tag:blogger.com,1999:blog-1527055659904040434.post6945433297599901340..comments2023-09-17T04:34:33.856-07:00Comments on My ASD Child: Aspergers Syndrome and Oppositional Defiant Disorder [ODD] CombinationUnknownnoreply@blogger.comBlogger43125tag:blogger.com,1999:blog-1527055659904040434.post-69700302502330862482022-02-03T18:39:44.886-08:002022-02-03T18:39:44.886-08:00Have you tried medication? What if it has to do wi...Have you tried medication? What if it has to do with a mood disorder.Gigihttps://www.blogger.com/profile/09217975678033061926noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-37520854293086487452018-03-15T16:48:03.316-07:002018-03-15T16:48:03.316-07:00I suggest getting your son tested for PANDAS if yo...I suggest getting your son tested for PANDAS if you haven't already. My 15-year-old daughter was diagnosed with this just a few weeks ago. It's an infection often caused by strep. The strep triggers an autoimmune response and attacks certain areas of the brain that cause behaviors like tics, OCD, aggression, childlike, clingy behavior and other issues. It's diagnosed with a blood test and can be treated with antibiotics. We are doing that now but her doctor isn't sure if it will improve my daughter's behavior because she's probably had the infection for years. My daughter also has ADHD and HFA. She was also diagnosed with mood disorder and it's been suggested that she has ODD. At this point, I guess it's impossible to know if she actually has mood disorder and ODD or if the tantrums and aggressive behavior she's had all these years were caused by the PANDAS infection.tyyashomestuffhttps://www.blogger.com/profile/14075555156484084060noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-57315898832111003932018-03-15T16:12:34.703-07:002018-03-15T16:12:34.703-07:00Not sure you'll see this, but since you posted...Not sure you'll see this, but since you posted over a year ago, but I wanted to suggest getting him tested for PANDAS if you haven't already. You said you noticed a recent change for the worse, and it made me wonder if there might be a physical cause. I'm the mom of a 15-year-old who has many of the behaviors everyone's talked about here. My daughter definitely has ADHD and probably Asperger's (although she's only been diagnosed with high-functioning ASD) and mood disorder. But I also discovered just a month ago that she has PANDAS. It's a virus often caused by strep. The result is an autoimmune response to the strep where the infection attacks certain areas of the brain and triggers behavior changes like tics, OCD, or aggression. It is diagnosed with a blood test and can be treated with antibiotics. We are doing that now, but her doctor isn't sure it will alleviate any of her behavior issues because she's probably had it for a long time. I was unaware of this illness until just recently and never had a doctor suggest testing for it before because they all assumed the ADHD, autism and mood disorder were the cause of her extreme behavior.tyyashomestuffhttps://www.blogger.com/profile/14075555156484084060noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-38624082459845450482018-02-16T14:19:22.874-08:002018-02-16T14:19:22.874-08:00My son is currently being evaluated for aspergers....My son is currently being evaluated for aspergers. After 5 yrs of therapy and no answers (he is now 11) finally someone suggested an autism evaluation. He only has temper tantrums with change but as he gets older they are getting more severe. He is now refusing to go to school. All day everyday is a struggle for me. My husband and his family are not supportive. I have lost 2 immediate family members this year. Have had surgery this month. And we have no family in the state. I am essentially dealing with this alone. Hoping we finally get answers to help our son and our family.Stump Town Girlhttps://www.blogger.com/profile/08705884761930042675noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-28897884193731912012017-03-30T20:42:03.312-07:002017-03-30T20:42:03.312-07:00I'm so glad I found this site. I've felt s...I'm so glad I found this site. I've felt so isolated and judged for years by people that have no idea. People have told me they could fix my son if they had him for a few days because I just don't discipline enough or demand enough respect. However I have 3 other children that have no issues. My son is 13 diagnosed with autism, adhd and bipolar. He's getting evaluated soon for ODD and they mentioned BPD and schizophrenia. He's always been difficult, enjoys annoying people, loves to push buttons, obsesses to maddening levels over material things, wakes up everyday with a high level of irritation and anger, has never had a friend, warped perceptions of interactions with peers (thinking people are his friends when they are actually bullying him), flat emotions unless achieving to annoy someone or being angry. So he smiles when he's being annoying, showing no emotion, and escalating to anger in