HELP FOR PARENTS OF CHILDREN WITH ASPERGER'S & HIGH-FUNCTIONING AUTISM

Education and Counseling for Individuals Affected by Autism Spectrum Disorders

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Helping Resistant Aspergers Children with Transitions

"My child with Aspergers (high functioning) still has trouble with transitions. Social stories don’t work that well for him. To get him to stop doing what he’s doing to get ready for bed (as just one example) is like pulling teeth. Help!"

Here’s a 7-step plan for giving your youngster with Aspergers or High Functioning Autism plenty of warning and helping him make transitions more calmly:

1. 10-minute warning: Tell your youngster, "You’ve got 10 more minutes" (parent’s secret: unless your youngster is watching the clock or is a stickler for accuracy in this area, you can give this warning well before you actually only do have 10 more minutes). Let’s assume that your youngster is ignoring you at this point (e.g., he may be thinking he has plenty of time yet).

2. 5-minute warning: About halfway into the 10-minute warning, say, "You’ve got 5 more minutes" (get at least an acknowledgment that your Aspie has received the message at this point). As Aspergers children often do, let’s assume that your youngster is still ‘dilly dallying’ around (i.e., taking his sweet time).

3. Warnings by the minute: Just as some snooze alarms get louder each time you hit the button, make your warnings more frequent at this point (e.g., give a 4-minute warning …3-minute …2-minute (parent’s secret: the countdown doesn't have to actually correspond to factual time; you can say, for example, that he only has 2-minutes left, but he may actually have 2 ½). In any event, let your youngster know that it's time to get organized for a change.

4. Warnings by the second: At this point, your youngster should be at least reluctantly moving toward change. Count down in 10-second increments at this point (e.g., you’ve got 50 seconds …40 …30 …and so on).

5. An extra 10-count: If your youngster is still goofing off, tell him he has a count of 10 to get with it. Then count up from 1 to 10. And move on.

6. This technique should work with those Aspies who have difficulty with motor planning and change. However, you will want to calibrate the amount of time used to your particular youngster's needs. The countdown described above is merely an example, and one that can be tailored according to the situation – and your child’s temperament.

7. A stopwatch or a timer can sometimes also be effective countdown tools. When choosing a timer, opt for one that will be most appropriate for your Aspie, and make sure that it is something that he will easily understand. While a digital timer may be an appropriate choice for older kids, this may not be well suited for younger ones. For younger kids who still do not have a concept of time, the hourglass timer usually works best – not only because it is more interesting, but also because it is easier to understand. Since younger kids may not know how long 3 minutes is, the hourglass timer gives them a visual of how long 3 minutes actually is.

Before you use the timer, let your youngster know what the timer is for. Let him know that the timer keeps track of when he needs to switch activities (e.g., “When the timer goes off, it is time for you to stop playing your video game and get ready for bed.”). Explain it simply and use words that will make him understand.

When using the timer, it is also important that you provide warning signals (e.g., ringing of a soft bell, gentle snapping of the fingers, etc.) when the time is almost over. This way, your youngster will be ready when the time runs out and will not feel surprised or rushed. The important thing is to be consistent and to always use the same warning signals. This way, it will become part of the routine.

Tips to help you be successful with the “transitioning” method outlined above:

1. Be consistent. Use the same warning time and words every time. This makes it easier for your Aspie to understand and adjust to the transitions. By knowing what the expectations are, he will transition easier.

2. Do as much as possible beforehand. Pick out clothes the night before, make sure his shoes are readily available, etc.

3. Evaluate situations that are difficult. If there is a particular situation that causes major problems during transitions, evaluate the circumstances surrounding the situations. For example, it could be that your Aspie doesn't want to do the next activity due to sensory issues or other problems. It could be that the schedule needs adjustment, or that other accommodations need to be in place.

4. Make sure all of the “extra activities” are taken care of beforehand. It is easier to get out the door when the Aspie can’t pause when it opens and exclaim, “I have to go to the bathroom!” Take care of those needs before you walk out the door. Do the same with food and drink. Better yet, bring a water bottle and a snack (one less excuse for your youngster to dawdle).

5. Make your youngster part of the team. Enlist his help in order to get out the door on time. Have a checklist and allow him to check off what gets done, or have him help load important items into the car if you are leaving.

6. Negotiate transitions when possible. For example, if he’s playing video games and you want him to stop so he can get some homework done, you can say, “Do you want to continue playing your game for another 30 minutes and then do your homework – or do you want to stop for now, do some homework, and then go back to your game for 60 minutes? So, 30 minutes now – or 60 minutes later …what’s your preference?”

7. Never underestimate the power of a good social story. If you’ve tried social stories, but they didn’t work, it may have just been a poorly applied story. Social stories are a wonderful tool for working with Aspergers children. The value of seeing his name in print with clear expectations will be golden for your Aspie. A social story is a simple story naming the youngster along with the story of what you want him to accomplish.

8. Respect your youngster’s need for a warning. When an Aspergers kid is engaged in an activity, it is very difficult for him to move on to the next activity. Teaching him how to transition takes patience and time on your part. By giving a warning, the youngster will have an easier time accepting transitions.

9. Teach your child to tell time. The sooner you do it, the easier it becomes for your Aspie to understand the passage of time and how it works.

10. Use rewards. When an Aspergers kid is engaged in an activity, sometimes it is difficult to get him to transition to a new activity. In order to help him, offer some incentive to change activities (e.g., a preferred food or item, a desired activity later in the day, etc.).

A plan for blatant resistance: “This Tantrum Is Not Solving Your Problem”

If your Aspergers child flat-out refuses to make the transition from the current activity to the next one – or worse yet – throws a temper tantrum, help him understand that “resistance” and “throwing a tantrum” will not help him get what he wants. For example, let’s say he’s watching television …then you come along and want him to get ready for dinner. Your first request for this transition is met with stiff confrontation (e.g., yelling and throwing the remote). You can say, “If your problem is that you want to watch TV, then yelling and throwing the remote is not solving that problem …it’s just prolonging the problem! If you want to solve that problem, then come and eat a few bites, then you watch TV some more.”

My Aspergers Child: Preventing Meltdowns and Tantrums


 COMMENTS:

•    Anonymous said... for the ideas
•    Anonymous said... Hi my son is 15 and he still has no concept of time I'm finding him very hard work ATM he never wants to do anything he can be snappy towards me has anyone any ideas please or suggestions many thanx x
•    Anonymous said... I have those magnet ones, my iphone app I got works great too. We use them for night time routines usually now. I used to have one in each area of my home.
•    Anonymous said... I've learned that my son needs a "5 minute warning" before a transition (even if it's not a true five minutes). If I spring something on him, he wigs out.
•    Anonymous said... jp always needed a warning 10 min then 5 min and then i had to say time for dinner and lead the way. sometimes we sang a tidy up song before bed and we still have an identical bedtime routine. i find routine and consistency the best for him
•    Anonymous said... Just make sure the timer is a pleasing noise!! My son is now scared of timers because the load noise bothers him! The timer we used had a ringing noise and it actually caused more problem than the transition!
•    Anonymous said... My son is 5-1/2 and we use an hourglass timer. And also a picture to do list. Pictures of the activities in order is something he has really been able to follow and with the timer for each activity it really helps him feel like he can be prepared for what's next.
•    Anonymous said... Thanks for sharing the link to that timer - it is really cool! I usually do a verbal time warning. I used to do 10 minutes then 5 minutes and so on. We can now do a 5 minute warning, then a 2 minute and 1 minute warning before any kind of change - getting off the computer, time to leave, etc...
•    Anonymous said... The tricks depend on the age and what kinda kid. My son does better with "finish the chapter" than time as I think he's a bit OCD and really compulsive about finishing and saving (like in Minecraft--Roblox has been hugely frustrating for the lack of saving "all that work"). For recurring transitions, predictable "transition helpers" work for us. Like (pls don't blast me for the food thing) when we leave McD's after eating and playing, my kids get their dessert (a cookie) in the car. On the computer, we have been using Family Safety in Win8 to regulate time spent. I especially love that I can really customize the curfew settings by adding in 1/2 hr curfews for meals in addition to the whole time limit for the day. Most kids get really wrapped up and forget to eat. Good luck!
•    Anonymous said... There are great visual timer apps for the iPad and smart phones. They have worked well for my 4 -year-old daughter. She also has trouble with transitions.
•    Anonymous said... there are some cool timers used in autistic classrooms that work on the principal of a traffic light, green, yellow, red,this gives the child a warning,, and a visual indicater
•    Anonymous said... This is my son exactly!! Especially at dinner time. But not only is it a challenge to get him to the table, it's also a nightmare to get him to stay there. Or to do anything I ask of him really.
•    Anonymous said... We don't uses timers but I am thinking would be good to show some patience. Any meal time I have our 5 yr old help I incorporated his schooling time with cooking time. Now he is not a big eater so we are working on it. The more we do meal cooking really new stuff he will try a lil bit. That is a huge step.
•    Anonymous said... We set the oven timer and remind him every few minutes of how long he has until whatever it is we want him to do eg, pack his school bag, turn off the Wii, brush his teeth, come to the dinner table. It always works. We can never just spring something onto him...he is very literal and visual.
•    Anonymous said... we use a hand held cooking timer ($6 @ walmart) but try it out before buying because the bell/ringer can be too loud! We let our 5yr old son set it himself so he feels some control over what's going on. before beginning any activity, we let him know how much time is allowed for that event (10 min.) & when it's over, we will move on to the next activity (name it - bath time, dinner, etc.). he likes knowing what the upcoming activity is, but not more than that. At the 5 min. mark, I countdown each minute until the bell rings, he loves it! At 2 min. mark, I explain that he has 2 minutes left, but that the next activity (eating) will be great because (we're having his favorite dish). It helps make the transition smoother when he's down to the last minute. My son really likes a schedule, a time-table of events/activities, but has to be fore-warned when changing from each activity.
•    Anonymous said... Welcome to my life. I find that touching him and speaking directly works well. Calling from downstairs I do not reccommend unless you want to call atleast 10 times. When he is playing lego he is lost in his own world.

