conquer what once seemed too big.

* Work together as a family to change your circumstances. Do the things you have been avoiding because of the diagnosis. Get out of the house together, enjoy each other, and don’t worry about what other people think or say.

* Consider going to a counselor. Sometimes we need a neutral, caring professional to talk with about our situation. Couples counseling can also help. Having a special needs child can be tough on a marriage. Group therapy for the family can get everyone on the same page, united and ready to move forward.

* Now you can get down to the business of treatment. Children with ASD usually do very well with a little assistance. Discuss treatment options with your child’s physician, psychologist, and school special education team.

You will find that taking action, even if you have to start out with baby steps, will help you get out of that hole called denial and have you moving along toward a brighter future.




==> Click here for more information on parenting kids on the autism spectrum...


More resources for parents of children and teens with High-Functioning Autism and Asperger's:

==> How To Prevent Meltdowns and Tantrums In Children With High-Functioning Autism and Asperger's

==> Parenting System that Significantly Reduces Defiant Behavior in Teens with Aspergers and High-Functioning Autism

==> Launching Adult Children with Asperger's and High-Functioning Autism: Guide for Parents Who Want to Promote Self-Reliance

==> Teaching Social Skills and Emotion Management to Children and Teens with Asperger's and High-Functioning Autism

==> Parenting Children and Teens with High-Functioning Autism: Comprehensive Handbook

==> Unraveling The Mystery Behind Asperger's and High-Functioning Autism: Audio Book

==> Parenting System that Reduces Problematic Behavior in Children with Asperger's and High-Functioning Autism

 
COMMENTS:

•    Anonymous said... Don't forget your extended support system like the child's grandparent or very close friends. They can be a good sounding board.
•    Anonymous said... I remember when my son was diagnosed with Aspbergers. I cried all day, then the next day I read everything I could on Aspbergers. My husband and I fought a lot after he was diagnosed. He felt like nothing had changed, and we should treat him the same way we did our daughter with punishment for bad behavior, ect. Now, after 3 years I think he finally understands. It finally feels like we are working together not against each other when it comes to our son. It's hard, I felt like I was the only one supporting our son and accepting him for who he really was.
•    Anonymous said... I think there is always someone in our lives who goes into denial about our children. For me it was my ex husband (her father) and my own mother. I got lots of "she'll grow out of it" "you worry to much" to even having it suggested I suffered from Munchhausen. They did finally come around and she is now the apple of the families eye but it does take time for some people to take it all on board. As the parent who is dealing with it face to face we don't have that luxury. Burying our heads in the sand does not get our children the help they need
•    Anonymous said... It's really hard and I know how you feel. My ex husband blamed "my" parenting for our sins behaviour. For years I had to fight not only the professionals but him...right up to the point I got the diagnoses. I'm still not able to give any kind if medication as his dad won't allow it. It's still not 100% but we are now working together. It took about 5 years. Good luck and I hope your husband comes around as you need the support x
•    Anonymous said... Janette remember my entire years of experience bringing up a child that was just labelled "a naughty boy" and the only thing that got us through the entire ordeal was our love for him and Gods help without us knowing it. You too will "get through it" there is much help available now, not so in the 1960s and you know this "child" so you know what i'm telling you is positive proof that one can handle these situations. Love Gillianx
•    Anonymous said... My "aspie" is 25 and he still needs me as his advocate. The degree has changed, but not the basic need. We're in this for the long haul! He brings so much joy , to those willing to take the time and explore the depths.
•    Anonymous said... My aspberger's child also has multiple rare diseases. My husband is supportive I'm his own way but not always in the me or our son need. We both know he loves us but he doesn't handle " sick " well and he is very military minded and has a hard time understanding that our son is not the same child that he was growing up.
•    Anonymous said... my son is nearly 8 and was diagnosed at 5..his dad and i separated a year later..he is still in denial and blames our sons behavior on my parenting,i know my x is also asd and his 2 sons from a previous relationship,all in denial...it's so hard..i love my son dearly and find it so difficult standing alone as his advocate sometimes without any support..his dad does not support him financially,his relationship with my son is not consistent but hey we do so much better without his constant criticism,negative energy,and mood swings,angry outbursts and control...life has been much more relaxed and happy without him...yeyyyy

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Aspergers Teens: Clueless Geeks?

Aspergers Teen Shares His Story


Hi. My name is Shawn. I’m a teenager with Aspergers. Here’s my story…

First of all, unlike autistic people, I did not have trouble learning to speak. However, I do have mild hyperlexia, which basically means a large vocabulary. Moreover, it is common for autistics and aspies to have some trouble lying, recognizing lies, and interpreting metaphors. The result is that most Aspergers teens are seen as literal and humorless.