a hearbeat. That's his range. He just started acting out at school and in one month went from never being in trouble at school to lunch detention, after school detention, in school suspension, out of school suspension. I got emails from teachers, calls from the vice principal then the principal. None of the behaviors surprise me, as they have all been experienced at home for years. He's had a number of mobile therapists that all tell me he's one big question mark and no one's ever experienced a child like him. Real comforting (sarcasm should be noted) I'm terrified of what puberty will bring and believe this may be just the beginning.TooMuchMadnesshttps://www.blogger.com/profile/03640366833312667345noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-22138076450340400742017-03-01T00:34:14.843-08:002017-03-01T00:34:14.843-08:00This sounds like our 8 year old. Have you found an...This sounds like our 8 year old. Have you found anything to help? We don't know what to do. Regular discipline doesn't work. Hhttps://www.blogger.com/profile/13025602606289000598noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-12955779561841972922017-02-22T08:53:46.952-08:002017-02-22T08:53:46.952-08:00Thank you for the helpful advice. My son has just ...Thank you for the helpful advice. My son has just started showing all the signs of ODD, before this year it wasn't as frequent but it's getting ridiculous I feel sorry for the teacher it makes me want to homeschool him for their sake. My son gets upset when things don't go as expected and he responds very well to praise and positive reinforce.ent. He is in Cub Scouts and loves it, probably the structure and the parallel (play) time spent with peers. His behaviour is very difficult. My husband is very good at getting my son to explain his behavior by taking away privileges. It helps us to know what his thoughts are but he still lacks natural accountability and common sense judgement. He has empathy toward babies and toddlers. I feel like he responds best to love and when I am at peace he can sense it and is happier. Thanks again. Good luck to all of You! I am also looking into biomedical treatment, dietition dietitian and naturopathic doctors. We will see. Seenbeanhttps://www.blogger.com/profile/10045240803046855414noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-39115252859395213862017-02-21T13:08:52.493-08:002017-02-21T13:08:52.493-08:00I am a mom of a 15 year old boy who has aspergers ...I am a mom of a 15 year old boy who has aspergers and 99.9% sure odd. He has made it so hard for us always mad and arguing with everyone. He is never wrong and gets physical with his younger brother and sister. We constantly have to watch our Ps and Qs around him because we don't know what will set him off one day to the next and punishing him is very hard and is getting even harder. He doesn't bathe or use deodorant, which leaves him going to school smelly but he won't listen. He is addicted to porn and so we have put interventions here at home but he still looked at school. The 1st time he got ISS the most recent he got OSS plus probation for the rest of the semester as well as losing all of his computer privileges. So I grounded him from all electronics along with movies and any games till he gets his privileges back at school and made him write an apology letter. He seemed fine at first but 3 days ago he threw his TV, smashed his telescope through it, broke his razor and fan remote against the wall and told me it was all my fault he looks at porn because I should have had the sex talk with him years ago, that I am unfair,mean, and I took all his family away. Then he tells my younger two they should be scared of me, and that my husband and I should get a divorce. He still hasn't calmed down and this is by far the worst it has ever been. My other 2 kids told him I was a great mom and that he didn't know what he was talking about so he said I never defend him, which I have been doing his WHOLE LIFE. I don't know how much more I can bare. He used to be so loving and affectionate and mommies little man and now he is always angry. I love him so much and my kids are my world, I just wished I knew what to do Anonymoushttps://www.blogger.com/profile/15669585948416434097noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-26335483978080440732017-01-12T19:46:13.629-08:002017-01-12T19:46:13.629-08:00I been looked into neglect I give my son lots atte...I been looked into neglect I give my son lots attention he has aspergers. But the school s special Ed teacher thinks he's not even though he has seen 2 doctors saying he is . He is looking into ODD. Due to constant tantrums.. he's teacher says why are you not doing nothing.. the special Ed teacher words things differently. Which is upsettingAnonymoushttps://www.blogger.com/profile/06501601098539989039noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-50903596828036854002017-01-12T09:24:28.476-08:002017-01-12T09:24:28.476-08:00Thanks. Between the ever present tension of trying...Thanks. Between the ever present tension of trying to encourage our children to strive for a fulfilling life, and fighting constant feelings of defeat, we must always hope.