HELP FOR PARENTS WITH CHILDREN WHO HAVE ASPERGERS/HIGH-FUNCTIONING AUTISM

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6.12.09

Aspergers Children and Self-Injury

Question

I am wondering if there is a larger number of people with Aspergers who self-mutilate out of depression and other pressing emotions, more so than regular people. I want to know if there are members with Aspergers on this site that have ever engaged in this activity and what caused it. Depression or is it from the Aspergers?

Answer

Self-injury is often a coping mechanism, particularly with the feeling of being rejected. This is a particular problem for anyone who has difficulty in understanding non-verbal communication, for example, those with Aspergers, a form of autism, possibly affecting about 1 person in 200.

For most people, understanding facial expressions, body language, etc., is instinctive, starting as babies before language acquisition. But just as some people having hearing difficulties or are short-sighted or color-blind, others have difficulty with interpreting the non-verbal signs which most people use continuously and which are essential part of how small groups work: tiny cues tell us when to speak and when to stop, and whether people agree or disagree with us, or whether others find us amusing or dull, etc. These cues are not understood by Aspergers kids. Research is continuing into why this is: for example, some recent research has found that while most people use a special bit of the brain for looking at faces, those with autism use the same bit as for looking at inanimate objects.

This disability is not immediately obvious but it is a handicap. However, most Aspergers kids can learn how to cope. Indeed many teach themselves without realizing that they are not getting all the information available. But it gets more difficult in adolescence when fitting in with friends becomes more important. The give and take of a group requires a skill in picking up non-verbal messages that Aspergers kids just do not have, even though their understanding of what’s being discussed will be as good as anyone’s. As a result, Aspergers kids get isolated and often bullied.

By the time they reach adolescence, most Aspergers kids will realize they are fundamentally different to others at school but, unless diagnosed, will not understand why. Many autistic people are unaware of other people - but not Aspergers kids. Being rejected, repeatedly, by their contemporaries really hurts Aspergers kids. Not surprisingly, many become severely depressed – and may resort to self-injury. This leads me to suspect (but I have not found any research on this) that more than 1 in 200 of those who self-injure may be Aspergers kids.

Aspergers kids have most difficulty when things are new or strange. They find unpredictability really stressful. So they hate change and uncertainty. Rather Aspergers kids are creatures of habit: liking always to go the same way to school, always to sit in the same place, and preferring old clothes.

Aspergers kids are very rational people – they are wonderfully resistant to those who manipulate emotions. Talking about what’s making them depressed or why they self-injure is really stressful for an Aspergers youngster. An Aspergers youngster would find it more useful to have guidance on how to cope with irrational – i.e., ordinary – people. But most of all, Aspergers kids just want to be accepted as they are: people who, unlike most others, actually mean what they say.

My Aspergers Child: Preventing Meltdowns

9 comments:

Anonymous said...

My daughter is 5 years old with an ASD diagnosis and will be entering kindergarten in a few weeks. She is verbal, with a verbal testing score of 118, which makes me wonder if her diagnosis is asperger's. The main issue is her anxiety.
She is currently biting the skin on her fingertips. This is a new behavior, and when asked why she does this, her response is she is scared to start school because of mean kids. She has a history of self injurious behaviors including head banging and jumping really hard. Would this new behavior be considered a self injurious behavior?

I was thinking of having her anxiety evaluated by a mental health professional. Should I take her to a psychologist vs. a psychiatrist?
Any other advice you can give would be extremely helpful. By the way, she does not currenlty receive direct ABA services, but the ABA does provide parent training, Would direct ABA services be helpful?

Anonymous said...

This really concerns me. My son is 13. He is in 8th grade and started a new school this year. He is having a VERY difficult time adjusting to his new surrondings. With his Aspergers, and having been diagnosed with Severe Anxiety as well, depression and self mutiliation are 2 things that really worry me about him. More so when he is sitting staring off at nothing with a blank expression on his face. I know he is going through a very confusing time right now, with puberty and having girls chase after him and what not. It freaks him out. I try to explain to him that the feelings and thoughts he is having about girls is perfectly normal, but I don't think he is fully grasping it. He is embarassed about the changes hapening with his body as well. I fear that with everything he has going on in his life right now, that depression is a very real possibility for him. As someone who has suffered with depression for many many years, I do not want that for him. I do not know how to get him to open up to me about what he is thinking. I have given him a journal to write his thoughts. We have made a thought box for him to put his feelings into on paper. I am parenting him on my own. If anyone has any thoughts or suggestions, I would greatly appreciate it Thank you.

Anonymous said...

My son is almost 14. He has Aspergers. He is not depressed and has never self-mutilated. That is frightening to even think about. As far as puberty kicking in and it heightening the anxiety and already dealing with Aspbergers, it has been challenging. I really dont know if there is any advice like a play by play book or something. I really think it is so unique to the individual and taken one day at a time. I would suggest maybe having a time each day that your son tell you somethings that are concerning him with school and things that happened that day and how he feels about it. This allows him to get the feelings out, which helps to calm them, and it lets them tell you situations that you can help explain to them which also helps calm them. They of course dont easily read situation and they are confusing, so when we can explain them it helps them know that everything is okay, and we teach them how to process life and deal with it. I am constantly reminding my son about social situations and what is okay, and what is not okay. I just feel like constant repetition and explaining to them how and why and what the social rules are, teaches them because it does not come natural for them. They get stressed out when they dont know how to process all the junk.

