Education and Counseling for Individuals Affected by Autism Spectrum Disorders

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Aspergers Research: Projects Seeking Participants

Online survey - looking for participants from throughout the United States

A collaboration of programs and agencies, including the Delaware Division for Developmental Disabilities and the Delaware Department of Education, are interested in the nutritional and dietary needs and concerns of kids with autism. During the past decade, a number of professionals, families, and advocates have raised numerous questions about the impact of nutrition and diet on the development of kids with autism. Your assistance with determining these needs and concerns is critical.
Click Here to complete the survey

  • York University: Steinhardt School of Education
    Department of Applied Psychology

Asperger Syndrome and Parenting - Online Survey

Seeking Moms & dads of kids ages 5 to 16 yrs. old who have been identified as having Asperger Syndrome.

Moms & dads are invited to take part in a research study to learn more about moms & dads of kids with Asperger Syndrome and their parenting experiences. This study will be conducted by Jeanne Angus, Applied Psychology, Steinhardt School at New York University, as part of her doctoral dissertation. Her faculty sponsor is Samuel Juni, Ph.D, Applied Psychology, Steinhardt School at New York University.

To participate in this online survey please go to:

NOTE: A password is needed to gain access to the website. The password is: asperger

  • Columbia University Programs in Occupational Therapy

Asperger Syndrome Siblings: A Survey of Moms & dads' Perceptions of their Understanding of the Illness, Sibling Relationships and Need for Support Services" - Online Survey

Graduate Occupational Therapy students under the supervision of Emily Raphael, M.S., M.A., OTR/L, are conducting research into the needs of siblings of kids diagnosed with Asperger syndrome (AS). This online survey asks questions relating to siblings' adjustment and support, and their relationship with their brother or sister who has been diagnosed with AS. We believe that an appreciation of siblings' experiences will lead to more effective and greater support for these kids and their families.

We are interested in hearing from primary care givers who have at least one child with AS, who has at least one sibling, both over the age of 6. The survey should take approximately 20 minutes. Responses will be completely confidential and anonymous, and no personal identifying information is required to participate.

To participate in the survey please go to:

If you have any questions about this research please do not hesitate to contact us at or call us at (212) 342-2743.

  • Hofstra University, Hempstead, New York
    Clinical/School Psychology Ph.D. Program

Attention: Moms & dads of Kids with Diagnosed with Autism, Asperger’s Disorder, or Pervasive Developmental Disorder (PDD)
Dawn Middleton, M.A., Doctoral Candidate and Liora Pedhazur-Schmelkin, Ph.D., Vice Provost for Academic Affairs, are currently examining parental experience and opinions of educational placements for kids with autism spectrum disorders. We are asking that moms & dads or guardians of kids diagnosed with an autism spectrum disorder (Autism, Asperger's Disorder, or Pervasive Developmental Disorder (PDD)) participate in this study by completing an online questionnaire.

If you choose to participate, you will be asked to complete the following questionnaire, which will take approximately 20 minutes. No further participation is necessary. You will not be asked to supply any personal identifying information. All results will be reported in terms of group responses and no individual responses will be reported You may access the questionnaire by clicking on the following link:

If you have any questions about this research please do not hesitate to contact Dawn Middleton at

  • Davis M.I.N.D. Institute, Sacramento California

Moms & dads: We need your help!
The UC Davis M.I.N.D. Institute's clinical research program is seeking kids of all ages (birth to adulthood) to participate in our studies. The research team is seeking participants with neurodevelopmental disorders, developmental delays, or typical development. In addition to helping our understanding of neurodevelopmental disorders, participants benefit from state-of-the-art assessment techniques and feedback from clinical researchers. Some studies also offer financial compensation.

For more information , please contact Meridith Brandt at (916) 703-0320 or go to

  • University of Cambridge - UK
    Autism Research Centre
    Asperger Syndrome (AS) Sibling Pair Project

We are looking for adults or kids who are diagnosed with AS to take part in a new genes project, along with their brothers and sisters.

This new worldwide study involves collecting a DNA sample and a questionnaire from individuals with Asperger Syndrome and their biological brothers and sisters. Providing a DNA sample is quick, easy and a completely painless process. This research may enable us to identify specific genes involved in Asperger Syndrome, furthering our understanding of the condition and possibly leading to earlier diagnosis.