<br />Accepting them usually means accepting their concept of the world in which they are expected to exist. <br />I chose not to push for my "aspies" continual education. What interest she has she can research through the miracle of her computer. The gifts she does not possess for tolorating the world won't keep her from participating in her quest to understand it. Aggyhttps://www.blogger.com/profile/15462197376831976320noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-89418968427683439382016-06-27T02:19:56.516-07:002016-06-27T02:19:56.516-07:00People with Asperger syndrome can find it harder t...People with <b><a href="http://www.aschealthcare.co.uk/about-autism/asperger-treatment-for-adults/" rel="nofollow">Asperger syndrome</a></b> can find it harder to read the signals that most of us take for granted. This means they find it more difficult to communicate and interact with others which can often lead to high levels of anxiety and confusion. Asperger syndrome is most definitely not caused by a person’s upbringing, their social circumstances and is not the fault of the individual with the condition and should not be confused with conduct disorder.ASC Healthcarehttps://www.blogger.com/profile/03877781011634519606noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-3110828570787617742016-06-16T05:28:14.861-07:002016-06-16T05:28:14.861-07:00I know this is super late but he probably couldn&#...I know this is super late but he probably couldn't give you clear examples because either its too painful for him to admit or they forget the really bad stuff that happens to him. My son was like that when he was being bullied. Ms understoodhttps://www.blogger.com/profile/08801434852349778281noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-10739701039873058662016-04-01T23:21:38.378-07:002016-04-01T23:21:38.378-07:00It's been heartbreaking and strangely reassuri...It's been heartbreaking and strangely reassuring to read everyone's posts. All u moms deserve compassion and major props. I have been searching far and wide for advice and answers. A few things are really helping us to better handle our 9 yo Aspie. 1. We took him off Vyvanse and Intuniv. Both seemed to increase his anger and violence. 2. We give him .5 mg melatonin at 5:30p sharp. Gets him yawning by 7:30 every night. Stays asleep until 7a next morning. 3. Give him tokens when he behaves and/or complies. Redeems them for "treasures" or TV time. 4. Reading "The Explosive Child: New approach to Understanding and parenting easily frustrated chronically inflexible children". Dr. Ross Greene. The title alone describes the last 6 mos of our lives. Read many books, kept only this on. God bless, LMWLinda Cathttps://www.blogger.com/profile/03599212028466495943noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-21451570141837745632016-03-29T21:56:13.207-07:002016-03-29T21:56:13.207-07:00Hi. My 9 yo Aspie has severe ODD. Here's what ...Hi. My 9 yo Aspie has severe ODD. Here's what has helped us a lot: consistent, predictable schedule; 1mg melatonin at 5:30p for 8p bedtime; no ADHD meds, they worsened his violence (heard from a reputable dr that stimulants aggravate ODD in aspbergers); lots of silliness and humor; faith in Jesus(the one who gives me hope); and reading The Explosive Child: A New Approach for Understanding and Parenting Easily Frustrated, Chronically Inflexible Children by Ross Greene PhD. Have read 15 books, kept only this one. Specifically addresses ODD and then turns it upside down. Gives scenarios and specific advice on how to best handle seemingly impossible children. He doesn't offer a magic formula, but he's the one that has come the closest. I don't feel utterly overwhelmed anymore. God bless all you brave moms!Linda Cathttps://www.blogger.com/profile/03599212028466495943noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-1802708974524512502016-03-20T07:00:33.761-07:002016-03-20T07:00:33.761-07:00My six year old son is ODD, ADHD and more. I agree...My six year old son is ODD, ADHD and more. I agree it feels like a life sentence sometimes, and then he will turn around and be the sweetest child for a little while and it makes me feel so guilty for feeling that way. We have started PCIT Play Therapy a couple of weeks ago. We are also starting a new anxiety medicine. We had to take him off of the ADHD medicine because believe it or not it was making him even more emotional (crying). I keep telling myself that God would not have given us this special little boy if we couldn't handle it but sometimes WOW. I'm glad I read these posts. It's nice not to feel alone. Anonymoushttps://www.blogger.com/profile/02226261807809470390noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-65614524875424411402016-03-07T19:15:15.209-08:002016-03-07T19:15:15.209-08:00I