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Asperger's: Common Questions & Quick Answers

What are some of the traits of Asperger's (AS)?
  • A child with AS wants to fit in and make friends, he just does not know how to do it.
  • AS usually affects a child's social skills, communication skills, and behavior.
  • AS is a problem of child development.
  • The child usually functions well in every day life, but he has problems interacting with others.
  • AS causes a wide range of developmental problems in children.
  • AS is a brain disorder.
  • It is one of the pervasive developmental disorders (PDD).
  • Other PDD's include Autism, Rett's syndrome, Childhood Disintegrative Disorder, and PDD-not otherwise specified (PDD-NOS).
  • AS is sometimes called High-Functioning Autism.
  • Unlike an autistic child, a child with AS has fewer problems with language, and usually has average to above average intelligence.

What causes AS?
  • The cause is unknown.
  • It may have something to do with genetics, or how the brain works.
  • Parents do not cause AS.

Who can get AS?
  • Anyone can get AS.
  • Parents of a child with AS are more likely to have another child with AS.
  • It is more common in boys than in girls.

What are the signs of AS?

The signs and symptoms of AS are similar to those of other behavioral problems. It is very important that a doctor sees your child if you think he has AS.

Social Skills—
  • Has problems making friends
  • Lacks social skills
  • Seems unaware of others' feelings
  • Unable to carry on conversations

Communication Skills—
  • Cannot start a conversation or keep one going
  • May have problems with nonverbal communication or body language
  • Avoids eye contact
  • Does not use or understand hand gestures
  • Does not change his face when talking with others (e.g., not smiling when telling something funny)
  • Does not understand other people's facial expressions (e.g., not understanding why someone would smile at a joke)
  • May have a short attention span
  • Repeats a word or phrase over and over again
  • Words may be very formal and loud

Behavior—
  • Clumsy
  • Does not like changes in every-day routines
  • Only interested in a few things (e.g., collecting rocks, listening to music)
  • May have obsessive behavior
  • Collects categories of things such as rocks or paper clips
  • Knows categories of information like Latin names of flowers or football statistics
  • May have problems with reading, writing or math skills
  • Lacks organization skills
  • Repeats certain behaviors over and over again

How is it diagnosed?
  • The doctor will watch your child and ask you about his symptoms. How have his social and language skills changed over time? His behavior?
  • It is usually diagnosed between 3 and 9 years old.
  • The child may need to be seen by a developmental pediatrician or psychiatrist (i.e., special doctors who are trained to diagnose AS).
  • He may need tests.
  • AS cannot be diagnosed at birth.
  • AS can be difficult to diagnose because the child can function well in every-day life.
  • A doctor should see the child as soon as any signs or symptoms are noticed.

Is it contagious?
  • No. AS is not contagious.

How is it treated?
  • Treatment depends on the level of functioning of your child. A child with higher intelligence will have a better outcome.
  • Types of treatments include: (a) behavioral modification, (b) education and training, (c) language therapy, (d) medicines for specific behavioral problems, (e) parent education and training, (f) psychotherapy, (g) sensory integration training (i.e., the child is treated to be less sensitive to things that bother him a lot), and (h) social skills training.
  • It is important if all of the child's caregivers are involved in the treatment. This can include family members, close friends, babysitters, teachers, etc.
  • Your child will most likely continue to have some problems throughout his life (e.g., there is an increased risk of developing depression or anxiety), but he will be able to make friends and have long-lasting relationships.
  • With treatment, your child can learn to live with the condition. Many children are able finish high school, and then eventually attend college and get a job.
  • There is no cure for AS.

Can it be prevented?
  • AS cannot be prevented because we do not know what causes it.

When should I call the doctor?
  • Your child has a legal right to receive special services at school. Talk to your doctor or teachers for more information. They can help you decide what school setting and education plan will be best for your child.
  • Call your child's doctor, your child's school, or a support group for help. There are many organizations that can help you cope and teach you how to manage life with a child with AS.
  • Call your doctor if your child shows behaviors of AS from the signs and symptoms list above.
  • Call your doctor if you have any questions about your child's condition.

The Aspergers Comprehensive Handbook

Aspergers/HFA Children and Split Personality

"Is it common for a child with an autism spectrum disorder to have a split personality (so to speak)? My daughter is a really good kid at school, but then a complete monster at home. Is this normal?"

Click here for the answer...




Preparing Family Members for Your ASD Child's Behavior: Tips for Family Gatherings

The following is an email (or you can simply send this URL in a text: https://www.myaspergerschild.com/2008/12/dear-family-and-friends-holiday-letter.html) that you can send to relatives and hosts of family gatherings who might need a crash course in what to expect from your ASD (high functioning autistic) child. You can use it as is, or edit it to make it more applicable to your unique situation:

 
Dear _____, (e.g., Aunt Sally)

I understand that we will be visiting each other for a family get-together! Sometimes these visits can be very hard for me, but here is some information that might help our visit to be more successful.

As you probably know, I am challenged by a hidden disorder called Autism Spectrum Disorder or ASD (some people refer to it as High-Functioning Autism). ASD is a neuro-developmental disorder which sometimes makes it hard for me to understand the environment around me. I have barriers in my brain that you can’t see, but which may make it difficult for me to adapt to my surroundings.