For further information please see:
Or email Sally Wheelwright:

  • Massachusetts General Hospital, Charlestown, Massachusetts
    Yale Child Study Center, New Haven, CT,
    University of Chicago, Chicago, IL
    University of Michagan, Ann Arbor, MI
    High-Functioning Autism/Asperger Syndrome Study:
    Neurobiology and Genetics of Autism and Related Disorders

The goals of this research are to better define the boundaries and clarify the distinctions between HFA and AS, as well as to indentify familial patterns of inheritance in these two disorders. This study is a collaborative effort and includes our site at McLean Hospital as well as sites as the Yale Child Study Center, The University of Chicago, and the University of Michigan. This investigation is supported through the NICHD and was just awarded funds for another 5 years of study.

We are currently enrolling families with at least one child between the ages of 6 and 21 with a diagnosis of High Functioning Autism or Asperger Syndrome (IQ >70), and no other significant disorders.

For more information on how you can participate go to:

  • Texas Woman's University, Dallas/Ft. Worth, Texas
    Kids Diagnosed with Asperger's Syndrome or High Functioning Autism and their Families
    Best Practices for Psychological Assessment of Kids and Adolescents with PDD's, Parenting Role, and Marital Relationship Impact.

Research Project Overview:
The research team is led by Kathy Deornellas, Ph.D., and Melinda Lang, Ph.D., of Texas Woman's University. The purpose of this research is to add to the body of knowledge concerning the best practices for psychological assessment of kids and adolescents who have been diagnosed with pervasive developmental disorders (PDDs), specifically High Functioning Autism and Asperger's Syndrome. The research will also examine the impact of having a child with PDD on their moms & dads' satisfaction with the parenting role and the marital relationship. The team hopes to find specific patterns that may assist in earlier identification of kids with these disorders.

The research team is looking for kids and their moms & dads in the Dallas/Ft. Worth area who are interested in contributing to the current body of knowledge of pervasive developmental disorders.
Kids who participate should have the following qualifications:

    • Ages 8-18 years old
    • Current diagnosis of a pervasive developmental disorder (PDD), specifically High Functioning Autism or Asperger's Syndrome
    • Intellectual or adaptive skills within or above the average range

The assessment will take place at a location most convenient for the family. Moms & dads will receive a verbal interpretation of the child's assessment results at the conclusion of the study.

For more information contact:
Kathy DeOrnellas, Ph.D.
Toll Free: (888) 948-9984 X2315
In Denton: (940) 898-2315
Team Email:

  • Fordham University, New York, NY
    Graduate School of Social Service
    Moms & dads of Kids with Asperger's Syndrome: Challenges, and Needs in Service Delivery - An Exploratory Study.

Ernst VanBergeijk, Ph.D. and his colleagues at Fordham University are conducting a series of focus groups with moms & dads of kids with Asperger's Syndrome (AS). Parental coping and family organization have been shown to have strong links to positive mental health outcomes of kids with disabilities. The purpose of this qualitative study is to explore the perceptions, coping strategies, and family functioning of moms & dads of kids with AS, and how existing support systems impact their family functioning. Participants would be asked to attend one focus group that would last approximately 1.5-2.0 hours. They would also be asked to complete a short anonymous questionnaire concerning family demographics. If you are a parent of a child with AS who is under 25 years of age and are interested in participating in the study, please contact Ernst VanBergeijk at 212-636-7784 or e-mail to: Childcare and Metrocards are available to interested families participating in the study. As a token of appreciation for their time, participating moms & dads will receive a $25 gift certificate to the Autism Asperger Publishing Company Website.

  • University of California San Diego and San Diego State University

Dr. Jeanne Townsend at the University of California San Diego, Dr. Axel Mueller at San Diego State University, and their colleagues, are working together to learn more about brain functioning in autism. These studies are funded by the National Institutes of Health.
We are looking for individuals with autism or Asperger's Syndrome who live in the San Diego area. We are seeking kids, adolescents, and young adults (age 10 and up) for studies that will involve performing behavioral tasks while having your EEG recorded or during a functional magnetic resonance imaging (FMRI) session.
Qualified participants will receive a diagnostic and psychological evaluation from a clinical neuropsychologist. Results from clinical testing will be made available. There is no cost to participate. Participants will be paid for their time. For more information, please contact:

Natacha Akshoomoff, Ph.D.
Assistant Professor
Dept. of Psychiatry
University of California, San Diego
(858) 622-1805
email to:

  • NIH Center of Excellence in Autism at The University of Pittsburgh
    Pittsburgh Collaborative Program of Excellence in Autism

You are invited to consider participation in ongoing research projects studying how people with autism think and the genetic link to autism. Studies include: How People with Autism Think and How the Brain Works, Finding The Genes for Autism, Family Study, and Infant Study.