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The New Diagnostic Criteria for Autism

The publication of the fifth edition of Diagnostic and Statistical Manual of Mental Disorders (DSM-5) will have a huge impact on Autism Spectrum Disorders (ASDs). Aspergers and PDD-NOS will disappear, new criteria will be used to diagnose ASD, and new categories have been developed which are likely to absorb many individuals now diagnosed with ASD.

Autism Spectrum Disorder

Must meet criteria A, B, C, and D:

A. Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:
  1. Deficits in social-emotional reciprocity; ranging from abnormal social approach and failure of normal back and forth conversation through reduced sharing of interests, emotions, and affect and response to total lack of initiation of social interaction.
  2. Deficits in nonverbal communicative behaviors used for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through abnormalities in eye contact and body-language, or deficits in understanding and use of nonverbal communication, to total lack of facial expression or gestures.
  3. Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and in making friends to an apparent absence of interest in people.

B. Restricted, repetitive patterns of behavior, interests, or activities as manifested by at least two of the following:
  1. Stereotyped or repetitive speech, motor movements, or use of objects; (such as simple motor stereotypies, echolalia, repetitive use of objects, or idiosyncratic phrases).
  2. Excessive adherence to routines, ritualized patterns of verbal or nonverbal behavior, or excessive resistance to change; (such as motoric rituals, insistence on same route or food, repetitive questioning or extreme distress at small changes).
  3. Highly restricted, fixated interests that are abnormal in intensity or focus; (such as strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
  4. Hyper-or hypo-reactivity to sensory input or unusual interest in sensory aspects of environment; (such as apparent indifference to pain/heat/cold, adverse response to specific sounds or textures, excessive smelling or touching of objects, fascination with lights or spinning objects).

C. Symptoms must be present in early childhood (but may not become fully manifest until social demands exceed limited capacities).

D. Symptoms together limit and impair everyday functioning.

The DSM is a manual that organizes behaviors and symptoms into diagnostic groups for the purposes of clinical diagnosis and recommended treatment. Over time, the DSM has changed significantly. The concept of an "Autism spectrum" is relatively recent, and major changes to criteria for Autism diagnoses will change what we presently think of as the "spectrum." Most significant for individuals in the autism community will be the removal of two existing Autism spectrum diagnoses from the manual: PDD-NOS and Aspergers.

Treatments will probably not vary much as a result of the DSM change. Also, there should not be a shake-up in terms of services and therapies. People and their needs aren't changing, just the way we capture their diagnoses.

The new criteria attempt to better describe and identify what Autism is, including what social communication is (separate from general learning disabilities). The DSM will also incorporate a dimensional aspect to ASD, indicating how much support an person needs in his/her community to focus on what the person should be doing at their age and developmental levels. This acknowledges that there is a range of causes in ASD, with a different range of functions.

An individual with present symptoms of Aspergers will fall in the diagnosis of Autism Spectrum Disorder, and there will probably be additional “specifiers” (e.g., without intellectual disability, with fluent speech, etc.), which may better describe the diagnostic picture for such an individual than is currently done with the term Aspergers alone.

The Aspergers Comprehensive Handbook

Preventing Meltdowns: Diversion Tactics for Parents

When it comes to parenting a child with an Autism Spectrum Disorder (ASD), there are a few scenarios that are fertile ground for meltdowns. Some examples include (but are definitely not limited to):
  • all afternoon shopping trips
  • an endless car ride
  • long wait at the doctor's office
  • slow service at a restaurant
  • too many homework problems

These are moments where a meltdown is coming on fast, but can still be diverted. These are the times when moms and dads need “diversion tactics” (i.e., a supply of items and ideas that can fill a moment or turn a head).

While diversion tactics come in handy with any youngster, it's particularly imperative for kids with an Autism Spectrum Disorder who are often significantly less able to amuse themselves, negotiate transitions, or avoid meltdowns. A parent needs to be quick, versatile, creative, and resourceful to keep things running smoothly. Planning ahead can help.

Here's how to make sure you always have plenty of tricks in your bag:

1. Your diversion tactics should do one of these (and preferably more than one): Soothe, Entertain, and Distract. They must be deployable at a moment's notice, especially in stressful situations. The space of time between the need for soothing, entertainment and distraction, and the onset of complete disaster can be brutally short.

2. Some of the tactics in your “diversion kit” will be actual items (i.e., things you keep in your purse or pockets for emergencies). It doesn't hurt to have some on hand at all times (that's why most of these are small) and then to load up with extras when you know you might need them. Some possibilities (depending on the age of your ASD child) include:

• Animal crackers
• Coins
• Crayons/coloring book
• Deck of cards
• Dice
• Doll
• Fidget toys
• Finger puppets
• Flash cards
• Hard candy
• iPad
• iPhone
• iPod
• Keys
• Little notepad and pen
• Magnetic travel game
• Photos
• Pretzels
• Puzzle book
• Raisins
• Small storybook
• Stickers
• Toy cars

3. Some of the tactics in your “diversion kit” will be ideas that you can implement without any need for props. You may have to go through a few before you find one your ASD youngster will run with, so keep a list if you can't keep them all in your head. Some possibilities include:

• 20 Questions
• A is for ..., B is for ...
• Blowing a raspberry on his or her arm
• Clapping games
• Getting a drink from a water fountain
• Hide something in fist -- guess which hand?
• I Spy
• Let youngster choose what to do next
• Looking out window
• Math facts
• Play with youngster's hair
• Pushing hard against each other's hands
• Rock-paper-scissors
• Saying something silly
• Taking a walk
• Tell me three things you did today
• Tickling
• What color am I looking at?
• Whispering secrets
• Word games where each person adds an item, alphabetically, and the next person must remember the whole string of words

Putting together a good list of diversion tactics is one thing, maintaining it is another. As your ASD youngster gets older, changes interests, gets bored with some things and taken by others, you'll want to keep changing and replenishing the tactics in your "diversion kit." Remember, the objects don't have to be big, they don't have to be fancy, and they only have to be able to run your youngster past a bit of boredom, anxiety, or a little rough behavioral spot. But they do have to soothe, entertain, and distract.

Note: If you only have a couple diversion tactics, they can fade with overuse. The more tactics you've got in your “bag of tricks,” the better.