Anonymous said...

as far as girls....I caught him trying to look at a girl on tv the other day and he just started laughing....I was like "what?!" He was kind of embarrassed and thought he was pretty funny being a goofball and looking at her. His sister likes to tease him, but i have told him that it is normal to like girls and while I dont encourage him to run out and find a girlfriend because he is way too young, I have let him know it is a safe place with his dad and I for him to process his feelings about girls and to comment if he thinks they are pretty. He likes to tell his dad not to tell me when he thinks a girl is pretty :)

Anonymous said...

My son is 13 & just started secondary school. He's having meltdowns, started having suicidal thoughts & started hitting himself. None of which he's ever done before, in fact he was the posterboy for early intervention! It's hard watching him regress!

Anonymous said...

My son is 18 years old, he use to bite himself, or hit people around him!.. it is so difficult to me, but my son says "sorry I can't control myself cause I'm Asperger"...

Anonymous said...

He has had a girlfriend, she was his whole world, and him hers. i've seen him hold doors for her, walk her home everynight, even thou he was afraid of the dark, made sure she was always happy. He was the erfect gentleman with her. On the other hand, she was the one who could always keep him in line, when he stressed about something, no matter what it was, she was always there to make hiim feel better and help him through it. They were inseperable. Unfortunatly we had to move away. I know that was very hard for him. I am terrified for him to start high school next year. I am afraid that he is going to do whatever it takes to fit in.

Anonymous said...

Please help! Anyone else dealing with their Aspie child expressing frustration by saying "I'm going to punch myself" or banging their head on doors/walls like if I say no to something. Not sure the best way to handle this. Have tried explaining to my 8 year old Aspie that it's an unexpected behavior and there are other ways to express anger/frustration, doesn't seem to be helping!

Anonymous said...

I have an 8 year old Aspie too. He has become very quick to anger and frustration lately!! It's alarming! He doesn't threaten to hurt himself (thank goodness) but he does threaten to run away or never talk again or other very grown-up sounding threats. It's so hard for me because it's like he is a 30 year old inside a little boys body sometimes! Talking with him calmly doesn't seem to help. I'm not sure what to do with this frustration he has. He seems angry at me a lot lately which is so sad because I love him SO much! I think I am going to call his psychiatrist and ask about a good behavior therapist that might be able to help. I certainly cannot figure it out and probably because I am so emotionally attached. I wish you all the best. If I were you I would take your son to a "safe room" in the house when he threatens to hurt himself and just explain plainly, "I love you too much to let you hurt yourself. When you can calm down, you can come out." Maybe that will help? I don't know since it involves potential physical pain... Stick with it. You are a GREAT mommy, I am sure!!

My child has been rejected by his peers, ridiculed and bullied !!!

Social rejection has devastating effects in many areas of functioning. Because the Aspergers child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually. Thus, the best treatment for Aspergers children and teens is, without a doubt, “social skills training.”

Click here to read the full article…

Parenting Defiant Aspergers Teens

Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

The standard disciplinary techniques that are recommended for “typical” teenagers do not take into account the many issues facing a child with a neurological disorder. Violent rages, self-injury, isolation-seeking tendencies and communication problems that arise due to auditory and sensory issues are just some of the behaviors that parents of teens with Aspergers will have to learn to control.

Parents need to come up with a consistent disciplinary plan ahead of time, and then present a united front and continually review their strategies for potential changes and improvements as the Aspergers teen develops and matures.

Click here to read the full article…

How to Prevent Meltdowns in Aspergers Children

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But...

Don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

If your child suffers from Asperger’s Syndrome, expect him to experience both minor and major meltdowns over incidents that are part of daily life. He may have a major meltdown over a very small incident, or may experience a minor meltdown over something that is major. There is no way of telling how he is going to react about certain situations. However, there are many ways to help your child learn to control his emotions.

Click here for the full article...

Aspergers Children “Block-Out” Their Emotions

Parenting children with Aspergers can be a daunting task. In layman’s terms, Aspergers is a developmental disability that affects the way children develop and understand the world around them, and is directly linked to their senses and sensory processing. This means they often use certain behaviors to block out their emotions or response to pain.

Although they may vary slightly from person to person, children with Aspergers tend to have similar symptoms, the main ones being:

=> A need to know when everything is happening in order not to feel completely overwhelmed
=> A rigid insistence on routine (where any change can cause an emotional and physiological meltdown)
=> Difficulties with social functioning, particularly in the rough and tumble of a school environment
=> Obsessive interests, with a focus on one subject to the exclusion of all others
=> Sensory issues, where they are oversensitive to bright light, loud sounds and unpleasant smells
=> Social isolation and struggles to make friends due to a lack of empathy, and an inability to pick up on or understand social graces and cues (such as stopping talking and allowing others to speak)

Click here to read the full article…

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