am just now to the point with my 14 year old ama...I am just now to the point with my 14 year old amazing, intelligent, funny, resilient, and utterly stubborn, incredibly ridiculous and irrational son to have him assessed for high functioning autism. I have advocated for him for years simply because I always knew something was off but refused years ago to put him on any sort of medication after learning about The Nurtured Heart Approach. That said, our families life has orbited around him for as long as I can remember. This makes me wonder now looking back if this is where the ODD piece comes into play. It has been such a struggle to keep this boy from melting down and from incredible public outbursts that I think we have responded In all kinds of different ways to try and find what would work. Ignoring, yelling, grounding, reward charts, and sometimes just plain reacting because we are out of ideas. That's definitely inconsistent parenting...LOL! But one thing I can say...we have 5 children and he is the 4th and by far the biggest challenge. We have always known there was something different. And with all of that said and all the hard work and struggle he holds such a dear place in my heart. I love this boy...no more and no less than my other kids...but man does he keep me on my toes. I do worry about him though...with his irrational and overly intellectual and odd arguments; just to argue. He has friends but he does not miss them much and it doesn't really bother him if they don't go out of their way to connect with him. But he's happy (when he's not arguing or blaming or lashing out) nothing seems to get under his skin for very long. While I'm still laying in the aftermath of one of his battles he is already moved on to the next thing and has no understanding if I'm still annoyed. It's quite a voyage and I still refuse to agree that it's a lost cause and continue to hope that there is a special little place in the world for him where he will blossom and find his perfect fit. I still will have him assessed because I guess part of me just wants to know so that I can have more serenity and hopefully learn a technique that works better for him. As of now, mostly the only time there is war in our house is when I hold him accountable for school...that's our battle because there is no perfect niche for him to learn right now except the private one that he has created for himself when he has no boundaries and learns with no limits...on his own...buried in technology...or going on long walks, bike rides and skateboard trips for hours and comes home smiling ear to ear just because he was one with the outdoors and feels grounded again! It's so confusing raising a boy like this in a world like the one we live in today. I'm still forging ahead and I hope none of you give up on your special kiddos. I guess there needs to be some serenity to find peace. Anonymoushttps://www.blogger.com/profile/00603967211693344185noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-59855606090612020102016-03-04T20:13:16.411-08:002016-03-04T20:13:16.411-08:00My husband is leaving us. He is my child's ste...My husband is leaving us. He is my child's stepfather. My child is diagnosed Aspergers, ODD, and gender dysphoria. She was born male assigned. She's never been easy. My husband thought he could handle it and between my kid and the stressed out person I've become after 17 years, I guess we're not that great a package. My biggest worry now is what her future will be. She is like many of the kids described in the above comments, behaviorally. It does feel like a life sentence but also I love her so. Traceyhttps://www.blogger.com/profile/09611782236911899979noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-9827275431898505452016-02-21T09:17:10.617-08:002016-02-21T09:17:10.617-08:00I could have written this - we are living the EXAC...I could have written this - we are living the EXACTLY same life! <br /><br />Our family has been irrevocably alter by the gravitational tilt my non-neurotypical daughter exerts on our family. I love her so much & wouldn't trade her in a million years. I struggle every day to be the best advocate/cheerleader/role model mother for both of my girls yet always feel like a failure. I am equally sad for my other daughter who is growing up in this chaos. I wish I had advice to offer other than to share that you are not alone. I work every day on readjusting my own expectations for both her future and my own. Maryhttps://www.blogger.com/profile/15270506697666259657noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-82299205599211351562016-01-21T09:09:28.174-08:002016-01-21T09:09:28.174-08:00This is my son exactly. What helps? So far nothing...This is my son exactly. What helps? So far nothing has ever worked! He has us all going crazy. michhttps://www.blogger.com/profile/04324039892276151286noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-6477714930707081132015-11-02T21:00:31.219-08:002015-11-02T21:00:31.219-08:00I