My Aspergers Child: Preventing Meltdowns and Tantrums

Dealing with Parental Stress

Of course, not all moms and dads with Aspergers (high functioning autistic) kids are under stress, but many are. As one mother states, “You learn to live with a significant amount of stress and you throw yourself into your everyday job as a parent when you have a youngster with an Autism Spectrum Disorder. If you work outside the home, you work even harder - and you don't think much about taking care of yourself.

Some moms and dads worry that they could have done something to prevent their Aspergers youngster's problems. They also agonize over whether they could do more now. Some stress is to be expected. As long as you're sleeping and eating well, enjoying much of your day-to-day life, and finding support where you need it, your stress is probably not too overwhelming.

Are you too stressed? Ask yourself these questions:
  • Are symptoms of stress impeding your functioning?
  • Are you finding it hard to get through the day's activities?
  • Are you having a hard time eating, sleeping, or getting up in the morning?

If you're exhausted and overwhelmed on a regular basis, you're more susceptible to physical and mental disorders. You may need time and help to recharge your batteries and find coping mechanisms. And it's important to take action now for the future. After all, when you're the mother or father of an Aspergers youngster, you're in it for the long term.

An experienced professional can help give you concrete ideas for finding time and space for yourself. He/she can also work with you to develop specific coping strategies. Changes in attitude can make a big difference, and there are many ways to work on your own feelings. It may also be helpful to have an appropriate time and place to let out pent-up frustration that's so often a part of coping with a youngster with an Autism Spectrum Disorder.

It's important to find a psychologist, psychiatrist, or social worker who has specific experience in working with families affected by Aspergers. To find such a person, get in touch with local Aspergers support groups and ask for advice. Check out online databases. Ask your family doctor for suggestions, too. Some states offer a service called "mobile therapy." This program brings therapists into your home to work with you and your whole family.

The main thing parents with an Aspergers youngster need to know is that they are not alone. There is help out there! Even if you are a single mom raising kids alone, there is help. It's up to the parent, however, to realize that it's not a sign of failure as a parent to need and accept help in caring for your Aspie.

Discipline for an Aspergers youngster is often very different than the way you would discipline a neurotypical child. So a parent is often left feeling helpless and not knowing what to do, and feeling they have nowhere to turn in getting a break from parenting. In fact, a lot of moms and dads actually feel guilty for even wanting a break, let alone taking one. The idea of a few hours away from their youngster makes them feel as though they are failing him or her as a parent. For some reason, some parents feel that to parent their youngster, that means being around them and caring for them 24/7 without any outside help.

Moms and dads need to take a break! Hire a competent babysitter, even a nurse if needed, get family to help, ask a friend for help! The point is this: get out of the house alone or with your spouse for a few hours and enjoy yourself. You can’t change any of the issues your youngster may have, but you can get a break. You can get out a few hours a week alone to unwind and you can get help to allow you to get that much needed break.

There are no easy answers on how to raise a youngster with Aspergers. Every child is different, as is every parent in their parenting methods. But the stress level is invariably there. Handling the stress is necessary in order to provide good care not only for your youngster, but for yourself and the rest of the family as well.

Many parents go through a difficult time when their youngster is first diagnosed. But after a year or two, most do learn to cope, enjoy their youngster's achievements and their own lives, and have fun.

Aspergers children are special indeed – and we love our children very much. But we as moms and dads need to be able to unwind and relieve the stress so that we are better able to parent. Never feel guilty for needing to ask for help!

Bottom line: If you're not the person you normally are, then that's a reason to get help, or at least consider that possibility.

The Aspergers Comprehensive Handbook

Getting Your Aspergers Child To Obey: The "Silent 30 Count"

When it comes to getting "typical" children to do what they're told, “3” seems to be the magic number in most cases. The success of your own mother or father in telling you when you were a kid “you’ve got until the count of 3 to hop to” may make you assume that if your child doesn't get moving in a similar time-frame, he’s being defiant.

But for kids with Aspergers and High Functioning Autism, 3 may not be a very realistic number. Think about what you're asking your youngster to do when you give an order and start counting. He has to (a) decipher what it is you want done, (b) think about how to do it, and (c) try to do it – quickly. Can your Aspie accomplish these 3 steps in 3 seconds? Don't be too quick to say “sure he can!”

Consider these possible challenges:
  • Stress management: Some Aspies find deadlines energizing, but others can become paralyzed by them. Anxiety caused by “deadline pressure” can take over your youngster and cause her to be unable to focus on the task at hand. Then, since she’s not doing what you want fast enough, you may become even more impatient, thus paralyzing her even more.
  • Motor planning: For some Aspies, contemplating how to physically do something (even something as obvious as stopping what they're already doing) can be a multi-step process. Planning and sequencing that activity may be a bigger job than a count of 3 will allow.
  • Frustration tolerance: If your Aspie seems unable to obey for some reason, it may seem easier to just issue a consequence than to do what's called for. A count of 3 gives your youngster very little time to work through other possibilities.
  • Auditory processing: If your Aspie has trouble processing language, it may take more than a count of 3 for him to figure out what you want done, much less how to accomplish it.

If any of these are issues for your youngster, you may find you will have more success if you do two very important things:
  1. extend that “3 count” to a “30 count” (i.e., 30 seconds)
  2. count silently (under your breath)

Counting to 30 gives your Aspie adequate time to (a) process your request or ask for clarification, (b) transition from what he is doing to a different activity, and (c) deal with frustration without becoming overly anxious. Counting to yourself (rather than out loud) helps your child to be able to focus on the task at hand rather than on your "distracting" voice.

You may find that your youngster sometimes needs less than 30, at which point you can provide praise and encouragement. But if your “silent 30 count” is reached and the behavior hasn't changed, you can then issue a consequence.

Alternative to the “silent 30 count”:

Depending on the situation, you may want to opt for the “0 count” method (that’s right …the ‘zero’ count method). How does that work, you ask?

When requesting your Aspergers child to follow your directions, you can allow him to decide when he will comply. Let’s use “doing chores” as an example:

The parent asks her child to clean his room before he takes-off over to a friend’s house. Five minutes later, the child declares that he is finished and starts to leave. Upon quick inspection, mom notices that his room is still a mess. So she says, “Hey …before you leave, I need to tell you something. Your chore isn’t done yet. Take as much time as you need, but you can’t leave until your room is cleaned-up.”

Statements like “take as much time as you need” are powerful in helping the child understand that his behavior determines when he may have the things he wants (in this case, the privilege of spending time with a friend).

Giving your Aspergers youngster more time to do what you ask may seem like a sign of weakness on your part, but if you have reason to believe that she can't comply in short order, it's not only compassionate - but sensible - to extend the deadline. Your goal, after all, is to have your directions followed. In the end, it's far more time efficient to spend 30 seconds and get what you want, than to spend hours seeing to it that your child follows through with the consequence for non-compliance.

My Aspergers Child: Preventing Meltdowns and Tantrums

Home-Schooling the Aspergers Child: Pros and Cons

Question

The public school hasn't worked for my Aspergers daughter because she wasn't diagnosed until recently, and they didn't know how to work with her. Consequently, her needs weren't met, and their ignorance resulted in what I would call 'abuse'. The school refused to allow her to call home last Monday, and they put her into a room to allow her to compose herself, which terrified her.

Now my daughter has a very bad feeling about this school. Intuitively, she believes something terrible is going to happen to her physically if she attends school there. She expressed it was not anxiety like she normally feels ... just her intuition. However, the school is pushing for her to attend and therefore anxiety has kicked in. We attempted yesterday, but when we arrived, she went into meltdown form. She refused to leave the car.

She has lost any trust they had previously built with her. She was traumatized and they didn't get it. She feels unheard and disrespected. Also, the event was a trigger from the past school district. Based on their reaction Monday, she feels confident they don't get it and therefore she isn't safe in that environment. She fears she won't be able to protect herself in an environment if she doesn't feel heard. Now she is convinced if she feels unsafe and needs to call home, they will deny her. So, I'm struggling with this issue. I honestly don't know if she has the ability to overcome her fears and do the work required to work through this challenge.