For more information on specific studies and how you can participate, please Click Here

  • University of Kansas
    Adults with Asperger Syndrome Study

This study will examine the preferences of adults (age 20 and older) who have Asperger syndrome. Individuals who participate in the study will be asked about their likes and dislikes, and preferences in their daily lives including home, work, and free time. In addition they will be asked for information about their life history and sensory needs. It is our hope that we will have many participants since this study will be the first of its kind. This study is sponsored by researchers at the University of Kansas.

All information will be gathered by mail using surveys and questionnaires. Participants will be sent questionnaires through the mail with return postage paid envelopes provided for their convenience. All information will be confidential. Individuals will receive the results of their surveys and questionnaires. If you are 20 years old or older and have Asperger syndrome, please email the researchers if you are interested in participating in this study. The contact email address for this survey is:

  • University of Kansas
    Kids and Youth With Asperger Syndrome Study

Brenda Smith Myles, Ph.D. and her colleagues at the University of Kansas are undertaking two large-scale studies to better understand kids and youth with Asperger Syndrome in order to plan effective interventions.

The first study will involve completion of surveys and interviews via phone by moms & dads and kids/adolescents. Brenda and her colleagues will assist in these tasks. In the second study, kids/adolescents with Asperger Syndrome will be provided with a software program that teaches emotions and will be asked to use it for 2 hours per week for 10 weeks.

Moms & dads who have kids with Asperger Syndrome (ages 8 to 18) who are interested in learning more about the study are asked to contact Brenda at .

  • The Seaver and New York Autism Center of Excellence

Exciting research projects for kids and adolescents with Autism, Asperger's and PDD. In studying medication treatments, the focus is on treating specific core symptoms, including compulsive behaviors, social deficits, and language deficits. The medications aim to reduce anxiety, repetitive behaviors, irritability, aggression, impulsivity, and self-injurious behavior. The research studies offer comprehensive diagnostic testing, neuropsychological assessment, and frequent visits with child psychiatrists to closely monitor subjects and assess change over 8 to 12 weeks depending on the study at no cost to participants.

If you would like more information, please visit: or contact Karen Zagursky, (212)241-7098.

GCO# 99-364(IRB Approved 6/25/03 to 5/31/04)

  • Mount Sinai School of Medicine – Neuroscience PET Laboratory

Research Study: “Diffusion Tensor Imaging in Autism and Asperger’s Disorder”

(GCO# 00-0951, IRB approved through 7/31/04)

We are looking for individuals with autism and/or Asperger’s Disorder (18- 40 years old) in the New York City area to participate in a neuroimaging research study. The purpose of this study is to learn more about which areas of the brain are involved in attention and how they connect with each other. By learning more about the mechanisms of attention, the investigators may help the discovery of new treatments for autism, Asperger’s Disorder, and other neurological and psychiatric illnesses.

Your participation will involve three visits to Mount Sinai School of Medicine. The first visit will involve a diagnostic interview to clinically verify your diagnosis. In addition, you will receive a Positron Emission Tomography (PET) scan and a Magnetic Resonance Imaging (MRI) scan on separate days.

If you receive both PET and MRI scans you will receive $200 in reimbursement for your time and expenses. You will receive $100 if you only have one of the scans.

If you are interested in participating in our research study or if you have any questions, please contact Liz LiCalzi at 212-241-6314 or email

For more information about the Neuroscience PET Laboratory visit our website:

  • Stanford University - Neuro-imaging Laboratory
    Social Understanding Difficulties

We are looking for young men of normal intelligence 10-18 years of age with social understanding difficulties (as seen in Non-Verbal Learning Disorder, Asperger's Syndrome, High Functioning Autism and Pervasive Development Disorder-Not Otherwise Specified) in the San Francisco and Bay Area and their families to participate in a genetic study.

This study is of Social Understanding Difficulties so we need young men with and without the one of the above diagnosis. We are extremely interested in abilities or strengths that we believe might be associated with social understanding difficulties.

The young men and their families would be asked to complete a social screening questionnaire, undertake some related tasks and donate a small amount of blood for genetic study. This can be done at your home or Stanford University - in the evenings or weekends if more convenient.

There will also be a smaller brain imaging part to the study and some young men may be asked if they would like to have their brains scanned!

Contact: Judith Piggot, an Adolescent Psychiatrist doing research at Stanford University, by Email at: or phone: (650) 498 4660.

  • Yale University-LDA Social Learning Disabilities Project

Stand Up and Be Counted:
Help Yale University Determine How Many Are Dx with AS
Click Here For Information and Single Question Survey.

  • Yale University Child Study Center in conjunction with LDA, is involved in a long-term Asperger Syndrome Research Project. They are actively seeking participants. Visit this page for information on this project and how you can participate.