Like many Aspergers teens, my voice can sometimes sound monotonous and emotionless. Similarly, Aspergers teens are known for giving soliloquies about their favorite subjects, or perseverations, not always realizing how much they are boring the individuals they are speaking to.

Aspergers teens sometimes also miss facial expressions, body gestures, and implications. While I can often pick up on someone's emotional state from a quick glance at their face (and it has to be quick because, like most Aspergers teens, I have trouble looking individuals in the eye), I can often completely miss things or misinterpret them. Likewise, my facial expression is usually plain or uncontrolled.

Aspergers teens tend to take an obsessive interest in detailed things. It is typical for an aspie to take an all-encompassing interest in something for a few months and later become interested in something else after having already learned enough about the first subject. In other words, we aspies have "weird," nerdy interests and hobbies.

This is a chicken-and-egg problem, of course. Do we aspies take up these perseverations because we are unable to occupy ourselves with more neurotypical (NT) (that is, something relating to nonautistics) socializing, or do our perseverations prevent us from socializing? Maybe it's a little bit of both.

Nevertheless, perseveration for me has meant spending my early teenage years learning how to program and becoming especially adept at using Windows. A little later it meant focusing on perfecting my French accent and reading French newspapers like Le Monde. Because of my perseverations, I have a more thorough understanding of history, politics, language, computers, psychology, geography, and numerous other subjects than the average person. In contrast, I have a deficit of knowledge about today's pop stars, actors, and social gossip. This sometimes makes it hard for individuals to have interesting conversations with me.

It is not uncommon for me to hear high-frequency noises that go unnoticed by most individuals. I can sometimes hear the buzzing of the lights, TV, and other things, especially if I'm trying to fall asleep or it's quiet. A similar thing is I dislike the feel of cotton balls, although I've heard some NTs complain about this too.

Another thing is I frequently mishear individuals and sometimes don't hear them at all. If you say, "I went to the park today," I might hear, "I went tooth per day," or some other nonsense; and so I often have to ask, "Huh?" or "What?"

Sometimes I don't notice things right in front of my face. I have more than once accidentally skipped problems on a test because the question was too close to the directions, which I probably didn't read (did I mention Aspergers teens are sometimes too honest?). Especially in mathematics, I have been known to make absent-minded mistakes by doing things like 6 * 5 = 35. This would disqualify me from being an engineer or surgeon, I think.

For a person with Asperger's (an aspie), friendships, social banter, and romantic relationships can be difficult channels to navigate. Aspergers teens have more than their share of difficulties making friends and finding a loving mate. Part of it is our perseverative interests, another part must be our tendency towards literal interpretations, and a third must be our tendency to be rigid and conservative--unfun. Many of us long for better social acceptance or at least friends to keep our lives interesting, but sometimes this seems beyond our grasp.

Many Aspergers teens show signs of attention-deficit/hyperactivity disorder, especially the inattentive type. In fact, many Aspergers teens are misdiagnosed as having ADD.

There also seems to be a relationship between autistic spectrum disorders and obsessive-compulsive disorder (OCD). While Aspergers teens do have perseverative (obsessive) interests, a significant portion develops actual OCD. Aspergers children with OCD may or may not show the typical symptoms of OCD, like compulsive hand washing.

Various anxiety disorders and anxious personality disorders other than OCD, especially social phobia and avoidant personality disorder, may also develop, as the autistic life can be stressful.

Depression is also not uncommon among Aspergers teens. My own life has too often been filled with this mood. I was first and most depressed in 8th and 9th grades when my life seemed to have reached a low point. I had recently changed from a Catholic elementary school to the public school system, and adjustment was harsh. The only emotions I knew were anger and frustration. I could only see the worst of intentions in others towards me, and I became the more socially secluded than I'd ever been before. My recover from this strong depression included becoming an atheist, changing my attitude towards life, and becoming more accepting. I still become depressed sometimes but not nearly as badly as back then.

The aspie sense of humor is somewhat different from most individual's sense of humor. I am especially good at making odd connections about social happenings and use highly sarcastic humor to criticize actions like the invasion of Iraq. My disconnection from society along with my attempts to better understand society are a gold mine containing the nuggets of social injustices and inequalities, hypocrisies, and self-aggrandizement.

I vent my unattainable need for excitement and companionship through art. I can sketch disturbing images of distorted faces and forms as well as near photorealistic pictures--if I'm looking at the object or a photograph of that object. Writing, especially humorous writing is another thing that allows me to assuage my unfulfillment.

I have written--even perseverated on--this article in the sincere hope that someone might better understand aspies and not write us off as clueless geeks. We aspies only want what everyone else wants: happiness.


Raising Kids with Autism Spectrum Disorder: Parents' Grief and Guilt

Some parents grieve for the loss of the youngster they   imagined  they had. Moms and dads have their own particular way of dealing with the...