We're supposed to meet at the school tomorrow. I doubt I will be able to get my daughter to go with me. Our plan is to sit down and outline our concerns. Honestly, based on their reaction and response to the situation Monday, I don't think they understand the diagnoses and how to deal with her effectively. However, my daughter wants me to withdraw her and home-school. I surrender ... if that is a part of my journey then I'll take it on. However, I just want to be sure that I have exhausted all possibilities and know that this is the right path for her.

Any feedback you have would be greatly appreciated.


Answer

This may not be the answer you were hoping for, but given all that you’ve said, I can say without a doubt that there would not be a better candidate for home-schooling than your daughter. However, you are certainly not alone on this.

Growing numbers of parents of children with Aspergers and High-Functioning Autism are citing dissatisfaction with the level of their child's education as the primary reason for homeschooling. Most mothers and fathers in this group have had a child in public and/or private schools, but decided to home-school because of the lack of individual attention, inadequate teaching methods, and declining academic standards, as well as poor school performance by children that excel at home. Also, concerns about school safety have increased in recent years, resulting in an increase in the number of kids who begin home-schooling during the middle and high school years.

Having said this, I’m going to shift the conversation over to talking about the pros and cons of home-schooling so that, in case you decide to go this route, you can at least make an informed decision. Let’s look at the cons first…

Cons of home-schooling—

Home-schooling does not produce angels. Just because you take your daughter out of the current school system does not mean that she is going to immediately change some of her undesirable traits. If you decide that your main reason for home-schooling is because she presents a discipline problem for the teacher, don’t necessarily think that her attitude will change when you teach her. If, for example, she is accustomed to whining and getting her way on the little things around the home, she will not do an about-face just because you are the teacher.

You simply may not be able to gain enough control to be able to home-school. Please be realistic about this reality of home-schooling. I know of one mother who was angry with the school because the school always seems to think that her Aspie was involved in any unfortunate incident. The mother, without trying to get to the root of the problem, jerked the youngster out of the school and decided to home-school. There was little if any teaching that took place. The child rode his bicycle seemingly all day while the regular students were in school. The mother was simply too busy with the other kids to make him do his lessons. I tried very hard to help this particular Aspergers child the following year when his mother put him back in public school, but he was not willing to give up the previous freedom that he had enjoyed. His attendance was very sporadic. So, do NOT take on the task of home-schooling as a last resort because you are angry with some teacher or the school system!

Home-schooling is not free and the government does not provide home-school vouchers. The cost varies with each program. In some programs you purchase workbooks and teacher's editions for each subject (call around and find other parents that are home-schooling because they may be ready to sell you their teacher's edition or the text at a reduced rate.)

If you decide to do home-schooling, you need to reduce the amount of time watching TV. This does not mean that the TV must stay off entirely, but you can use some of the evening TV time to enrich your daughter’s reading. It is very healthy for a child to see parents reading at night. Television does not stimulate good reading habits. The youngster needs to see that movies are seldom as good as the book. Former “television time” may be the time that some of the household duties can be done.

Some home-schooled children are not required to work on a time frame (not a good idea with Aspergers kids since they crave structure). If your daughter should return to a regular classroom at some point in the future, that teacher does not have "all day" for her to work 5 math problems. (If you home-school, it will be foolish to allow unlimited time - or no time frame - to complete a task. This habit will be carried into the work force when she becomes an adult). Many times the home-schooler can’t cope with the 50-minute class frames that are prevalent in a regular classroom.

Another "con" concerning home-schooling is the fact that there is usually a state guideline for home-schooling. Some states require home-schoolers to take a standardized test.

Also, your daughter will suffer academically if your commitment is only to teach the subjects that she has an interest in.

You must carefully weigh the challenge of time. You may barely have enough time to do what you are already obligated to do. There are going to be days that you are going to feel overwhelmed and wonder if life is passing you by. Home-schooling is a job.

The largest "con" for home-schooling is the fact that there is little time for you to “distress.” For example, there is no such thing as "I'll be there in a minute” as you try to talk on the phone. Answering the phone devalues the importance of home-schooling. It is an open invitation to losing control because of the interruption. For many moms and dads, phone calls control their day. Not answering the phone requires a special kind of discipline. It is necessary for the home to have an answering machine (however, the answering machine will not help your school day if you are constantly running to the machine to see who called.) Thus, turn the ringer off if possible during the school day. A fax or an email may work better in some cases. You must be serious about your new job of teaching if you decide to home-school. Once you establish this rule, calls will diminish during school hours. 

Pros of home-schooling—

Many Aspergers families enjoy the flexibility that home-schooling provides. The child can learn about things she is interested in and at a time in her life when she is ready to learn (i.e., no preconceived schedule forces her ahead or holds her back).

Your daughter will learn about the 'real world' by being a part of it (no artificial settings are needed to 'provide exposure'). She can receive a superior education attuned specifically to her own needs, learning style, personality, and interests (at far less cost than that of a private school). Being allowed to learn at her desired pace with a minimum of stress, your daughter will have the time and space to internalize and use what she learns.

Some home-school programs offer classroom videos that the youngster uses and actually sees a classroom teacher teaching the lesson. This is especially good for Jr. High and High School and for technical subjects such as advanced math. To offset the cost, you may want to consider the fact that your youngster does not need to have such an extensive wardrobe. These savings could apply toward some of the school supplies. You will save money on school clothes, gym clothes, uniforms, or unnecessary school fees.

Also, home-schooling families spend a lot amount of time together living, learning and playing. They have the opportunity to develop a depth of understanding and a commitment to the family that is difficult to attain when family members spend their days going in separate directions.

Lastly, another nice side benefit to home-schooling is that vacations and other outings can be planned for times when the family is ready - and often when the crowds are smaller or the costs are lower.

Good luck in your decision making process!

My Aspergers Child: Preventing Meltdowns and Tantrums at Home and School

 
COMMENTS:

*   Anonymous said... I've got two boys with aspergers and have had serious problems with my eldests school he's nearly 16 and they have never helped him in any way with his autism yet my five year olds school has been fantastic in every way both schools are next to each other yet seem so far apart in their actions

*   Anonymous said... We are in our third year of homeschooling our 11 year old son. Our only regret is that we allowed him to be abused and ignored by the school system as long as we did. Homeschooling is not for everyone and it is not easy, but I can honestly say that the worst day homeschooling is better than our best day in public school. My son thanks me quite frequently for homeschooling him and tells me now how horrible his experience in school was. I decided I could waste all of my energy and resources on fighting an educational system that was not trustworthy and did not really care for my child and ultimately get no where, or I could take that energy and passion for helping my child succeed and put it into homeschooling. We knew what our son needed and were weary of trying to force the school to provide that. The improvements we have seen in our lives are nothing short of miraculous. We are so grateful we took the road less traveled, it has made all the difference in our lives. Best of wishes to you and your family for better days ahead.

Please post your comment below...

Pick and Choose Your Battles Carefully

Not every behavioral misstep is worth fighting over. As moms and dads of Aspergers children and teens, we all want to be consistent disciplinarians. We know our kids will see waffling as a sign of weakness, and not take us seriously if we don't stand by our convictions. But kids with Aspergers and High-Functioning Autism sometimes present us with so many opportunities for behavioral correction that if we pursued every one, they would never be ungrounded!

How do we let our Aspergers children know that rules are important, and still use discretion when it comes to discipline? Here are some tips on being a caring, yet authoritative parent:

Tip #1: Doing a behavior analysis can help in determining what behaviors will respond to disciplinary action, which ones will be better served by changing the environment or your own expectations, and how to negotiate those that will respond best to that tactic. Here’s how to do an analysis:

A. To start with, you'll want to narrow your focus to one particular behavior to analyze and change. Although it's tempting, don't just choose the thing that most annoys you. A better choice will be something that particularly puzzles you:
  • Why can your youngster do math just fine some days, and balks on other days?
  • Why does he insist on punishment even when it upsets him?
  • Why does he get so wound up and wild?
  • Why is your youngster sweet and compliant sometimes, then resists to the point of tantrum over something inconsequential?

As long as you're going to be a detective, you might as well give yourself a good mystery. While you're stalking one behavior, you may need to let others slide, unless it's a matter of safety. Don't try to change everything all at once.