  • University of Florida - Psychology Department

Seeking Video Tapes of Infants (up to 15 months) of individuals now diagnosed with AS

In our earlier work, we have shown that movement patterns as early as 6 months of age are reliable markers for diagnosing kids at risk of autism. We believe people with AS display the same movement disturbances and therefore can be diagnosed much earlier than is typical by current methods. WE NEED VOLUNTEERS! If you have been diagnosed with AS, or you are a parent with such a child and have home videos taken in infancy (up to 15 months) and are willing to share these videos, please contact us. Videos will copied and the originals will be returned.

Professor Philip Teitelbaum
Psychology Department
P.O. Box 112250
University of Florida
Gainesville, FL 32611 e-mail:

  • University of Wisconsin-The Waisman Center & Brandeis University - Heller School for Social Policy and Management

Adolescents and Adults with Autism: A Study of Family Caregiving
This project, funded by National Institute of Health, is a "... study of 400 families of people with autism who live in Wisconsin and Massachusetts. Our goals are to describe the quality of life of these families, to assess the extent to which their service needs are adequately met, and to examine the plans they have made and put into place for the future"

For more information visit their web site at:

  • University of Cambridge, Cambridge, U.K.

Volunteers Needed for Research Into Asperger Syndrome
We are a team of psychologists at Cambridge University carrying out research studies into Asperger Syndrome (AS). These studies are investigating cognitive aspects, behaviour and personality. Many of these studies simply involve filling in questionnaires and returning them (in prepaid envelopes). Others involve being assessed by one of our team. We would like to hear from moms & dads of childen and teens with AS or HFA and adults with AS or high functioning autism who are interested to receive further details about these different studies (with no committment on your part). If you are interested, please contact Dr. Simon Baron-Cohen by e-mail, visit their web site at Autism Research Centre, or by mail:

Professor Simon Baron-Cohen
Autism Research Centre
Section of Developmental Psychiatry
University of Cambridge
Douglas House
18b Trumpington Road
Cambridge, UK

  • Seaver Center for Autism Research and Treatment, New York, New York
    Mount Sinai School of Medicine
    One Gustave L. Levy Place, Box 1230
    New York, NY 10029-6574
    Katherine Barboza, Research Coordinator
    Phone: (212) 241-7098
    Fax: (212) 987-4031

This webpage was created by the Autism/PDD research team at Chedoke McMaster University, Hamilton, Ontario, Canada. For the past 15 years, Dr. Peter Szatmari and his team have been conducting a variety of research studies in the area of Autism, Asperger Syndrome and PDD. Their page contains information on their research studies, research newsletters, educational resources and more. They are currently seeking participants from families who have two or more kids the autism/PDD.

  • Current Autism Research Projects This is a link to The Autism Research Foundation's web site. Here you'll find information on several ongoing research projects.

  • Autism Research Institute "ARI is primarily devoted to conducting research, and to disseminating the results of research, on the causes of autism and on methods of preventing, diagnosing and treating autism and other severe behavioral disorders of childhood." -This site also includes information on B6 Vitamin Therapy, MSG, and Secretin.

  • Autism Treatment Awareness This survey by David Donnelly from SUNY at Geneseo is looking at awareness of Autistic Spectrum Disorder treatments and interventions.

National Research Organizations—

  • C.A.N. Cure Autism Now. This is a national research and advocacy organization.
  • NAAR National Alliance for Autism Research. This is a national autism research foundation.
  • NICHCY National Information Center for Kids and Youth With Disabilities. Link to their Autism/PDD Page Contact them for an information package concerning Asperger's Syndrome.
  • Bibliography Follow this link to National Institute of Health PubMeD Retrieval for a list of current research papers and abstracts.

1 comment:

Anonymous said...

I think there are studies done that show differences between NT brains and the brains of an autistic person. I have seen studies showing that they often use different parts of their brain to deal with questions or feelings or language vs. the NT brain. Someone sent me a link to read not long ago but I can't remember where or what so I can look it up and post it. At any rate, it was something about the rapid growth of the brain in children with autism, which I have heard about a few times over the years.

We have only had one of our ds's get a brain MRI - they had suspected seizures at the time so it seemed a good idea to have a look. All they came back with was a lot of problems in the frontal lobe especially, excess white matter and really, the report was very upsetting to me - the average lay person who has no clue. lol. (You know, is white matter a bad thing? How much is too much? I don't know! lol) I remember they even called to say there were "problems with his brain" and we needed to come in and have the MRI repeated with a bigger better doctor there. How rude to even say that to a parent, I might add. We were really flipping out at the time. So I do think in my own situation, yes there is a difference that it noted. What does it mean? even they had little idea why it was like that and what it means in practical terms. I asked a lot of questions and got a lot of "We don't know that yet...." or "studies suggest it might...." My ds is gifted, hyperlexic and autistic. So it's all very puzzling. I hope they continue studying this stuff to figure it out!!