Sometimes I may seem rude and abrupt, but it is only because I have to try to understand people, and at the same time make myself understood. Children with ASD have different abilities. For example, some may not speak much, and some write beautiful poetry. Others are whizzes in math (Albert Einstein had a form of autism), or may have difficulty making friends. We are all different and need various degrees of support.

Sometimes when I am touched unexpectedly, it might feel painful and make me want to run away. I get easily frustrated, too. Being around a lot of other people sometimes feels like standing next to a moving freight train – and trying to decide how and when to jump aboard. I may feel frightened and confused some of the time. This is why I like to have things the same as much as possible. Once I learn how things happen, I can stay pretty calm. But if something changes, then I may have to relearn the situation all over again!

When you talk to me, I may not be able to comprehend everything you are saying to me if there is a lot of noise and distraction around. I usually have to concentrate to hear and understand one thing at a time. You might think I am ignoring you, but I am not. Rather, I am hearing everything, but not knowing what is most important to respond to.

Holidays can be hard for me because there are so many different people, places, and things going on that are out of my ordinary environment. This may be fun and adventurous for most kids, but for me, it can be hard work and extremely stressful. I often have to get away from all the commotion to calm down. It would be great if you had a private place set up to where I could retreat.

If I can’t sit at the meal table, please don’t think that I am misbehaving or that my mom and dad have no control over me. Sitting in one place for very long is often very hard for me. Sometimes I feel overwhelmed by all the smells, sounds, and people. When this happens, I just have to get up and move about. But please don’t stop eating on my account. Go on without me, and my mom or dad will handle the situation the best way they know how.

Eating in general can be hard for me. If you understand that ASD is a sensory processing disorder, it’s no wonder eating is a problem. Think of all the senses involved with eating (e.g., sight, smell, taste, touch) and all the complicated mechanics that are involved (e.g., chewing and swallowing).  This is something that some kids with the disorder have trouble with. I am not being picky. I just can’t eat certain foods because my sensory system is overly-sensitive. (Hope you understand.)

Also, please don’t be disappointed if my mother or father doesn’t dress me in fancy clothes. It’s because they know how much stiff and itchy clothes can drive me nuts! I have to feel comfortable in my clothes, or I will just be miserable. When I go to someone else’s house, I may appear bossy and irritable. In a way, I am being controlling, because that is how I try to fit into the world around me. I like things to be done in a way I am familiar with or else I might get confused and frustrated. It doesn’t mean you have to change the way you are doing things. Just please be patient with me and understanding of how I have to cope.

My parents have no control over how my ASD makes me feel inside. Kids with this disorder often have little things that they do to help themselves feel more comfortable. The professionals call it “self regulation,” or “stimming.” I might rock, hum, flick my fingers, or any number of different things. I am not trying to be disruptive or weird. Again, I am doing what I have to do for my brain to adapt to the environment. Sometimes I cannot stop myself from talking, singing, or doing an activity I enjoy. The professionals call this “perseverating,” which is similar to self-regulation or stimming. I do this only because I have found something to occupy myself that makes me feel comfortable. Perseverative behaviors are good to a certain degree because they help me calm down.

Holidays are filled with sights, sounds, and smells. The average home is turned into a busy, frantic, festive place. This may be fun for most kids, but it can be hard work for me to conform. If I fall apart or act-out in a way that you consider socially inappropriate, please remember that I don’t possess the neurological system that is required to follow some social rules. In any event, I will try very hard to be on my best behavior when we get together during the holidays.

Thanks for listening. I’m looking forward to seeing you.

________ (child’s name)

From: www.MyAspergersChild.com

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Transition Services for Aspergers Teens

"I have a 17 year old with Asperger’s. She was a late diagnosis (wasn’t diagnosed until age 15). How do you help a teen with transition services (e.g., getting a job, learning to drive, going to college, etc.) when she doesn’t have any desire to learn or do any of those things?"

Click here for the answer...


My child has been rejected by his peers, ridiculed and bullied !!!

Social rejection has devastating effects in many areas of functioning. Because the ASD child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually.

Click here to read the full article…

How to Prevent Meltdowns in Children on the Spectrum

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's or HFA child is totally out-of-control. When it ends, both you and your child are totally exhausted. But... don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

Click here for the full article...

Parenting Defiant Teens on the Spectrum

Although Aspergers [high-functioning autism] is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager on the spectrum are more difficult than they would be with an average teen. Complicated by defiant behavior, the teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

Click here to read the full article…

Older Teens and Young Adult Children with ASD Still Living At Home

Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with ASD face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

Click here to read the full article…

Parenting Children and Teens with High-Functioning Autism

Two traits often found in kids with High-Functioning Autism are “mind-blindness” (i.e., the inability to predict the beliefs and intentions of others) and “alexithymia” (i.e., the inability to identify and interpret emotional signals in others). These two traits reduce the youngster’s ability to empathize with peers. As a result, he or she may be perceived by adults and other children as selfish, insensitive and uncaring.

Click here
to read the full article...

Highly Effective Research-Based Parenting Strategies for Children with Asperger's and HFA

Become an expert in helping your child cope with his or her “out-of-control” emotions, inability to make and keep friends, stress, anger, thinking errors, and resistance to change.

Click here for the full article...