B. Keep a journal -- or, if it is a frequently occurring behavior, a chart -- for noting every incidence of the targeted behavior. Think of what might have happened directly before the behavior, and also earlier in the day. Include the time of day the behavior occurred, and what happened before, during, and after. Think of what happened directly after the behavior, and whether it offered the youngster any reward (even negative attention can be rewarding if the alternative is no attention at all). Ask yourself:
  • After a certain event?
  • Around transitions?
  • Does the behavior tend to be more frequent during a certain time of day?
  • In anticipation of something happening?
  • When routine is disrupted?
  • When something happens or doesn't happen?
  • When things are very noisy or very busy?

Keep track over the course of a few weeks and look for patterns.

C. It may seem as though your youngster saves his worst behavior for public places, where it causes you the most embarrassment. But there may be a reason for that.
  • Does he have a hard time resisting touching and banging things like buttons or doors?
  • Does he have trouble in places where he needs to stay still and quiet, like church?
  • Does he resist places where children may be cruel, like the bus or the playground?
  • Does he panic in places that are busy and noisy, like the mall?
  • Does he shy away from places with strong smells or bright lights?
  • Is there something about those places that might be distressing?

Notice reactions to different environments and add these insights to your journal or chart.

D. You can stubbornly insist that your youngster is responsible for his own behavior and wait for him get in line, but you're liable to be waiting for a long time. While you may find the behavior annoying, disruptive, or inappropriate, it may be filling a need for your youngster. And even if your youngster is genuinely unhappy about the negative consequences of his behavior, he may not understand it enough to control it. In the end, it is far easier for you to change -- your expectations, actions, reactions, responses -- than for your youngster to change. You will need to do some detective work to determine the support your youngster needs to improve his behavior, and provide it. Ultimately, you can teach your youngster to do this for himself. But you have to lead the way.

E. Take the data from your journal or chart, the patterns you've turned up there, the observations on environments, and see if you can figure out what's behind the behavior. Maybe he blows up over something inconsequential because he's used up all his patience weathering frustrations earlier in the day. Maybe he balks at math when he sees too many problems on the page. Maybe he gets wound up because being good gets him no attention. Maybe he begs for punishment because going to his room feels safer than dealing with a challenging situation. Once you have a working theory, make some changes in your youngster's environment to make it easier for him to behave.

Tip #2: If you decide a rule is important enough to be enforced without negotiation and without exception, then enforce it every single time. Never let it slide, even when it would be convenient for you to do so. Your Aspergers youngster needs to know that the outcome in those situations will be the same every single time, or else she's going to argue with you every single time.

Tip #3: If your Aspie is impulsive, or can't handle stress very well, or perseverates on phrases and activities once he is put "in the pipeline," one of the worst things you can say is, "If you do that one more time, you'll be punished." You may find that your youngster will be irresistibly drawn to do just that, at once -- whether because you've set an impulse in motion, because he can't deal with the stress of waiting for the other shoe to drop, or because he gets stuck on what you've said.

On other occasions though, an ultimatum seems to be what's called for. You can't just let behavior go on forever, yet you don't want to deal the consequence without giving your youngster a chance. Instead of specifying one more time, try saying something along the lines of, "I have a number of times in my head, and you're not going to know what that number is. But when you hit that number, you will get a consequence." This allows you to give your youngster extra chances if he seems to be trying without going back on a threat, and gives your youngster a little comfort zone to know that he can slip once or twice. Some children will dislike the uncertainty of it, and for them, this might not be the best technique. But if certainty is more pressure than your youngster can handle, it may just do the trick.

Tip #4: If you've determined to allow negotiations for some behaviors, allow them every time. Don't clamp down sometimes and ease up others. Your youngster needs to respect that you will listen to him as promised.

Tip #5: If you've determined to let some things slide, let them slide every time. Don't suddenly decide to swoop down because you're in a bad mood and your Aspie has been pushing your buttons. If he has to play by the rules, so do you.

Tip #6: Figure out which battles to choose, and which to let by. Here’s how: Use three baskets, one for things that are truly nonnegotiable, one for things that are important but allow for some compromise, and one for things that just aren't important enough to make a scene over. The first basket should be the smallest, and the last the largest. Think of the things you fight with your youngster over. Could any of them get tossed in the second or third baskets?

Tip #7: Instead of presenting your youngster with a choice between doing it your way or being punished (at which many Aspergers children will automatically choose the punishment), try to present a choice between two options that would both be agreeable to you. Saying, "Put on your shoes right now or you're in big trouble!" may be less likely to bring compliance than, "Which do you want to put on first, your shoes or your jacket?"

Good luck …you can do this!

My Aspergers Child: Preventing Meltdowns and Tantrums

Aspergers Traits: A Positive for Many Careers

Trait #1—All He Cares About in the World Is One Thing

If you've ever worked at a museum, lab or university, you'll find worlds full of single-minded, passionate individuals. To an academic, their area of interest, no matter how small, is desperately interesting. The same is true of museum professionals and archaeologists, who spend their lives studying individual artifacts, bones or textiles.

Trait #2—He Can't See the Forest for the Trees

It's a common trait among Aspergers individuals: they see the parts instead of the whole. It's a problem in some settings, but a terrific attribute if you're looking for deep space anomalies (e.g., as an astronomer), unique cells (e.g., as a lab technician), differences among species (e.g., as a biological researcher), or particular qualities of objects (e.g., as a gemologist, antiques appraiser, or art historian).

Trait #3—His Only Friends Are His Family

This trait may not get you invited to the prom. But it's a wonderful attribute if you're a forest ranger, a self-employed writer or artist, a caretaker at an estate, a gardener or horticulturalist, or even a paleontologist (i.e., dinosaur scientist). After all, lack of interest in other individuals is not indicative of lack of interest in or ability to manage things, animals, or systems. And it's not easy to find a qualified person who's willing to spend extended periods on their own.

Trait #4—He's So Rule-Oriented

In a typical workplace, most individuals bend and break the rules. This is very tough for many Aspergers individuals, who need and respond to structure. But there are plenty of work places in which rules are absolute -- for everyone. Of course, the most obvious choice for rule-oriented individuals is the military. But even in hospitals and labs, rule-following is not only important -- it's critical.

Trait #5—He’s So Detail-Oriented

Q: Since when have passion, meticulous attention to detail, and lack of interest in office gossip been problems in the workplace? A: Since the workplace was defined as a 9-5 social setting! It's true that offices -- and the stock rooms at Wal-Mart -- are "typical" work settings. But Aspergers individuals aren't typical. And neither are the careers for which they're ALREADY good candidates.

Trait #6—He Likes Animals, Not People

It's not easy to become a veterinarian. But consider some of the many animal-oriented careers available. For example:
  • animal tech at a veterinary practice or kennel
  • animal wrangler for the entertainment industry
  • caring for horses at a stable, horse-farm or track
  • naturalist or husbandry expert at a museum or aquarium
  • pet store employee
  • working on a farm
  • zookeeper or animal curator at a zoo or petting farm
…and the list goes on and on!

Trait #7—He Thinks In Pictures

Some Aspergers individuals can, with virtually no effort, envision a 2-dimensional photograph as a 3-dimensional object. With appropriate training, such individuals are ideal candidates for jobs in areas like CAD (computer aided design), architectural model construction, industrial design, exhibit prototyping, and much more. The key is finding and supporting the training that can lead to such careers.

The Aspergers Comprehensive Handbook

Disappointment With The Diagnosis

Question

We recently received a diagnosis of Asperger Syndrome (or high-functioning autism) on our 7-year-old son. My husband is not doing so well with this recent news. Is there any way to lessen the blow to his disappointment?

Answer

To your husband:

Realize that you are not alone in this and that your feelings (which run the gamut from fear, to guilt, to anger, to depression, etc.) are just the symptoms of a broken heart. So go ahead and look at your grief. Observe your thoughts and feelings. Accept them and be kind to yourself about having them. It doesn’t help to pretend to be positive when underneath you may be lonely, afraid, or sad. You can grieve. You can complain. You can mourn. This helps you to go on, make the best of the situation, and enjoy life.