They wanted to study our other ds's brain (he also has HFA) after the younger one came back unusual. But it was so incredibly stressful that we declined. A person can handle only so much. It would be interesting to know but we were really stressed out at the time and could not have dealt with any more of this. and mostly, since they had no information to tell us about what they were seeing, it didn't seem like it was worth the effort. I remember telling my close friends - "great, he has goobers on the brain, we have no clue what that means." He couldn't talk back then either and was definitely autistic. So it was very upsetting and I worried it meant that he would not improve. of course, he later gained a lot of ground quickly. But at the time, it was pretty bleak.

My child has been rejected by his peers, ridiculed and bullied !!!

Social rejection has devastating effects in many areas of functioning. Because the Aspergers child tends to internalize how others treat him, rejection damages self-esteem and often causes anxiety and depression. As the child feels worse about himself and becomes more anxious and depressed – he performs worse, socially and intellectually.

Click here to read the full article…

How to Prevent Meltdowns in Aspergers Children

Meltdowns are not a pretty sight. They are somewhat like overblown temper tantrums, but unlike tantrums, meltdowns can last anywhere from ten minutes to over an hour. When it starts, the Asperger's child is totally out-of-control. When it ends, both you and the Asperger’s child are totally exhausted. But... don’t breathe a sigh of relief yet. At the least provocation, for the remainder of that day -- and sometimes into the next - the meltdown can return in full force.

Click here for the full article...

Parenting Defiant Aspergers Teens

Although Aspergers is at the milder end of the autism spectrum, the challenges parents face when disciplining a teenager with Aspergers are more difficult than they would be with an average teen. Complicated by defiant behavior, the Aspergers teen is at risk for even greater difficulties on multiple levels – unless the parents’ disciplinary techniques are tailored to their child's special needs.

Click here to read the full article…

Aspergers Children “Block-Out” Their Emotions

Parenting children with Aspergers and HFA can be a daunting task. In layman’s terms, Aspergers is a developmental disability that affects the way children develop and understand the world around them, and is directly linked to their senses and sensory processing. This means they often use certain behaviors to block out their emotions or response to pain.

Click here to read the full article…

Older Teens and Young Adult Children With Aspergers Still Living At Home

Your older teenager or young “adult child” isn’t sure what to do, and he is asking you for money every few days. How do you cut the purse strings and teach him to be independent? Parents of teens with Aspergers face many problems that other parents do not. Time is running out for teaching their adolescent how to become an independent adult. As one mother put it, "There's so little time, yet so much left to do."

Click here to read the full article…

Living with an Aspergers Spouse/Partner

Research reveals that the divorce rate for people with Aspergers is around 80%. Why so high!? The answer may be found in how the symptoms of Aspergers affect intimate relationships. People with Aspergers often find it difficult to understand others and express themselves. They may seem to lose interest in people over time, appear aloof, and are often mistaken as self-centered, vain individuals.

Click here to read the full article…

Online Parent Coaching for Parents of Asperger's Children

If you’re the parent of a child with Aspergers or High-Functioning Autism, you know it can be a struggle from time to time. Your child may be experiencing: obsessive routines; problems coping in social situations; intense tantrums and meltdowns; over-sensitivity to sounds, tastes, smells and sights; preoccupation with one subject of interest; and being overwhelmed by even the smallest of changes.

Click here to read the full article...

Unraveling The Mystery Behind Asperger's and High-Functioning Autism

Parents, teachers, and the general public have a lot of misconceptions of Asperger's and High-Functioning Autism. Many myths abound, and the lack of knowledge is both disturbing and harmful to kids and teens who struggle with the disorder.

Click here to read the full article...

Parenting Children and Teens with High-Functioning Autism

Two traits often found in kids with High-Functioning Autism are “mind-blindness” (i.e., the inability to predict the beliefs and intentions of others) and “alexithymia” (i.e., the inability to identify and interpret emotional signals in others). These two traits reduce the youngster’s ability to empathize with peers. As a result, he or she may be perceived by adults and other children as selfish, insensitive and uncaring.

Click here
to read the full article...

Highly Effective Research-Based Parenting Strategies for Children with Asperger's and HFA

Become an expert in helping your child cope with his or her “out-of-control” emotions, inability to make and keep friends, stress, anger, thinking errors, and resistance to change.

Click here for the full article...

My Aspergers Child - Syndicated Content