just wanted to say that I have an almost 10 year...I just wanted to say that I have an almost 10 year old son with Aspergers and every single symptom of ODD. We have tried many therapies, social skills groups and have recently introduced anxiety and depression medication. While this has made his outbursts and anxiety more calm, he is now starting to be mean and vindictive. We are going to try adjusting his medication. But, I have also heard wonderful things about Asperger Experts. They are two gentlemen with Aspergers that have videos, coaching and classes available to those with Aspergers and those who have relatives with Aspergers. Their point of view is priceless. I ordered the Asperger's 101: Breaking the Barriers and it helped me tremendously with understanding his point of view. Now, I'm seriously considering the coaching. It is so amazing to hear that others share in this struggle. Something else that may be helpful is to read Eustacia Cutler's book "A Thorn in My Pocket". She is Temple Grandin's mom, and it helped me make a lot of sense out of things. Especially when you don't even know why or what to do. She helped me to realize that working hard, staying the course, and getting professional training and help are worth it!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-59510067405366210672015-09-27T11:31:44.994-07:002015-09-27T11:31:44.994-07:00I have a 14 yr old son who has Asperger and parano...I have a 14 yr old son who has Asperger and paranoid schizophrenia and a physical disability. I am at my whits end. He is fixated on his older brother so much that he cant touch, sit or breath walk through the air that his older brother who is 16 walks through. The older brother doesn't provoke his at all, and has at times became suicidal because of his brother. Does anyone else deal with this kind of fixations? Analia Calantha Zamorahttps://www.blogger.com/profile/06326280284327836996noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-11308936909281815502015-09-13T08:31:23.754-07:002015-09-13T08:31:23.754-07:00I feel just like this! Is there any help out there...I feel just like this! Is there any help out there? Having a hard 13 yrs! Son w aspergers,intermittent explosive disorder, and add and petimal seizures.Anonymoushttps://www.blogger.com/profile/17008421616631486270noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-36021696245573557002015-09-13T08:27:39.464-07:002015-09-13T08:27:39.464-07:00I feel just like this! Is there any help out there...I feel just like this! Is there any help out there? Having a hard 13 yrs! Son w aspergers,intermittent explosive disorder, and add and petimal seizures.Anonymoushttps://www.blogger.com/profile/17008421616631486270noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-29957464044556120202015-09-03T07:11:58.986-07:002015-09-03T07:11:58.986-07:00I feel your pain. My son is the same way. I also f...I feel your pain. My son is the same way. I also feel the way you feel....torn. I love him very much. Did you ever get a diagnosis??Angela Clarkhttps://www.blogger.com/profile/00408399860212230076noreply@blogger.comtag:blogger.com,1999:blog-1527055659904040434.post-82682546154574719282015-08-11T05:11:32.108-07:002015-08-11T05:11:32.108-07:00I have a son with ODD and Conduct Disorder. He is ...I have a son with ODD and Conduct Disorder. He is highly intelligent, so that makes it difficult for my husband (son's stepdad) to understand that some of the behavior of my son cannot be helped. This morning, for example, my son tells us that he wants me to drive him to school because some kids are picking on him on the bus. Husband asks what they are doing to him, son cannot provide an answer so husband assumes son is lying (which son does all the time) and says as much. This in turn upsets son and causes him to be frustrated, husband keeps on asking for examples of what's happening and son still can't give straight answer. Son starts to almost growl from frustration. Husband blows up, yells at son, calls him an "effing" liar since he can't give clear examples. Meanwhile, I'm in the middle trying to referee both of them. Husband has a point, but delivery sucks. Son gets upset, crying, cannot give clear examples, etc. and ends up apologizing to husband and me, off to school son goes. I tell husband that he is NOT to yell and cuss at the kids. Again. I have had it with this stress. <br /> I don't know what to do to fix this problem. Daughter is 14 and hormonal and snotty and smarts us off all the time, husband has no patience with her issues, either. This is husband's first go at raising kids, he has no experience and married us when my kids were 9 and 11, kids are now 12 and 14 and he still has no patience. I love him, but I don't love this about him. Yes, my kids are trying and have problems but how can I make everyone get along?Anonymoushttps://www.blogger.com/profile/06626060452642941539noreply@blogger.com