It is natural to wonder about what might have been. The longing for the “normal” youngster of your dreams - or a typical life for you and your family - may endure. You have to learn to live with that yearning, and you can do that, but you don’t have to lie to yourself about how hard this can be. It takes time to heal a confused and broken heart, and the difficulties that you must cope with everyday are nearly constant reminders and may trigger your grief over and over.

Try to accept yourself as you are—a kind and loving father doing your best with your Aspergers youngster who is undoubtedly doing his best under trying conditions. A perfectly lovely youngster with special needs can be very hard to be with because of his behavioral, social, or communication issues. But people often believe that when you love somebody, you love to be with them. When you don’t feel that and think you should, the guilt can be unbearable, and your heart aches. As you can accept yourself in a kind and compassionate way, your heart heals, and then the grief lightens. The sun comes out, and change is more likely.

Accepting our pain - and ourselves - leads to accepting and enjoying our Aspergers kids – and our family. This is the gateway to love and happiness. That deep connection that a father feels with a newborn, or a youngster’s first steps, or first words can be felt at any moment when we are truly aware and attuned to our Aspergers youngster. That deep connection is alive inside you. As you rekindle it, you can actually experience very deep happiness. That’s not to say that your life will be easy. But it can be happy and fulfilling.

The Aspergers Comprehensive Handbook

Vaccination Is NOT Immunization

What Your Physician Hasn't Told You About Vaccinations Could Put Your Youngster at Risk for Autism, Asthma, Allergies, Diabetes or Cancer.

Get the Medical Facts About Vaccine Dangers Before You Take Any Steps to Vaccinate Your Son or Daughter!

Do you have doubts whether vaccines can really protect your youngster from illness or disease? Do you worry that your youngster could become autistic, or develop asthma, allergies or even a fatal disease, like Sudden Infant Death syndrome? These are not theories. Millions of American kids have these conditions today. Yet most other countries on earth recommend less than half the vaccines we do.

What you're about to read may come as a shock. It did for me when I first began to research vaccines and their effect on the body over a decade ago. Hundreds of hours of digging into the medical literature and checking the facts compelled me to speak out.

Much of what I discovered was in conflict with the way most of us are taught to care for our kids. Let's face it — most moms and dads agree to have their newborn youngster vaccinated and believe it is the right thing to do. It's what their moms and dads did, and it's what their physicians recommend. Once they start, the youngster goes on to receive numerous vaccinations year after year, up through their teens. All the while you, the parent, continue to think you're doing the right thing.

Well, as it turns out, it's often a mistake.

What you'll see when you peek behind the curtain of the multi-billion dollar drug and vaccine cartels should scare the life out of you, because your youngster is being put in harm's way more than you are being told.

Click here for the full article...

40 Tips for Parenting Defiant Teens with Asperger Syndrome

Parenting teenagers is hard enough ...right? But throw "Asperger Syndrome" (high functioning autism) into the equation - and now you really got a mountain to climb. Do not despair! Here you will find 40 ways to effectively parent, nurture, and discipline your defiant Aspergers teen:

1. Writing Assignments - Education sometimes alters unwanted “Aspergers-related” behavior. Examples include:
  • learning about a particular culture, religion or disability in order to develop understanding or tolerance
  • researching the long-term effects of smoking or drug usage
  • talking with teen parents to learn what sacrifices they have made

Such an assignment should include considerable thinking, learning, and dialogue with moms and dads, rather than simply writing a certain number of words without much independent thought.

2. Tolerating Behavior - When establishing a relationship or dealing with multiple behaviors, it may be necessary to tolerate some behaviors temporarily. This is a purposeful, thought-out choice on the part of the mother/father based on:
  • age and developmental level of teen involved
  • current situation
  • priorities
  • relationship
  • specific treatment issues
  • values

This is not to be confused with passivity, avoiding conflict, letting the Aspergers youngster "do whatever they want," inconsistently enforcing expectations or other methods that don't work.

3. Temporarily Removing One or More Privileges - It is not meaningful or realistic to "remove all privileges." This generally leads to resentment towards the parent and a lack of understanding or personal responsibility. When this technique is chosen:
  • it must be made clear to the adolescent exactly which privilege(s) will be removed
  • why it is being removed
  • exactly how it will be handled
  • for what time period

If there is something they can do to get the privilege(s) reinstated sooner, that should also be clearly explained. Note: this requires more thought and explanation than simply saying, "You’re grounded."

4. Teaching Interactions - Effective parenting of Aspergers teens requires frequent interactions. Situations, both dramatic and mundane, present themselves continually. Moms and dads, who recognize the golden opportunities in routine living tasks, capitalize upon them by turning them into teaching interactions, build solid relationships, have fewer behavior problems, and receive daily rewards. Problems = teachable moments. Teaching interactions can take several forms such as:
  • teaching a concept (e.g., negotiation)
  • processing dynamics (e.g., "Have you noticed that when someone doesn't fulfill their responsibility, others become resentful?")
  • demonstrating a skill

The point is that on-duty moms and dads should always be interacting with their teens, and the nature of those interactions is teaching; rather than:
  • becoming friends with the teen
  • criticizing
  • doing things for the teen
  • judging
  • lecturing
  • punishing

5. A regular bed time at a reasonable hour is more important than ever, if you can put/keep it in place. Regular routines of all kinds—familiar foods, rituals, vacations—are reassuring when the adolescent’s body, biochemistry, and social scene are changing so fast.

6. Teaching Alternatives - A good way to teach the Aspergers teen personal responsibility is to spend time brainstorming together about all the possible responses, and predicting the reactions to each response. Instead of telling them what to do and what not to do (which can elicit dependency or oppositional responses), it is useful to spend time exploring different options. For example, instead of saying, "Don't say that to your father" …it is better to say something like, "That's one way you could handle it. How do you think he would respond to that?" … "Is that the response you want from him?" … "How else might you phrase that idea?" …etc. If they have trouble coming up with alternatives, you can help out by saying, "Do you want to know what some other people have tried?"

7. Establish verbal codes or gestures to convey that one or both parties need a time out: a chance to cool down before continuing a difficult discussion at a later time.

8. Substitution - It is never enough to tell teens what they can't do or what behaviors they must stop doing. We must always add what they CAN do instead. Some examples might be ideas such as, "You cannot hit your classmate when you are angry, but you can go for a brisk walk, write in your journal, talk about how you feel, etc." The goal is to replace or substitute an unacceptable behavior with one that is acceptable and still meets the same need. The message should always be, "Your needs and feelings are normal and okay and we are here to help you express them in ways that will allow you to be successful and responsible."

9. Go with the flow of your Aspergers youngster’s nature. Simplify schedules and routines, streamline possessions and furnishings. If your adolescent only likes plain T shirts without collars or buttons, buy plain T shirts. If your kid likes familiar foods, or has a favorite restaurant, indulge her.

10. Shaping - Shaping behaviors is an approach that breaks skills down into steps and rewards small movements in the right direction. For example, if you are trying to teach the skill of greeting a visitor, you would ultimately want the Aspergers teen to go through the following series of behaviors:
  • stop what they are doing
  • stand up
  • look at the visitor
  • walk over to them
  • make eye contact
  • smile
  • say "hello"
  • extend your right hand to shake
  • say “my name is ___”

To ask for all of that from someone who has never done it before, or who is shy, is asking too much. So at first they would be rewarded if they momentarily stopped what they were doing when someone new cam in. After a few times they would need to stop what they were doing, stand up and look in the direction of the visitor in order to be praised, and so on. In other words new skills are not all or nothing but are a series of steps to be learned.

11. Sequencing - Desirable behaviors can be used as motivating for less desirable ones. For example, "You may watch one hour of approved TV as soon as your book report is satisfactorily completed" –or- "You may make that phone call as soon as you have finished cleaning up the kitchen." This type of statement helps the mother/father avoid power struggles because they did not say, "no." It puts the struggle and control back with the Aspergers youngster, where it belongs. They can then choose whether or not they will watch TV today and when (within limits). A version of this can be re-stated calmly and compassionately as often as necessary while the Aspie struggles with their choice.

12. Have realistic, modest goals for what the adolescent or the family can accomplish in a give time period. You may need to postpone some plans for career goals, trips, culture or recreation.

13. Some Aspergers adolescents adjust o.k. to middle/high school with appropriate supports and accommodations, Others, however, just cannot handle a large, impersonal high school. You may need to hire an advocate or lawyer to negotiate with your school system to pay for an alternative school placement, tuition, and transportation.

14. Role Playing/Rehearsing - This technique can be used to practice for an upcoming situation that may be difficult, foreign or anxiety producing or to re-create a situation that already occurred to experience alternative responses. Examples should include role-playing a situation in which the Aspergers teen was angry and became physically or emotionally abusive, or one in which they demanded or sulked instead of negotiating. The purpose of the role-play is to practice more acceptable styles of self-expression while still making their intended point. Practicing of this sort will make the desired responses more likely in future similar situations. Role playing can also be used to practice saying something that is difficult or anticipating a variety of responses in order to reduce anxiety.

15. If you can afford it, you may prefer to pay private school tuition rather than paying a lawyer to negotiate with a financially strapped or resistant school system. However, a private school may not be the best choice. Some families move to a community with a better high school. Residential schools may be worth considering for some. The right fit can build tremendous confidence for the adolescent, give the parents a break, and prepare everyone for the independence of the post high school years.

16. Role Modeling - Most of what kids learn from grown-ups comes from simply observing. All moms and dads are role models to their kids and need to be very conscious of their own behavior. Kids are astute observers of how we treat them, how we relate to each other and how we take care of ourselves.

17. Impersonal, written communication is easier for the adolescent to absorb (e.g., lists of routines and rules, notes, charts, or calendars). E-mail may become a new option.

18. Your Teen's Rights - Food, clothing, therapy, medical attention, education, spiritual activities are NEVER withheld as a consequence. Privileges (e.g., television, telephone, radio, some activities, free time, visiting with friends, hobbies, walking around the grounds, etc.) may be temporarily withheld as logical consequences and can be powerful incentives for some adolescents.

19. Aspergers teens need structure, down time, soothing activities, and preparation for transitions.

20. Rewarding/Reinforcing - Rewarding positive behavior is the best way to ensure its continuation. A common error in parenting is to spend so much time and energy dealing with crises and negative behaviors that kids who are being responsible can either get "lost" or are tempted to act less responsible to become part of the action. Rewards can take many forms from simple a comment: "I noticed that you..." or "I really appreciated it when you..." to special time and attention or more concrete things such as a special treat or privilege. For every negative interaction the Aspergers teen experiences, it takes four positive interaction to overcome the effects. Moms and dads need to be very deliberate about maintaining at least a 4:1 ratio of positive to negative interactions every day with every teenager.

21. Look for volunteer activities or part time jobs at the high school or in the community. Be persistent in asking the school to provide help in the areas of career assessment, job readiness skills, and internships or volunteer opportunities. They probably have such services for intellectually challenged adolescents, but may not realize our teens need that help, too. They may also not know how to adapt existing programs to meet our teens’ needs.

22. Requesting - When there is a good relationship between the mother/father and youngster, a simple request to do, or stop doing, something or a re-stating of the expectations is often enough. If over-used, however, it may become less effective, may be experienced by the Aspergers youngster as overly controlling, or can slow the process of responsible growth and decision-making skills. Example: "We don't use that type of language here, could you please find a different word?"

23. Make sure thorough neuropsychiatric re-evaluations are performed every three years. This information and documentation may be critical in securing appropriate services, alternative school placements, transition plans, choosing an appropriate college or other post secondary program, and proving eligibility for services and benefits as an adult.

24. Refocus - A defiant teen may be asked to spend time thinking about something (e.g., a recent run-away or self mutilation) and express their feelings and thoughts in some way. This could be writing, poetry, drawing, etc. Whatever format is used, it then needs to be processed with the adolescent. They can then be assisted in identifying early clues and practicing alternative responses. The purpose of this type of activity is to encourage thinking, self-awareness, communication, and planning for different choices in the future.

25. Schedule regular monthly educational team meetings to (a) monitor your adolescent’s progress and (b) ensure that the IEP is being faithfully carried out (and to modify it if necessary). Because adolescents can be so volatile or fragile, and because so many important things must be accomplished in four short years of high school, these meetings are critical.

26. Side by side conversations (e.g., walking, in the car) may be more comfortable for the adolescent than talking face to face.

27. Special interests may change, but whatever the current one is, it remains an important font of motivation, pleasure, relaxation, and reassurance for the adolescent.

28. Redirecting - Commonly used with younger defiant kids or those with short attention spans, this technique simply stops one behavior by substituting another or diverting the attention of the Aspergers teen or group to a different subject or activity.

29. Teach laundry and other self-care/home care skills by small steps over time. Try to get the adolescent to take an elective such as cooking or personal finance at the high school.

30. Pre-Teaching - It is easier to prevent negative behaviors than to deal with them after they occur. A very effective tool is to pre-teach behavior prior to an event or potentially vulnerable situation. This involves talking with the person or group in detail about what will be happening, why, and what their role and expected behaviors will be. Pre-teaching reduces anxiety, clarifies expectations, builds confidence, sets up success, and can add to the fun of anticipating an event.

31. Physical Proximity - Sometimes a defiant Aspie who is beginning to become anxious, irritable or overly active will be calmed down by eye contact, a special "look" or signal, moving next to them or a reassuring hand on the arm or shoulder. Along with physical proximity it is important to be calm and reassuring.

32. Observing and Commenting - A mother/father may choose to comment on a behavior in a non-threatening, non-judgmental way to bring it to the attention of the Aspergers youngster. This may be new information for the Aspergers teen to think about. What they choose to do with that feedback will provide further opportunities for discussion and teaching. For example, "I notice you tend to be critical of others when they are taking about a success" –or- "You seem to only break the rules when you are in a group" etc.

33. Tell your adolescent just what s/he needs to know – one message at a time – concisely.

34. Natural Consequences - Sometimes consequences occur through the natural course of events (e.g., a teen coming home late from school and missing a phone call from a friend). If the natural course of events makes an impact by teaching a lesson, moms and dads need not intervene further. They can be sympathetic to the Aspergers teen's plight (this must be genuine however, and never patronizing or sarcastic).

35. Logical Consequences - Logical consequences may be necessary when no natural one occurs, or when the natural one is insufficient to make a change in future behavior. An example would be a defiant teen causing a disturbance at an event, not being allowed to attend the next one.

36. Ignoring Behavior - Moms and dads may consciously decide to ignore certain behaviors of their defiant adolescent at times in an effort to extinguish the behavior by not reacting to it. The behavior may be inconsequential, may be designed just to "get a reaction," or may be masking another, more important, issue which is what really needs attention. Ignoring a behavior should not stop communication or relationship building. It is a specific behavior that is being ignored, not the person. Examples might include using certain words, attempts to provoke or annoy moms and dads, making personal comment to or about moms and dads, saying "I won't" or "you can't make me," etc.

37. Encouraging/Coaching - Encouragement, praise, and coaching are all effective ways to make pro-social behaviors more likely and more frequent. The stronger the relationship between mother/father and a given youngster, the more powerful this method becomes.

38. Consequences - Consequences may be used to discourage unacceptable behavior of defiant adolescents. Usually this will occur after other techniques have been tried unsuccessfully. Discipline should not be confused with punishment; nor should they ever be given in anger. They should be applied consistently. That means that the behavior disciplined today, will again be disciplined next week. Also, behavior disciplined for one teen will not be allowed for others. This consistency lowers anxiety by making the environment predictable. Remember:
  • A mother/father who is angry with an Aspergers teen should calm down before deciding a consequence, and if applicable, should consult with the other parent before doing so.
  • Consequences are given to help teenagers establish boundaries.
  • Consequences are more effective when discussed matter-of-factly from a caring and controlled point of view.
  • Consequences should be clearly explained, related to the behavior, and completed as soon as possible.
  • Moms and dads should regularly discuss the effectiveness of consequences for the specific teen and should always support each other in the positive discipline process.

39. Active Listening - Some “Aspergers-related” behaviors are bids for attention or expressions of frustration at not feeling understood. Moms and dads can reduce problem behaviors when each defiant youngster feels genuinely cared about, understood, and paid attention to. Active listening is hard work and takes energy and practice. It cannot be done when thinking about or attending to other things, or when distractions occur. Active listening need not last a long time, but attention must be focused completely on the Aspergers teen and the message must be communicated back to them in the listeners own words in a way that lets them know they really were heard. Body language, facial expressions, tone of voice, eye contact, respect for personal space, and choices of words are all important in communicating the desired message. It may take two or three attempts to really understand the message, and that is okay, as long as it is finally understood accurately and that is clearly demonstrated. A few brief exchanges of this sort for each youngster every day are necessary.

40. Patience – Your Aspergers teen has this thing called “mindblindness.” In other words, he may not understand some of the social norms that other children and teens learn automatically. Thus, be able to distinguish between “misbehavior” (which is intentional) and “Aspergers-related” behavior (which is never intentional).

Disciplinary Techniques for Defiant Teens with Asperger Syndrome and High-Functioning Autism

The Myths and Facts About Aspergers

Moms and dads with an Aspergers (high functioning autistic) son or daughter tend to overwhelm themselves with research, treatments, and general anxiety over their kid’s welfare. While this is natural, it's not particularly good for you, your "Aspie," your marriage, or the rest of your family. And the truth is this: it isn't even necessary!

Let’s dispel some myths that some parents have about Aspergers…

Myth #1: I Somehow Missed "The Cure" for My Youngster's Aspergers

Did you somehow miss out on a pill, a supplement, a special treatment or a new therapy that could be "the one" that could have cured your youngster's Aspergers? The truth is, while many kids respond well to various therapies, even kids who are supposedly "recovered" still have some Aspergers traits. Since there is no cure for Aspergers, there's no need to worry about it.

Myth #2: I Will Have to Cope with Aspergers Alone

When your youngster is diagnosed with Aspergers, you feel like you've just been tossed out of the "parent club." After all, your youngster is different, which means you may never “fit in” again. Luckily, there's a whole world of support groups, listserves, pal clubs, parent groups and events where you're more than welcome. In fact, your presence is requested!

Myth #3: I Shouldn’t Expect Much from My Aspergers Child

Your youngster has Aspergers, so you need to lower your expectations – right? Wrong! Children with Aspergers may not have a lot of social skills (yet), and they may have some significant challenges ahead. But they also have great talents (as you probably have discovered already).

Myth #4: I Won’t Be Able to Have a Normal Life

When your youngster has Aspergers, you may feel ostracized from the ordinary world. In fact, though it may be a bit tougher, you can join in most of what life has to offer, even WITH an Aspergers youngster. From vacations to family holidays to visits to grandma - most of it is a matter of planning, patience, and a sense of humor. And for some people, success is even sweeter when it requires overcoming a challenge.

Myth #5: I Need To Do a Whole Lot of Research on Aspergers

Is there another article on Applied Behavioral Analysis I should be reading? Is fish oil really going to help my youngster? How about the gluten-free diet? There's always another question - and the web holds a million answers. Take a break, have a bubble bath, and re-connect with your spouse and the rest of your family. Research is O.K. to do some of the time, but too many parents make “research” an obsession.

Myth #6: I Have to Find Out What Caused my Youngster’s Aspergers

The media is full of stories of what causes Aspergers, and you'll find answers galore, from TV to pitocin, from vaccines to Lyme Disease. Could one of these answers be correct? Absolutely. Do we know for sure WHICH is correct? No. You can sift and weigh the evidence and formulate an opinion, but as of today no one really knows what causes Aspergers. As a result, you're free to focus on the future instead of the past.

Myth #7: It’s probably too late to help My Aspergers Youngster

Whether your Aspergers son or daughter is three, thirteen, or twenty-three, he/she will still benefit from therapy. In fact, while early intervention is always helpful, the proverbial "window of opportunity" for treatment is a bit of a myth. So whatever your youngster's stage of life, you're not too late to make a difference.

We’ve looked at the myths, now let’s look at the facts…

If you're sick of hearing about all the "deficits" challenging children with Aspergers, join the club. But for every downside to Aspergers, there is a positive – and unusual trait that rarely appears among "typical" children, but shines-out among Aspergers kids. These positives are worth celebrating:

Fact #1: Aspergers Children Are Less Materialistic

Of course, this is not universally true -- but in general, children with Aspergers are far less concerned with outward appearance than their typical peers. As a result, they worry less about brand names, hairstyles and other expensive, but unimportant, externals than most children do.

Fact #2: Aspergers Children are Passionate

Of course, not all Aspergers children are alike. But many are truly passionate about the things, ideas and special interests in their lives. How many "typical" children can say the same?

Fact #3: Aspergers Children Play Fewer Head Games

Most Aspergers children don't play games -- and they assume that you won't either. It's a refreshing and wonderful change from the typical B.S. that tarnishes too many typical relationships!

Fact #4: Aspergers Children Rarely Lie

We all claim to value the truth, but almost all of us tell little white lies …all, that is, except children with Aspergers. To them, truth is truth -- and a good word from a child on the spectrum is usually the real deal.

Fact #5: Children with Aspergers Live in the Moment

How often do typical children fail to notice what's in front of their eyes because they're distracted by social cues or random chitchat? Children with Aspergers truly attend to the sensory input that surrounds them. Many have achieved the ideal of mindfulness.

Fact #6: Children with Aspergers Are Not Tied to Social Expectations

If you've ever bought a car, played a game or joined a club to fit in, you know how hard it is to be true to yourself. But for children with Aspergers, social expectations can be honestly irrelevant. What really matters to them is true liking, interest and passion -- not keeping up with the current trends and fads.

Fact #7: Children with Aspergers Have Terrific Memories

How often do typical children forget directions, or fail to take note of colors, names, and other details? Children with Aspergers are often much more tuned in to details. They may have a much better memory than their typical peers for all kind of critical details.

Fact #8: Children with Aspergers Rarely Judge Others

Who's in better shape? Richer? Smarter? For children with Aspergers, these distinctions hold much less importance than for typical kids. In fact, Aspies often see through such surface appearances to discover the real person.

The Aspergers Comprehensive Handbook

My child has been rejected by his peers, ridiculed and bullied !!!

Social rejection has devastating effects in many areas of functioning. Because the Aspergers child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually.

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How to Prevent Meltdowns in Aspergers Children

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But... don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

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Parenting Defiant Aspergers Teens

Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

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Aspergers Children “Block-Out” Their Emotions

Parenting children with Aspergers and HFA can be a daunting task. In layman’s terms, Aspergers is a developmental disability that affects the way children develop and understand the world around them, and is directly linked to their senses and sensory processing. This means they often use certain behaviors to block out their emotions or response to pain.

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Older Teens and Young Adult Children With Aspergers Still Living At Home

Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with Aspergers face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

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Living with an Aspergers Spouse/Partner

Research reveals that the divorce rate for people with Aspergers is around 80%. Why so high!? The answer may be found in how the symptoms of Aspergers affect intimate relationships. People with Aspergers often find it difficult to understand others and express themselves. They may seem to lose interest in people over time, appear aloof, and are often mistaken as self-centered, vain individuals.

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Online Parent Coaching for Parents of Asperger's Children

If you’re the parent of a child with Aspergers or High-Functioning Autism, you know it can be a struggle from time to time. Your child may be experiencing: obsessive routines; problems coping in social situations; intense tantrums and meltdowns; over-sensitivity to sounds, tastes, smells and sights; preoccupation with one subject of interest; and being overwhelmed by even the smallest of changes.

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Unraveling The Mystery Behind Asperger's and High-Functioning Autism

Parents, teachers, and the general public have a lot of misconceptions of Asperger's and High-Functioning Autism. Many myths abound, and the lack of knowledge is both disturbing and harmful to kids and teens who struggle with the disorder.

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Parenting Children and Teens with High-Functioning Autism

Two traits often found in kids with High-Functioning Autism are “mind-blindness” (i.e., the inability to predict the beliefs and intentions of others) and “alexithymia” (i.e., the inability to identify and interpret emotional signals in others). These two traits reduce the youngster’s ability to empathize with peers. As a result, he or she may be perceived by adults and other children as selfish, insensitive and uncaring.

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My Aspergers Child - Syndicated Content